ABA Therapy

[Guest guest]

In a message dated 8/22/01 7:31:09 PM Eastern Daylight Time, scott@...

writes:

> Hi! Being new to this group I wondered if ABA therapy has been tried and has

> it worked for anyone. We are getting referred to the autism division of

> the disabilities board in charleston. I am reading about ABA therapy in a

> book, can anyone share their experiences with me? Thanks,

>

Hi ,

I live in Philadelphia and my daughter Madison, 7, has Down Syndrome and

autism. The school she started last September implements ABA and we've been

thrilled with the fast results. Within just a few months, she was making

great eye contact, responding to her name, and staying engaged with us for

long periods of time. I feel her teacher and aide work with Maddie in such

a loving and caring way, which is not how I envisioned ABA in the beginning.

We're very happy we gave it a shot.

Donna

[Guest guest]

Hi I have just received funding in Ontario from the government to hire

workers to do ABA with my boys for 30 hours a week (for each boy) I have

been reading and researching a lot on this lately and it seems to be

having a lot of success in terms of training children on basic skills

even if they are very challenged. My problem is I need to find a

psychologist with ABA training to oversee the program(or the government

won't pay) There are very few psychologists in Ontario with this

training ang they are very expensive(the government won't pay this

part!) I also need to find trained workers or train them myself. It is

fairly overwelming given the boys medical problems. But I am going to

give it a shot and if anybody knows of any resources out there (in

Ontario , hopefully Barrie) please let me know.

(mom to and 5 & 6 years DS-ASD ,Hirshsprung's

Disease, leukemia, and the other ASD(heart))

Cason wrote:

>

> Hi! Being new to this group I wondered if ABA therapy has been tried and has

it worked for anyone. We are getting referred to the autism division of the

disabilities board in charleston. I am reading about ABA therapy in a book, can

anyone share their experiences with me? Thanks,

>

>

[Guest guest]

Good Day

I am new to the group.

My name is Robyn. I am also new to Eastern Virgini area as I am in

the Air Force and move every 3-6 years. Came from Georgia...school

system for special education is not so great there.

My son is 11 years old (1995) and he has Asperger's Syndrome (fell

under PDD-NOS, NLD, and PDD back in 2004, 2005, 2006), as well as

the following: asthma (1996), uncontrollable nonturnal epilepsy

(1998), sleep disorder(cannot get past stage II and has 148 arousals

in 9 hours), social , language, emotional delays (all 1998), Celiac

Disease (2004), left axis deviation of the heart (1999), numerous

food and medicine allergies and sensitivities (only can eat about 20-

25 foods--no eggs, milk, wheat, tomatoes and citrus) (1998).

BOTTOM LINE: Many medical conditions

He have followed the casein free diet since 2003 and has not had

reoccurring pneumonia since then and also gluten free diet since

2004 and has no wet the bed since then. He has been on the Feingold

Diet (www.feingold.org) since 1998 ---was stubborn from 1996-1998--

at age 3 for his secondary ADHD and it has improved his behavior 99%

within 48 hrs.

BOTTOM LINE: CF/GF and Feingold Diet helped many conditions without

meds for us

I read something in 1998 about ADHD. It took all parents to check

out the following if you get a " catch all " diagnosis like this.

here is the list from my memory: EKG, 24 hr EEG (our 20 mins one

showed nothing), MRI, peds eye doctor, overnight sleep test,

intensive hearing test, food allergy test (skin), vision/motor

testing through psychologist and/or eye doctor. BAD news for us is

everything came back with abnormalities. And our disability road to

recovery his been built from that day in Mar 1998.

BOTTOM LINE: Physical systoms should have been ruled out before

ritalin and other meds

We have most recently---a few days ago have been to the Genetic

doctor at Childrens' Hospital of Kings Daughter in Norfolk VA and

they are conducting tests on for Mitochondrial Disorders. Turns out

if you have complex onditions like autism, epilepsy, sleep

disorders, developmental delays.

BOTTOM LINE: Genetic research tells Primary Care Physicans (PCP)

that if symtoms include more than 3 organs you need to ask about

genetic testing. Some states do this at birth but most do not.

I have now learned that every doctor I see needs to know a brief

summary of what he has and what I would like to see him tested

for.....most of my referrals were granted because I have many

doctors asking for it. So far all I have ask for has been close to

the right area to be looking but the metabolic disorders as stated

above was something his PCP should have caught. Would have saved us

time on alternative schools, inpatient care, and would have saved us

time in recognizing that all of his conditions were tied into one

condition.

BOTTOM LINE: All his conditions are under one disorder and the rest

are secondary

Sorry this is long.

If anyone wants any information on anything I wrote please let me

know. I have alot of knowledge on many areas I have stated above

and I am more than willing to chat through e-mail.

Robyn

[Guest guest]

Sandi hit it on the head! Nothing works like lots of ABA! If you are doing 5 hrs a week, it's pretty much a waist, try to get as close to 30 as you can (40 if time allows) and start as early as possible. My child was Severely Autistic when diagnosed at almost 3 yrs of age, he is almost 8 now, in 2nd grade (regular classroom) made 3 A's and 2B's on his interim report this week. Keep the faith and fight the good fight!! Best of luck to you! I hope you can get the school to provide ABA (scientific based and studies show 30 hrs are most effective) maybe in/addition to a Behavior Plan.

Cyndi

Re: ABA Therapy

Shell,

Sounds like your school needs to do a Behavioral Assessment (BA) and from there develop a Behavior Intervention Plan (BIP) for your child.

I have twin grandsons DX with autism . One of the boys is also non verbal ( Apraxia). We started asking in pre school when they were 3 for the school system to provide ABA. They used TEACCH. ABA is the ONLY scientific based therapy with proven results. When they were almost 4 we were able to obtain a grant from a local group. We began ABA over the summer. When we had our IEP meeting that fall, we supplied them with all our data. They had been amazed with their progress. Then and only then did we get the school system to invest in an ABA program for the boys. They receive 20 hours per week from the school & we provide 6 hours at home. This was a first for our little school system. They also received a BA & BIP at the school's expense.

It was a fight to get ABA for the twins, but well worth the time. They are now 7 and able to be included with

their regular ed class for part of the day. The boys were very low functioning, but have made a lot of gains. My only regret is that we did NOT start ABA sooner. Our therapist is our "Annie Sullivan". The twins now have a more promising future.

Check out grants from some of the national autism organizations & also local groups. We have applied for numerous grants which have helped to defer the cost of ABA. We used to battle to even keep their clothes on. They are potty trained after being told not to get our hopes up. ABA is a lot of hard work for you too.

ABA is more than just setting at a table. It encases social & anxiety issues as well. Please make sure your therapist is a Board Certified Behavior Therapist. Too many folks want to make money off of autism. Since we have 2 to provide ABA therapy services, we work with a BCBA & a student that is monitored by the BCBA.

Help these ideas will help on your journey with autism.

Sandi

[Guest guest]

Sandi hit it on the head! Nothing works like lots of ABA! If you are doing 5 hrs a week, it's pretty much a waist, try to get as close to 30 as you can (40 if time allows) and start as early as possible. My child was Severely Autistic when diagnosed at almost 3 yrs of age, he is almost 8 now, in 2nd grade (regular classroom) made 3 A's and 2B's on his interim report this week. Keep the faith and fight the good fight!! Best of luck to you! I hope you can get the school to provide ABA (scientific based and studies show 30 hrs are most effective) maybe in/addition to a Behavior Plan.

Cyndi

Re: ABA Therapy

Shell,

Sounds like your school needs to do a Behavioral Assessment (BA) and from there develop a Behavior Intervention Plan (BIP) for your child.

I have twin grandsons DX with autism . One of the boys is also non verbal ( Apraxia). We started asking in pre school when they were 3 for the school system to provide ABA. They used TEACCH. ABA is the ONLY scientific based therapy with proven results. When they were almost 4 we were able to obtain a grant from a local group. We began ABA over the summer. When we had our IEP meeting that fall, we supplied them with all our data. They had been amazed with their progress. Then and only then did we get the school system to invest in an ABA program for the boys. They receive 20 hours per week from the school & we provide 6 hours at home. This was a first for our little school system. They also received a BA & BIP at the school's expense.

It was a fight to get ABA for the twins, but well worth the time. They are now 7 and able to be included with

their regular ed class for part of the day. The boys were very low functioning, but have made a lot of gains. My only regret is that we did NOT start ABA sooner. Our therapist is our "Annie Sullivan". The twins now have a more promising future.

Check out grants from some of the national autism organizations & also local groups. We have applied for numerous grants which have helped to defer the cost of ABA. We used to battle to even keep their clothes on. They are potty trained after being told not to get our hopes up. ABA is a lot of hard work for you too.

ABA is more than just setting at a table. It encases social & anxiety issues as well. Please make sure your therapist is a Board Certified Behavior Therapist. Too many folks want to make money off of autism. Since we have 2 to provide ABA therapy services, we work with a BCBA & a student that is monitored by the BCBA.

Help these ideas will help on your journey with autism.

Sandi

[Guest guest]

Thank you so much for the info. I have

contacted the school asking about a BA and brought up bringing in a Board

Certified ABA Therapist, etc. Also called and talked to a few different places

in the DFW area that offer ABA

and bought a couple of books too.

Thanks,

Shell

From:

Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of cb71work@...

Sent: Thursday, September 23, 2010

9:09 AM

To:

Autism and Aspergers Treatment

Subject: Re:

ABA Therapy

Sandi hit it

on the head! Nothing works like lots of ABA!

If you are doing 5 hrs a week, it's pretty much a waist, try to get as close to

30 as you can (40 if time allows) and start as early as possible. My child was

Severely Autistic when diagnosed at almost 3 yrs of age, he is almost 8 now, in

2nd grade (regular classroom) made 3 A's and 2B's on his interim report this

week. Keep the faith and fight the good fight!! Best of luck to you! I hope you

can get the school to provide ABA

(scientific based and studies show 30 hrs are most effective) maybe in/addition

to a Behavior Plan.

Cyndi

-----Original

Message-----

From: Sandimarcus@...

Autism and Aspergers Treatment

Sent: Tue, Sep 21, 2010 8:54 am

Subject: Re: ABA Therapy

Shell,

Sounds like your school needs to do a

Behavioral Assessment (BA) and from there develop a Behavior Intervention

Plan (BIP) for your child.

I have twin grandsons DX with autism .

One of the boys is also non verbal ( Apraxia). We started asking in pre school

when they were 3 for the school system to provide ABA. They used TEACCH. ABA is the ONLY scientific based therapy with

proven results. When they were almost 4 we were able to obtain a grant

from a local group. We began ABA

over the summer. When we had our IEP meeting that fall, we supplied them with

all our data. They had been amazed with their progress. Then and only then

did we get the school system to invest in an ABA program for the boys. They receive 20

hours per week from the school & we provide 6 hours at home. This was a

first for our little school system. They also received a BA & BIP at the

school's expense.

It was a fight to get ABA for the twins, but well worth the time.

They are now 7 and able to be included with

their regular ed class for part of the

day. The boys were very low functioning, but have made a lot of gains. My only

regret is that we did NOT start ABA

sooner. Our therapist is our " Annie Sullivan " . The twins now have a

more promising future.

Check out grants from some of the

national autism organizations & also local groups. We have applied for

numerous grants which have helped to defer the cost of ABA. We used to battle to even keep their

clothes on. They are potty trained after being told not to get our hopes up. ABA is a lot of hard work

for you too.

ABA is more than just setting at a table. It encases social &

anxiety issues as well. Please make sure your therapist is a Board Certified

Behavior Therapist. Too many folks want to make money off of autism. Since we

have 2 to provide ABA

therapy services, we work with a BCBA & a student that is monitored by the

BCBA.

Help these ideas will help on your

journey with autism.

Sandi