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well, we are low income

( ) 2 Questions

> > > >

> > > >

> > > > Does anyone get SSI for their child with Asperger's? I

> heard

> > > that

> > > > it's possible. How about Respite?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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  • 2 months later...

I live in Texas, and so I can not speak for your state, but you

should receive some benefit if your child is under 18, a minor. If

older, then absolutely because I doubt that your daughter is making

lots of money from work.

It is NOT unusual to be turned down, but you must pick up the phone

for your SSI office and talk to a live person. You must be

persistent. The money is something you have every right to receive,

but in order to overcome some flaws/complacency/and on an on problems

with the system, you MUST BE PERSISTENT.

Humorously, my son was turned down the first time, because he

truthfully filled out the questionare the way he lives life. For

instance, it was a question like:

1. Do you cook and make your own food - Yes, I use a microwave.

2. What does your typical day consist of? (he filled it out on a

week-end, so he wrote....) sleep, wake-up, eat cereal, cartoons,

computer and bedtime.

3. Do you need help and support when requiring transportation? My

Dad takes me to the store.

He wrote all of his remarks every so small and scribbly too......my

wife truly disliked his effort, but I liked it and thus I sent it in.

I hope to find that paper again, because I just loved it? The State

of Texas form is asking all these disability questions, and my son is

just telling it like it is..........it was a hoot. :>)

>

> I've applied for this for my daughter before and been denied. You

guys

> make it sound so easy to get. What did I do wrong? I could really

use

> the extra income as a single self-employed mom. Thank you!

>

>

>

> =^..^= Marie

> Make some easy money, the fun way!

> http://www.be-paid.com/pages/index.php?refid=surveys4bmh

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> >

> 1. Do you cook and make your own food - Yes, I use a

microwave.

2. What does your typical day consist of? (he filled it out

on a

week-end, so he wrote....) sleep, wake-up, eat cereal,

cartoons,

computer and bedtime.

3. Do you need help and support when requiring

transportation? My

Dad takes me to the store.

He wrote all of his remarks every so small and scribbly

too......my

wife truly disliked his effort, but I liked it and thus I

sent it in.

>

>

>

>

> That sounds JUST like my kids...And they turned him down ,

with those answers? How old is he, if I may ask? Toni

I, not events, have the power to make me happy or unhappy

today. I can CHOOSE which it shall be. Groucho Marx

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  • 3 months later...

, I've been thru this for my daughter and myself and jumping

thru hoops is routine when it comes to the SSI. Also, 90% of the

time you will get denied the first time and sometimes the second.

Just stay with it and don't get discouraged. For example, I have

cirrhosis of the liver, hemolytic anemia, fibromylagis, peripheral

neuropathy, diabetes, and several other diagnosis. But the cirrhosis

is terminal and I will eventually need a transplant if I am to

survive. You would think that with all the documentation proving

this that it would be a sure thing, but I got denied not just the

first time, but the 2nd and 3rd. I finally had to go to trial with

an SSI judge and got approved, but the whole process was

frustrating. I hope things get a little easier in your quest.

Ginger

>

> Okay

> I have been reading the posts about the income guidelines for SSI,

but what I don't understand is if AS is a credible reason to get SSI

then why are we having to jump through the hoops of different eval's

where they go over the same stuff we have already done which they

have the records of??? I called our contact at SSI and she said

since we did this last eval, which was by a phys of their choice and

all he did was ask some general self help questions and another IQ

test, that their SLP had to look over the records and then their

Phsyc. before they could make a decision.

> ARRRRGGGHHH

> I dont mean to be rude but no matter how many times you give her an

IQ test she will still score high...yes she can tell you which

picture does blah, blah, blah, but ask her what color the grass is

when she is inside and cant see it she has no idea. There are more

issues than an IQ....

> Sorry to rant,

> Has anyone been through this???

> - C.

> Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

>

>

>

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I don't know about under 18 SSI. My son will be 18 next year

and I recently talked with a parent of an 18 yr old child with

disabilities, who just went through the SSI process. She told

me it is well worth obtaining a lawyer right off the bat. The

fees are usually just a few hundred dollars and they can usually

get it through the first time. So this is what I will probably

do next year. I think a few hundred dollars is worth it if

you don't go through months of constantly trying over and over

again.

>

> ---------------------------------

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The general rule is gross monthly earned income divided by 2, subtracted from

$603.00. If your household gross income is already $1206, then your allowable

SSI benefit is exhausted. They will not approve a child who really needs help.

That's not their job. That's the job of the medical insurance industry, not

state welfare.

The job of the medical insurance industry, like almost all insurance industries,

is to charge you for insurance required, then settle your claim in 15 minutes or

less. ~hic~

Dave

( ) SSI

Well I'm kind of new here, I usually just read everybodys stories and comments.

Well any way my name is Fran and I have a 4 yr old daughter that was just

recently dx with AS and she has always been a little slower in learning than

other kids her age. Well we have been through alot of diffrent Dr and programs

since she was 1 yrs old and we are just now finding out about her AS , well my

questions is, we applied for SSI in July and in October she was denied i replied

for her but i don't understand how can they turn a child down that really needs

the help. We just got her enrolled in a school for children with AS, her doctor

put her on a medication called Klondine to help her rest because she never

sleeps. I'm so exhausted and tired and not sure of what to do she cries all the

time I have 4 other children but she is the only one that and I hate to say this

different. She is a beautiful child just misunderstood so if there is anything

anyone can tell us to help or even if it

seems small. We are open to suggestions we live in Jax. Fl. Thank you...

---------------------------------

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Hello again,

I think I understand now.

When I take my gross income and divide by 2, then substract 603. that answer

I got: I assume would be the amount I will receive? If not, You don't have to

explain again. I'll read the site you sent me. thanks for explaining. Happy

Holidays!!!

<sirdavjohn@...> wrote:

Rose,

Yes. No matter how many people there are, the benefit will not change.

I am dividing by 2 because the SSA says that they will allow the first $20 and

$65. {I can only guess (?) the $20 is for " Health and Comfort " and the $65 is

for food and groceries. I can think of other reasons, but we'll leave that for

another time.} Anyway, they allow $20, and the first $65 earned without

deduction. After that they deduct $1 for each $2 you earn until the $603 is

gone.

The big picture amounts to $603 deducted out of $1,206 per month. $1,206 x 12

months = $14,472 per year.

As I understand it, if they approve you for the full benefit at your income

level, they will begin the 1:2 deduction from that point.

In my first answer I noted a link to an SSA site. If you go there, you may find

info that explains this in better detail.

Dave

Re: ( ) SSI

would you still divide it by 2, if you have more people in the household? or

should I ask " why are you dividing by 2 " ?

<sirdavjohn@...> wrote: The general rule is gross monthly

earned income divided by 2, subtracted from $603.00. If your household gross

income is already $1206, then your allowable SSI benefit is exhausted. They will

not approve a child who really needs help. That's not their job. That's the job

of the medical insurance industry, not state welfare.

The job of the medical insurance industry, like almost all insurance industries,

is to charge you for insurance required, then settle your claim in 15 minutes or

less. ~hic~

Dave

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  • 2 weeks later...

,

We went through a problem with a high IQ but not for SSI. Our local MR/DD tried

to kick my now 10 yo out of services because his IQ was " too high. " This was

back when he was 6 yo and they always reasses kids at age 6. I argued with them

for almost one year and finally got them to spend some time with him before

making the determination. I said, " Just talk to him, you'll see.... " They did

and he was approved for services again right after that.

Roxanna

( ) SSI

Okay

I have been reading the posts about the income guidelines for SSI, but what I

don't understand is if AS is a credible reason to get SSI then why are we having

to jump through the hoops of different eval's where they go over the same stuff

we have already done which they have the records of??? I called our contact at

SSI and she said since we did this last eval, which was by a phys of their

choice and all he did was ask some general self help questions and another IQ

test, that their SLP had to look over the records and then their Phsyc. before

they could make a decision.

ARRRRGGGHHH

I dont mean to be rude but no matter how many times you give her an IQ test

she will still score high...yes she can tell you which picture does blah, blah,

blah, but ask her what color the grass is when she is inside and cant see it she

has no idea. There are more issues than an IQ....

Sorry to rant,

Has anyone been through this???

- C.

Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

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Just inserting my opinion where it shouldn't be

We are all gifted, everyone in diffrent ways. We all

need help, each one of us, in diffrent ways. It's a

challenge to find the right path to best assist each

one of us to best get along in this world the best we

can. Inmho in the next world to.

Bob in northern California

--- Roxanna <madideas@...> wrote:

> ,

> We went through a problem with a high IQ but not for

> SSI. Our local MR/DD tried to kick my now 10 yo out

> of services because his IQ was " too high. " This was

> back when he was 6 yo and they always reasses kids

> at age 6. I argued with them for almost one year

> and finally got them to spend some time with him

> before making the determination. I said, " Just talk

> to him, you'll see.... " They did and he was

> approved for services again right after that.

>

>

> Roxanna

> ( ) SSI

>

>

> Okay

> I have been reading the posts about the income

> guidelines for SSI, but what I don't understand is

> if AS is a credible reason to get SSI then why are

> we having to jump through the hoops of different

> eval's where they go over the same stuff we have

> already done which they have the records of??? I

> called our contact at SSI and she said since we did

> this last eval, which was by a phys of their choice

> and all he did was ask some general self help

> questions and another IQ test, that their SLP had to

> look over the records and then their Phsyc. before

> they could make a decision.

> ARRRRGGGHHH

> I dont mean to be rude but no matter how many

> times you give her an IQ test she will still score

> high...yes she can tell you which picture does blah,

> blah, blah, but ask her what color the grass is when

> she is inside and cant see it she has no idea. There

> are more issues than an IQ....

> Sorry to rant,

> Has anyone been through this???

> - C.

> Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3

> HFA/AS & SPD/SID

>

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>

>

>

>

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