Re: Gluten Free diets?

[Guest guest]

Hi Marcie, welcome. No we haven't tried any diets. I am raising my grandson

who is 14yrs old with Asperger/Bipolar. Sorry I can't help you but

someone on here will get back to you on this. Take care,Betty

Marcie <marciemarie2000@...> wrote:

Hi. I;m pretty new here. My name is Marcie and I have a 6 year old son

with Aspberger's. We're currently jumping through all of the hoops in

order to get wrap around care. Any how One of his doctors mentioned a

gluten free cratein free diet. I've been looking at information about

it but I would really like to hear from anyone that has tried it.

Thanks so much!

Marcie

---------------------------------

Get your own web address.

Have a HUGE year through Small Business.

[Guest guest]

Hi,

Check out this website:

http://www.thetherapyplace.net/newsletter/newsletter.pdf

Marcie <marciemarie2000@...> wrote:

Hi. I;m pretty new here. My name is Marcie and I have a 6 year old son

with Aspberger's. We're currently jumping through all of the hoops in

order to get wrap around care. Any how One of his doctors mentioned a

gluten free cratein free diet. I've been looking at information about

it but I would really like to hear from anyone that has tried it.

Thanks so much!

Marcie

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[Guest guest]

Hi Marcie,

I also have a 6 yr old son with Asperger's and I looked into the diet about a

year ago. What I did first was have my son tested for alergies and found out he

was alergic to soy and cats. Not sure if alergies for wheat (gluten) or milk

(casien) would promote a need to put someone on the diet - anyone out there have

any ideas on this? At that time I decided not to try (there's a lot of

work....and planning involved). I do have a friend whose son has low functioning

autism and she's had her son on the diet for a couple of years and she swears by

it.

Also, there was a simple urine test that could be done to measure the 'peptide'

levels (which I believe are indicators of not digesting these items

efficiently). Problem is, I couldn't find a local lab (e.g. Quest) or a Dr. who

was familiar with the test and would perform it......

-------------- Original message from " Marcie " <marciemarie2000@...>:

--------------

Hi. I;m pretty new here. My name is Marcie and I have a 6 year old son

with Aspberger's. We're currently jumping through all of the hoops in

order to get wrap around care. Any how One of his doctors mentioned a

gluten free cratein free diet. I've been looking at information about

it but I would really like to hear from anyone that has tried it.

Thanks so much!

Marcie

[Guest guest]

Hello Marcie,

Well I can only speak from what our experience has been. First I

will just give you a hopefully as short as possible run down of

events. Our son Trevor was first dx with type 1 (juvenile) diabetes at

the age of 16mts old. It was a struggle to count carbs and give

insulin constinantly to a toddler. Then three years after that we had

Trace. When Trace was 14mts old he started becoming very sick and it

took the doctors a month to find out he had celiac disease (gluten

intolerance). He was way to fragile with only weighing 19lbs by the

time they figured out what was wrong with him at 15mts old we never had

a biobsy done. Everything I had read about the disease said it was

hereditary and that since it was an auto-immune disease that some

people who have type 1 diabetes or celiac develope the other. So Trace

was dx in March, the end of May Trevor had his quartly appt. with his

endo dr and I told him what had been going on. Trevor had to have his

yearly blood work done anyway so they ran the test for celiac. It came

back positive. I took me and the older two in and mine was extremely

positive. We immediately all went on the gluten free diet. This was

the middle of June and within three months we could tell a difference

in Trevor. He was more responsive to my husband who he normally

ignored or didn't want anything to do with and he wasn't having as many

meltdowns. We had always thought he had the meltdowns due to his blood

sugars being all over the board. Trevor started kindergarten that Aug.

but wasn't doing as well as we had thought he would. So I requested

the school test him for learning problems. In May last year we got the

results and that is when the school psychologist stated she seen signs

in Trevor for Asperger's. Did the whole paper work for Children's and

just now had our evaluation in Jan. He was dx with High functioning

Autism/ ADHD-NOS and a reading disorder.

I do feel that it has made things better for him being on the

gluten free diet. He is very picky anyways so it hasn't been an easy

transition. I haven't had the heart to take dairy out of his life as

her really likes milk plus he loves cheddar cheese and that is one

thing that doesn't have sugar that he can eat as much of as he wants

and not have his blood sugar tested and given insulin.

I think haveing allergy tests done too would be a good idea. I

think I may have Trevor tested. I had myself and Trace tested to as

Trace was having extreme problems last year and wanted to know if he

was allergic to anything. Had to get rid of our two cats. No food

though was on the high or medium side, thank goodness. If you need any

help with the diet there is tons of websites and places to purchase

things. Hope this all helps and if you need anything let me know.

Darcy

>

> Hi. I;m pretty new here. My name is Marcie and I have a 6 year old

son

> with Aspberger's. We're currently jumping through all of the hoops in

> order to get wrap around care. Any how One of his doctors mentioned a

> gluten free cratein free diet. I've been looking at information about

> it but I would really like to hear from anyone that has tried it.

> Thanks so much!

> Marcie

>

[Guest guest]

Hi Marcie: My kids are Gluten and Casein (milk protein) Free for 18+

months. Got there by way of vomiting and moodiness/emotional outburts

with associated Asperger behavior issues. Asperger's plus other issues.

You could do allergy testing BUT your son could still be sensitive to

Gluten and not test allergic. Entero Lab offers a stool test that is

proported to be more accurate than blood for Gluten. Good reports to

read on their site.

It is a diifficult diet to start and learning curve (ins & outs) is

steep but so far well worth inital effort on my part; I studied and

then decided one day to clean out Gluten (I put it in freezer) and

replace as I could find tolerable substitutes. No guarantees and lots

of sacrifices of $$$ and eating out, school events, etc.

It is a process. Some places to start might be www.gfcfdiet.com or

www.livingwithout.com (magazine, too)

-Ann

wrote:

>

> Hi. I;m pretty new here. My name is Marcie and I have a 6 year old

son

> with Aspberger's. We're currently jumping through all of the hoops in

> order to get wrap around care. Any how One of his doctors mentioned a

> gluten free cratein free diet. I've been looking at information about

> it but I would really like to hear from anyone that has tried it.

> Thanks so much!

> Marcie

>

[Guest guest]

My daughter is 5 and has been on the diet for 10 months. Prior to the

diet she had mod. autism. Now she is losing her autism diagnosis and

has mostly ADHD symptoms. We started enzymes in Sept. and have

challenged the diet. She can eat small amounts of gluten/casein with

the enzymes. Her gut has healed except for flare ups of yeast that

cause hyperactivity and yeast infections in her mouth and her bottom.

I give her GSE (grapefruit seed extract daily to combat the yeast).

We did not test, just cut out dairy first and then gluten in stages.

She had a huge response to no casein and a little response to no

gluten. If your child craves these foods and seems 'high' off these

foods, than the diet is most likely to work. But others respond with

less obvious signs of 'leaky gut'. It is worth a try.

Jen

>

> Hi. I;m pretty new here. My name is Marcie and I have a 6 year old

son

> with Aspberger's. We're currently jumping through all of the hoops

in

> order to get wrap around care. Any how One of his doctors mentioned

a

> gluten free cratein free diet. I've been looking at information

about

> it but I would really like to hear from anyone that has tried it.

> Thanks so much!

> Marcie

>

[Guest guest]

Hi Jen.

Do you have a site i can check out about this type of diet? I'm

interested in trying this. Besides dairy what other types of foods

does this include, etc.

Thx.

~Claudette

>

> My daughter is 5 and has been on the diet for 10 months. Prior to

the

> diet she had mod. autism. Now she is losing her autism diagnosis

and

> has mostly ADHD symptoms. We started enzymes in Sept. and have

> challenged the diet. She can eat small amounts of gluten/casein

with

> the enzymes. Her gut has healed except for flare ups of yeast

that

> cause hyperactivity and yeast infections in her mouth and her

bottom.

> I give her GSE (grapefruit seed extract daily to combat the

yeast).

> We did not test, just cut out dairy first and then gluten in

stages.

> She had a huge response to no casein and a little response to no

> gluten. If your child craves these foods and seems 'high' off

these

> foods, than the diet is most likely to work. But others respond

with

> less obvious signs of 'leaky gut'. It is worth a try.

>

> Jen

>

[Guest guest]

www.gfcfdiet.com and www.tacnow.com

Cut out all dairy first (milk, cheese, butter, yogurt, etc) wait a

week

Then cut out barley if any, wait a week, then oats, wait a week, then

wheat, wait a week, then cut out all hidden sources of gluten and

casein (look for the no-no list on the websites). My daughter mostly

ate cereal and fruit for awhile but then forgot what foods tasted

like and tried soy cheese/ milk. But some kids have a problem with

soy and cut it out. We just limited it by switching to almond milk

(tastes better) and only one serving of soy cheese/ pudding daily.

For my daughter yeast was a problem and I limited sugar to keep the

yeast down. Also it is helpful to cut out artificial

colors/nitrates. I mostly buy organic food and natural foods like at

Whole Foods (I can read the ingredients and there are at least half

as many).

Jen

> >

> > My daughter is 5 and has been on the diet for 10 months. Prior

to

> the

> > diet she had mod. autism. Now she is losing her autism diagnosis

> and

> > has mostly ADHD symptoms. We started enzymes in Sept. and have

> > challenged the diet. She can eat small amounts of gluten/casein

> with

> > the enzymes. Her gut has healed except for flare ups of yeast

> that

> > cause hyperactivity and yeast infections in her mouth and her

> bottom.

> > I give her GSE (grapefruit seed extract daily to combat the

> yeast).

> > We did not test, just cut out dairy first and then gluten in

> stages.

> > She had a huge response to no casein and a little response to no

> > gluten. If your child craves these foods and seems 'high' off

> these

> > foods, than the diet is most likely to work. But others respond

> with

> > less obvious signs of 'leaky gut'. It is worth a try.

> >

> > Jen

> >

>