Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 welcome@ I have five kids, eldest two are stepkids who live here full time, so I consider them as much mine as my own. I have three spec needs kids. J is 13 and dx'd schizoaffective, my girl is 11 and dx'd AS and mild MR (she has a cured heart syndrome that nearly killed her three times), my youngest is in a state of " deferred dx " but being treated for severe social anxiety and phobias. I blieve he is borderline AS which is why we have such a prob with dx. I myself have MS which makes all this tiring, lol and my husband is untreated bp. If you need help, I've prob been there or am there! lol ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I don't know about others personally but every day and every minute is different for me personally. I swing constantly between thinking this isn't so bad to thinking I can't cope with this anymore. My son is only just about to turn 6. He is pedantic about anything that belongs to him. He doesn't mind so much about other peoples stuff but he likes his own things the way he likes them. His room is always immaculate he hates a think out of place. He only ever draws or colours with the colour blue. He has very limited language and uses the same phrases over and over again to apply to many situations. e.g " I win, you died " when he finsihes first or gets to the mail box first, or even just when he manages to accomplish something. He tells me at least a dozen times a day " my name is Isaac " even though it is totally irrelevant to the situation we are in. If I say " I love you " he always says " I love dad. " He is obsessed with computer games and would sit on them all day if I let him. He repeats the last two or three words spoken to him during conversations. He refuses to eat meat and has to be on iron suppliments. He tells is like it is, no sugar coating his words. He goes through extreme periods of frustating screaming and crying and then the next minute he is happy as anything. These are just a few of the things that make up his HFA. At the moment he is playing his xbox and he is happy and I look at him and think, this isn't so bad! LOL Beck ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Wow, sounds like typical aspie! Everyone here is so nice and helpful... It's hard not to be depressed sometimes... I am sure we all get that way. I know I do... but I try to look at the brighter side of things... somedays, it's harder to find than others. I am lucky in that he is my only child. But it's hard when I witness other kids picking on him and he comes home from school angry and upset because he can't vent in a strict school environment. He has to hold it all in, and he feels safe with me, he knows I wont stop being his mom, so he tends to come home and take it out on me... which some days, more than others, really sets me off... but I take a deep breath and give him two options, talk to me nicely and I will respond, or keep up that temper, and I wont respond and you will get no computer. That seems to work for me. My son, too doesn't care what people think of how he dresses, what he says and how he looks... could care less! He'd go to school in his pajamas with his hair sticking up everywhere... wouldn't bother him. I used to get upset when people made comments... it really hurt to know that we were being judged.. but the only people that matter are you and your daughter. Just remember that. And we all have been there, and are here for you:) Tami ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Lately, I find myself thinking the same way you do. I feel overwhelmed like I cannot take another minute of my life. Sorry to sound so self-pitying. I have an untreated bipolar husband, two teen stepkids, a teen with mental illness, and two asperger kids. I have MS myself. I mean, how much more can a person deal with???? My husband works 60 hours a week, so it's really me raising all the kids and I'm whipped. Anyone else feel this way or am I totally selfish?? ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 --- In , " crateofbeans " <kehecho@...> wrote: > > Hi!! I have a 16yr old AS child, and from the first 20 or so entries > I have back read on, we're all basically in the same boat here : ) I > think what I want to really hear about, is how you other parents are > fairing, in raising an AS child? I know the stress and strain, and my > own private battle with refusing to give into depressed feelings, > just because my child is different from others. I am an extremely > active mom, and I am involved in however/whatever I can be with or > for my child, to help her adjust, understand, and fit in better. > There are times I happily think " why can't the world just mind its > own business and stop bothering all the special people in it? " > hahahahaa. > Here are a few of the things I deal with, with her, on a daily basis > (yes even at 16yrs old): > wears her socks inside out, the seams bother her. (all socks, even > seamless ones) > wears only loose slippery material type of pants, does not wear jeans > ever. > Dresses up how she wants to, doesn't care if others like what she has > on or not (she'll wear a conservative style dress when others are > wearing the typical fashions). > > At 16, shes nicer to others than she is to her own parents > (personally I think I am her scapegoat, who she unstresses from the > day on). > > She prefers to stay up to about 1-2am, then sleep till schooltime, > then as soon as she gets home she goes to sleep again, wakes up > around 10pm, and so on. > > My daughter is main streamed. This means she is in regular > highschool, no special rooms there. The vocabulary shes learning from > the other kids there, she saves up to practice on us at home with (oh > my burning ears lol). > > I have a full IEP on her, I made sure she obtained the AI rating so > that allllll services and adjustments and special arrangements, were > available to her. > > She will graduate with a full diploma, exactly like any other kid's > diploma there. > > I guess, her beings 16 now, I have been through pretty much most of > what there is out there to expect, for a special child such as she > is. I am in control, at IEP meetings. I am very pleased with the way > her school has bent over backwards to try to accomodate her, so > she'll proogress better. Any questions?, I'd be happy to give input > on. My main thing at this point is, how the heck are all of you > parents out there, from having to deal with all this stuff, day after > day? I even know of a few stress strategies for the parents, that > have helped me : ) > > Here are a few of the things I deal with, with her, on a daily basis > (yes even at 16yrs old): > wears her socks inside out, the seams bother her. (all socks, even > seamless ones) > wears only loose slippery material type of pants, does not wear jeans > ever. > Dresses up how she wants to, doesn't care if others like what she has > on or not (she'll wear a conservative style dress when others are > wearing the typical fashions). > > At 16, shes nicer to others than she is to her own parents > (personally I think I am her scapegoat, who she unstresses from the > day on). > > She prefers to stay up to about 1-2am, then sleep till schooltime, > then as soon as she gets home she goes to sleep again, wakes up > around 10pm, and so on. BOY!!! She sounds like my twins. If you read another post about clothes, shorts etc. One of my kids wears red, black and blue slipper socks to school . they are thin and soft...He doesn't CARE what other people say. He just went to the movie with a friend and has on his red socks!!! They will only wear loose 'soft pants' just wore jeans for the first time last year. They go to a private school, so mostly wear loose khakis and 'polo' type shirts... One of my boys comes home from school most days and sleeps til about 10:30 or 11pm and then gets up til about 4 or 5 then goes back to bed til time to get up for school at 7am. He will get up to eat and take a shower ( where he wets himself and doesn't 'bathe' and go back to bed) This weekend I was busy with company and they hid out in the basement except for coming up to get something to eat. They took turns sleeping... One would sleep for 4 or 5 hours get up, play on the computer while the other one slept... My cousins thought I was crazy for letting them sleep that way. But I told them that they don't have sleep patterns like 'we' do and as long as they go to school and are happy it doesn't bother me. I have tried to MAKE them keep regular hours and it is near impossible. Plus I think school takes so much out of them that they need to decompress after being with so many people at school and having to try to be 'on' all the time.I think that is one of the reasons they took turns sleeping this weekend. Too many people... As for taking out all of her aggressions and anger out on you I can RELATE so much to that one too. I am the blame for all behavior and everything is my fault because I am a 'terrible mother who has no control'. Well, I tell them it is hard to parent a kid that doesn't listen to what you tell them and takes all the blame for everything. I am calling a pyschologist and hopefully we can work on the bashing , blaming, cussing mom out and telling me I am a f'ing moron!! Oh, Boy, do I ever relate to you!!It is difficult to say the least. I tell them I will fight for them tooth and nail but it is difficult to fight for them when they are fighting against me! Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 You are not alone! You already know, I have 14 w/AS and I work full time, my niece, 17 spends weekends, and they are like little pigs when I am not home, eating all my food, messing up house, dirtying every dish in the kitchen!! Then, you have to practically do EVERYTHING for your children when you aren't at work... I spend the entire day monday cleaning up after them, then spend lots of money replacing food so I can cook for the week, and then I also have a dog who shreds paper all over the floor, you have to pick things up or he shreds them, and of course, he has a field day when I am not here... shredding to his hearts content, peeing on the floor cause no one puts him out, and when I say " I am just going to get rid of the dog " , my son has a meltdown, crying real tears and begging me not to... I work with mentally disabled adults and they are so much more pleasant to be around sometimes... I would rather stay at work... well, when my niece isn't here, my son is much easier to talk to... he goes into selfish teenager mode when another teenager is around... but at least I don't have as many kids as you do!! I pity you, too! ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 I think sometimes it does get on top of you. Especially when you have your own problems to deal with as well. I think we all feel like we are losing it at times. Beck ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Thank you, lately, I feel like I'm suffocating. I know it will pass. I love my kids and wouldn't change them for the world! I recently started an AD that should help. I think it's the AMOUNT I deal with that gets to me. I appreciate your response! ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 you are most welcome. beck ( ) Hello everyone, I feel like I am right at home here already! Hi!! I have a 16yr old AS child, and from the first 20 or so entries I have back read on, we're all basically in the same boat here : ) I think what I want to really hear about, is how you other parents are fairing, in raising an AS child? I know the stress and strain, and my own private battle with refusing to give into depressed feelings, just because my child is different from others. I am an extremely active mom, and I am involved in however/whatever I can be with or for my child, to help her adjust, understand, and fit in better. There are times I happily think " why can't the world just mind its own business and stop bothering all the special people in it? " hahahahaa. Here are a few of the things I deal with, with her, on a daily basis (yes even at 16yrs old): wears her socks inside out, the seams bother her. (all socks, even seamless ones) wears only loose slippery material type of pants, does not wear jeans ever. Dresses up how she wants to, doesn't care if others like what she has on or not (she'll wear a conservative style dress when others are wearing the typical fashions). At 16, shes nicer to others than she is to her own parents (personally I think I am her scapegoat, who she unstresses from the day on). She prefers to stay up to about 1-2am, then sleep till schooltime, then as soon as she gets home she goes to sleep again, wakes up around 10pm, and so on. My daughter is main streamed. This means she is in regular highschool, no special rooms there. The vocabulary shes learning from the other kids there, she saves up to practice on us at home with (oh my burning ears lol). I have a full IEP on her, I made sure she obtained the AI rating so that allllll services and adjustments and special arrangements, were available to her. She will graduate with a full diploma, exactly like any other kid's diploma there. I guess, her beings 16 now, I have been through pretty much most of what there is out there to expect, for a special child such as she is. I am in control, at IEP meetings. I am very pleased with the way her school has bent over backwards to try to accomodate her, so she'll proogress better. Any questions?, I'd be happy to give input on. My main thing at this point is, how the heck are all of you parents out there, from having to deal with all this stuff, day after day? I even know of a few stress strategies for the parents, that have helped me : ) Quote Link to comment Share on other sites More sharing options...
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