Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Hi e, My daughter Abbie (12, systemic) was diagnosed at 10. She was to soccer as your daughter is to dance. The most difficult thing was when she made the decision she had to give it up. We have been through many ups and downs in the last 2 years, but I think more ups. This fall she is in 7th grade and has been well enough to play school basketball. The joy she gets from this in indescribable. To be playing anything is something we had not hoped for. I have to laugh at my new perspective though. I see kids come off the court in less pain than my kid feels in the morning just trying to get out of bed. Not that it's any less real to them, it is just that our "special" kids have been through so much more. e, the beginning is always the worst. You have no idea which direction this thing is going to go, and you question every move you make. As the mom of 2 other healthy girls (17, 14) I see that Abbie, even with arthritis, is pretty normal in her psychological growth patterns. She has had to make so life changing adjustments. She no longer dreams of going to school at North Carolina and playing professional soccer. She now dreams of playing recreational soccer in the spring. I can't say that I miss leaving town every weekend to go to a soccer tournament somewhere. I don't miss the hotel bills, meals out or tournament fees. I do miss the pleasure it brought her, but even at this age, she has altered her dreams, and come through it with a smile on her face. I think that it is all about putting it in perspective. When she first got sick, she was so bad that for a little while she was frightened she was going to die. The fevers were tremendously bad, and doctor after doctor left her room scratching their heads. Everything looks better after that. Good luck with your decisions. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Hi e Although my son is only 5, he's systemic and was hit hard when Arthur reared his ugly head. He was an overly active child turned into a 90 year old man overnight. He missed 45 days of school, from October 2000 until March 2001. He came down with a severe case of chicken pox in between there, over 5000 on his body. He had joint injections done in March 2001 and the difference was unbelievable! He was kept off his feet for 48 hours, (thanks to a mom here in this group that warned me first) and was back to running, tumbling, and climbing trees when we did let him up. He was under general anestetic (sp?) and was up in no time playing a nintendo game they had set up in his room. He's still to this day overly active, he still can't run as fast as the other kids due to some damage in his knees, but his teacher says he's one of the hardest playing kids in the class. He wants to play baseball like his brother next year and when he grows up he wants to be a fire fighter. It won't be me that stops him, that's for sure. As for your daughter, in my opinion (and i have no medical background, just a mom that has seen the results of injections), she would be back to dancing in no time. Jordan had all his joints done at once and it's been a blessing. It's not a permanent fix, we realize that, but with his MTX and indomethacin & folic acid that he's on, somthing is doing it's magic. Needles are a scary thing to anyone at any age, but your daughter seems determined by her dancing, and is at the age where life doesn't always go your way, sometimes you have to help it to go that way. Good Luck with your daughter and welcome to our group. Lori mom of Jordan 5 - systemic > Our 14 year old dancer daughter (ballet, pointe, jazz, modern, school > dance team, ballet company etc) had what we thought was a dance > injury > in April. Her knee swelled up like a balloon. She rested from dance, > went to physical therapy, had x-rays and a MRI and it got better. At > that time her elbows " went weird " while on crutches but we thought it > was " just weird " . She went to ballet intensive camp for a few weeks > and did great. She was home a week and her ankle swelled up. Next > week > her knee went bad again. Then I decided to check the " good knee " to > the " bad knee " and the " good knee " was twice as bad as the " bad knee " > (this was August). Right then and there it hit me, oh my gosh she was > JRA. (I'm a nurse but work with geriatrics but I had this knowledge > come to me in a strange way I knew) > > So it was off to the ped in the morning who confirmed this. As a > dancer you can just imagine that she was devastated with this news > (as > were we). She started on high doses of aspirin and then scheduled to > see the rheumatology clinic at Seaatle Childrens. After the diagnosi > I > could not leave her and go to work so we did " retail therapy " , went > out to eat and a movie. > > Childrens confirmed the diagnosis. Felt it was pauci with knee and > ankle involvement, blew off the elbow thing. She started on > Diclofenac. It did nothing and she just got worse. Then it was onto > Feldene, it did not work either. Back to the clinic for an urgent > appt. She is now on Prednisone and Methotrexate (just started this > week) and a multi-vitamin with folic acid. Our daughter is needle > phobic so all these lab tests are really difficult. She now has some > finger involvement, knees, ankles, elbows (they are back) shoulder > and > spine. She cannot dance because she has no knee stability. She falls > frequently because her knees go out. > > He wants (the dr) to drain and inject her knees with cortisone. She > has refused because of her phobia. They swear she could dance soon > likely if she has it done and her joints settle with the systemic > steroids. She has to make that choice first (they will give her some > " happy drugs " to make her loopy before hand). And then it is off to PT > > I have been skimming the posts but most seem to be younger children. > I > would love to hear from some teen parents to see how you and your > child have adjusted. Like I say, her dream was to study dance in > college. Now that dream is not likely. You have to do a lot before > college to get accepted. > > Looking forward to learn from all of you. > > --e, mom of 14 y.o. girl with poly; 12 year old boy just > normal > pre-teen; 4 y.o. boy who was a preemie and has so many specialists, > therapists, psych medications and more that we were already > overwhelmed and now we get to do the JRA world Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 & Tabitha: Does the poly JRA cause more joint damage than the others? My doctor hasn't really said much about it. is systemic and the more I read, it seems like lots of kids have had knee or other joints replaced. I don't let myself go that far because it scares me. I just wonder if this is something I should bring up to the doc to see if there are any preventative measures. Pat & (1 year systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 e- What an awful thing for a dancer to have to face. My daughter is much younger, but joint injections worked wonders for her. Almost immediate results. Ask about EMLA cream to numb the injection area. The injections can even be done under general anaesthesia. Maybe your daughter will be able to continue to dance. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 hello e and welcome (as you said) to jra world. My name is and my daughter is 16 and has poly jra. When i read you post..i cried. Not because i was sad for you but as a mother it brings back alot of memories finding out that your child has jra. I feel for your daughter because of having 14 years and now having to re-adjust her life. I don't know if it would be fortunate but Tabitha was diagnosed at the age 4.5 so she has grown-up with arthur. I can't honestly say it completely helped her growing up with it and all because she still sees kids able to do things she is unable to do. But you will soon see that with this ugly disease comes along with an attitude of courage,strength, and compassion. Sometimes Tabitha gets down about it but then she goes on because she knows she is the only one who will benefit in the long run. As far as phobias with needles..i know that one. Tabitha still has to get babied and stuff to get injected for anything..never has gotten use to it... When she would get injections of cortisones and her knee drained..they would give her a valum(sp) it would make her goofy but it would help alot. Tabitha has had surgeries since getting this..in feb. of 97 she had her right foot fused...sept. of 97' she had her left knee replaced...right- knee replaced in sept. 99' and both hips replaced in sept. of 2000. Pretty soon she will be a new person. The disease has done alot of joint damage throughout her body but we go on..as will you and your daughter. There will be lots of ups and downs..meds that work and meds that don't..but as long as she has mom to vent and cry to..she will find that attitude...there are lots of things she will be able to do..and in time she will find it,,i can promise you that. i may have confused you more..i hope not. i just wanted to let you know that it will all work out. Sounds like your tough mom!karen and Tab(16) From: kmckell@... Reply- Subject: hi, new here! Date: Sat, 06 Oct 2001 07:51:11 -0000 Our 14 year old dancer daughter (ballet, pointe, jazz, modern, school dance team, ballet company etc) had what we thought was a dance injury in April. Her knee swelled up like a balloon. She rested from dance, went to physical therapy, had x-rays and a MRI and it got better. At that time her elbows " went weird " while on crutches but we thought it was " just weird " . She went to ballet intensive camp for a few weeks and did great. She was home a week and her ankle swelled up. Next week her knee went bad again. Then I decided to check the " good knee " to the " bad knee " and the " good knee " was twice as bad as the " bad knee " (this was August). Right then and there it hit me, oh my gosh she was JRA. (I'm a nurse but work with geriatrics but I had this knowledge come to me in a strange way I knew) So it was off to the ped in the morning who confirmed this. As a dancer you can just imagine that she was devastated with this news (as were we). She started on high doses of aspirin and then scheduled to see the rheumatology clinic at Seaatle Childrens. After the diagnosi I could not leave her and go to work so we did " retail therapy " , went out to eat and a movie. Childrens confirmed the diagnosis. Felt it was pauci with knee and ankle involvement, blew off the elbow thing. She started on Diclofenac. It did nothing and she just got worse. Then it was onto Feldene, it did not work either. Back to the clinic for an urgent appt. She is now on Prednisone and Methotrexate (just started this week) and a multi-vitamin with folic acid. Our daughter is needle phobic so all these lab tests are really difficult. She now has some finger involvement, knees, ankles, elbows (they are back) shoulder and spine. She cannot dance because she has no knee stability. She falls frequently because her knees go out. He wants (the dr) to drain and inject her knees with cortisone. She has refused because of her phobia. They swear she could dance soon likely if she has it done and her joints settle with the systemic steroids. She has to make that choice first (they will give her some " happy drugs " to make her loopy before hand). And then it is off to PT I have been skimming the posts but most seem to be younger children. I would love to hear from some teen parents to see how you and your child have adjusted. Like I say, her dream was to study dance in college. Now that dream is not likely. You have to do a lot before college to get accepted. Looking forward to learn from all of you. --e, mom of 14 y.o. girl with poly; 12 year old boy just normal pre-teen; 4 y.o. boy who was a preemie and has so many specialists, therapists, psych medications and more that we were already overwhelmed and now we get to do the JRA world _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 kristine..sorry ran out of room. If your daughter wants to ask Tabitha some different questions or someone to email about things...her address is Kakasha16@... is pretty good about talking or writing about things. i still can't figure out where that name came from she uses...lol. Again it is.......Kakasha16@... take care karen From: kmckell@... Reply- Subject: hi, new here! Date: Sat, 06 Oct 2001 07:51:11 -0000 Our 14 year old dancer daughter (ballet, pointe, jazz, modern, school dance team, ballet company etc) had what we thought was a dance injury in April. Her knee swelled up like a balloon. She rested from dance, went to physical therapy, had x-rays and a MRI and it got better. At that time her elbows " went weird " while on crutches but we thought it was " just weird " . She went to ballet intensive camp for a few weeks and did great. She was home a week and her ankle swelled up. Next week her knee went bad again. Then I decided to check the " good knee " to the " bad knee " and the " good knee " was twice as bad as the " bad knee " (this was August). Right then and there it hit me, oh my gosh she was JRA. (I'm a nurse but work with geriatrics but I had this knowledge come to me in a strange way I knew) So it was off to the ped in the morning who confirmed this. As a dancer you can just imagine that she was devastated with this news (as were we). She started on high doses of aspirin and then scheduled to see the rheumatology clinic at Seaatle Childrens. After the diagnosi I could not leave her and go to work so we did " retail therapy " , went out to eat and a movie. Childrens confirmed the diagnosis. Felt it was pauci with knee and ankle involvement, blew off the elbow thing. She started on Diclofenac. It did nothing and she just got worse. Then it was onto Feldene, it did not work either. Back to the clinic for an urgent appt. She is now on Prednisone and Methotrexate (just started this week) and a multi-vitamin with folic acid. Our daughter is needle phobic so all these lab tests are really difficult. She now has some finger involvement, knees, ankles, elbows (they are back) shoulder and spine. She cannot dance because she has no knee stability. She falls frequently because her knees go out. He wants (the dr) to drain and inject her knees with cortisone. She has refused because of her phobia. They swear she could dance soon likely if she has it done and her joints settle with the systemic steroids. She has to make that choice first (they will give her some " happy drugs " to make her loopy before hand). And then it is off to PT I have been skimming the posts but most seem to be younger children. I would love to hear from some teen parents to see how you and your child have adjusted. Like I say, her dream was to study dance in college. Now that dream is not likely. You have to do a lot before college to get accepted. Looking forward to learn from all of you. --e, mom of 14 y.o. girl with poly; 12 year old boy just normal pre-teen; 4 y.o. boy who was a preemie and has so many specialists, therapists, psych medications and more that we were already overwhelmed and now we get to do the JRA world _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Hi I am Sally, mum of a son with Systemic JRA. He was diagnosed at 15 (He is now 20). I know how you are feeling. My son was incredibly sporty, played just about every sport going and wanted it to be his life. Due to his illness, this hasnt worked out, but I have to say that having his knees drained and injected with cortisone makes the difference, literally, between being able to walk and not. He says it is not so bad, it only feels similar to having a blood test. I alway stroke his arms back, etc. when he is having it done and we (nurse, doc and me) all talk to him about just about everything to take his mind off it. It really does make a difference. As much as I hate, hate, hate him having to be on prednisolone, there is no doubt it really does make the difference between him being really ill and not able to move his knees and being able to work completely normally, and as long as he does not overdo things, the injections can last up to 6 months! The way I look at it - we are between the devil and the deep blue sea - we need to keep out kids as healthy as we can and keep the joints as mobile as possible whilst these wonderful people doing research come up with a cure - and I am sure they will, hopefully in the next few years. I know at our hospital, the younger ones get a general anaesthetic for their injections. Maybe your daughter could be put out completely. Obviously there is a risk with this as well - its just a case of weighing it all up. has had it done quite a few times now, but I know the first time was the worst. Love Sal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 e - Hi,and welcome to the group. I have a son, who is 14 and was diagnosed last Oct. with pauci jra. It is possible he may have ankling spondilarthropy (I'm sure that is totally spelled wrong!).He currently takes 800 mgs of Celebrex and 2000 mgs of Sulfasalazine daily. These may be changed shortly due to other joints becoming involved. He is/was a baseball and volleyball player. I say is/was because while he cannot play on the traveling teams he was supposed to be on, he does play in our in house leagues. Not as tough competitively, but still great to see him do after losing an enitre year due to being misdiagnosed. He chose not to try out for his high school baseball team but is considering the volleyball team. We shall see. He did have games when he was in quite a bit of pain but he insisted on finishing the games. He was even able to get back to pitching by the end of the year. I think for him it has been a big psychological adjustment. He has chosen not to tell many people. He, for awhile, resisted taking the meds. I understand that is quite common with teens. They do not like anything that seems to make them different. Sometimes he is rather emotional. All the hormones running around their bodies and then a disease on top of it. It is an adjustment. One thing we did discuss here not to long ago was the fact that as teens they may be invited to try various things - alchohol, smoking, etc. Many of us with teens (and preteens) said we have talked with our kids about understanding the extra dangers in combining these substances with the medicines they take. Sometimes these reactions can be fatal. Just something to keep in mind. I wish you and your family well. Michele hi, new here! Our 14 year old dancer daughter (ballet, pointe, jazz, modern, school dance team, ballet company etc) had what we thought was a dance injury in April. Her knee swelled up like a balloon. She rested from dance, went to physical therapy, had x-rays and a MRI and it got better. At that time her elbows " went weird " while on crutches but we thought it was " just weird " . She went to ballet intensive camp for a few weeks and did great. She was home a week and her ankle swelled up. Next week her knee went bad again. Then I decided to check the " good knee " to the " bad knee " and the " good knee " was twice as bad as the " bad knee " (this was August). Right then and there it hit me, oh my gosh she was JRA. (I'm a nurse but work with geriatrics but I had this knowledge come to me in a strange way I knew) So it was off to the ped in the morning who confirmed this. As a dancer you can just imagine that she was devastated with this news (as were we). She started on high doses of aspirin and then scheduled to see the rheumatology clinic at Seaatle Childrens. After the diagnosi I could not leave her and go to work so we did " retail therapy " , went out to eat and a movie. Childrens confirmed the diagnosis. Felt it was pauci with knee and ankle involvement, blew off the elbow thing. She started on Diclofenac. It did nothing and she just got worse. Then it was onto Feldene, it did not work either. Back to the clinic for an urgent appt. She is now on Prednisone and Methotrexate (just started this week) and a multi-vitamin with folic acid. Our daughter is needle phobic so all these lab tests are really difficult. She now has some finger involvement, knees, ankles, elbows (they are back) shoulder and spine. She cannot dance because she has no knee stability. She falls frequently because her knees go out. He wants (the dr) to drain and inject her knees with cortisone. She has refused because of her phobia. They swear she could dance soon likely if she has it done and her joints settle with the systemic steroids. She has to make that choice first (they will give her some " happy drugs " to make her loopy before hand). And then it is off to PT I have been skimming the posts but most seem to be younger children. I would love to hear from some teen parents to see how you and your child have adjusted. Like I say, her dream was to study dance in college. Now that dream is not likely. You have to do a lot before college to get accepted. Looking forward to learn from all of you. --e, mom of 14 y.o. girl with poly; 12 year old boy just normal pre-teen; 4 y.o. boy who was a preemie and has so many specialists, therapists, psych medications and more that we were already overwhelmed and now we get to do the JRA world For links to websites about arthritis and JRA, visit: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Michele, that is so true when teens have so many pressures on them from peer groups, your son get the unfortunate task of dealing with one more. Although from reading your posts, I'd say young has got some true grit! and not likely to give up to this demon. Ankelosis Spond???????? , as you can tell I don't know how to spell it without the word being right in front of me, and that is what my doctor says I have, as well as Ostio Arthritis. Having this decease means you practically need a dictionary at your side, just to be able to spell the words! Or go to school to learn Latin! I wanted to ask, has thought of getting into swimming, that was the one thing the school would let me compete in! Although its not for everyone, it is one the best exercises for Arthritis. Rusty Limbs in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 These kids today .... We had 3 adults and 4 children in our house & only one bathroom (though for awhile 1st and 2nd grade we lived in a house with a master bath too - & I didn't even know it was there until we were ready to move!!! Today I rent a 3 level townhouse for Rob and I & it has 3 & 1/2 bathrooms !!! I keep asking myself why I am cleaning 4 toilets for two people!!!! Ha! Val Rob's Mom In a message dated Thu, 11 Oct 2001 1:35:18 PM Eastern Daylight Time, DONALD A MORSE <dam755@...> writes: > Oh Michele, your telling! > I've got 3 older sisters and one younger, and grew up in a house with > only one bathroom!!! > Talk about out numbering odds!!! > has my understanding all the way around!!! > Rusty Limbs in need of 3in1 oil today! > > On Thu, 11 Oct 2001 10:23:03 -0500 " Tepper, Michele " > <Micheletepper@...> writes: > > Luckily, goes to a school that offers Latin! But he is actually > > taking > > German. My oldest is interested in medicine so she'll have to be > > our > > interpreter I guess! His school does have a pool and he has thought > > about > > joining swimming or water polo. I would love it if he would try > > something. > > Right now, he doesn't do much. Which drives me a little crazy > > because he has > > always been so active. I need to give him more time I guess. I just > > don't > > want him to be afraid to try. But he must determine for himself how > > he > > feels. And you are right- he is a pretty tough kid. Being stuck > > between 2 > > sisters can make a guy that way! Michele > > > > Re: hi, new here! > > > > > > Michele, that is so true when teens have so many pressures on them > > from > > peer groups, your son get the unfortunate task of dealing with one > > more. > > Although from reading your posts, I'd say young has got some > > true > > grit! and not likely to give up to this demon. > > Ankelosis Spond???????? , as you can tell I don't know how to spell > > it > > without the word being right in front of me, and that is what my > > doctor > > says I have, as well as Ostio Arthritis. > > Having this decease means you practically need a dictionary at your > > side, > > just to be able to spell the words! Or go to school to learn Latin! > > > > I wanted to ask, has thought of getting into swimming, that > > was the > > one thing the school would let me compete in! Although its not for > > everyone, it is one the best exercises for Arthritis. > > > > Rusty Limbs in Michigan > > > > > > For links to websites about arthritis and JRA, visit: > > http://www.geocities.com/Heartland/Village/8414/Links.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Luckily, goes to a school that offers Latin! But he is actually taking German. My oldest is interested in medicine so she'll have to be our interpreter I guess! His school does have a pool and he has thought about joining swimming or water polo. I would love it if he would try something. Right now, he doesn't do much. Which drives me a little crazy because he has always been so active. I need to give him more time I guess. I just don't want him to be afraid to try. But he must determine for himself how he feels. And you are right- he is a pretty tough kid. Being stuck between 2 sisters can make a guy that way! Michele Re: hi, new here! Michele, that is so true when teens have so many pressures on them from peer groups, your son get the unfortunate task of dealing with one more. Although from reading your posts, I'd say young has got some true grit! and not likely to give up to this demon. Ankelosis Spond???????? , as you can tell I don't know how to spell it without the word being right in front of me, and that is what my doctor says I have, as well as Ostio Arthritis. Having this decease means you practically need a dictionary at your side, just to be able to spell the words! Or go to school to learn Latin! I wanted to ask, has thought of getting into swimming, that was the one thing the school would let me compete in! Although its not for everyone, it is one the best exercises for Arthritis. Rusty Limbs in Michigan For links to websites about arthritis and JRA, visit: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Val lolol the more the merrier? we have 1 bathroom and so far its ok with 5 living here when i was growing up we had 1 bathroom when was born we wanted a bigger place so we moved into a 5 bdrm house with 3 bathrooms lololol that was just for 4 people well 3 people melissa was a baby lolol cleaning was my problem with those bathrooms because i knew 1 would never get used but that one for some reason always needed cleaning lolol my hubbys parents got sick not long after that and we had to sell that one and move closer into the big city and went to 1 bathroom again lololol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Oh Michele, your telling! I've got 3 older sisters and one younger, and grew up in a house with only one bathroom!!! Talk about out numbering odds!!! has my understanding all the way around!!! Rusty Limbs in need of 3in1 oil today! On Thu, 11 Oct 2001 10:23:03 -0500 " Tepper, Michele " <Micheletepper@...> writes: > Luckily, goes to a school that offers Latin! But he is actually > taking > German. My oldest is interested in medicine so she'll have to be > our > interpreter I guess! His school does have a pool and he has thought > about > joining swimming or water polo. I would love it if he would try > something. > Right now, he doesn't do much. Which drives me a little crazy > because he has > always been so active. I need to give him more time I guess. I just > don't > want him to be afraid to try. But he must determine for himself how > he > feels. And you are right- he is a pretty tough kid. Being stuck > between 2 > sisters can make a guy that way! Michele > > Re: hi, new here! > > > Michele, that is so true when teens have so many pressures on them > from > peer groups, your son get the unfortunate task of dealing with one > more. > Although from reading your posts, I'd say young has got some > true > grit! and not likely to give up to this demon. > Ankelosis Spond???????? , as you can tell I don't know how to spell > it > without the word being right in front of me, and that is what my > doctor > says I have, as well as Ostio Arthritis. > Having this decease means you practically need a dictionary at your > side, > just to be able to spell the words! Or go to school to learn Latin! > > I wanted to ask, has thought of getting into swimming, that > was the > one thing the school would let me compete in! Although its not for > everyone, it is one the best exercises for Arthritis. > > Rusty Limbs in Michigan > > > For links to websites about arthritis and JRA, visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 michele, How old is Chris? Tell him to give me a chat-Im a kid finding athritis taking a huge toll on life but have some helpful tips. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Pat..in Tabithas case the answer is yes it has caused alot of joint damage. Tabitha has it from head to toe. I noticed her right knee when she was smaller and i was told that the doctor was more worried about getting the disease under control more than anything. The damage to the joints could be dealt with later. I do know that poly means more than a few joints affected by jra...but in Tabs case..it is a severe case of it and believe me the damage has been done. But thanks god she does go on. I do know wearing wrist, well any type of splints do help when it comes to things. She had at one time worn rings on her fingers(special ones...forget the name) to try and help her joints in her. But her fingers on both hands have went crooked..her wrist have fused,neck has fused, which they did on their own. But tab loves to write and the computer helps out alot..she uses a finger from each hand and can out type me with me using all fingers. One plus with Tabitha is that God did give her the talent to write stories..she says one day is she is going to write a novel about herself and jra. But if you do have any questions, you can ask the doctor, it wouldn't hurt. Tabitha had this amazing doctor at one time(Dr.Londino) who has since passed away. He always joked with Tabitha that one day he was going to make her the bionic woman..she would blush! Even when she was little, she was a flirt..lol. Sorry to, as we all say, ramble on... Good luck to you and taylor karen(tabitha16..poly) From: sdbpab@... Reply- Subject: Re: hi, new here! Date: Sat, 6 Oct 2001 14:11:13 EDT & Tabitha: Does the poly JRA cause more joint damage than the others? My doctor hasn't really said much about it. is systemic and the more I read, it seems like lots of kids have had knee or other joints replaced. I don't let myself go that far because it scares me. I just wonder if this is something I should bring up to the doc to see if there are any preventative measures. Pat & (1 year systemic) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Curious to see if there are any parents in this group from Minnesota? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 In a message dated 11/19/2006 5:27:53 P.M. Central Standard Time, erinamondo@... writes: Curious to see if there are any parents in this group from Minnesota? Hi erinamondo, there are a few! Mostly near the cities I believe. Where are you located? I'm a little south of Duluth ) erika Miranda (13) ny (11) R.J. (7) Beth (6) Trying to control children by yelling is as utterly futile as attempting to steer a car by honking the horn. (http://www.winzy.com/f/erikac) (http://www.thefreelot.com/?a=becalhoun98) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 I am from Minnesota:) christie -- ( ) Hi, new here! Curious to see if there are any parents in this group from Minnesota? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Hi Annette, welcome to the group. I hope you find some of the answers that you are looking for here. AS for Mexico, this I can not anwser for you. WELCOME! Jodie > > Hi, new to the group. Still have not decided if I want to try this. I > live right on the border to mexico. Is this something I can purchase in > mexico? > > Thanks, > Annette > Quote Link to comment Share on other sites More sharing options...
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