Does this sound familiar to anyone?

[Guest guest]

Dayna:

I know I sound like a broken record, I'm so anti-dairy. But it's for good

reason! But used to double over with stomach pain when she was having a

reaction to dairy. Dairy can cause gas pain, mucousy diarrhea, etc. It can also

cause reflux or urps. Whenever I hear " mucous " I think dairy, but that's just

because of our personal experience.

It certainly doesn't hurt to try an elimination diet for two weeks, it can

take 10 days or more for all dairy to leave your system. I would ask about baby

gas pain medicine in the meantime (something with simethicone absorbs nicely).

If you're nursing you'll have to change your diet too (was a pain but I'm

losing tons of weight!), and if she's on formula you'll have to go to soy-based

(prosobee or other but you need to read the labels to make sure it's not

casein-based, which is cow's milk).

If you decide to eliminate dairy, you have to be vigilant. Dairy is in soooo

much stuff. I'll e-mail you privately with a list of hidden dairy ingredients.

suffered with many symptoms as a baby that I now know were so obviously

dairy related and the peds were stumped. We didn't realize it until we tried

switching her to cow's milk at 1 year of age and she exploded! When I saw

the same symptoms cropping up with our second daughter (non-PID) as an infant,

I knew immediately to eliminate all dairy, and I even had to do it with my own

diet since I'm breastfeeding. It's been a pain but WELL worth it and an

amazing difference. Kate now has no symptoms of anything and spits up about once

a

month at most! She's happy and sleeps great, no tummy or poo troubles, no

rashes ever.

It's a simple " test " to change the diet, and worth a try!

(mom to Kate, born 9/19/02, dairy intolerant; and , age 4-1/2,

GERD, dairy intolerant -- currently has polysaccharide antibody def, previously

had transient IgG, IgA, t-cell & other defs)

[Guest guest]

-

YOUR THINKING LIKE A DOCTOR NOW!!! We did this! My oldest, Charlie was

also dairy intolerant - and I had to do the elimination diet too, because I BF.

We tried that with Kate under the GI's supervision - and it didn't change

anything. He actually wasn't addressing the pain at the time - just trying to

get to the root case of the 3 month bout of diahrrea she had -- but the pain

was there the whole time!

Thanks for the thought.

Dayna

[Guest guest]

Dayna:

Not to beat the issue to death, but you're absolutely sure you got every last

molecule? Even bread has sodium stearoyl lactylate in it. With Kate, I can't

have a single grain of dairy-related derivative or she'll " know " ! Also, she

touched hands with once when had Cheeto dust on her fingers, and she

reacted even though I washed it off before she ate it (I'm pretty sure).

( gets reflux from dairy but we let her have it periodically because she

just

loves it. If you can call garbage like Cheetos " dairy " !!)

I'll give it up now and stop harping on the issue, I just want to be sure

because it was such a perfect cure for us.

(mom to Kate, born 9/19/02, dairy intolerant; and , age 4-1/2,

GERD, dairy intolerant -- currently has polysaccharide antibody def, previously

had transient IgG, IgA, t-cell & other defs)

[Guest guest]

How do you feed Kate..does she have a 'normal' baby diet??..we are

struggling with our 7 week old with almost exactly the same

symptoms..he has mucousy stools as well. He has epsiodes of pain

several times a day. has many food allergies and intolerences

and is G-tube fed a synthetic formula as a result of her GI

problems...so our paranoia is pretty overwhelming at present. I do

believe that Max is lactose intolerant however I have decided to

continue breast feeding and weather the storm because of all the

benefits breast feeding does offer.

Don't you wish babies could talk or at least have some way of

telling how/why etc something hurts them..there is nothing so

distressing for a parent!

I hope you find some answers and some relief for Kate.....

Mum to Jay (8), (4)(PID, IVIGs and EGE, G-Tube neocate rice and

chicken), Max (7 weeks)

> Kate has been suffering from what we call " Pain Attacks " since she

was about

> 4 months old. At first they thought it was reflux, but the meds

never

> relieved it. They did an upper GI, it showed nothing, then a test

where they tested

> the acid levels over 24 hours - still nothing. We have done X

rays NOTHING.

> When she gets this, she SCREAMS and SCREAMS - anyone who see's it

says it's

> OBVIOUS she is in a LOT of pain. She is now nearly 11 months

old. From months

> 9-11 it almost completely went away - now it's back with a

VENGENCE - she has

> had it twice this week - once lasting 90 minutes and last night it

went on for

> two straight hours. The only other clues I can give you is that

in the

> beggining, she would " urp " up it was described to the doc by our

babysitter (who

> happens to be a MA in the office) as " more then spit up, less then

throw up,

> but full of mucus. " However, these last two times, that has not

happened. The

> docs have given her tylenol with codine (in part because they

witnessed it,

> and wanted to be able to at least relieve her pain because it is

SO horrible to

> watch, you can't even imagine what agony she seems like she is

in). It wakes

> her from a dead sleep.... I don't know what else to say, except

that a friend

> of mine whose kids also have a PID said her daughter went through

the same

> thing, and they NEVER did figure out what it was, even after

surgery to see if

> they could see anytthing.

>

>

> Any thoughts anyone? We're getting desperate here.

>

> Thanks.

>

> Dayna

>

>

>

[Guest guest]

Dayna:

This is Lynne'. My son when he was born was diagnosed with severe reflux.

They had him on bethanical, and zantac. He would scream for hours on end.

The docs all said he shouldn't be. He also had the projectile vomiting.

Well, the docs said that after an hour his stomach should be empty. It would be

three to four hours after feeding that he'd be still urping up mucus stuff.

The docs never understood it. He's ten now, up to my chin (I'm 5' 7 " ) and

weighs 50 pounds. He's still on meds, prilosec, but no urping anymore. The

only

thing we could do for him as a baby was to hold him, (standing up) with his

head by your shoulder. We'd sort of bounce, but twist back and forth at the

same time, his crying would settle a little, then we'd put our hand on the back

of his head with just a little pressure, and slowly he would calm down, finaly

put his head on our shoulder and go to sleep. Granted, we never got any

sleep, as soon as your laid him down, he'd go to screaming again, arching his

back

like you said.

Sis, my daughter has a pseudo tumor that showed up in December. Lately

she's been having these screaming fits. That's what Dale was talking about.

The neurologist, neuro opthamologist, neuro surgeon have all looked at her MRI

scans, they all say there is no reason for it. They can't explain it. It

drives me mad. She says she feels " bubbles " going up her spine. She's 8 years

old. And believe me, she knows how to tell you what she's feeling. I think all

PID kids have a very aware knowledge of thier bodies. The Lord knows how

many tests they've been thru. But when they are young and cant' tell you it's

even more so. As a baby she would have these screaming fits also. No

explantion. We'd put her in her bed, close the door. My husband would stand

there and

watch me, he knew I'd go in and get her. She would go to sleep in five or so

minutes.

So, not a lot of help. Sorry. But knowing there's other kids out there.

Oh, my son had to drink that pre digested formula too. Back then it was

alamintum, and nutramigen.

Lynne' (mom to sis, igg def. subclasses low, severe asthma, reflux,

pseudo tumor

[Guest guest]

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

Now that you mention it, my 6 1/2 yr old doesnt like baths either. This evening

his 4 yr old brother was all excited to get a bath & play with his bathtub toys.

When it came to be Jeffs turn (my AS son) he went and hid under his comforter on

his bed. I literally have to make him take a bath. Its a fight, and as soon as

he is done, he is out of there. He doesnt want to be in there one minute longer

then he has to.

Holly

Tami <nyx@...> wrote:

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

I know there might be issues with higyene , and my son, for ex, will throw

whole fits before cutting his nails, but he LOVES anything to do with

water, including showers and baths/

F

From:

[mailto: ] On Behalf Of Tami

Sent: á 29 îàé 2006 07:13

Subject: ( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

Mine was opposite. Hated bathes. Until we put him on risperdal, we had

spongebath him until he was nearly four! I promise a prize bag item if he

lets me cut his nails, will this work?

( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

Tami,

I have a nearly 14 year old boy who I have to yell at daily to shower. He

hates to take them as well as brush his teeth. Then I have to remind him to

brush his hair. Of course he hates to be reminded and says that he can do

it by himself, but after the shower I have to remind him again to brush his

hair. He says he hates to shower because it is cold when he gets out.

Basically it is a sensory issue that he will probably never get over.

Cameron likes music, but only his kind of music. It is hard for him to like

anything that isn't his taste. Cameron is way past puberty and hates the

hair on his body and wants to shave it off, all of it! Trying to explain to

him the importance of personal hygiene and what it means. It is a fight

everyday!!! My 7 year old is battling the shorts issue now. Isn't this

fun?

Janelle

-- ( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

Janelle, we have a waterproof CD player/radio in the shower -- maybe getting one

of those would make the shower thing easier.

Janelle <taylermadeone@...> wrote:

Tami,

I have a nearly 14 year old boy who I have to yell at daily to shower. He

hates to take them as well as brush his teeth. Then I have to remind him to

brush his hair. Of course he hates to be reminded and says that he can do

it by himself, but after the shower I have to remind him again to brush his

hair. He says he hates to shower because it is cold when he gets out.

Basically it is a sensory issue that he will probably never get over.

Cameron likes music, but only his kind of music. It is hard for him to like

anything that isn't his taste. Cameron is way past puberty and hates the

hair on his body and wants to shave it off, all of it! Trying to explain to

him the importance of personal hygiene and what it means. It is a fight

everyday!!! My 7 year old is battling the shorts issue now. Isn't this

fun?

Janelle

-- ( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

Oh, that's funny... my son hates it when I try to cut his nails or comb his hair

or wash his face... he refuses to do it himself, though...He says he doesn't

need to cut his nails, he will just bite them, and he has gotten better at

combing his hair.. he used to have a routine where he slicked it back just so,

using his hands to shape it just right, and then he would get so upset when it

didn't stay that way... we tried gel, hair spray, which he hated, and nothing

satisfied him... poor kid. I am not sure if it is a hygene thing, or if he just

doesn't want to stop what he is doing. I am sure it has something to do with

sensory issues... the water has to be just right and if it gets in his eyes, he

gets really upset. For showers, he refuses to take them at all until the sun is

completely down, as well. It gets pretty late in the summer before he will take

a shower at all...And only if I am here to make him do it. Baths, he doesn't

like, and he insists on bubbles in them if I make him take one, which is fine,

but the bubble bath has to have a certain type of smell... no perfumey or baby

powder, has to be strawberry or raspberry or bubble gum... last one is hard to

find! And he refuses to clean his ears! I used to do it for him, not inside the

ear canal, but outside, and he'd scream and cry!! " I'm not even in your ear

yet! " I'd proclaim, and he'd say " I dont' care, STOP IT!! " Socks and shoes are

the worst, I would say... he wore the same shoes for two years because he

refused to accept the idea of having to try on new ones. And if his socks

aren't just right he has a melt down! But he WILL NOT wear sandals or flip

flops. And nothing but jeans, unless we are going to the beach, then he wears

swimming trunks with socks and sneakers... He takes off his shoes, but God

forbid he steps on anything that isn't sand... meltdown. He's had a good day

today, I got him to take out the trash, eat his cauliflower and broccolli, comb

his hair, pick up all the glasses and cups he left by the computer over the

weekend... but he refused to change out of his fuzzy pajama pants today, so he

went to the store in them... slightly embarassing... but oh, well. We can't win

them all. He used to try to wear his jeans to bed, but I got him to try on

flannel pajama pants and he decided he liked those, so some days he wants to

wear them everywhere. But he's a great kid, I think parents of Non AS kids are

missing out on alot of great things, lots of closeness and lots of interaction

and you still are always needed. I can't imagine life any other way.

( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

Mmm, nice to know i'm not alone! They keep you on your toes and busy! Thanks,

Tami

Re: ( ) Does this sound familiar to anyone?

Now that you mention it, my 6 1/2 yr old doesnt like baths either. This

evening his 4 yr old brother was all excited to get a bath & play with his

bathtub toys. When it came to be Jeffs turn (my AS son) he went and hid under

his comforter on his bed. I literally have to make him take a bath. Its a fight,

and as soon as he is done, he is out of there. He doesnt want to be in there one

minute longer then he has to.

Holly

Tami <nyx@...> wrote:

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

very interesting!

my husband is a black belt in karate and hes been dubbed 'the nighttime

toenail nijna' because he has to sneak in there all stealth like and cut her

nails in pitch black while shes asleep. ive got terrible night vision plus

tend to be clumsy so this one has fallen upon him to moderate success.

before we figured this out nail trims were a nightmare.

meg

>From: " Mark son " <thejacobsons@...>

>Reply-

>< >

>Subject: Re: ( ) Does this sound familiar to anyone?

>Date: Tue, 30 May 2006 09:47:24 +1000

>

>Isn't that funny my son also loathes having his nails cut and I literally

>have to hold him down to cut them.

>beck

> ( ) Does this sound familiar to anyone?

>

>

>

>Tonite, I had to give a bath to my 14 year old son. I work Fridays,

>saturdays and Sundays, 12 hour days, and my niece, who is 17, and

>the only one he will allow to stay with him, spends the weekend. I

>told him Friday to take a shower, or else. Didn't take one Friday,

>didn't take one Saturday, and of course, didn't take one Sunday. So

>when I got home Sunday, my niece left and I ran a bubble bath for

>him, made him get in while I was out of the room, and went in there

>and washed him, well, his back and underarms, and his hair, because

>he said he wasn't going to. I heard that kids with Asperger's don't

>like to take baths or showers... so I was curious if this is a

>common problem? I can usually get him to take a shower, but he

>complains and when I am away at work, he uses the opportunity to NOT

>bathe. Also, I took them out for ice cream a few days ago, and my

>niece and I were listening to music on the radio, and my son went

>into a rage because he didn't like the music. He listens to his

>music all day on the computer, and I don't complain as long as the

>volume is kept fairly low... but as soon as he has to listen to

>something different, he just freaks out! It really surprised me,

>because he hasn't been raging as much as he did even a year ago. I

>usually tell him if he doesn't calm down and use his words, he wont

>be able to use the computer for the rest of the day. What works for

>everyone else? Thanks!

>

>

>

>

>

>

[Guest guest]

I have a 14 (nearly 15) year old NT son who hated to shower - LOL -

Honestly, I think it seemed for him, at the time, to " cut into " the

time he had for activities that were more important: FUN. At

approximately 14-1/2 he literally changed over-night. Perhaps due to

the hormones raging; with acne taking hold. Whatever the reason,

each day he is in the shower consuming all the water now! So, I am

not so certain it is necessarily a AS quality so much as it is an

adolcescent " boy " thing!

>

> Tami,

>

> I have a nearly 14 year old boy who I have to yell at daily to

shower. He

> hates to take them as well as brush his teeth. Then I have to

remind him to

> brush his hair. Of course he hates to be reminded and says that

he can do

> it by himself, but after the shower I have to remind him again to

brush his

> hair. He says he hates to shower because it is cold when he gets

out.

> Basically it is a sensory issue that he will probably never get

over.

> Cameron likes music, but only his kind of music. It is hard for

him to like

> anything that isn't his taste. Cameron is way past puberty and

hates the

> hair on his body and wants to shave it off, all of it! Trying to

explain to

> him the importance of personal hygiene and what it means. It is a

fight

> everyday!!! My 7 year old is battling the shorts issue now.

Isn't this

> fun?

>

> Janelle

>

> -- ( ) Does this sound familiar to anyone?

>

> Tonite, I had to give a bath to my 14 year old son. I work

Fridays,

> saturdays and Sundays, 12 hour days, and my niece, who is 17, and

> the only one he will allow to stay with him, spends the weekend.

I

> told him Friday to take a shower, or else. Didn't take one

Friday,

> didn't take one Saturday, and of course, didn't take one Sunday.

So

> when I got home Sunday, my niece left and I ran a bubble bath for

> him, made him get in while I was out of the room, and went in

there

> and washed him, well, his back and underarms, and his hair,

because

> he said he wasn't going to. I heard that kids with Asperger's

don't

> like to take baths or showers... so I was curious if this is a

> common problem? I can usually get him to take a shower, but he

> complains and when I am away at work, he uses the opportunity to

NOT

> bathe. Also, I took them out for ice cream a few days ago, and my

> niece and I were listening to music on the radio, and my son went

> into a rage because he didn't like the music. He listens to his

> music all day on the computer, and I don't complain as long as the

> volume is kept fairly low... but as soon as he has to listen to

> something different, he just freaks out! It really surprised me,

> because he hasn't been raging as much as he did even a year ago.

I

> usually tell him if he doesn't calm down and use his words, he

wont

> be able to use the computer for the rest of the day. What works

for

> everyone else? Thanks!

>

>

>

>

>

>

[Guest guest]

Having been bullied by members of other schools in her younger life, my

daughter developed a lower opinion of herself. Therefore, showers,

washing hair, and dressing better didn't matter to her. Nowwww, in

highschool setting, and at this school inparticular, all that started

kicking in and she does all those things now. Even brushes her teeth!!

We paid in full for braces for her a few years ago, they tried, really,

and finally said they were removing them until she cared for her own

teeth more then they would continue treatment. Now that shes older, she

claims she doesnt' need or want braces. So I think the showering thing,

has alot to do with past bullying and its affect on the child's sense

of self. Without parents who cared, I shudder to think what would

happen to these special kids!!

[Guest guest]

Very resourceful!

( ) Does this sound familiar to anyone?

>>

>>

>>

>>Tonite, I had to give a bath to my 14 year old son. I work Fridays,

>>saturdays and Sundays, 12 hour days, and my niece, who is 17, and

>>the only one he will allow to stay with him, spends the weekend. I

>>told him Friday to take a shower, or else. Didn't take one Friday,

>>didn't take one Saturday, and of course, didn't take one Sunday. So

>>when I got home Sunday, my niece left and I ran a bubble bath for

>>him, made him get in while I was out of the room, and went in there

>>and washed him, well, his back and underarms, and his hair, because

>>he said he wasn't going to. I heard that kids with Asperger's don't

>>like to take baths or showers... so I was curious if this is a

>>common problem? I can usually get him to take a shower, but he

>>complains and when I am away at work, he uses the opportunity to NOT

>>bathe. Also, I took them out for ice cream a few days ago, and my

>>niece and I were listening to music on the radio, and my son went

>>into a rage because he didn't like the music. He listens to his

>>music all day on the computer, and I don't complain as long as the

>>volume is kept fairly low... but as soon as he has to listen to

>>something different, he just freaks out! It really surprised me,

>>because he hasn't been raging as much as he did even a year ago. I

>>usually tell him if he doesn't calm down and use his words, he wont

>>be able to use the computer for the rest of the day. What works for

>>everyone else? Thanks!

>>

>>

>>

>>

>>

>>

[Guest guest]

---I had to chuckle when I read your entry because it sounds so much

like home. I have 17 yo twin boys and they will take a shower

and 'forget' to bathe and wash their hair! They will come out

smelling just like they did when they went in. I don't want their

classmates to make fun of them so I am constantly telling them when

they do take a shower to don't forget to wash your hair and 'pits'

to no avail. And brushing teeth is another one! I don't understand

why they don't like to brush their teeth. I know for a fact Friday

was their last day of school and I've had alot of company til

yesterday and they haven't brushed their teeth since Fri morning

before school! I reminded them , and my husband told them when he

got home Sun Night to brush their teeth . They still haven't

brushed, so I guess I will have to get them and take them to the

bathroom and watch them brush! I don't know if it's sensory issues

or absent minded professorisms or what that makes them not want to

bathe and brush! It's kinda nice to know that we aren't the only

ones telling older kids to use soap and bath cloth in the shower!

Did giving him the bath help him to bathe better next time? It seems

to me that if my mother bathed me when I was 14 that I would be dog

gone sure I wouldn't let 'that' happen again and would bathe myself!

Just wondering....

Toni

I In , " Tami " <nyx@...> wrote:

>

> Tonite, I had to give a bath to my 14 year old son. I work

Fridays,

> saturdays and Sundays, 12 hour days, and my niece, who is 17, and

> the only one he will allow to stay with him, spends the weekend.

I

> told him Friday to take a shower, or else. Didn't take one

Friday,

> didn't take one Saturday, and of course, didn't take one Sunday.

So

> when I got home Sunday, my niece left and I ran a bubble bath for

> him, made him get in while I was out of the room, and went in

there

> and washed him, well, his back and underarms, and his hair,

because

> he said he wasn't going to. I heard that kids with Asperger's

don't

> like to take baths or showers... so I was curious if this is a

> common problem? I can usually get him to take a shower, but he

> complains and when I am away at work, he uses the opportunity to

NOT

> bathe. Also, I took them out for ice cream a few days ago, and my

> niece and I were listening to music on the radio, and my son went

> into a rage because he didn't like the music. He listens to his

> music all day on the computer, and I don't complain as long as the

> volume is kept fairly low... but as soon as he has to listen to

> something different, he just freaks out! It really surprised me,

> because he hasn't been raging as much as he did even a year ago.

I

> usually tell him if he doesn't calm down and use his words, he

wont

> be able to use the computer for the rest of the day. What works

for

> everyone else? Thanks!

>

[Guest guest]

This is happening at our house too. I had to supervise the shower last night

Reggie thinks turning the shower on and immediately off constitutes a

shower. Washing your hair at the very top of your head should be enough and

expecting the use of soap and shampoo.... He thinks I am very mean for even

suggesting such a thing. He has to take a shower with the bathroom door open

so we can make sure he isn't doing anything inappropriate. We went through a

lot of shampoo and shower gel for a while because he would empty out the

bottles and refill them with water and shoot out the hot light bulbs over

the vanity. He liked the popping sound they made. He was amazed at the color

change in the toilet from the shower gel and my favorite was the whole can

of shaving cream that went from gel to foam in the toilet. He never ceases

to amaze me with the use he can find for things. I will be glad when it is

less destructive and purely more creative.

Suzanne

-- ( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

My son removes his toe nails when he is high stressed. Worse part is you don

t see the stress sometimes until it is too late, And once he starts on the

nail he's at it till it's off. Started on a toe a few weeks ago and with a

boatload of band aids it was saved but he got it infected and had to be on

an antibiotic. His pediatrician wanted to give me a lesson on trimming toe

nails. I had to tell him 3 times this is not from the way his nails are cut.

In fact when we do nails at our house his never need cut.

Suzanne

-- Re: ( ) Does this sound familiar to anyone?

Isn't that funny my son also loathes having his nails cut and I literally

have to hold him down to cut them.

beck

( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!

[Guest guest]

ROFLMAO nightime toenail ninja!!! You made my day with that LOL

-- Re: ( ) Does this sound familiar to anyone?

>Date: Tue, 30 May 2006 09:47:24 +1000

>

>Isn't that funny my son also loathes having his nails cut and I literally

>have to hold him down to cut them.

>beck

> ( ) Does this sound familiar to anyone?

>

>

>

>Tonite, I had to give a bath to my 14 year old son. I work Fridays,

>saturdays and Sundays, 12 hour days, and my niece, who is 17, and

>the only one he will allow to stay with him, spends the weekend. I

>told him Friday to take a shower, or else. Didn't take one Friday,

>didn't take one Saturday, and of course, didn't take one Sunday. So

>when I got home Sunday, my niece left and I ran a bubble bath for

>him, made him get in while I was out of the room, and went in there

>and washed him, well, his back and underarms, and his hair, because

>he said he wasn't going to. I heard that kids with Asperger's don't

>like to take baths or showers... so I was curious if this is a

>common problem? I can usually get him to take a shower, but he

>complains and when I am away at work, he uses the opportunity to NOT

>bathe. Also, I took them out for ice cream a few days ago, and my

>niece and I were listening to music on the radio, and my son went

>into a rage because he didn't like the music. He listens to his

>music all day on the computer, and I don't complain as long as the

>volume is kept fairly low... but as soon as he has to listen to

>something different, he just freaks out! It really surprised me,

>because he hasn't been raging as much as he did even a year ago. I

>usually tell him if he doesn't calm down and use his words, he wont

>be able to use the computer for the rest of the day. What works for

>everyone else? Thanks!

>

>

>

>

>

>

[Guest guest]

Oh, that's horrible!! My son tries to bite his toenails... yuck. But, my

supposidly normal sister does this too... sooo... not sure what to think of

that.

( ) Does this sound familiar to anyone?

Tonite, I had to give a bath to my 14 year old son. I work Fridays,

saturdays and Sundays, 12 hour days, and my niece, who is 17, and

the only one he will allow to stay with him, spends the weekend. I

told him Friday to take a shower, or else. Didn't take one Friday,

didn't take one Saturday, and of course, didn't take one Sunday. So

when I got home Sunday, my niece left and I ran a bubble bath for

him, made him get in while I was out of the room, and went in there

and washed him, well, his back and underarms, and his hair, because

he said he wasn't going to. I heard that kids with Asperger's don't

like to take baths or showers... so I was curious if this is a

common problem? I can usually get him to take a shower, but he

complains and when I am away at work, he uses the opportunity to NOT

bathe. Also, I took them out for ice cream a few days ago, and my

niece and I were listening to music on the radio, and my son went

into a rage because he didn't like the music. He listens to his

music all day on the computer, and I don't complain as long as the

volume is kept fairly low... but as soon as he has to listen to

something different, he just freaks out! It really surprised me,

because he hasn't been raging as much as he did even a year ago. I

usually tell him if he doesn't calm down and use his words, he wont

be able to use the computer for the rest of the day. What works for

everyone else? Thanks!