Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I can't say I necessarily want a " cure " . I like my son the way he is and maybe it's because he is on the mild side of Aspergers but personally I think all that needs to be changed is the way I parent him. That's why he's not on any meds. I'm not sure exactly what they mean by a cure but don't meds somewhat " cure " the behavior. I'm sure meds are great for some but Ijust feel that I'd rather adjust my parenting techniques before I mess with what man made products go into my child's body. " Rathswohl, " <mrathswohl@...> wrote: Personally, while curing my sons autism would be great, it is part of who he is. Am I the only one who is worried taking about the quirky part of him would change him? Rathswohl Deaf Services Coordinator Dayle McIntosh Center 714 621 3300 x 341 voice 714 620 8370 fax mrathswohl@... NOTICE: This message, together with any attachments is intended only for the use of the individual or entity to which it is addressed and may contain information that is confidential and prohibited from disclosure. If you are not the intended recipient, you are hereby notified that any dissemination or copy reproduction of this message is strictly prohibited. If you have received this message in error, notify the original sender immediately and delete this message and any attachments from your computer If this communication involves discussion of patient care issues in the performance improvement process, it is protected from discovery by California Evidence Code 1157 as a confidential medical staff communication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I have to agree with you in some regards , there are many aspects of my son's autism that are some of his best attributes. I love his innocence and his honesty to a fault. He is so sweet and treats everyone well. And I love that he still gets excited about things that other kids his age couldn't care less about. Beck Re: ( ) Re:Autism Cure, huh? I can't say I necessarily want a " cure " . I like my son the way he is and maybe it's because he is on the mild side of Aspergers but personally I think all that needs to be changed is the way I parent him. That's why he's not on any meds. I'm not sure exactly what they mean by a cure but don't meds somewhat " cure " the behavior. I'm sure meds are great for some but Ijust feel that I'd rather adjust my parenting techniques before I mess with what man made products go into my child's body. " Rathswohl, " <mrathswohl@...> wrote: Personally, while curing my sons autism would be great, it is part of who he is. Am I the only one who is worried taking about the quirky part of him would change him? Rathswohl Deaf Services Coordinator Dayle McIntosh Center 714 621 3300 x 341 voice 714 620 8370 fax mrathswohl@... NOTICE: This message, together with any attachments is intended only for the use of the individual or entity to which it is addressed and may contain information that is confidential and prohibited from disclosure. If you are not the intended recipient, you are hereby notified that any dissemination or copy reproduction of this message is strictly prohibited. If you have received this message in error, notify the original sender immediately and delete this message and any attachments from your computer If this communication involves discussion of patient care issues in the performance improvement process, it is protected from discovery by California Evidence Code 1157 as a confidential medical staff communication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 i agree with you all as well. is three with autism. one of my fears with behavior mod was that we would crush his spirit. His spirit is what i admire so much about him. Granted his " spirit " makes it a bit tougher to parent but like was said before we need to adjust our parenting, not change our childrens core being, true personality. Perhaps its the Autism that contributes to who he is.. so be it. I love for who he is. I want to ensure he will be able to function on his own when that time comes. Iwanthim to understand howto be socially appropriate and yet not feel he has to change who he IS to do that. thats my goal. Not cureing him. <mkisses@...> wrote: What a refreshing point of view! I agree with you. My daughter is 12 with Asperger's, Mild MR (so she is more like 7 emotionally) and has a seizure disorder (it hit us when she started puberty). She is always eager to please, to see others happy, to save animals that people hurt on road or just let go cause they didn't want them anymore. She is sensitive to a fault but affectionate and still wants to hold my hand. She talks about never leaving me (we're working on SOME independence....lol) and does get excited about the small joys in life that other kids her age would not even notice let alone get excited about. I love her the way she is. In fact, I wish I could share in her innocence and joys of every little miracle around us. She is beautiful and amazing. Personally, while curing my sons autism would be great, it is part of > who he is. Am I the only one who is worried taking about the quirky part > of him would change him? > > Rathswohl > Deaf Services Coordinator > Dayle McIntosh Center > 714 621 3300 x 341 voice > 714 620 8370 fax > mrathswohl@... > > NOTICE: This message, together with any attachments is intended only for > the use of the individual or entity to which it is addressed and may > contain information that is confidential and prohibited from disclosure. > If you are not the intended recipient, you are hereby notified that any > dissemination or copy reproduction of this message is strictly > prohibited. If you have received this message in error, notify the > original sender immediately and delete this message and any attachments > from your computer > > If this communication involves discussion of patient care issues in the > performance improvement process, it is protected from discovery by > California Evidence Code 1157 as a confidential medical staff > communication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I have to agree with you all about the cure thing. I love my sons with all his quirks the way he is. He is SOOO loving and caring and his honesty is wonderful. He actually told me once that he was " forgetting " his homework cause he didn't want to do it. How much more honest can you get? >I agree. I am more excited about curing other individuals > misconceptions about Aspergers then change who I am (or my boys) the > Lower functioning kids, I would love to see something that could > help them so they could communicate and 'wake up'. > > I know this is a controversial subject, but one worth talking about. > > Let us fit into your world, I always say. Don't change me to fit in > to yours ;-) > > So, no. You aren't the only one ;-) > > *smiles* > B > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Has anyone ever heard of the Bio Cranial System? An office just opened up in the shopping center where I work and someone told me it helps with teeth grinding which is something I do in my sleep as well as my son. They were closed when I walked over there so I looked up their website (www.biocranial.com). It didn't list aspergers specifically as something that it helped with but it did list ADHD and a few other things for kids that it helps. Apparently it's making adjustments to the skull (kind of like a chiropractor but specifically for the skull). I would like to try it myself for the teeth grinding but I'm a bit more skeptical when it comes to something being done on my son. Anyone have any experience with this type of thing? Graves <inspiringmind@...> wrote: I have to agree with you all about the cure thing. I love my sons with all his quirks the way he is. He is SOOO loving and caring and his honesty is wonderful. He actually told me once that he was " forgetting " his homework cause he didn't want to do it. How much more honest can you get? >I agree. I am more excited about curing other individuals > misconceptions about Aspergers then change who I am (or my boys) the > Lower functioning kids, I would love to see something that could > help them so they could communicate and 'wake up'. > > I know this is a controversial subject, but one worth talking about. > > Let us fit into your world, I always say. Don't change me to fit in > to yours ;-) > > So, no. You aren't the only one ;-) > > *smiles* > B > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I am on the other side of the fence on this issue. Autism is not who my boys are. It is something that causes them a lot of trouble and heartache. They already are who they are and none of that is " thanks " to autism but despite autism. If they didn't have to struggle with language and anxiety they would be who they are now only better and with friends. I don't give autism credit for anything but causing a lot of problems in otherwise a perfectly nice people. That is why it is called a " disability. " It disables people. I can't attribute autism to good qualities in people. It may be because my kids have HFA and not AS. We did not even know if they would talk early on. It's been a struggle every step of the way. Autism will be at fault if they can't go on to live independent and happy lives. It won't be something we celebrate. We celebrate the child but not the autism. I also spend a lot of time with someone who has autism and not is not high functioning. So it doesn't seem very nice or helpful for him or his family. You know he is in there under all that autism. I guess I can't explain it but people should spend some time with those more affected before thinking that autism is a gift. Roxanna Re: ( ) Re:Autism Cure, huh? i agree with you all as well. is three with autism. one of my fears with behavior mod was that we would crush his spirit. His spirit is what i admire so much about him. Granted his " spirit " makes it a bit tougher to parent but like was said before we need to adjust our parenting, not change our childrens core being, true personality. Perhaps its the Autism that contributes to who he is.. so be it. I love for who he is. I want to ensure he will be able to function on his own when that time comes. Iwanthim to understand howto be socially appropriate and yet not feel he has to change who he IS to do that. thats my goal. Not cureing him. <mkisses@...> wrote: What a refreshing point of view! I agree with you. My daughter is 12 with Asperger's, Mild MR (so she is more like 7 emotionally) and has a seizure disorder (it hit us when she started puberty). She is always eager to please, to see others happy, to save animals that people hurt on road or just let go cause they didn't want them anymore. She is sensitive to a fault but affectionate and still wants to hold my hand. She talks about never leaving me (we're working on SOME independence....lol) and does get excited about the small joys in life that other kids her age would not even notice let alone get excited about. I love her the way she is. In fact, I wish I could share in her innocence and joys of every little miracle around us. She is beautiful and amazing. Personally, while curing my sons autism would be great, it is part of > who he is. Am I the only one who is worried taking about the quirky part > of him would change him? > > Rathswohl > Deaf Services Coordinator > Dayle McIntosh Center > 714 621 3300 x 341 voice > 714 620 8370 fax > mrathswohl@... > > NOTICE: This message, together with any attachments is intended only for > the use of the individual or entity to which it is addressed and may > contain information that is confidential and prohibited from disclosure. > If you are not the intended recipient, you are hereby notified that any > dissemination or copy reproduction of this message is strictly > prohibited. If you have received this message in error, notify the > original sender immediately and delete this message and any attachments > from your computer > > If this communication involves discussion of patient care issues in the > performance improvement process, it is protected from discovery by > California Evidence Code 1157 as a confidential medical staff > communication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I agree. My son is mild AS & will lead a kind of " normal " life. He'll likely go to college and do well, drive a car and have success in a career (one that suits him). I think he is so funny and some of it is the AS, he is kind of who he is because he is an AS kid. But, his life would be so much easier without AS. I'd love to have it cured because I know how much harder his teenage years and young adult years will be with AS. Roxanna <madideas@...> wrote: I am on the other side of the fence on this issue. Autism is not who my boys are. It is something that causes them a lot of trouble and heartache. They already are who they are and none of that is " thanks " to autism but despite autism. If they didn't have to struggle with language and anxiety they would be who they are now only better and with friends. I don't give autism credit for anything but causing a lot of problems in otherwise a perfectly nice people. That is why it is called a " disability. " It disables people. I can't attribute autism to good qualities in people. It may be because my kids have HFA and not AS. We did not even know if they would talk early on. It's been a struggle every step of the way. Autism will be at fault if they can't go on to live independent and happy lives. It won't be something we celebrate. We celebrate the child but not the autism. I also spend a lot of time with someone who has autism and not is not high functioning. So it doesn't seem very nice or helpful for him or his family. You know he is in there under all that autism. I guess I can't explain it but people should spend some time with those more affected before thinking that autism is a gift. Roxanna Re: ( ) Re:Autism Cure, huh? i agree with you all as well. is three with autism. one of my fears with behavior mod was that we would crush his spirit. His spirit is what i admire so much about him. Granted his " spirit " makes it a bit tougher to parent but like was said before we need to adjust our parenting, not change our childrens core being, true personality. Perhaps its the Autism that contributes to who he is.. so be it. I love for who he is. I want to ensure he will be able to function on his own when that time comes. Iwanthim to understand howto be socially appropriate and yet not feel he has to change who he IS to do that. thats my goal. Not cureing him. <mkisses@...> wrote: What a refreshing point of view! I agree with you. My daughter is 12 with Asperger's, Mild MR (so she is more like 7 emotionally) and has a seizure disorder (it hit us when she started puberty). She is always eager to please, to see others happy, to save animals that people hurt on road or just let go cause they didn't want them anymore. She is sensitive to a fault but affectionate and still wants to hold my hand. She talks about never leaving me (we're working on SOME independence....lol) and does get excited about the small joys in life that other kids her age would not even notice let alone get excited about. I love her the way she is. In fact, I wish I could share in her innocence and joys of every little miracle around us. She is beautiful and amazing. Personally, while curing my sons autism would be great, it is part of > who he is. Am I the only one who is worried taking about the quirky part > of him would change him? > > Rathswohl > Deaf Services Coordinator > Dayle McIntosh Center > 714 621 3300 x 341 voice > 714 620 8370 fax > mrathswohl@... > > NOTICE: This message, together with any attachments is intended only for > the use of the individual or entity to which it is addressed and may > contain information that is confidential and prohibited from disclosure. > If you are not the intended recipient, you are hereby notified that any > dissemination or copy reproduction of this message is strictly > prohibited. If you have received this message in error, notify the > original sender immediately and delete this message and any attachments > from your computer > > If this communication involves discussion of patient care issues in the > performance improvement process, it is protected from discovery by > California Evidence Code 1157 as a confidential medical staff > communication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 ,Roxanna, You explained it just right... I was reading all the post that people posted on this topic and I just thought they were getting confused with autism as a title/disability - and their child??? so many others just followed and agreed with that (that autism is so great)??? (its not, its a disability) I love my son more than life itself. I feel bad for him that he has to struggle with Autism because everything is so much harder for him. things that a N.T. child can do automatically, and my son has to be taught - step by step. outch... Roxanna <madideas@...> wrote: I am on the other side of the fence on this issue. Autism is not who my boys are. It is something that causes them a lot of trouble and heartache. They already are who they are and none of that is " thanks " to autism but despite autism. If they didn't have to struggle with language and anxiety they would be who they are now only better and with friends. I don't give autism credit for anything but causing a lot of problems in otherwise a perfectly nice people. That is why it is called a " disability. " It disables people. I can't attribute autism to good qualities in people. It may be because my kids have HFA and not AS. We did not even know if they would talk early on. It's been a struggle every step of the way. Autism will be at fault if they can't go on to live independent and happy lives. It won't be something we celebrate. We celebrate the child but not the autism. I also spend a lot of time with someone who has autism and not is not high functioning. So it doesn't seem very nice or helpful for him or his family. You know he is in there under all that autism. I guess I can't explain it but people should spend some time with those more affected before thinking that autism is a gift. Roxanna Re: ( ) Re:Autism Cure, huh? i agree with you all as well. is three with autism. one of my fears with behavior mod was that we would crush his spirit. His spirit is what i admire so much about him. Granted his " spirit " makes it a bit tougher to parent but like was said before we need to adjust our parenting, not change our childrens core being, true personality. Perhaps its the Autism that contributes to who he is.. so be it. I love for who he is. I want to ensure he will be able to function on his own when that time comes. Iwanthim to understand howto be socially appropriate and yet not feel he has to change who he IS to do that. thats my goal. Not cureing him. <mkisses@...> wrote: What a refreshing point of view! I agree with you. My daughter is 12 with Asperger's, Mild MR (so she is more like 7 emotionally) and has a seizure disorder (it hit us when she started puberty). She is always eager to please, to see others happy, to save animals that people hurt on road or just let go cause they didn't want them anymore. She is sensitive to a fault but affectionate and still wants to hold my hand. She talks about never leaving me (we're working on SOME independence....lol) and does get excited about the small joys in life that other kids her age would not even notice let alone get excited about. I love her the way she is. In fact, I wish I could share in her innocence and joys of every little miracle around us. She is beautiful and amazing. Personally, while curing my sons autism would be great, it is part of > who he is. Am I the only one who is worried taking about the quirky part > of him would change him? > > Rathswohl > Deaf Services Coordinator > Dayle McIntosh Center > 714 621 3300 x 341 voice > 714 620 8370 fax > mrathswohl@... > > NOTICE: This message, together with any attachments is intended only for > the use of the individual or entity to which it is addressed and may > contain information that is confidential and prohibited from disclosure. > If you are not the intended recipient, you are hereby notified that any > dissemination or copy reproduction of this message is strictly > prohibited. If you have received this message in error, notify the > original sender immediately and delete this message and any attachments > from your computer > > If this communication involves discussion of patient care issues in the > performance improvement process, it is protected from discovery by > California Evidence Code 1157 as a confidential medical staff > communication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Just to clarify.....I do feel that a cure for AUTISM would be great for some. I was just saying that for MY child with Asperger's, it isn't nessessary. I do hope a cure comes for those with more of a disability, however, I think that my son doesn't have a great deal of the problems that autism has caused for others and he more just has problems where different parenting techniques are sufficiant. Rose <beachbodytan2002@...> wrote: ,Roxanna, You explained it just right... I was reading all the post that people posted on this topic and I just thought they were getting confused with autism as a title/disability - and their child??? so many others just followed and agreed with that (that autism is so great)??? (its not, its a disability) I love my son more than life itself. I feel bad for him that he has to struggle with Autism because everything is so much harder for him. things that a N.T. child can do automatically, and my son has to be taught - step by step. outch... Roxanna <madideas@...> wrote: I am on the other side of the fence on this issue. Autism is not who my boys are. It is something that causes them a lot of trouble and heartache. They already are who they are and none of that is " thanks " to autism but despite autism. If they didn't have to struggle with language and anxiety they would be who they are now only better and with friends. I don't give autism credit for anything but causing a lot of problems in otherwise a perfectly nice people. That is why it is called a " disability. " It disables people. I can't attribute autism to good qualities in people. It may be because my kids have HFA and not AS. We did not even know if they would talk early on. It's been a struggle every step of the way. Autism will be at fault if they can't go on to live independent and happy lives. It won't be something we celebrate. We celebrate the child but not the autism. I also spend a lot of time with someone who has autism and not is not high functioning. So it doesn't seem very nice or helpful for him or his family. You know he is in there under all that autism. I guess I can't explain it but people should spend some time with those more affected before thinking that autism is a gift. Roxanna Re: ( ) Re:Autism Cure, huh? i agree with you all as well. is three with autism. one of my fears with behavior mod was that we would crush his spirit. His spirit is what i admire so much about him. Granted his " spirit " makes it a bit tougher to parent but like was said before we need to adjust our parenting, not change our childrens core being, true personality. Perhaps its the Autism that contributes to who he is.. so be it. I love for who he is. I want to ensure he will be able to function on his own when that time comes. Iwanthim to understand howto be socially appropriate and yet not feel he has to change who he IS to do that. thats my goal. Not cureing him. <mkisses@...> wrote: What a refreshing point of view! I agree with you. My daughter is 12 with Asperger's, Mild MR (so she is more like 7 emotionally) and has a seizure disorder (it hit us when she started puberty). She is always eager to please, to see others happy, to save animals that people hurt on road or just let go cause they didn't want them anymore. She is sensitive to a fault but affectionate and still wants to hold my hand. She talks about never leaving me (we're working on SOME independence....lol) and does get excited about the small joys in life that other kids her age would not even notice let alone get excited about. I love her the way she is. In fact, I wish I could share in her innocence and joys of every little miracle around us. She is beautiful and amazing. Personally, while curing my sons autism would be great, it is part of > who he is. Am I the only one who is worried taking about the quirky part > of him would change him? > > Rathswohl > Deaf Services Coordinator > Dayle McIntosh Center > 714 621 3300 x 341 voice > 714 620 8370 fax > mrathswohl@... > > NOTICE: This message, together with any attachments is intended only for > the use of the individual or entity to which it is addressed and may > contain information that is confidential and prohibited from disclosure. > If you are not the intended recipient, you are hereby notified that any > dissemination or copy reproduction of this message is strictly > prohibited. If you have received this message in error, notify the > original sender immediately and delete this message and any attachments > from your computer > > If this communication involves discussion of patient care issues in the > performance improvement process, it is protected from discovery by > California Evidence Code 1157 as a confidential medical staff > communication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Are you talking about the autistic woman who invented the queeze machine? It's like a device cattle go through in some way, but she found it helped calm her autism symptoms some. Jo <gypsys_girl_beem@...> wrote: I dont think any of claimed to celebrate autism or view it as a gift. if i had a choice (which I dont) I would elect for alex to be NT. I dont enjoy seeing him struggle or have to learn things that NT kids get naturally. I wont speak for the rest, but my point is that is what he is. I know i have no control over a cure. i control how i parent him. I control his education and the influances he gains from educators and other people in his life. I control weather or not i sit and do nothing or educate others in my life about autism. I refuse to let alex be defined by autism. I refuse to contribute to ignorance with silence, and i refuse to morn who alex could have been and choose to celebrate who he IS. I will not agree that autism is a curse for my child. Parents of more profoundly autistic children have the right to feel bitter about a child they see as lost.. i feel for those families. but i dont generalize. I speak for my family from my experiences. My isnt lost he isnt cursed. nothing is easy, but things worth having usually arent. Every accomplishment adds character and strength as much as a newley learned ability. Has anyone heard of that lady (robert knows her name) who was born proundly autistic..now she's an author, college professor and designs slaughterhouses all over the world for the humane slaughter of cows and pigs..its because of her autism and how it caused her to think and see information that gave her the " gifts " (dare i use this word??) and career paths she has taken. AND, shes happy. just another way to view ASD.. for all my opinions worth.... I do understand the anger and sadness o having a child with ASD, but that sadness wont define me Personally, while > curing my sons autism would be great, it is part of > > who he is. Am I the only one who is worried taking about the > quirky part > > of him would change him? > > > > Rathswohl > > Deaf Services Coordinator > > Dayle McIntosh Center > > 714 621 3300 x 341 voice > > 714 620 8370 fax > > mrathswohl@ > > > > NOTICE: This message, together with any attachments is intended > only for > > the use of the individual or entity to which it is addressed and > may > > contain information that is confidential and prohibited from > disclosure. > > If you are not the intended recipient, you are hereby notified > that any > > dissemination or copy reproduction of this message is strictly > > prohibited. If you have received this message in error, notify > the > > original sender immediately and delete this message and any > attachments > > from your computer > > > > If this communication involves discussion of patient care issues > in the > > performance improvement process, it is protected from discovery > by > > California Evidence Code 1157 as a confidential medical staff > > communication. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Temple Grandin:. is that how you spell it? Toni Re: ( ) Re:Autism Cure, huh? > Are you talking about the autistic woman who invented the queeze machine? > It's like a device cattle go through in some way, but she found it helped > calm her autism symptoms some. > > Jo <gypsys_girl_beem@...> wrote: I dont think any > of claimed to celebrate autism or view it as a gift. > if i had a choice (which I dont) I would elect for alex to be NT. I > dont enjoy seeing him struggle or have to learn things that NT kids > get naturally. I wont speak for the rest, but my point is that > is what he is. I know i have no control over a cure. i control how i > parent him. I control his education and the influances he gains from > educators and other people in his life. I control weather or not i > sit and do nothing or educate others in my life about autism. I > refuse to let alex be defined by autism. I refuse to contribute to > ignorance with silence, and i refuse to morn who alex could have been > and choose to celebrate who he IS. I will not agree that autism is a > curse for my child. Parents of more profoundly autistic children have > the right to feel bitter about a child they see as lost.. i feel for > those families. but i dont generalize. I speak for my family from my > experiences. My isnt lost he isnt cursed. nothing is easy, but > things worth having usually arent. Every accomplishment adds > character and strength as much as a newley learned ability. Has > anyone heard of that lady (robert knows her name) who was born > proundly autistic..now she's an author, college professor and designs > slaughterhouses all over the world for the humane slaughter of cows > and pigs..its because of her autism and how it caused her to think > and see information that gave her the " gifts " (dare i use this word??) > and career paths she has taken. AND, shes happy. just another way to > view ASD.. for all my opinions worth.... I do understand the anger > and sadness o having a child with ASD, but that sadness wont define me > > Personally, while >> curing my sons autism would be great, it is part of >> > who he is. Am I the only one who is worried taking about the >> quirky part >> > of him would change him? >> > >> > Rathswohl >> > Deaf Services Coordinator >> > Dayle McIntosh Center >> > 714 621 3300 x 341 voice >> > 714 620 8370 fax >> > mrathswohl@ >> > >> > NOTICE: This message, together with any attachments is intended >> only for >> > the use of the individual or entity to which it is addressed and >> may >> > contain information that is confidential and prohibited from >> disclosure. >> > If you are not the intended recipient, you are hereby notified >> that any >> > dissemination or copy reproduction of this message is strictly >> > prohibited. If you have received this message in error, notify >> the >> > original sender immediately and delete this message and any >> attachments >> > from your computer >> > >> > If this communication involves discussion of patient care issues >> in the >> > performance improvement process, it is protected from discovery >> by >> > California Evidence Code 1157 as a confidential medical staff >> > communication. >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 i think.. yes it is..ijust googled it. http://www.templegrandin.com/ Toni <kbtoni@...> wrote: Temple Grandin:. is that how you spell it? Toni Re: ( ) Re:Autism Cure, huh? > Are you talking about the autistic woman who invented the queeze machine? > It's like a device cattle go through in some way, but she found it helped > calm her autism symptoms some. > > Jo <gypsys_girl_beem@...> wrote: I dont think any > of claimed to celebrate autism or view it as a gift. > if i had a choice (which I dont) I would elect for alex to be NT. I > dont enjoy seeing him struggle or have to learn things that NT kids > get naturally. I wont speak for the rest, but my point is that > is what he is. I know i have no control over a cure. i control how i > parent him. I control his education and the influances he gains from > educators and other people in his life. I control weather or not i > sit and do nothing or educate others in my life about autism. I > refuse to let alex be defined by autism. I refuse to contribute to > ignorance with silence, and i refuse to morn who alex could have been > and choose to celebrate who he IS. I will not agree that autism is a > curse for my child. Parents of more profoundly autistic children have > the right to feel bitter about a child they see as lost.. i feel for > those families. but i dont generalize. I speak for my family from my > experiences. My isnt lost he isnt cursed. nothing is easy, but > things worth having usually arent. Every accomplishment adds > character and strength as much as a newley learned ability. Has > anyone heard of that lady (robert knows her name) who was born > proundly autistic..now she's an author, college professor and designs > slaughterhouses all over the world for the humane slaughter of cows > and pigs..its because of her autism and how it caused her to think > and see information that gave her the " gifts " (dare i use this word??) > and career paths she has taken. AND, shes happy. just another way to > view ASD.. for all my opinions worth.... I do understand the anger > and sadness o having a child with ASD, but that sadness wont define me > > Personally, while >> curing my sons autism would be great, it is part of >> > who he is. Am I the only one who is worried taking about the >> quirky part >> > of him would change him? >> > >> > Rathswohl >> > Deaf Services Coordinator >> > Dayle McIntosh Center >> > 714 621 3300 x 341 voice >> > 714 620 8370 fax >> > mrathswohl@ >> > >> > NOTICE: This message, together with any attachments is intended >> only for >> > the use of the individual or entity to which it is addressed and >> may >> > contain information that is confidential and prohibited from >> disclosure. >> > If you are not the intended recipient, you are hereby notified >> that any >> > dissemination or copy reproduction of this message is strictly >> > prohibited. If you have received this message in error, notify >> the >> > original sender immediately and delete this message and any >> attachments >> > from your computer >> > >> > If this communication involves discussion of patient care issues >> in the >> > performance improvement process, it is protected from discovery >> by >> > California Evidence Code 1157 as a confidential medical staff >> > communication. >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 i think.. yes it is..ijust googled it. http://www.templegrandin.com/ Toni <kbtoni@...> wrote: Temple Grandin:. is that how you spell it? Toni Re: ( ) Re:Autism Cure, huh? > Are you talking about the autistic woman who invented the queeze machine? > It's like a device cattle go through in some way, but she found it helped > calm her autism symptoms some. > > Jo <gypsys_girl_beem@...> wrote: I dont think any > of claimed to celebrate autism or view it as a gift. > if i had a choice (which I dont) I would elect for alex to be NT. I > dont enjoy seeing him struggle or have to learn things that NT kids > get naturally. I wont speak for the rest, but my point is that > is what he is. I know i have no control over a cure. i control how i > parent him. I control his education and the influances he gains from > educators and other people in his life. I control weather or not i > sit and do nothing or educate others in my life about autism. I > refuse to let alex be defined by autism. I refuse to contribute to > ignorance with silence, and i refuse to morn who alex could have been > and choose to celebrate who he IS. I will not agree that autism is a > curse for my child. Parents of more profoundly autistic children have > the right to feel bitter about a child they see as lost.. i feel for > those families. but i dont generalize. I speak for my family from my > experiences. My isnt lost he isnt cursed. nothing is easy, but > things worth having usually arent. Every accomplishment adds > character and strength as much as a newley learned ability. Has > anyone heard of that lady (robert knows her name) who was born > proundly autistic..now she's an author, college professor and designs > slaughterhouses all over the world for the humane slaughter of cows > and pigs..its because of her autism and how it caused her to think > and see information that gave her the " gifts " (dare i use this word??) > and career paths she has taken. AND, shes happy. just another way to > view ASD.. for all my opinions worth.... I do understand the anger > and sadness o having a child with ASD, but that sadness wont define me > > Personally, while >> curing my sons autism would be great, it is part of >> > who he is. Am I the only one who is worried taking about the >> quirky part >> > of him would change him? >> > >> > Rathswohl >> > Deaf Services Coordinator >> > Dayle McIntosh Center >> > 714 621 3300 x 341 voice >> > 714 620 8370 fax >> > mrathswohl@ >> > >> > NOTICE: This message, together with any attachments is intended >> only for >> > the use of the individual or entity to which it is addressed and >> may >> > contain information that is confidential and prohibited from >> disclosure. >> > If you are not the intended recipient, you are hereby notified >> that any >> > dissemination or copy reproduction of this message is strictly >> > prohibited. If you have received this message in error, notify >> the >> > original sender immediately and delete this message and any >> attachments >> > from your computer >> > >> > If this communication involves discussion of patient care issues >> in the >> > performance improvement process, it is protected from discovery >> by >> > California Evidence Code 1157 as a confidential medical staff >> > communication. >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 i think.. yes it is..ijust googled it. http://www.templegrandin.com/ Toni <kbtoni@...> wrote: Temple Grandin:. is that how you spell it? Toni Re: ( ) Re:Autism Cure, huh? > Are you talking about the autistic woman who invented the queeze machine? > It's like a device cattle go through in some way, but she found it helped > calm her autism symptoms some. > > Jo <gypsys_girl_beem@...> wrote: I dont think any > of claimed to celebrate autism or view it as a gift. > if i had a choice (which I dont) I would elect for alex to be NT. I > dont enjoy seeing him struggle or have to learn things that NT kids > get naturally. I wont speak for the rest, but my point is that > is what he is. I know i have no control over a cure. i control how i > parent him. I control his education and the influances he gains from > educators and other people in his life. I control weather or not i > sit and do nothing or educate others in my life about autism. I > refuse to let alex be defined by autism. I refuse to contribute to > ignorance with silence, and i refuse to morn who alex could have been > and choose to celebrate who he IS. I will not agree that autism is a > curse for my child. Parents of more profoundly autistic children have > the right to feel bitter about a child they see as lost.. i feel for > those families. but i dont generalize. I speak for my family from my > experiences. My isnt lost he isnt cursed. nothing is easy, but > things worth having usually arent. Every accomplishment adds > character and strength as much as a newley learned ability. Has > anyone heard of that lady (robert knows her name) who was born > proundly autistic..now she's an author, college professor and designs > slaughterhouses all over the world for the humane slaughter of cows > and pigs..its because of her autism and how it caused her to think > and see information that gave her the " gifts " (dare i use this word??) > and career paths she has taken. AND, shes happy. just another way to > view ASD.. for all my opinions worth.... I do understand the anger > and sadness o having a child with ASD, but that sadness wont define me > > Personally, while >> curing my sons autism would be great, it is part of >> > who he is. Am I the only one who is worried taking about the >> quirky part >> > of him would change him? >> > >> > Rathswohl >> > Deaf Services Coordinator >> > Dayle McIntosh Center >> > 714 621 3300 x 341 voice >> > 714 620 8370 fax >> > mrathswohl@ >> > >> > NOTICE: This message, together with any attachments is intended >> only for >> > the use of the individual or entity to which it is addressed and >> may >> > contain information that is confidential and prohibited from >> disclosure. >> > If you are not the intended recipient, you are hereby notified >> that any >> > dissemination or copy reproduction of this message is strictly >> > prohibited. If you have received this message in error, notify >> the >> > original sender immediately and delete this message and any >> attachments >> > from your computer >> > >> > If this communication involves discussion of patient care issues >> in the >> > performance improvement process, it is protected from discovery >> by >> > California Evidence Code 1157 as a confidential medical staff >> > communication. >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Well said !!! I totally agree that as much as I would like to see a cause and cure for autisim and in our case TS as well, I think that it is just as important for the people around to be cured of their ignorance!!!!!!!! Our children especially with high functioning or mild TS really wouldn't have much of a problem in this world if it weren't for society!!!! It is sad when it seems so simlply fixed if people could just see that they are the problem!!!!!!!!!!!!!!!!!!!!!!! People have said to me that they are sorry for the disorders that Ezra has (although I know they mean well) I am not sorry, he is who he is, I am just sorry that more people don't understand!!! Thanks, advocateforaspies <advocateforaspies@...> wrote: A huge portion of the replies were not bad, in my opinion. It wasn't anything where someone said that they would not want autism cured, but this is my POV..... (from what I said and what I read) The high functioning (aka mild Aspergers, perhaps) kids need to be understood more than being cured. If the cure comes, that can help our lower functioning kids or our kids that just can't cope, fantastic. As I mentioned, I would like to see a bigger cure of the people around that don't get A.S. and need to understand it and not be such jerks (IMHO, though rather harsh Opinion) While we are working on figuring out what autism is, (and people are working hard on that) we need to also be focusing on the 'other individuals' that are so hard on our kids. Sure we want to cure what is so bad for our kids, but from my perspective (and I think many others) the higher functioning our kids, the more we want to work on what is right (not wrong) and we should find a way to use our kids talents to better the world, or better anything for that matter. Our bright little kids that may have some difficulties wouldn't have nearly the difficulties if those around them would handel them better. I think I saw a lot that agree with you, Roxanne. We want our kids that just can't make it in the world (lack of communication with words, lack of being able to function in society) to be helped and for someone to find out what is wrong and help them so that things can be right. For the rest, we need more of a cure for the folks around them that can't handle them. (for that matter anyone that can't handle any of our kids, despite the label.) I think that will be part of my force in talking to people. We all need to work on understanding our kids, despite their difficulties. Find out what is wrong, understand how to work with them, and always be understanding. After all, I believe it is our mankind (or human kind. whatever) that has messed up with our kids (chemicals, poor treatment) and so it needs to be all of us to work together as a 'team' to make things right.... I hope they do find a cure.... a cure for mans misconceptions, a cure for the diseases, illness and problems that people don't understand, and a reason for autism, as well as a way to help our kids so that when they are born, they can grow the proper way and not loose what they do loose to autism. Our kids do deserve that, and I think everyone that posted agrees with that. *hugs* B Personally, while > curing my sons autism would be great, it is part of > > who he is. Am I the only one who is worried taking about the > quirky part > > of him would change him? > > > > Rathswohl > > Deaf Services Coordinator > > Dayle McIntosh Center > > 714 621 3300 x 341 voice > > 714 620 8370 fax > > mrathswohl@ > > > > NOTICE: This message, together with any attachments is intended > only for > > the use of the individual or entity to which it is addressed and > may > > contain information that is confidential and prohibited from > disclosure. > > If you are not the intended recipient, you are hereby notified > that any > > dissemination or copy reproduction of this message is strictly > > prohibited. If you have received this message in error, notify > the > > original sender immediately and delete this message and any > attachments > > from your computer > > > > If this communication involves discussion of patient care issues > in the > > performance improvement process, it is protected from discovery > by > > California Evidence Code 1157 as a confidential medical staff > > communication. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 I like your outlook on the cup of water!! I think that more people should just be happy with what they have and not think of what they did or could!!! That is they way that I am trying to view my life!!! advocateforaspies <advocateforaspies@...> wrote: I like what you said. I don't celebrate Autism, but I do celebrate my children, and myself. For what? I celebrate for who they are, and what they do that is so unique and so fun. I celebrate the positives, and help with the negatives. I have A.S. and as I see it, and from my own perspective, I wouldn't even want to change what I have had to deal with. I would much rather change the treatment of people around me. THEY are the 'jerks' that have made my life miserable. (not everyone, just a small handful) and until recently I didn't know how to handle that. I do now. But with A.s. I have a 'delay' so I feel that I am catching up with other people, just later. But I also have an interesting perspective of the world, and because of this, I would not change me. I also am someone that sees a cup as actually having water, (instead of 1/2 full or empty). To me, at least there is some water. (make sense?) I like what you said about . You are right. I don't think anyone celebrated autism. It would be nice if my kids didn't have to go through the hell they do with other kids and adults (and yes, I would gladly take that away) Me, too, since I can't work on a cure, I can work on other people. I will let the medical field handle the cure. Meanwhile, I will enjoy what is positive and work on what isn't. (That, as I keep saying,, includes the people that don't understand my kids, or any with any disorder!) *hugs* B > > I dont think any of claimed to celebrate autism or view it as a gift. > if i had a choice (which I dont) I would elect for alex to be NT. I > dont enjoy seeing him struggle or have to learn things that NT kids > get naturally. I wont speak for the rest, but my point is that > is what he is. I know i have no control over a cure. i control how i > parent him. I control his education and the influances he gains from > educators and other people in his life. I control weather or not i > sit and do nothing or educate others in my life about autism. I > refuse to let alex be defined by autism. I refuse to contribute to > ignorance with silence, and i refuse to morn who alex could have been > and choose to celebrate who he IS. I will not agree that autism is a > curse for my child. Parents of more profoundly autistic children have > the right to feel bitter about a child they see as lost.. i feel for > those families. but i dont generalize. I speak for my family from my > experiences. My isnt lost he isnt cursed. nothing is easy, but > things worth having usually arent. Every accomplishment adds > character and strength as much as a newley learned ability. Has > anyone heard of that lady (robert knows her name) who was born > proundly autistic..now she's an author, college professor and designs > slaughterhouses all over the world for the humane slaughter of cows > and pigs..its because of her autism and how it caused her to think > and see information that gave her the " gifts " (dare i use this word??) > and career paths she has taken. AND, shes happy. just another way to > view ASD.. for all my opinions worth.... I do understand the anger > and sadness o having a child with ASD, but that sadness wont define me > > > > > --- In __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 If all it takes to fix the problem is to change parenting techniques, then how can it be AS/HFA? It would seem to be more like a parenting issue instead. Roxanna Re: ( ) Re:Autism Cure, huh? i agree with you all as well. is three with autism. one of my fears with behavior mod was that we would crush his spirit. His spirit is what i admire so much about him. Granted his " spirit " makes it a bit tougher to parent but like was said before we need to adjust our parenting, not change our childrens core being, true personality. Perhaps its the Autism that contributes to who he is.. so be it. I love for who he is. I want to ensure he will be able to function on his own when that time comes. Iwanthim to understand howto be socially appropriate and yet not feel he has to change who he IS to do that. thats my goal. Not cureing him. <mkisses@...> wrote: What a refreshing point of view! I agree with you. My daughter is 12 with Asperger's, Mild MR (so she is more like 7 emotionally) and has a seizure disorder (it hit us when she started puberty). She is always eager to please, to see others happy, to save animals that people hurt on road or just let go cause they didn't want them anymore. She is sensitive to a fault but affectionate and still wants to hold my hand. She talks about never leaving me (we're working on SOME independence....lol) and does get excited about the small joys in life that other kids her age would not even notice let alone get excited about. I love her the way she is. In fact, I wish I could share in her innocence and joys of every little miracle around us. She is beautiful and amazing. Personally, while curing my sons autism would be great, it is part of > who he is. Am I the only one who is worried taking about the quirky part > of him would change him? > > Rathswohl > Deaf Services Coordinator > Dayle McIntosh Center > 714 621 3300 x 341 voice > 714 620 8370 fax > mrathswohl@... > > NOTICE: This message, together with any attachments is intended only for > the use of the individual or entity to which it is addressed and may > contain information that is confidential and prohibited from disclosure. > If you are not the intended recipient, you are hereby notified that any > dissemination or copy reproduction of this message is strictly > prohibited. If you have received this message in error, notify the > original sender immediately and delete this message and any attachments > from your computer > > If this communication involves discussion of patient care issues in the > performance improvement process, it is protected from discovery by > California Evidence Code 1157 as a confidential medical staff > communication. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 CF " deserves " a cure before autism? Who gets to decide these things anyway? It is always true that you will find someone who has it worse than you do - that is just the way life goes. I'm not sure why that would mean one cannot feel how they do about what is happening. It still sucks - even if someone has it worse off. Roxanna ( ) Re:Autism Cure, huh? Autism is a disability. I am fully aware of the problems my son is experiencing and will experience for the rest of his life. It is my job as his mother to teach him skills and ways to cope. I however do not see my son as " disabled " . A disability only disables you to the limit that you let it (or in my son's case, as I let it disable him). I work for a Non-profit independent living center, and have to say, until I had a chance to work with people who have profound and life limiting or changing disabilities, I thought Lucas would be limited, but when you work with the woman how can only use a very small part of her hand and her mouth, and still she works full time, or the deaf blind man who works as a computer progamer, I have learned that limiting my dreams for my son would be a disservice to him. He has dreams and goals and plans. Maybe if he were nonverbal or severly limited by the autism would I want to cure it, but his being autistic is why he thinks and talks the way he does. I am not saying a cure it bad, but I worry about the concequences. If I could be sure that I would be able to cure him, but keep his unique self, then I would jump through hoops. But they can't cure Tay Sachs or Cystic Fibrosis and I think those require a cure long befor autism. The other thing that worries me is, if we have the genetic testing become avalible, how many people will terminate pregancies based on the autism diagnosis? How can we tell where on the spectrum a child will fall before birth? I live with a person with autism every single day, and I don't think the autism is a gift, but a part of the person who my son is. I guess because I think that he is a gift from God that I accept the challanges that the autism brings along with the honest, sweet, loving, frustrating, cute, impish little boy that is my whole world. Personally, while > curing my sons autism would be great, it is part of > > who he is. Am I the only one who is worried taking about the > quirky part > > of him would change him? > > > > Rathswohl > > Deaf Services Coordinator > > Dayle McIntosh Center > > 714 621 3300 x 341 voice > > 714 620 8370 fax > > mrathswohl@ > > > > NOTICE: This message, together with any attachments is intended > only for > > the use of the individual or entity to which it is addressed and > may > > contain information that is confidential and prohibited from > disclosure. > > If you are not the intended recipient, you are hereby notified > that any > > dissemination or copy reproduction of this message is strictly > > prohibited. If you have received this message in error, notify > the > > original sender immediately and delete this message and any > attachments > > from your computer > > > > If this communication involves discussion of patient care issues > in the > > performance improvement process, it is protected from discovery > by > > California Evidence Code 1157 as a confidential medical staff > > communication. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 My kids have " high functioning " autism and I do not agree that all they need is for " ignorant " people to be fixed. They need a LOT more than that to get by in the world. I don't think it helps when there are people who think it's not a big deal to have AS either. This makes it a lot harder to educate people about the very real problems kids like mine face. It's easy for people to blame " everyone else " for the problems but what does that resolve? Nothing. It might make some folks feel better to blame others or to think it's always the rest of the world that needs to be fixed. But let's face it - how far will you get in life with that attitude? I mean, we should teach our kids how to get along in the world as it is and not as we wish it was. I think this applies to all kids, not just kids with HFA. Roxanna Re: ( ) Re:Autism Cure, huh? Well said !!! I totally agree that as much as I would like to see a cause and cure for autisim and in our case TS as well, I think that it is just as important for the people around to be cured of their ignorance!!!!!!!! Our children especially with high functioning or mild TS really wouldn't have much of a problem in this world if it weren't for society!!!! It is sad when it seems so simlply fixed if people could just see that they are the problem!!!!!!!!!!!!!!!!!!!!!!! People have said to me that they are sorry for the disorders that Ezra has (although I know they mean well) I am not sorry, he is who he is, I am just sorry that more people don't understand!!! Thanks, advocateforaspies <advocateforaspies@...> wrote: A huge portion of the replies were not bad, in my opinion. It wasn't anything where someone said that they would not want autism cured, but this is my POV..... (from what I said and what I read) The high functioning (aka mild Aspergers, perhaps) kids need to be understood more than being cured. If the cure comes, that can help our lower functioning kids or our kids that just can't cope, fantastic. As I mentioned, I would like to see a bigger cure of the people around that don't get A.S. and need to understand it and not be such jerks (IMHO, though rather harsh Opinion) While we are working on figuring out what autism is, (and people are working hard on that) we need to also be focusing on the 'other individuals' that are so hard on our kids. Sure we want to cure what is so bad for our kids, but from my perspective (and I think many others) the higher functioning our kids, the more we want to work on what is right (not wrong) and we should find a way to use our kids talents to better the world, or better anything for that matter. Our bright little kids that may have some difficulties wouldn't have nearly the difficulties if those around them would handel them better. I think I saw a lot that agree with you, Roxanne. We want our kids that just can't make it in the world (lack of communication with words, lack of being able to function in society) to be helped and for someone to find out what is wrong and help them so that things can be right. For the rest, we need more of a cure for the folks around them that can't handle them. (for that matter anyone that can't handle any of our kids, despite the label.) I think that will be part of my force in talking to people. We all need to work on understanding our kids, despite their difficulties. Find out what is wrong, understand how to work with them, and always be understanding. After all, I believe it is our mankind (or human kind. whatever) that has messed up with our kids (chemicals, poor treatment) and so it needs to be all of us to work together as a 'team' to make things right.... I hope they do find a cure.... a cure for mans misconceptions, a cure for the diseases, illness and problems that people don't understand, and a reason for autism, as well as a way to help our kids so that when they are born, they can grow the proper way and not loose what they do loose to autism. Our kids do deserve that, and I think everyone that posted agrees with that. *hugs* B Personally, while > curing my sons autism would be great, it is part of > > who he is. Am I the only one who is worried taking about the > quirky part > > of him would change him? > > > > Rathswohl > > Deaf Services Coordinator > > Dayle McIntosh Center > > 714 621 3300 x 341 voice > > 714 620 8370 fax > > mrathswohl@ > > > > NOTICE: This message, together with any attachments is intended > only for > > the use of the individual or entity to which it is addressed and > may > > contain information that is confidential and prohibited from > disclosure. > > If you are not the intended recipient, you are hereby notified > that any > > dissemination or copy reproduction of this message is strictly > > prohibited. If you have received this message in error, notify > the > > original sender immediately and delete this message and any > attachments > > from your computer > > > > If this communication involves discussion of patient care issues > in the > > performance improvement process, it is protected from discovery > by > > California Evidence Code 1157 as a confidential medical staff > > communication. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Roxanna, I can see that I obviously offended you by my comments and that is the last thing that I intended to do!!! This group is here for us all to feel supported not offended or attacked for how they feel or what they are dealing with!! We all struggle with what our kids have to deal with and in no way did I mean that ignorant people being " fixed " would make it all better!!!!! Perhaps I worded things wrongly, as usual I was pretty tired and very busy when I wrote it! And never did I say that AS is no big deal!!!!!!!!!! Watching my son struggle and get his little 5 yr old heart broken because other kids don't understand him isn't just no big deal to me!!!!! My son does not have high functioning autism so I will retract that statement and apologize because I do not personally know about that, and that was beyond me to say!!!!! What I was saying was that our children would not suffer as much if it weren't for society!! If all that we had to worry about was trying to teach our children to survive in this world it wouldn't be as intimidating to me if I didn't have to worry about people treating him badly because of it!!!! And I want a cure just as much as the next!!! But this is what we have been dealt and instead of feeling sorry for ourselves, I feel that we just need to accept it, better understand it ,and make our place in this world. I pray that in my lifetime, that they come up with a cause and cure for Autism/AS, ADHD, OCD, TS etc. As my son suffers from the last 4. My children DO need to understand how the world is and be taught that they will face people that will be mean, however I feel that they should know that they are not the problem and they don't need to change or feel bad about themselves because of the way this world is!!!!!!! All that I should have to worry about is teaching them how to live, meaning, jobs, living by themselves, etc.. In order to educate people about our children's disorders they do need to know about it, they also need to know how much a part they can play in our children's well being by how they treat them!!!!!! I am fighting constantly to get the help we need and better understand my son, that is why I joined this group!!! I am in no way ignoring our " problems " or blaming others for them!!!! But if it does make me feel better to get on my soap box about the ignorant people in this world, don't I deserve that????? Don't I deserve just like every one else here to feel better even if it is in such an insignificant way?????? Roxanna <madideas@...> wrote: My kids have " high functioning " autism and I do not agree that all they need is for " ignorant " people to be fixed. They need a LOT more than that to get by in the world. I don't think it helps when there are people who think it's not a big deal to have AS either. This makes it a lot harder to educate people about the very real problems kids like mine face. It's easy for people to blame " everyone else " for the problems but what does that resolve? Nothing. It might make some folks feel better to blame others or to think it's always the rest of the world that needs to be fixed. But let's face it - how far will you get in life with that attitude? I mean, we should teach our kids how to get along in the world as it is and not as we wish it was. I think this applies to all kids, not just kids with HFA. Roxanna Re: ( ) Re:Autism Cure, huh? Well said !!! I totally agree that as much as I would like to see a cause and cure for autisim and in our case TS as well, I think that it is just as important for the people around to be cured of their ignorance!!!!!!!! Our children especially with high functioning or mild TS really wouldn't have much of a problem in this world if it weren't for society!!!! It is sad when it seems so simlply fixed if people could just see that they are the problem!!!!!!!!!!!!!!!!!!!!!!! People have said to me that they are sorry for the disorders that Ezra has (although I know they mean well) I am not sorry, he is who he is, I am just sorry that more people don't understand!!! Thanks, advocateforaspies <advocateforaspies@...> wrote: A huge portion of the replies were not bad, in my opinion. It wasn't anything where someone said that they would not want autism cured, but this is my POV..... (from what I said and what I read) The high functioning (aka mild Aspergers, perhaps) kids need to be understood more than being cured. If the cure comes, that can help our lower functioning kids or our kids that just can't cope, fantastic. As I mentioned, I would like to see a bigger cure of the people around that don't get A.S. and need to understand it and not be such jerks (IMHO, though rather harsh Opinion) While we are working on figuring out what autism is, (and people are working hard on that) we need to also be focusing on the 'other individuals' that are so hard on our kids. Sure we want to cure what is so bad for our kids, but from my perspective (and I think many others) the higher functioning our kids, the more we want to work on what is right (not wrong) and we should find a way to use our kids talents to better the world, or better anything for that matter. Our bright little kids that may have some difficulties wouldn't have nearly the difficulties if those around them would handel them better. I think I saw a lot that agree with you, Roxanne. We want our kids that just can't make it in the world (lack of communication with words, lack of being able to function in society) to be helped and for someone to find out what is wrong and help them so that things can be right. For the rest, we need more of a cure for the folks around them that can't handle them. (for that matter anyone that can't handle any of our kids, despite the label.) I think that will be part of my force in talking to people. We all need to work on understanding our kids, despite their difficulties. Find out what is wrong, understand how to work with them, and always be understanding. After all, I believe it is our mankind (or human kind. whatever) that has messed up with our kids (chemicals, poor treatment) and so it needs to be all of us to work together as a 'team' to make things right.... I hope they do find a cure.... a cure for mans misconceptions, a cure for the diseases, illness and problems that people don't understand, and a reason for autism, as well as a way to help our kids so that when they are born, they can grow the proper way and not loose what they do loose to autism. Our kids do deserve that, and I think everyone that posted agrees with that. *hugs* B Personally, while > curing my sons autism would be great, it is part of > > who he is. Am I the only one who is worried taking about the > quirky part > > of him would change him? > > > > Rathswohl > > Deaf Services Coordinator > > Dayle McIntosh Center > > 714 621 3300 x 341 voice > > 714 620 8370 fax > > mrathswohl@ > > > > NOTICE: This message, together with any attachments is intended > only for > > the use of the individual or entity to which it is addressed and > may > > contain information that is confidential and prohibited from > disclosure. > > If you are not the intended recipient, you are hereby notified > that any > > dissemination or copy reproduction of this message is strictly > > prohibited. If you have received this message in error, notify > the > > original sender immediately and delete this message and any > attachments > > from your computer > > > > If this communication involves discussion of patient care issues > in the > > performance improvement process, it is protected from discovery > by > > California Evidence Code 1157 as a confidential medical staff > > communication. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 My husband and I have discussed this before -- cure? Or helping him learn to get along? I'd take the latter. Granted, my son is verbal and what many doctors call 'high functioning,' so it's very different for us than it would be for a parent who has never heard their child say " I love you. " We were offered a medication recently that would probably help resolve his aggression and self-injurious behaviors, but we're worried what it will do to the rest of him..his sweetness with me when he's not mad (which isn't as often as I'd like!), his extreme intelligence, his character, the funny things he says, the innocence, the lack of concern about what other thinks (he loves to wear Mr. Incredibles lounging pants with a Pokemon shirt to school because they are his favorites, for example) and other similar things. I don't want to change what is *him.* Our goal is to instead help him with the other things, and leave his uniqueness as long as he can become a functioning person as he grows. HEATHER BEEM wrote: > > i agree with you all as well. is three with autism. one of my > fears with behavior mod was that we would crush his spirit. His spirit > is what i admire so much about him. Granted his " spirit " makes it a > bit tougher to parent but like was said before we need to adjust our > parenting, not change our childrens core being, true personality. > Perhaps its the Autism that contributes to who he is.. so be it. I > love for who he is. I want to ensure he will be able to function > on his own when that time comes. Iwanthim to understand howto be > socially appropriate and yet not feel he has to change who he IS to do > that. thats my goal. Not cureing him. > > <mkisses@... <mailto:mkisses%40nc.rr.com>> wrote: What a > refreshing point of view! I agree with you. My daughter is 12 > with Asperger's, Mild MR (so she is more like 7 emotionally) and > has a seizure disorder (it hit us when she started puberty). She is > always eager to please, to see others happy, to save animals that > people hurt on road or just let go cause they didn't want them > anymore. She is sensitive to a fault but affectionate and still > wants to hold my hand. She talks about never leaving me (we're > working on SOME independence....lol) and does get excited about the > small joys in life that other kids her age would not even notice let > alone get excited about. I love her the way she is. In fact, I > wish I could share in her innocence and joys of every little miracle > around us. She is beautiful and amazing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 When my son was only 2-3 years old and constantly dealing with chronic BAD diarrhea (to the point where leaving the house was a real difficulty), constant funky rashes, food sensitivities to where he'd hardly eat anything, barely talking, etc., an acquaintance of mine was dealing with a terminal illness with her child, a few years older. I understood the differences -- fatal vs. non -- but I will always remember that when she'd ask me how ds was doing, or he'd come up in a conversation with others while she was there, she was the first to say " Sure beats having to get up at night to check oxygen levels or change his feeding tube. " I'm sure she didn't mean it to, but it always made me feel as though she was chastising me for so much as thinking anything was 'tough' for me. After a while, I'd just say " fine " all the time, which wasn't true, but it wasn't a time for me to say " You know, your situation being so rough doesn't make mine 'easy' or 'minimal.' " People all view their own situations differently, and a big part of dealing with anyone's disabilities or whatever you want to call it is realizing that everyone will of course view their own as worse. It doesn't mean any one illness deserves more money, but of course I would love to see money come away from something else to go towards autism research...for example, the war in Iraq, the space program, lol, I could go on.... If I had a quarter for each time someone said " He looks okay to me " after seeing my ds for all of 2 minutes, I'd be rich and could afford to pay cash for all the treatment necessary to help him cope on his own someday. Roxanna wrote: > > CF " deserves " a cure before autism? Who gets to decide these things > anyway? It is always true that you will find someone who has it worse > than you do - that is just the way life goes. I'm not sure why that > would mean one cannot feel how they do about what is happening. It > still sucks - even if someone has it worse off. > > Roxanna > ( ) Re:Autism Cure, huh? > > Autism is a disability. I am fully aware of the problems my son is > experiencing and will experience for the rest of his life. It is my > job as his mother to teach him skills and ways to cope. I however do > not see my son as " disabled " . A disability only disables you to the > limit that you let it (or in my son's case, as I let it disable him). > I work for a Non-profit independent living center, and have to say, > until I had a chance to work with people who have profound and life > limiting or changing disabilities, I thought Lucas would be limited, > but when you work with the woman how can only use a very small part > of her hand and her mouth, and still she works full time, or the deaf > blind man who works as a computer progamer, I have learned that > limiting my dreams for my son would be a disservice to him. He has > dreams and goals and plans. Maybe if he were nonverbal or severly > limited by the autism would I want to cure it, but his being autistic > is why he thinks and talks the way he does. I am not saying a cure it > bad, but I worry about the concequences. If I could be sure that I > would be able to cure him, but keep his unique self, then I would > jump through hoops. But they can't cure Tay Sachs or Cystic Fibrosis > and I think those require a cure long befor autism. The other thing > that worries me is, if we have the genetic testing become avalible, > how many people will terminate pregancies based on the autism > diagnosis? How can we tell where on the spectrum a child will fall > before birth? I live with a person with autism every single day, and > I don't think the autism is a gift, but a part of the person who my > son is. I guess because I think that he is a gift from God that I > accept the challanges that the autism brings along with the honest, > sweet, loving, frustrating, cute, impish little boy that is my whole > world. > > Personally, while > > curing my sons autism would be great, it is part of > > > who he is. Am I the only one who is worried taking about the > > quirky part > > > of him would change him? > > > > > > Rathswohl > > > Deaf Services Coordinator > > > Dayle McIntosh Center > > > 714 621 3300 x 341 voice > > > 714 620 8370 fax > > > mrathswohl@ > > > > > > NOTICE: This message, together with any attachments is intended > > only for > > > the use of the individual or entity to which it is addressed > and > > may > > > contain information that is confidential and prohibited from > > disclosure. > > > If you are not the intended recipient, you are hereby notified > > that any > > > dissemination or copy reproduction of this message is strictly > > > prohibited. If you have received this message in error, notify > > the > > > original sender immediately and delete this message and any > > attachments > > > from your computer > > > > > > If this communication involves discussion of patient care > issues > > in the > > > performance improvement process, it is protected from discovery > > by > > > California Evidence Code 1157 as a confidential medical staff > > > communication. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 I told one person who said that about my son that I had heard that at a funeral about the deceased too. The person didn't know what to say next. Kathy J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Hello Donna B I that has happened to me too. I won't go into detains. but a *smart* answer for - " someone has it worse than you " .... Yes, but " someone has it better too " . some people have too much time on their hands and too quick to judge. Hugs Donna B <donnabzy@...> wrote: When my son was only 2-3 years old and constantly dealing with chronic BAD diarrhea (to the point where leaving the house was a real difficulty), constant funky rashes, food sensitivities to where he'd hardly eat anything, barely talking, etc., an acquaintance of mine was dealing with a terminal illness with her child, a few years older. I understood the differences -- fatal vs. non -- but I will always remember that when she'd ask me how ds was doing, or he'd come up in a conversation with others while she was there, she was the first to say " Sure beats having to get up at night to check oxygen levels or change his feeding tube. " I'm sure she didn't mean it to, but it always made me feel as though she was chastising me for so much as thinking anything was 'tough' for me. After a while, I'd just say " fine " all the time, which wasn't true, but it wasn't a time for me to say " You know, your situation being so rough doesn't make mine 'easy' or 'minimal.' " People all view their own situations differently, and a big part of dealing with anyone's disabilities or whatever you want to call it is realizing that everyone will of course view their own as worse. It doesn't mean any one illness deserves more money, but of course I would love to see money come away from something else to go towards autism research...for example, the war in Iraq, the space program, lol, I could go on.... If I had a quarter for each time someone said " He looks okay to me " after seeing my ds for all of 2 minutes, I'd be rich and could afford to pay cash for all the treatment necessary to help him cope on his own someday. Roxanna wrote: > > CF " deserves " a cure before autism? Who gets to decide these things > anyway? It is always true that you will find someone who has it worse > than you do - that is just the way life goes. I'm not sure why that > would mean one cannot feel how they do about what is happening. It > still sucks - even if someone has it worse off. > > Roxanna > ( ) Re:Autism Cure, huh? > > Autism is a disability. I am fully aware of the problems my son is > experiencing and will experience for the rest of his life. It is my > job as his mother to teach him skills and ways to cope. I however do > not see my son as " disabled " . A disability only disables you to the > limit that you let it (or in my son's case, as I let it disable him). > I work for a Non-profit independent living center, and have to say, > until I had a chance to work with people who have profound and life > limiting or changing disabilities, I thought Lucas would be limited, > but when you work with the woman how can only use a very small part > of her hand and her mouth, and still she works full time, or the deaf > blind man who works as a computer progamer, I have learned that > limiting my dreams for my son would be a disservice to him. He has > dreams and goals and plans. Maybe if he were nonverbal or severly > limited by the autism would I want to cure it, but his being autistic > is why he thinks and talks the way he does. I am not saying a cure it > bad, but I worry about the concequences. If I could be sure that I > would be able to cure him, but keep his unique self, then I would > jump through hoops. But they can't cure Tay Sachs or Cystic Fibrosis > and I think those require a cure long befor autism. The other thing > that worries me is, if we have the genetic testing become avalible, > how many people will terminate pregancies based on the autism > diagnosis? How can we tell where on the spectrum a child will fall > before birth? I live with a person with autism every single day, and > I don't think the autism is a gift, but a part of the person who my > son is. I guess because I think that he is a gift from God that I > accept the challanges that the autism brings along with the honest, > sweet, loving, frustrating, cute, impish little boy that is my whole > world. > > Personally, while > > curing my sons autism would be great, it is part of > > > who he is. Am I the only one who is worried taking about the > > quirky part > > > of him would change him? > > > > > > Rathswohl > > > Deaf Services Coordinator > > > Dayle McIntosh Center > > > 714 621 3300 x 341 voice > > > 714 620 8370 fax > > > mrathswohl@ > > > > > > NOTICE: This message, together with any attachments is intended > > only for > > > the use of the individual or entity to which it is addressed > and > > may > > > contain information that is confidential and prohibited from > > disclosure. > > > If you are not the intended recipient, you are hereby notified > > that any > > > dissemination or copy reproduction of this message is strictly > > > prohibited. If you have received this message in error, notify > > the > > > original sender immediately and delete this message and any > > attachments > > > from your computer > > > > > > If this communication involves discussion of patient care > issues > > in the > > > performance improvement process, it is protected from discovery > > by > > > California Evidence Code 1157 as a confidential medical staff > > > communication. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 THere is going to be a show about her on the t.v in Australia next Tuesday on the SBS at 7.30 if anyone is interested. Re: ( ) Re:Autism Cure, huh? > Are you talking about the autistic woman who invented the queeze machine? > It's like a device cattle go through in some way, but she found it helped > calm her autism symptoms some. > > Jo <gypsys_girl_beem@...> wrote: I dont think any > of claimed to celebrate autism or view it as a gift. > if i had a choice (which I dont) I would elect for alex to be NT. I > dont enjoy seeing him struggle or have to learn things that NT kids > get naturally. I wont speak for the rest, but my point is that > is what he is. I know i have no control over a cure. i control how i > parent him. I control his education and the influances he gains from > educators and other people in his life. I control weather or not i > sit and do nothing or educate others in my life about autism. I > refuse to let alex be defined by autism. I refuse to contribute to > ignorance with silence, and i refuse to morn who alex could have been > and choose to celebrate who he IS. I will not agree that autism is a > curse for my child. Parents of more profoundly autistic children have > the right to feel bitter about a child they see as lost.. i feel for > those families. but i dont generalize. I speak for my family from my > experiences. My isnt lost he isnt cursed. nothing is easy, but > things worth having usually arent. Every accomplishment adds > character and strength as much as a newley learned ability. Has > anyone heard of that lady (robert knows her name) who was born > proundly autistic..now she's an author, college professor and designs > slaughterhouses all over the world for the humane slaughter of cows > and pigs..its because of her autism and how it caused her to think > and see information that gave her the " gifts " (dare i use this word??) > and career paths she has taken. AND, shes happy. just another way to > view ASD.. for all my opinions worth.... I do understand the anger > and sadness o having a child with ASD, but that sadness wont define me > > Personally, while >> curing my sons autism would be great, it is part of >> > who he is. Am I the only one who is worried taking about the >> quirky part >> > of him would change him? >> > >> > Rathswohl >> > Deaf Services Coordinator >> > Dayle McIntosh Center >> > 714 621 3300 x 341 voice >> > 714 620 8370 fax >> > mrathswohl@ >> > >> > NOTICE: This message, together with any attachments is intended >> only for >> > the use of the individual or entity to which it is addressed and >> may >> > contain information that is confidential and prohibited from >> disclosure. >> > If you are not the intended recipient, you are hereby notified >> that any >> > dissemination or copy reproduction of this message is strictly >> > prohibited. If you have received this message in error, notify >> the >> > original sender immediately and delete this message and any >> attachments >> > from your computer >> > >> > If this communication involves discussion of patient care issues >> in the >> > performance improvement process, it is protected from discovery >> by >> > California Evidence Code 1157 as a confidential medical staff >> > communication. >> > >> > Quote Link to comment Share on other sites More sharing options...
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