Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Hi, my son is 8 and when he gets frustrated cries, screams, throws things, runs away, quits, destroys things. His school IEP team is just thrilled that he no longer hits, or when he throws things, no longer does so in the direction of humans. Nobody there can tell me how we are supposed to help Ethan stop expressing his frustration in these destructive ways. We cannot seem to make Ethan understand that he is alienating his peers. Ethan has gone to cognitive behavioral therapy - 17 sessions - but he still acts like he is two when he is frustrated over either a punishment (like not getting a stamp at school) or when he loses at any kind of game. Does anybody have any advice on how to write a goal that will force the school to help Ethan during gym class and recess (majority of these behaviors occur during unstructured times)? I want them to intervene versus just saying how happy he is that he isn't hurting anybody anymore. THANKS! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Your son is my son's twin. LOL We just went through this. Actually, we are still going through this. 6 hours of IEP meetings so far this year, and yet more to go. This is a good article about recess if the school is not aware of the problems. (It's the first one in this newsletter); http://aane.autistics.org/articles/news_11.html If everyone aware of specific triggers? Does he need more structure, advance warning? Do you have target replacement behaviors identified at all? Does he have somewhere to go when he's feeling overwhelmed? Does he have regular breaks if overload tends to be a problem? My son has a Cool Zone to go to, which is a very small room (aka storage area) with a mini-tramp, fish books (his obsession), a ball. He can go there if he's amping in. But he also goes there three times a day just to keep grounded. (So he doesn't have to stand in line after lunch.) For my son, we are finding the response to him makes all the difference. Acknowledging his feelings is a good thing. Yelling at him, not so good. He hangs out with a teacher or aide at recess. That is new this year. Sometimes he just talks and walks the school's companion dog. Other times, they take out something sedate like sidewalk chalk. He drew a lifesize shark the other week. LOL He is a partial participant at PE. If he wants to play, he does. If not, he can cheer or be scorekeeper, or whatever. The kids appreciate it when he doesn't push them. Getting everyone in tune with the triggers is a big thing. Having an escape is another biggie. He has the book " When My Autism Gets Too Big " , so some of his self- calming tricks are rubbing his legs, taking deep breathes, or pushing his hands together. It's really going to be up to adults to help monitor him, and to make some environmental changes in his programs to prevent unnecessary frustration. (Such as, they are not supposed to give my son trick questions on anything. They can say " this is unsolvable, why? " ) Some of our official goals (in brief): participate in social cartooning verbalize frustration and ask an adult for help ask for help from an adult in a civil tone learn 3 new self-calming skills. But there is a MAJOR behavior plan to back all this up. We are still working on identifying the new behaviors, but my wording suggestions are: use self-calming, legal movement or Cool Zone before frustration levels become strong enough to exhibit disruptive behaviors the wording we have to work on: monitor his expression in class and express frustration in a more socially appropriate manner. Do you know the progression of his meltdowns? That was a big thing that we identified from all the information we had about last year. Sigh. Does he more discreet signs before the biggies hit? Does he bite his lip, tuck his head into his shirt, anything like that that could be monitored by an adult? Jackie, who just counted and the IEP is 39 pages long!! And there is just speech and social skills. On Oct 13, 2006, at 12:25 PM, LJL wrote: > Hi, my son is 8 and when he gets frustrated cries, screams, throws > things, runs away, quits, destroys things. His school IEP team is > just thrilled that he no longer hits, or when he throws things, no > longer does so in the direction of humans. > > Nobody there can tell me how we are supposed to help Ethan stop > expressing his frustration in these destructive ways. We cannot seem > to make Ethan understand that he is alienating his peers. Ethan has > gone to cognitive behavioral therapy - 17 sessions - but he still acts > like he is two when he is frustrated over either a punishment (like > not getting a stamp at school) or when he loses at any kind of game. > > Does anybody have any advice on how to write a goal that will force > the school to help Ethan during gym class and recess (majority of > these behaviors occur during unstructured times)? I want them to > intervene versus just saying how happy he is that he isn't hurting > anybody anymore. > > THANKS! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Have the done a FBA (Functional Behavior Assessment)? I would request one right away if they haven't already. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Hi, Is there any way I can see your IEP to help us out? > If everyone aware of specific triggers? Does he need more > structure, advance warning? Yes. He does not like to lose at games or not get his turn because recess is over. He does not like to lose his sticker. > Do you have target replacement behaviors identified at all? No. They are simply happy that unlike last year he is not hitting people. > Does he have somewhere to go when he's feeling overwhelmed? Yes. > Does he have regular breaks if overload tends to be a problem? Yes. > the wording we have to work on: monitor his expression in class and > express frustration in a more socially appropriate manner. Is this written in the IEP? > Do you know the progression of his meltdowns? We see what I call increasing behaviors at least half the time. He starts to make noises in his throat, his fists clench up, etc. He went through 17 sessions of cognitive behavioral therapy and we could not get him to notice himself during the moment to calm himself down. We do see that once he is 'done' he is able to take himself away, get a drink of water, and rejoin. But, he can't seem to stop himself from reaching the breaking point to begin with. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 > > Have the done a FBA (Functional Behavior Assessment)? I would request one > right away if they haven't already. Pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I would definitely request the FBA in writing and out of the FBA needs to come a specific POSITIVE behavior plan that everyone working with your child uses consistently. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 On Oct 17, 2006, at 10:42 PM, LJL wrote: > Hi, > > Is there any way I can see your IEP to help us out? > >> If everyone aware of specific triggers? Does he need more >> structure, advance warning? > > Yes. He does not like to lose at games or not get his turn because > recess is over. He does not like to lose his sticker. Put him first or second or third in line. We deal with winning/losing all the time. He ducks out of those games, which is fine by me. His teacher last year would play kickball with the kids at recess, which was quite nice. ph never wanted to kick, so he was all-time outfielder. The fact that he was actually playing a group game was progress. > > >> Do you have target replacement behaviors identified at all? > > No. They are simply happy that unlike last year he is not hitting > people. Herein lies the problem, at least in part. Like Pam said, there needs to be a replacement. AND, there should be some effort to eliminate some of the triggers while he learns how to deal with them little by little. > >> the wording we have to work on: monitor his expression in class > and >> express frustration in a more socially appropriate manner. > Is this written in the IEP? So far, but I don't like the vagueness, so I have asked for another meeting. I like details so I know we are all headed towards the same goals. > >> Do you know the progression of his meltdowns? > We see what I call increasing behaviors at least half the time. He > starts to make noises in his throat, his fists clench up, etc. He > went through 17 sessions of cognitive behavioral therapy and we > could not get him to notice himself during the moment to calm > himself down. We do see that once he is 'done' he is able to take > himself away, get a drink of water, and rejoin. But, he can't seem > to stop himself from reaching the breaking point to begin with. This is where the adults come in. Even with those half of the times, they need to attempt to redirect before he hits the boiling point. Ya, I know, easier said than done. And praise him when he does recognize it, and takes whatever steps is necessary to bring himself down, or leave, or whatever it is he does. My son had his first day with his new behavior sheet yesterday. (The one he had was from last year, and we have different issues this year.) He raised his hand and waited to be called on 7 times!!! Today we have a field trip. Yep, I go on them all. Then it's Fall Break. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 > > Herein lies the problem, at least in part. Like Pam said, there > needs to be > a replacement. AND, there should be some effort to eliminate some > of the triggers while he learns how to deal with them little by little. His guidance counselor wants his replacement to be an arm shake, a finger snap, and an expression, 'Oh, darn, maybe next time.' Is this what you mean? > This is where the adults come in. Even with those half of the times, > they need to attempt to redirect before he hits the boiling point. > Ya, I know, easier said than done. And praise him when he > does recognize it, and takes whatever steps is necessary to > bring himself down, or leave, or whatever it is he does. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 On Oct 19, 2006, at 9:50 PM, LJL wrote: > > > >> >> Herein lies the problem, at least in part. Like Pam said, there >> needs to be >> a replacement. AND, there should be some effort to eliminate some >> of the triggers while he learns how to deal with them little by > little. > > > His guidance counselor wants his replacement to be an arm shake, a > finger snap, and an expression, 'Oh, darn, maybe next time.' Is > this what you mean? If he's amped up, with a lot of energy, he may need an outlet as a beginning step. I think I mentioned that in a previous post. Something like stomping his feet, jumping up and down, running a lap. Frustration builds energy that needs to be released somehow. " Oh darn, maybe next time " is a hefty goal, but not an unreasonable long term one. I know some adults that can't manage that kind of control, though. My son just can't do competition at this point. Just an utter meltdown waiting to happen. So it's okay not to participate. He doesn't like to be watched while working, or to have things repeated. (He takes it as criticism.) His endearing comment at the beginning of the year was " Leave me alone " , not in a pleasant tone. We are working on him saying " ok, I understand " instead. If he doesn't say it and goes with " leave me alone " , the teacher is supposed to prompt him to say the better phrase. I think he said " leave me alone " last year, and similar, but it wasn't reported to me as such. It was just called yelling, and not sure it was recognized as overload/meltdown. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 You need to get a functional behavior assessment done. This, if done properly, will identify problems as well as how he looks when he is having problems, triggers, as well as suggestions on how to manage and handle things. My ten year old still has some tantrums that look more like they belong to a two year old. I think there are just times that we have to be the adults, notice the rising stress levels and incorporate calming techniques or removal from the situation to calm down with another activity. And all the while, you are teaching him how to calm down by showing him. It is not something I think you can " teach in 17 sessions " really. I have felt that it is more like something you work on in chunks. lol. Lots of practice. Lots of coaching. Lots of assisting. Lots of patience. And lots of direction. But I do agree, patting themselves on the back because he is not hurting anyone else doesn't really solve the problem, does it! At any time, he could start and then what??? And he may be little now, but he's gonna grow bigger. When he's 15 years old is not the time to start thinking about teaching him to cope better. So keep after them! Roxanna Re: ( ) IEP goal for frustration... Hi, Is there any way I can see your IEP to help us out? > If everyone aware of specific triggers? Does he need more > structure, advance warning? Yes. He does not like to lose at games or not get his turn because recess is over. He does not like to lose his sticker. > Do you have target replacement behaviors identified at all? No. They are simply happy that unlike last year he is not hitting people. > Does he have somewhere to go when he's feeling overwhelmed? Yes. > Does he have regular breaks if overload tends to be a problem? Yes. > the wording we have to work on: monitor his expression in class and > express frustration in a more socially appropriate manner. Is this written in the IEP? > Do you know the progression of his meltdowns? We see what I call increasing behaviors at least half the time. He starts to make noises in his throat, his fists clench up, etc. He went through 17 sessions of cognitive behavioral therapy and we could not get him to notice himself during the moment to calm himself down. We do see that once he is 'done' he is able to take himself away, get a drink of water, and rejoin. But, he can't seem to stop himself from reaching the breaking point to begin with. Thanks, ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.8/489 - Release Date: 10/20/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Wow, Jackie! Sounds like his first day was a good one! Roxanna Re: ( ) IEP goal for frustration... My son had his first day with his new behavior sheet yesterday. (The one he had was from last year, and we have different issues this year.) He raised his hand and waited to be called on 7 times!!! Today we have a field trip. Yep, I go on them all. Then it's Fall Break. Jackie . ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.8/489 - Release Date: 10/20/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 We had a good FBA done in middle school for one of our ds's. What I found most interesting was that they uncovered a variety of problems he was having that I would have NEVER known about otherwise. After all, he never came home and said, " Mom, ya know when they turn that over head projector on, the light is bright, I can't see the words and I can't hear the teacher talking and I give up and just sleep. " And because he wasn't " bothering " anyone else, nobody ever considered that a problem. Or " Mom, our entire current events class consists of watching a tv news program while we read the newspaper and I can't do both at the same time, so I end up flunking. I got tired of failing so I just fell asleep instead. " Things like that I found interesting. And we requested an FBA because the school people already " knew " why my ds was having behaviors (he was a brat! Autistic, but a brat who was refusing to do his work! lol) So sometimes they think they know why but they don't. If it's a good guess in your opinion, I would probably not worry about it and see if the plan is working. If it's something you aren't sure about, ask for more documentation. Or go view the situation yourself. Roxanna Re: ( ) IEP goal for frustration... > > Have the done a FBA (Functional Behavior Assessment)? I would request one > right away if they haven't already. Pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Well, that replacement is only going to work if it actually fulfills the child's need. It's like if you are starving to death and someone is eating a plate of spaghetti. You grab at the food. " That's naughty! " you get told and they send you off to classes to learn to snap your finger and say " better luck next time. " Is that going to help? Are you going to do it? Will it resolve how you feel? I think you need to tailor what you teach the child to what he is trying to accomplish with his behaviors. Roxanna Re: ( ) IEP goal for frustration... > > Herein lies the problem, at least in part. Like Pam said, there > needs to be > a replacement. AND, there should be some effort to eliminate some > of the triggers while he learns how to deal with them little by little. His guidance counselor wants his replacement to be an arm shake, a finger snap, and an expression, 'Oh, darn, maybe next time.' Is this what you mean? > This is where the adults come in. Even with those half of the times, > they need to attempt to redirect before he hits the boiling point. > Ya, I know, easier said than done. And praise him when he > does recognize it, and takes whatever steps is necessary to > bring himself down, or leave, or whatever it is he does. Thank you. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.8/489 - Release Date: 10/20/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 > > Well, that replacement is only going to work if it actually fulfills the child's need. It's like if you are starving to death and someone is eating a plate of spaghetti. You grab at the food. " That's naughty! " you get told and they send you off to classes to learn to snap your finger and say " better luck next time. " Is that going to help? Are you going to do it? Will it resolve how you feel? I think you need to tailor what you teach the child to what he is trying to accomplish with his behaviors. > > Roxanna Personally, I don't think so. I think his 'raging' releases body tension, and that the replacement behavior needs to do the same. However, I keep asking Ethan if it makes him feel better to cry and scream, and he says no. When I reach my 'overload' and scream I don't feel better, either, but I do feel 're-equiped' to handle my next load of crap, so it MUST work on some level. Quote Link to comment Share on other sites More sharing options...
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