Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi! My daughter (who's older than my son with PDD by 2.7 years - she's also typical), is VERY jealous of him: " you let HIM do this...and you don't let me! " It's hard. But here's some things that work for her: - I explain things to her on her level, and in a " need to know way " . For example, she doesn't know what " pragmatics " and " echoleilia " are, but she can be told that " Max has an 'issue', and learns differently. He doesn't understand things quite as well as you can " . Only recently have I explained that he has " autism " . Before now (she's almost 9), I don't think she would've understood. - It also takes reminding: patiently repeating over and over the things she gets that he doesn't, like going over to people's houses alone for playdates (I can drop her off with a mom I know well, but not him). Also, she gets an allowance (or reward system), and he doesn't. She also gets horseback riding (something extra that he doesn't). It takes reminding, because she doesn't exactly forget, but the feeling of being left out (whether it's true or not) takes over. - I also explain to her about God making Max that way. Even if you're not too religious, you can say that " he was made this way " , and leave out the " Who " . This seems to help Zoë a lot. These things certainly don't make it go away, but they help Zoë. Hope they help you, too. I know it's hard. Sometimes, she's harder than Max, and Max is the one with PDD! - Adrienne from Boston __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Thank you so much for this, Adrienne, I really really appreciate it, it helps. I think I can use God in the story too. Adrienne Lehmann <adriennerob@...> wrote: Hi! My daughter (who's older than my son with PDD by 2.7 years - she's also typical), is VERY jealous of him: " you let HIM do this...and you don't let me! " It's hard. But here's some things that work for her: - I explain things to her on her level, and in a " need to know way " . For example, she doesn't know what " pragmatics " and " echoleilia " are, but she can be told that " Max has an 'issue', and learns differently. He doesn't understand things quite as well as you can " . Only recently have I explained that he has " autism " . Before now (she's almost 9), I don't think she would've understood. - It also takes reminding: patiently repeating over and over the things she gets that he doesn't, like going over to people's houses alone for playdates (I can drop her off with a mom I know well, but not him). Also, she gets an allowance (or reward system), and he doesn't. She also gets horseback riding (something extra that he doesn't). It takes reminding, because she doesn't exactly forget, but the feeling of being left out (whether it's true or not) takes over. - I also explain to her about God making Max that way. Even if you're not too religious, you can say that " he was made this way " , and leave out the " Who " . This seems to help Zoë a lot. These things certainly don't make it go away, but they help Zoë. Hope they help you, too. I know it's hard. Sometimes, she's harder than Max, and Max is the one with PDD! - Adrienne from Boston __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 This is tough. And let me say, as a parent, you can only do so much. It is hard " juggling " the aspie vs. the NT. My daughter is 2 years younger than my son, who has asperger's. On top of that, I was doing in-home daycare, so she had to share me with all the other kids that I kept. I didn't really notice what an impact it had on her until first-grade. (My son was diagnosed with asperger's then.) Her teacher had been concerned about her need to be " perfect " . So we proceeded to work very hard on that. I decided that she needed somethings that she could claim as " hers " outside of her brother and his disorder. I enrolled her in the local Brownie (girl scout) troop. That way she could go and be with other girls her age and feel " normal " . She also started on our puppet ministry team at church so she had that as " hers " . And then children's choir. I believe this helped her feel important as we gave her time to go places and do her own thing. Now that she's 11, we still have issues about what her brother gets to do and she doesn't. She is the middle child now and she'll tell you that the middle child is " cursed " . I rely on her because she is the more mature and more capable of the kids. In many ways, she is " older " than her brother. She is definitely more mature than her brother and it's hard because of her age, that I can't allow her to do the things I know full well that she is capable of, but not old enough to do yet. She is into not knowing why she can't so things her brother does. She isn't old enough to stay up until his bedtime. (Plus she has to get up way earlier than him). So, she just sees him as getting to do things that she can't. She doesn't understand the age difference issue. Sorry for my rambling, but I'm writing this inbetween putting kids on buses this morning. That's what we did. We gave Casey things that she could call " hers " -something that her brother didn't do and only she did. She has enjoyed the time away to be herself. Now she's just acting like a normal pre-teen and wanting to be as old as her brother and allowed to do what he wants. I try not to rely on her too much, but it's hard not to when she is so much more mature for her age. And I can't ask my son to do a lot of the things I can her because of his OCD issues and sometimes his asperger's, but mainly the OCD. She doesn't get that. But she tries. Sometimes I don't think she believes me when I explain. I try and keep " chores " even as much as I can. But I don't always get it right. I don't mean to make her work harder. It's just that she can do things where he can't. Hope this helps. Melinda Mom to , 13, AS, ADHD, OCD Casey, 11, (going on 15!) , 5, speech delay and wants to be 11! Baby on the way-praying it's a boy! LOL! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Thank you so much for rambling Melinda.. below I'm rambling too... I have done a pretty good job of making sure that my NT has " her " stuff, I think, and she gets playdates practically every day -- she's doing great. The problem is that she makes things difficult for her brother. It goes so deep. She loves him and wants to play with him all the time, but when he's spacy or unresponsive, she can't stop herself from attacking him, grabbing his toys, messing up what productive thing he's finally doing (he sits down to draw and she sasy " can I have that? " about every marker he picks up -- or she joins a game I'm playing with him (even if she's with someone else) and makes it so hard for him to continue that the game is ruined. It's so constant that I end up yelling at her to leave him alone, and then she is crestfallen, because I'm mad at her and my Aspie doesn't want to play, and because she doesn't really know what she's doing -- she doesn't understand it herself. Other things are developing -- she's being mean to him in front of her friends, partly b/c she has friends who are mean to their siblings, partly b/c she's embarrassed and wants to be cool. Or she jumps on him when he meets her friends, sort of to cover up any akward moment. Meanwhile he is less and less inclined to make an effort when he meets her friends because of this. I can't seem to get it through to her how much harder all this makes his life. Do I just grit my teeth, be as patient as possible, and wait until she can understand? Or maybe find a good family therapist who can explain it to both kids? Hall Melinda <mlndhall@...> wrote: This is tough. And let me say, as a parent, you can only do so much. It is hard " juggling " the aspie vs. the NT. My daughter is 2 years younger than my son, who has asperger's. On top of that, I was doing in-home daycare, so she had to share me with all the other kids that I kept. I didn't really notice what an impact it had on her until first-grade. (My son was diagnosed with asperger's then.) Her teacher had been concerned about her need to be " perfect " . So we proceeded to work very hard on that. I decided that she needed somethings that she could claim as " hers " outside of her brother and his disorder. I enrolled her in the local Brownie (girl scout) troop. That way she could go and be with other girls her age and feel " normal " . She also started on our puppet ministry team at church so she had that as " hers " . And then children's choir. I believe this helped her feel important as we gave her time to go places and do her own thing. Now that she's 11, we still have issues about what her brother gets to do and she doesn't. She is the middle child now and she'll tell you that the middle child is " cursed " . I rely on her because she is the more mature and more capable of the kids. In many ways, she is " older " than her brother. She is definitely more mature than her brother and it's hard because of her age, that I can't allow her to do the things I know full well that she is capable of, but not old enough to do yet. She is into not knowing why she can't so things her brother does. She isn't old enough to stay up until his bedtime. (Plus she has to get up way earlier than him). So, she just sees him as getting to do things that she can't. She doesn't understand the age difference issue. Sorry for my rambling, but I'm writing this inbetween putting kids on buses this morning. That's what we did. We gave Casey things that she could call " hers " -something that her brother didn't do and only she did. She has enjoyed the time away to be herself. Now she's just acting like a normal pre-teen and wanting to be as old as her brother and allowed to do what he wants. I try not to rely on her too much, but it's hard not to when she is so much more mature for her age. And I can't ask my son to do a lot of the things I can her because of his OCD issues and sometimes his asperger's, but mainly the OCD. She doesn't get that. But she tries. Sometimes I don't think she believes me when I explain. I try and keep " chores " even as much as I can. But I don't always get it right. I don't mean to make her work harder. It's just that she can do things where he can't. Hope this helps. Melinda Mom to , 13, AS, ADHD, OCD Casey, 11, (going on 15!) , 5, speech delay and wants to be 11! Baby on the way-praying it's a boy! LOL! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 --- on <cathrob@...> wrote: > great. > > The problem is that she makes things difficult for > her brother. It goes so deep. > I can't seem to get it through to her how much > harder all this makes his life. Do I just grit my > teeth, be as patient as possible, and wait until she > can understand? Or maybe find a good family > therapist who can explain it to both kids? It is hard since she is so young. Social stories with her would be a good idea. I kept asking Casey how she would feel if someone treated her that way, etc. She is now 11 and it's still hard for her sometimes to believe that it has to do with the asperger's. She comes home now from school, though, and will tell me of a student in her class or somewhere that acts like her brother.... so she assumes that child has asperger's. It's all a learning process. We had to learn what worked for our aspie's-after we initially learned what it was we were dealing with-and they have to learn as well. Just constant reminding. My 5 year old keeps asking me (she did this morning) why is " so mean " , or " why does call me bad names. " I am limited in what I can tell her to help her understand. I just have to remind her that has a hard time with not saying bad things, etc. Luckily, for her, she's been in pre-school where they have taught them social skills of " no put downs " and " use kind words " , etc. And then they've helped them use words to express how they feel. So she can tell that he needs to use kind words or " no put downs " and then she tells him that it makes her sad. Neither of the girls really understand what is going on. Casey is seeing more and more how other kids exhibit similiar behaviors, so now she can see how can't help how he is behaving. It's still annoying for her and my 5 year old, , constantly fights with . They feed off each other and that is TOTALLY exhausting! As your daughter gets older she'll start to understand more. However, her behavior could be her seeing if you are going to be consistant in dealing with her behavior so she feels " safe " . Casey went through a period where she did everything that she knew she wasn't supposed to. I know it wasn't to get attention, because we focused on making sure she had our attention as well. But I believe it was just a period to make sure mom and dad were going to keep her in line and not let her get away with things. Once she figured out that we were not going to let her get away with the things she knew all too well she was doing wrong, she settled down back to " normal " . I know my 5 year old wouldn't understand it if I told her that had a disorder, or asperger's or special needs. I just keep telling her that sometimes he has trouble with whatever he is doing wrong. And we talk about how it makes her feel and what she thinks she should do or what we should do together to help her brother. Sometimes it works, sometimes it doesn't. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi! You're welcome! Hope it helps. Also, Max has a psychologist he sees every week, and I've spoken to her about Zoë. It's not out of the ordinary to have a sibling of a child with an ASD to have " issues " as well, and to see the psychologist her/himself. For us, it's a " what can we afford " issue. Would this be a good idea for your daughter? Also, Zoë has participated in a study done by a researcher in Ohio on siblings of kids with ASD's. This was years ago, so I'm definately not trying to sell this study! (It was completing surveys, only). But the gist of this study was that siblings have hard " issues " dealing with their brother or sister with an ASD. The siblings definately have things going on in dealing with this. I'm telling you this so that you know that you're not alone at all - it's a very common thing. Also, don't feel guilty! It sounds like you're trying to do tons, already. It does get better with age, I think, but I really wouldn't wait to start explaining things to her. Explaining things to Zoë really helped/does help a lot. Even if it doesn't seem like it does at first, in the long run it does. Also, explaining things in a way she can understand, and then not engaging her in a conversation/argument about it. She'll drag you in (Zoë does), and it seems like she's talking at first, so you're sucked in, and before you know it, she's arguing and whining: " But you let him have the ball and right before that you said that I couldn't have mine " (rational, linear thought). " You woooon't let meee gooo outside, but you'll let hiiiim " (kind of whining, now). " You NEVER let me have crayons, but HE gets them ALL! " (OK, very whinny now). I thought at first that this was " letting her express herself " and " getting it all out " , but I found that if I let her and engage her, she wants to argue with me and wants to escalate the conversation 'til she's having a great pity party for herself and I'm a raving maniac. So, I don't ignore her, but I don't engage her: " I'm sorry you feel that way. I do love you a lot and I try. " Also, a dose of " counting your blessings " : going over all of her blessings, and what God (or whomever/ whatever) is teaching her and the family in having a sibling with an ASD helps. Can you tell I think about this too much?? Can you tell that this is a constant in our house?? I'm sorry to go on and on - too long! --- on <cathrob@...> wrote: > Thank you so much for this, Adrienne, I really > really appreciate it, it helps. I think I can use > God in the story too. > > > > Adrienne Lehmann <adriennerob@...> wrote: > Hi! > > My daughter (who's older than my son with PDD by 2.7 > years - she's also typical), is VERY jealous of him: > " you let HIM do this...and you don't let me! " It's > hard. But here's some things that work for her: > > - I explain things to her on her level, and in a > " need > to know way " . For example, she doesn't know what > " pragmatics " and " echoleilia " are, but she can be > told > that " Max has an 'issue', and learns differently. He > doesn't understand things quite as well as you can " . > Only recently have I explained that he has " autism " . > Before now (she's almost 9), I don't think she > would've understood. > > - It also takes reminding: patiently repeating over > and over the things she gets that he doesn't, like > going over to people's houses alone for playdates (I > can drop her off with a mom I know well, but not > him). > Also, she gets an allowance (or reward system), and > he > doesn't. She also gets horseback riding (something > extra that he doesn't). > > It takes reminding, because she doesn't exactly > forget, but the feeling of being left out (whether > it's true or not) takes over. > > - I also explain to her about God making Max that > way. > Even if you're not too religious, you can say that > " he > was made this way " , and leave out the " Who " . This > seems to help Zoë a lot. > > These things certainly don't make it go away, but > they > help Zoë. Hope they help you, too. I know it's hard. > Sometimes, she's harder than Max, and Max is the one > with PDD! > > - Adrienne from Boston > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 I too struggle with this same issue, but my daughter who gets resentful is 11, 6 years older than my autistic son. She has seizures and gets plenty of attention herself, but the seizures and meds themselves change her personality so she has days where she's great with him, yet days where she gives me the " WHY does he get ALL the attention? " and one day she told me she just wanted a 'normal' brother. (The whole 'he has issues...' thing backfired a long time ago.) It gets so aggravating, and it does make me feel pulled. She can't get hid in the head and is very sensitive (physically and personality-wise) so he gets on her nerves quite easily, and I've had to remind her numerous times not to leave him out when playing with other kids, or to remember to stick up for her brother. I've got no real answers, reminding and all the good things really don't work. I've just found that I need to give her some 'mommy and me' time when I can, I try for once a week right now, even if it's just a couple of hours sitting in a little cafe enjoying a pastry and talking and even just quietly co-existing, reading, etc. Hard to find the time sometimes but it seems to have the longest lasting effecct. Adrienne Lehmann wrote: > Hi! > > My daughter (who's older than my son with PDD by 2.7 > years - she's also typical), is VERY jealous of him: > " you let HIM do this...and you don't let me! " It's > hard. But here's some things that work for her: > > - I explain things to her on her level, and in a " need > to know way " . For example, she doesn't know what > " pragmatics " and " echoleilia " are, but she can be told > that " Max has an 'issue', and learns differently. He > doesn't understand things quite as well as you can " . > Only recently have I explained that he has " autism " . > Before now (she's almost 9), I don't think she > would've understood. > > - It also takes reminding: patiently repeating over > and over the things she gets that he doesn't, like > going over to people's houses alone for playdates (I > can drop her off with a mom I know well, but not him). > Also, she gets an allowance (or reward system), and he > doesn't. She also gets horseback riding (something > extra that he doesn't). > > It takes reminding, because she doesn't exactly > forget, but the feeling of being left out (whether > it's true or not) takes over. > > - I also explain to her about God making Max that way. > Even if you're not too religious, you can say that " he > was made this way " , and leave out the " Who " . This > seems to help Zoë a lot. > > These things certainly don't make it go away, but they > help Zoë. Hope they help you, too. I know it's hard. > Sometimes, she's harder than Max, and Max is the one > with PDD! > > - Adrienne from Boston > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 All I can say is that I totally know how you feel. My NT child is three, she's two years younger than my son with ASD and already she knows how to push his buttons. She is also very social and very domineering. Some days I feel as though I am her worst enemy especially on the days when my son is having a bad day. It is made worse bythe fact that I know she does the things she does largely for attention. It is so hard to find the balance! i don't want her to grow up feeling that she was second in my mind all the time. Beck ( ) Handing 5-year old sibling's jealousy Hi everyone, I just joined, and haven't searched previous postings yet, but I have an urgent question in case anyone else has any wisdom. I have a 7-year old son with Asperger's and a 5-year old typical daughter who is VERY intense, VERY social, and VERY jealous of any attention or special treatment her brother gets. As a result, he gets very little unless I finally shame or yell at my 5-year-old. She was born just as my son's symptoms were surfacing (he was 20 months) and spent her formative first two years watching me put her down and go after him, so she feels permanently gypped (sp?). I have guilt towards both of them now b/c I can't seem to organize it so that they each get what they need. We stopped all the extra therapies that weren't working last year, and I started a new difficult job this year, and so every day after school it's just the three of us, exhausted, w/out plans, and me trying to wing it. My son is in a loving and accepting school situation, but not one that gives him the extra help he needs to learn better social skills and skills to engage himself constructively. I don't schedule play dates for him b/c it is impossible to juggle that and my daughter too. When I try to plan things both of them will like to do together, my daugher inevitably makes it such a crazy and chaotic experience for my son (pestering him, grabbing everything he has, pouting when I praise his work) that he ends up retreating. I am at a loss. I know we should have more babysitting or aide help but haven't been able to find it. In the meantime, my question is this: at what age do you explain to a sibling (who loves and still looks up to her brother) his problem and her role in helping him? And at what age do you discuss the diagnosis with the affected child? Any insight/commiseration welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 exactly! it makes me feel better just knowing you're out there. sounds like the same situation -- that's how we were two years ago. Mark son <thejacobsons@...> wrote: All I can say is that I totally know how you feel. My NT child is three, she's two years younger than my son with ASD and already she knows how to push his buttons. She is also very social and very domineering. Some days I feel as though I am her worst enemy especially on the days when my son is having a bad day. It is made worse bythe fact that I know she does the things she does largely for attention. It is so hard to find the balance! i don't want her to grow up feeling that she was second in my mind all the time. Beck ( ) Handing 5-year old sibling's jealousy Hi everyone, I just joined, and haven't searched previous postings yet, but I have an urgent question in case anyone else has any wisdom. I have a 7-year old son with Asperger's and a 5-year old typical daughter who is VERY intense, VERY social, and VERY jealous of any attention or special treatment her brother gets. As a result, he gets very little unless I finally shame or yell at my 5-year-old. She was born just as my son's symptoms were surfacing (he was 20 months) and spent her formative first two years watching me put her down and go after him, so she feels permanently gypped (sp?). I have guilt towards both of them now b/c I can't seem to organize it so that they each get what they need. We stopped all the extra therapies that weren't working last year, and I started a new difficult job this year, and so every day after school it's just the three of us, exhausted, w/out plans, and me trying to wing it. My son is in a loving and accepting school situation, but not one that gives him the extra help he needs to learn better social skills and skills to engage himself constructively. I don't schedule play dates for him b/c it is impossible to juggle that and my daughter too. When I try to plan things both of them will like to do together, my daugher inevitably makes it such a crazy and chaotic experience for my son (pestering him, grabbing everything he has, pouting when I praise his work) that he ends up retreating. I am at a loss. I know we should have more babysitting or aide help but haven't been able to find it. In the meantime, my question is this: at what age do you explain to a sibling (who loves and still looks up to her brother) his problem and her role in helping him? And at what age do you discuss the diagnosis with the affected child? Any insight/commiseration welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hello, I also have a seven year old with Aspergers syndrome. I know what it feels like to feel emotionally drained and have to deal with all of the problems that have been forementioned. My NT son is eight years old and only three when my younger son started showing symptoms. It has been very hard to explain to him why his brother required so much attention at times and why he acts up in public or can not always do the things that his brother does. This has become so much of a problem that my older NT son has even not wanted his brother on his bowling team and often refirs to his behaviors as the syndrome. He frequently says Oh NO The Syndrome is Back. It is equally hard to exsplain to the younger child why he is unable to stay at friends houses and go to functions alone. I sat my son down around five years old and explained to him that while his brother is the normal height and looks like a ordinary four year old his mind often does not think in the same way that his does and therefore sometimes he requires extra help. My son has just now started to realise that his brother is different and is just now picking out all of his little quirks that are not socially acceptable. It is really frustrating at times because my older son often yells at him for things and makes things worse. Also my three year old neice has a way about her that pushes all of my youngest sons buttons. She drives him absolutly crazy. All I can say is that I totally know how you feel. My NT child is three, she's two years younger than my son with ASD and already she knows how to push his buttons. She is also very social and very domineering. Some days I feel as though I am her worst enemy especially on the days when my son is having a bad day. It is made worse bythe fact that I know she does the things she does largely for attention. It is so hard to find the balance! i don't want her to grow up feeling that she was second in my mind all the time. > Beck > ( ) Handing 5-year old sibling's jealousy > > > Hi everyone, > > I just joined, and haven't searched previous postings yet, but I have an urgent question in case anyone else has any wisdom. > > I have a 7-year old son with Asperger's and a 5-year old typical daughter who is VERY intense, VERY social, and VERY jealous of any attention or special treatment her brother gets. As a result, he gets very little unless I finally shame or yell at my 5- year-old. She was born just as my son's symptoms were surfacing (he was 20 months) and spent her formative first two years watching me put her down and go after him, so she feels permanently gypped (sp?). I have guilt towards both of them now b/c I can't seem to organize it so that they each get what they need. We stopped all the extra therapies that weren't working last year, and I started a new difficult job this year, and so every day after school it's just the three of us, exhausted, w/out plans, and me trying to wing it. My son is in a loving and accepting school situation, but not one that gives him the extra help he needs to learn better social skills and skills to engage himself constructively. I don't > schedule play dates for him b/c it is impossible to juggle that and my daughter too. When I try to plan things both of them will like to do together, my daugher inevitably makes it such a crazy and chaotic experience for my son (pestering him, grabbing everything he has, pouting when I praise his work) that he ends up retreating. > > I am at a loss. I know we should have more babysitting or aide help but haven't been able to find it. > > In the meantime, my question is this: at what age do you explain to a sibling (who loves and still looks up to her brother) his problem and her role in helping him? > > And at what age do you discuss the diagnosis with the affected child? > > Any insight/commiseration welcome! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 > > Hello, > I also have a seven year old with Aspergers syndrome. I know what it > feels like to feel emotionally drained and have to deal with all of > the problems that have been forementioned. My NT son is eight years > old and only three when my younger son started showing symptoms. It > has been very hard to explain to him why his brother required so > much attention at times and why he acts up in public or can not > always do the things that his brother does. This has become so much > of a problem that my older NT son has even not wanted his brother on > his bowling team and often refirs to his behaviors as the syndrome. I haven't followed this thread carefully, but I thought I would put my $.02 in. My son has a sister who is much older than he is and who has a lot of the same problems that he has. You would think that she would be a big help to him. But no, the sibling jealousy raised its ugly head since he was receiving the help that she felt she should have received when she was his age (she is a half sibling and was raised by her mother). So I guess no matter what causes the disability, the other kids will still resent the extra attention that is paid (out of necessity) to the child with a problem. My son also responded with some whining about when his sister had to have extra time and attention paid to her when her problems got bad. However, his behavior wasn't nearly as bad as hers was when the situation was reversed. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Ah, we have that same whining! It's all consuming, so I welcome the long note. I do want to get a psychologist -- can't find a good one here, we're moving to D.C. (anyone know a good one there?) Adrienne Lehmann <adriennerob@...> wrote: Hi! You're welcome! Hope it helps. Also, Max has a psychologist he sees every week, and I've spoken to her about Zoë. It's not out of the ordinary to have a sibling of a child with an ASD to have " issues " as well, and to see the psychologist her/himself. For us, it's a " what can we afford " issue. Would this be a good idea for your daughter? Also, Zoë has participated in a study done by a researcher in Ohio on siblings of kids with ASD's. This was years ago, so I'm definately not trying to sell this study! (It was completing surveys, only). But the gist of this study was that siblings have hard " issues " dealing with their brother or sister with an ASD. The siblings definately have things going on in dealing with this. I'm telling you this so that you know that you're not alone at all - it's a very common thing. Also, don't feel guilty! It sounds like you're trying to do tons, already. It does get better with age, I think, but I really wouldn't wait to start explaining things to her. Explaining things to Zoë really helped/does help a lot. Even if it doesn't seem like it does at first, in the long run it does. Also, explaining things in a way she can understand, and then not engaging her in a conversation/argument about it. She'll drag you in (Zoë does), and it seems like she's talking at first, so you're sucked in, and before you know it, she's arguing and whining: " But you let him have the ball and right before that you said that I couldn't have mine " (rational, linear thought). " You woooon't let meee gooo outside, but you'll let hiiiim " (kind of whining, now). " You NEVER let me have crayons, but HE gets them ALL! " (OK, very whinny now). I thought at first that this was " letting her express herself " and " getting it all out " , but I found that if I let her and engage her, she wants to argue with me and wants to escalate the conversation 'til she's having a great pity party for herself and I'm a raving maniac. So, I don't ignore her, but I don't engage her: " I'm sorry you feel that way. I do love you a lot and I try. " Also, a dose of " counting your blessings " : going over all of her blessings, and what God (or whomever/ whatever) is teaching her and the family in having a sibling with an ASD helps. Can you tell I think about this too much?? Can you tell that this is a constant in our house?? I'm sorry to go on and on - too long! --- on <cathrob@...> wrote: > Thank you so much for this, Adrienne, I really > really appreciate it, it helps. I think I can use > God in the story too. > > > > Adrienne Lehmann <adriennerob@...> wrote: > Hi! > > My daughter (who's older than my son with PDD by 2.7 > years - she's also typical), is VERY jealous of him: > " you let HIM do this...and you don't let me! " It's > hard. But here's some things that work for her: > > - I explain things to her on her level, and in a > " need > to know way " . For example, she doesn't know what > " pragmatics " and " echoleilia " are, but she can be > told > that " Max has an 'issue', and learns differently. He > doesn't understand things quite as well as you can " . > Only recently have I explained that he has " autism " . > Before now (she's almost 9), I don't think she > would've understood. > > - It also takes reminding: patiently repeating over > and over the things she gets that he doesn't, like > going over to people's houses alone for playdates (I > can drop her off with a mom I know well, but not > him). > Also, she gets an allowance (or reward system), and > he > doesn't. She also gets horseback riding (something > extra that he doesn't). > > It takes reminding, because she doesn't exactly > forget, but the feeling of being left out (whether > it's true or not) takes over. > > - I also explain to her about God making Max that > way. > Even if you're not too religious, you can say that > " he > was made this way " , and leave out the " Who " . This > seems to help Zoë a lot. > > These things certainly don't make it go away, but > they > help Zoë. Hope they help you, too. I know it's hard. > Sometimes, she's harder than Max, and Max is the one > with PDD! > > - Adrienne from Boston > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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