Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Welcome Toni. Sorry for all you are going through. I hope your doctor finds out what is going on so you can start treatment. It's hard not knowing what is going on. I can understand why you are at the end of your rope. Hang on tight and hopefully things will get better soon. a > > > > my name is Toni I live in Midland Tx, I was diagnosed 3wks ago that > I have fibromyalgia, Monday a week I had a bone scan, and learned > today Iam pre RA,, This past monday i had skin biopsis done because > doc thinks I may have lupus. im 49 married one son 29 married he is > a fireman, I have a step son 17 and and daughter 16 and they both > have down syndrome. My mom lives with up she is on hospice. Im a > surgical nurse got hurt at work a year ago had surgery and I m still > not working and work comp has been a living hell as well as the pain > management doc I have now. would change if I could find some one > else. so I feel like im at the end of my rope.. needless to say I > dont sleep much .. I went to RA doc today because yesterday I woke > swollen feet hands face whole I feel like I could blow up.. I > thought he was going to put me in the hospital. I had him scratching > his head. I have some type of vascularitis is what doc said. They > dont want to start RA meds til they figure out what is going > on..well Im tired now Im gonna get off my feet. I wish I could have > had something pleasant to say ya know...toni > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi Toni, I'm sorry to hear about all the problems you're having but glad you found us. It sounds like it might be a challenge to get all of this under control, but we are here to listen, complain to and help as much as we can as you go through this. Jennie > > > my name is Toni I live in Midland Tx, I was diagnosed 3wks ago that > I have fibromyalgia, Monday a week I had a bone scan, and learned > today Iam pre RA,, This past monday i had skin biopsis done because > doc thinks I may have lupus. im 49 married one son 29 married he is > a fireman, I have a step son 17 and and daughter 16 and they both > have down syndrome. My mom lives with up she is on hospice. Im a > surgical nurse got hurt at work a year ago had surgery and I m still > not working and work comp has been a living hell as well as the pain > management doc I have now. would change if I could find some one > else. so I feel like im at the end of my rope.. needless to say I > dont sleep much .. I went to RA doc today because yesterday I woke > swollen feet hands face whole I feel like I could blow up.. I > thought he was going to put me in the hospital. I had him scratching > his head. I have some type of vascularitis is what doc said. They > dont want to start RA meds til they figure out what is going > on..well Im tired now Im gonna get off my feet. I wish I could have > had something pleasant to say ya know...toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Toni, welcome to the group! Sorry that you are having such a rough time and that you have so many sources of stress in your life. Hope you'll get some answers very soon and that the proper treatment will help you feel better. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hello Im new > > > > my name is Toni I live in Midland Tx, I was diagnosed 3wks ago that > I have fibromyalgia, Monday a week I had a bone scan, and learned > today Iam pre RA,, This past monday i had skin biopsis done because > doc thinks I may have lupus. im 49 married one son 29 married he is > a fireman, I have a step son 17 and and daughter 16 and they both > have down syndrome. My mom lives with up she is on hospice. Im a > surgical nurse got hurt at work a year ago had surgery and I m still > not working and work comp has been a living hell as well as the pain > management doc I have now. would change if I could find some one > else. so I feel like im at the end of my rope.. needless to say I > dont sleep much .. I went to RA doc today because yesterday I woke > swollen feet hands face whole I feel like I could blow up.. I > thought he was going to put me in the hospital. I had him scratching > his head. I have some type of vascularitis is what doc said. They > dont want to start RA meds til they figure out what is going > on..well Im tired now Im gonna get off my feet. I wish I could have > had something pleasant to say ya know...toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Welcome Toni! > > > my name is Toni I live in Midland Tx, I was diagnosed 3wks ago that > I have fibromyalgia, Monday a week I had a bone scan, and learned > today Iam pre RA,, This past monday i had skin biopsis done because > doc thinks I may have lupus. im 49 married one son 29 married he is > a fireman, I have a step son 17 and and daughter 16 and they both > have down syndrome. My mom lives with up she is on hospice. Im a > surgical nurse got hurt at work a year ago had surgery and I m still > not working and work comp has been a living hell as well as the pain > management doc I have now. would change if I could find some one > else. so I feel like im at the end of my rope.. needless to say I > dont sleep much .. I went to RA doc today because yesterday I woke > swollen feet hands face whole I feel like I could blow up.. I > thought he was going to put me in the hospital. I had him scratching > his head. I have some type of vascularitis is what doc said. They > dont want to start RA meds til they figure out what is going > on..well Im tired now Im gonna get off my feet. I wish I could have > had something pleasant to say ya know...toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi Toni, my name is and I also live in TX (Fort Worth). I have two kids, 11 and 15. I know we have several members who are raising special-needs kids along with the challenges of managing their own RA, and I hope you'll feel welcome here. These diseases can be so unpredictable and confusing, especially at first....I also tested positive for lupus at the beginning, but I don't have it, just RA. So just hang in there. > > > my name is Toni I live in Midland Tx, I was diagnosed 3wks ago that > I have fibromyalgia, Monday a week I had a bone scan, and learned > today Iam pre RA,, This past monday i had skin biopsis done because > doc thinks I may have lupus. im 49 married one son 29 married he is > a fireman, I have a step son 17 and and daughter 16 and they both > have down syndrome. My mom lives with up she is on hospice. Im a > surgical nurse got hurt at work a year ago had surgery and I m still > not working and work comp has been a living hell as well as the pain > management doc I have now. would change if I could find some one > else. so I feel like im at the end of my rope.. needless to say I > dont sleep much .. I went to RA doc today because yesterday I woke > swollen feet hands face whole I feel like I could blow up.. I > thought he was going to put me in the hospital. I had him scratching > his head. I have some type of vascularitis is what doc said. They > dont want to start RA meds til they figure out what is going > on..well Im tired now Im gonna get off my feet. I wish I could have > had something pleasant to say ya know...toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Hello .Thank you for the Welcome im new here. I have a 17 yr old son with HFA. We live in Arizona/USA. Looking forward to getting to know you all Hugs -- Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 HEY ROBIN!!! Glad you found us!! I told you this group is great! -- ( ) Hello Im New Hello .Thank you for the Welcome im new here. I have a 17 yr old son with HFA. We live in Arizona/USA. Looking forward to getting to know you all Hugs -- Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Yes it is very much so, I am enjoying my time here so far. Thanks Chris! On 4/7/06, Robin <initialamericandreamjoe@...> wrote: > Hello .Thank you for the Welcome im new here. I have a 17 yr old son > with HFA. We live in Arizona/USA. Looking forward to getting to know > you all > Hugs > -- > Robin > > > Quote Link to comment Share on other sites More sharing options...
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