Re: Introduction from new member

[Guest guest]

Hi ,

I am so sorry to hear that after such a long period, you're still having

active arthritis. Not just active arthritis, either. It sounds to me like

you're in the midst of a flare! My son has systemic JRA. He's 14. Right now,

he's doing very well. When he saw the doctor last week he got the okay to

taper down his dose of prednisone. He's taking just 3mgs a day now (his

lowest dose ever, in 8 years). He also takes plaquinel, like you, as well as

methotrexate, folic acid, cytotec, and indomethacin. And human growth

hormone. Since the beginning, he's always been on a pretty aggressive regime

of arthritis meds. Always trying to control the inflammation and it finally

seems like it's working. There's only been one or two occasions when he took

pains meds aside from his regular antiinflammatory arthritis meds, when he

was having a lot of pain from costochondritis ... inflammation around the

cartilege of the rib cage / sternum area. Most times when he was in a flare

and had a very high level of pain from the arthritis his doctors recommended

adding to or increasing the doses of regular arthritis meds. (Often, the

prednisone. That was usually very effective and worked quickly, to help him

get through the really hard times).

In your situation, I'm wondering if you've ever considered using a scooter to

help you get around the large campus? If classes are spread out that far

apart, it might come in really handy. As would a parking placard : ) At least

to get you from the parking area. In our state, we need to get a form from

the motor vehicle department and after filling in basic info and having a

picture taken, you need to bring it in to your doctor. They fill out the

medical section, sign it, and then you bring it back in. For a long time, I

didn't feel right about getting one. Figured they were just for 'other'

people. However, it got to the point where some days it was just too hard for

my son. I'd either have to carry him, or leave him at the car, get a shopping

carriage to put him into ... some days walking that far was just too hard. We

didn't make a habit of using it all the time but it was definitely useful on

the days he needed more help. I'm sure your doctor will agree that it's

worthwhile for you. You don't have to feel guilty about having one just

because you're young.

Good luck, and keep in touch : )

Aloha,

Georgina

bhb023 wrote:

> Hi All, My name is , I am from Jupiter, Florida, and I joined

> your e-group a few days ago. I was diagnosed with JRA when I was

> about 13 and am now almost 21 years old. I was in remission for about

> two years and am just starting treatment again. I suspect that I have

> had JRA since before I was 13 because I have had only one day that I

> can remember that was pain free. I don't really remember what my

> treatment consisted of besides having therapy, using paraffin wax,

> and taking anti-inflammatory medicine in the past. About the year

> 1998 my mom wanted me to go to a more aggressive treatment and I was

> put on Plaquenil and an anti-inflammatory. In 2001, my arthritis

> doctor felt I was in remission and I discontinued treatment after

> tapering down. December 2002, I went back complaining of pain in my

> neck and calves and he said it was not related to my JRA. He sent me

> back to the Orthopedic who did nothing for me. I tried physical

> therapy but it did not help much. The massage was the best part of

> it. I have been in a lot of pain for the last two months and I made

> another appointment with the doctor and he took blood and x-rays and

> felt that we needed to start treatment again. He also said my pubis

> bone was inflamed. So now I am back on plaquenil and have started

> taking Celebrex. I was taking 800mg of Advil and it was doing nothing

> for me. I have tried Aleve in the past and it did not help either.

> While I waited to see the doctor, I had to wait until I was done with

> my finals for college (I go to school in Orlando, FL), I was taking

> Darvocet and Advil but it did not help. One day I was in so much pain

> that I took a Vicodin and it did nothing for me. I have other

> problems relating to my immune system such as a

> dermatological/gynecological problem called Lichen Sclerosis et

> atrophicus which I have had since I was four or five years old, I

> have TMJ which can be related to the JRA, and I had Mono my senior

> year of high school (1999-2000). I have been really weak lately and I

> am not sure if it has something to do with the JRA or if I am just

> really tired. Before the beginning of the year my doctor tested me

> for Epstein-Barr Virus and that came back negative. She also tested

> me for an ulcer but thankfully I only have some reflux and I take

> Prilosec for that. A lot of my friends were tested for mono the

> second to last week of school but I do not know their results. I was

> thinking about getting a blood test but there isn't much that the

> doctor could do if I do have it so I guess I just rest some more. If

> I become more fatigued maybe I will reconsider. My areas of pain

> before I was in remission included my hands, wrists, shoulders, back,

> and ankles. Now my pain is my hands, wrists, shoulders, ankles,

> knees, back, feet, and my pelvis hip area. It's hard to actually know

> where I have pain because my whole body hurts. The past few days I

> have been in more pain than usual and I called my pharmacist and he

> said if I am taking the medicine I really shouldn't have pain. So I

> am trying to control it with Darvocet but it has not really helped.

> If I am not doing better by Monday, I am going to call the doctor and

> tell him. I also wanted to ask him or the pharmacist if it is okay to

> take Skelaxin with the Celebrex and Plaquenil. I use it when I have

> problems with my TMJ and it seems to help. I am interested in

> learning about what other are doing as part of their treatment. Is

> anyone on a special diet to control the JRA? Since I am home for most

> of the summer I am going to try to see a Nutritionist to see if that

> helps. One more question, does any one know what the requirements

> are in order to get a Handicap Placard for the car? I think it would

> make things a lot more easier if I did not have to walk so far from

> the car to the buildings at my school. It is like a mile trip from

> the parking lot to the building. I am in more pain when I get there

> and am out of breath from the long trek. Because I was in remission

> my regular doctor would not tell me how to proceed in getting one but

> now that I have active arthritis maybe I will be able to. I look

> forward to hearing more from you. ~

[Guest guest]

Hi . Welcome. We don't have Archives on this list, but here is an

article you might find helpful. Pam

_http://members.ozemail.com.au/~rbmitch/Asperger15.htm_

(http://members.ozemail.com.au/~rbmitch/Asperger15.htm)

[Guest guest]

Welcome ,

Sorry I don't have any advice for dealing with high school teachers as my son is

only 6 but already I am not looking forward to the high school years as I seem

to hear nothing but bad things in relation to high school and AS.

Beck

( ) Introduction from new member

Hi All,

I have just joined up so I thought I would introduce myself. My name

is and I live in Dubbo NSW. I have a 13 and a half year old son

that was diagnosed with Asperger's in October last year. It has made

sense of things we knew were different about him but couldn't really

explain. We are continually learning new things and fighting for him.

I have two other sons who are nearly 12 and 8 and a half.

Anyhow, looking forward to learning more here and getting to talk to

others who know the struggles.

I haven't read the archives yet, but has anyone got any advice for

dealing with ignorant high school teachers who are supposed to be

looking after special needs kids but just don't get Asperger's?

Regards,

[Guest guest]

Welcome!

For ignorant high school teachers I would try to keep educating them. Copy

short articles or cut and paste parts of articles that pertain to problems your

child is having. And keep having lots of meetings. If necessary, move him away

from a teacher who doesn't want to learn (if possible.)

My ds finally refused to go to high school anymore. He is taking his senior

year via a tutor the school provides.

Roxanna

( ) Introduction from new member

Hi All,

I have just joined up so I thought I would introduce myself. My name

is and I live in Dubbo NSW. I have a 13 and a half year old son

that was diagnosed with Asperger's in October last year. It has made

sense of things we knew were different about him but couldn't really

explain. We are continually learning new things and fighting for him.

I have two other sons who are nearly 12 and 8 and a half.

Anyhow, looking forward to learning more here and getting to talk to

others who know the struggles.

I haven't read the archives yet, but has anyone got any advice for

dealing with ignorant high school teachers who are supposed to be

looking after special needs kids but just don't get Asperger's?

Regards,

------------------------------------------------------------------------------

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[Guest guest]

Hi ,

Welcome to the group.

You should love this group.

LOTS of informative moms and dads, and GREAT moderators.

My 13 year old is homeschooled at this point, so I am not great in

that area,

but I can say,

inform, educate,and inform and educate some more.

Give them the information they need to understand your son.

Make sure they get it, (and I mean GET IT!) AND use some of your

tactics you probably have come up with to help him be successful.

Educate them, maybe buy them a couple of books, if you can.

It is unfortunate we have to do this, but some teachers or

administrators need it. If that doesn't work,,,

then it is time to be the squeeky wheel.

If he has something written up in school for how to help him, make

sure it works with what he needs.

He will need you to be a strong advocate and the more you know about

Asperger Syndrome, the better you will be:)

Keep posting. Ask away. So far, no question I have seen is too small

to ask:)

*smiles*

lisa b

>

> Hi All,

>

> I have just joined up so I thought I would introduce myself. My

name

> is and I live in Dubbo NSW. I have a 13 and a half year old

son

> that was diagnosed with Asperger's in October last year. It has

made

> sense of things we knew were different about him but couldn't

really

> explain. We are continually learning new things and fighting for

him.

> I have two other sons who are nearly 12 and 8 and a half.

>

> Anyhow, looking forward to learning more here and getting to talk

to

> others who know the struggles.

>

> I haven't read the archives yet, but has anyone got any advice for

> dealing with ignorant high school teachers who are supposed to be

> looking after special needs kids but just don't get Asperger's?

>

> Regards,

>

>

[Guest guest]

Hi Beck,

Thanks for the welcome! I know it sounds like all bad news, but there is some

good too. There are some teachers that are willing to try new things and we have

an advocate in our regional education office who works with students with

disabilities and behaviour issues. He is fantastic and trying the get my son's

curriculum (spelling?) changed as well as some on the job training. C is

extremely excited as it looks like he will get 1 day work placement at the local

animal shelter. He loves animals and is very exited about the idea.

Just think too - we're all paving the way and hopefully by the time your son is

6 there will be a lot more understanding and options! If we all keep fighting to

get the information out there and get a fair go for our kids, progress will be

made! Sometimes it just never seems to go quick enough! LOL

PS Don't forget High School as the added 'bonus' of dealing with hormones too! A

sense of humour is a must!

Re: ( ) Introduction from new member

Welcome ,

Sorry I don't have any advice for dealing with high school teachers as my son

is only 6 but already I am not looking forward to the high school years as I

seem to hear nothing but bad things in relation to high school and AS.

Beck

-----

.

[Guest guest]

Hi Pam,

Thanks!!!

Re: ( ) Introduction from new member

Hi . Welcome. We don't have Archives on this list, but here is an

article you might find helpful. Pam

_http://members.ozemail.com.au/~rbmitch/Asperger15.htm_

(http://members.ozemail.com.au/~rbmitch/Asperger15.htm)

[Guest guest]

Thanks !

To cut a long story short - I got a letter from the Maths teacher (you know the

standardised 'tick a box' ones that infuriate the heck out of me <grin>), did my

block, got on my soap box (understanding family can be a god-send!), calmed down

and wrote a diplomatic letter with a few bits of sarcasm etc. My boss loved that

I attached printouts ( 10 in total) about Asperger's. Her favourite one was

'Strategies for Teachers on dealing with students with AS' or something like

that!

My husband isn't so subtle, he is AS too!

Hugs,

( ) Re: Introduction from new member

Hi ,

Welcome to the group.

You should love this group.

LOTS of informative moms and dads, and GREAT moderators.

My 13 year old is homeschooled at this point, so I am not great in

that area,

but I can say,

inform, educate,and inform and educate some more.

Give them the information they need to understand your son.

Make sure they get it, (and I mean GET IT!) AND use some of your

tactics you probably have come up with to help him be successful.

Educate them, maybe buy them a couple of books, if you can.

It is unfortunate we have to do this, but some teachers or

administrators need it. If that doesn't work,,,

then it is time to be the squeeky wheel.

If he has something written up in school for how to help him, make

sure it works with what he needs.

He will need you to be a strong advocate and the more you know about

Asperger Syndrome, the better you will be:)

Keep posting. Ask away. So far, no question I have seen is too small

to ask:)

*smiles*

lisa b

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[Guest guest]

,

Could you please send me a copy of the Strategies for teachers? I would

like to send it to my DS teachers. jewel929@...

thanks,

( ) Re: Introduction from new member

Hi ,

Welcome to the group.

You should love this group.

LOTS of informative moms and dads, and GREAT moderators.

My 13 year old is homeschooled at this point, so I am not great in

that area,

but I can say,

inform, educate,and inform and educate some more.

Give them the information they need to understand your son.

Make sure they get it, (and I mean GET IT!) AND use some of your

tactics you probably have come up with to help him be successful.

Educate them, maybe buy them a couple of books, if you can.

It is unfortunate we have to do this, but some teachers or

administrators need it. If that doesn't work,,,

then it is time to be the squeeky wheel.

If he has something written up in school for how to help him, make

sure it works with what he needs.

He will need you to be a strong advocate and the more you know about

Asperger Syndrome, the better you will be:)

Keep posting. Ask away. So far, no question I have seen is too small

to ask:)

*smiles*

lisa b

---

Recent Activity

a.. 26New Members

Visit Your Group

TV

Want the scoop?

Check out today's

news and gossip.

Ads on

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Reach customers

searching for you.

Start a group

in 3 easy steps.

Connect with others.

.

[Guest guest]

Thank goodness for the family *grin*

Great job on the diplomatic letter. I think that is the way to go.

And yes, I think adding a bit of sarcasm probably fit in well

Good job with the printouts! (I believe you got those from Pam's

site:)

See, you have done well!

Kudos' for sure!

You have an Aspie for a husband? I think mine fits that too, but he

only admits it on A RARE occasion.

Having 5 on the spectrum in our house (three kids, a mom (me) and

dad (undiagnosed)) makes life interesting!!!

(To say the least!)

Isn't it fun? (not sure if I am saying that with sarcasm or not.

hehehe

*smiles*

lisa b

>

> Thanks !

>

> To cut a long story short - I got a letter from the Maths teacher

(you know the standardised 'tick a box' ones that infuriate the heck

out of me <grin>), did my block, got on my soap box (understanding

family can be a god-send!), calmed down and wrote a diplomatic

letter with a few bits of sarcasm etc. My boss loved that I attached

printouts ( 10 in total) about Asperger's. Her favourite one

was 'Strategies for Teachers on dealing with students with AS' or

something like that!

>

> My husband isn't so subtle, he is AS too!

>

> Hugs,

>

>

> =

[Guest guest]

Hi ,

Husband isn't diagnosed and we don't really talk about it - it is acknowledged

by him saying C and he are the same. Also acknowledged some stuff to a

specialist we saw at Westmead Children's Hospital (in Sydney) so it's sort of

one of those unspoken things :-) The thing I find the hardest is he is so hard

on himself about 'not being good enough' because he is such an amazing and

talented man. We can joke about it now and i can tell when things are getting

serious - he will talk about it eventually, I just need to be patient and let

him come to me when he is ready. This was the hardest thing for me as I come

from a family that talks about everything and was never allowed to 'let the sun

set on an argument'. That is not practical and there are times I need to sleep

on it too!

I also got a lot of info from the Autism Association of NSW - they sent me a

heap of stuff for us and to give to teachers too!

Had a shocker of a day with the school again although it got sorted. C didn't

want to go today so it was already a set up for issues. Had the talk and

reassurances etc. There is one particularl boy in his class and the two of them

are best friends one minute and fightling like cats and dogs the next! Today was

one of the fight days. According to C, this boy threw his bag off the first

floor and into the courtyard. C lost it. Teachers and aide took the class to the

next room so C had some chill out time. Only problem was C was so fixed on

revenge it took 2 of the male teachers to hold him back! Unfortunately the

Deputy Principal that knows C and we have been dealing with all year was away -

the other Deputy does not know C and has no dealing with him or the processes.

He rang me at work (bit of set up for the state I was in - my Dad was in

hospital having day surgery, had to have my middle son at x-ray at 1pm and had

to go to College in the afternoon) at 12.15pm. To cut a long story short he

wanted me to pick C up and take him home 'because he wasn't listening'. I said I

was concerned that the behaviour was a result of C not wanting to go to school

today and that by misbehaving he could go home (he has been sent home 3 times in

the last 3 weeks). i asked if there was somewhere at school he could go until he

settled down (which has happened in the past). I was politely informed that the

school didn't have the facilities to deal with students like C and maybe should

go to Mian (I had never heard of this school - it is for students with behaviour

and emotional disorders) - I even went as far as making an appointment to check

it out (which I won't be doing now! on advice from our friend at the department

who said it is not an appropriate school for C). I said that my husband was out

of town and couldn't pick C up and I really couldn't either - was there another

solution? He then said 'well if you don't come and pick him up I will suspend

him' - well needless to say I saw red. The rest of the conversation was a bit of

a haze but he knew I wasn't happy! Had a cry on a friends shoulder at work,

pulled myself together, went and got T, went to get C. The deputy had said C and

the aide would be waiting out the front for me. When I got there they were

nowhere to be seen - tried the office - they didn't know where anyone was. By

this time I was pacing and getting further stressed as were now going to be late

for T's x-ray. Long story short, C was in the classroom with the aide, our

advocate from the department and the principal - they were playing games and all

was calm. In the time it had taken for me to get there it had all been sorted!

Had a good talk with the principal (the silly deputy was waiting in the

corridor, sent me to the room and left - he isn't talking to me <grin> - I think

he got over ruled!) who appears to be quite understanding and sensible. She is

looking at some different options for C including having a buddy in a 'higher'

class who will help him. They are looking at giving him his own work in a

quieter class (the noise and distraction in his current class is usually what

sets him off) and introducing the change gradually. It looks like he will start

at the animal shelter next term too which he is really excited about. The end

result ended up being he stayed at school, spent some time with the adults then

went back to class with no problems!! Ugh! Sometimes people make you so mad! Got

T to his appointment 40 minutes late but luckily they were understanding - i

still managed to get a few hours study in too!

Yep, life definately isn't boring! And you know what, the good outweighs the bad

and I wouldn't have it any other way! I have had the fortune of learning so many

different things because of the special people in my life and I have learnt to

think more about the why something is happening too. It's opened up my eyes and

my heart and I am truly blessed. Despite the frustrations at times and the guilt

and the sorrow I feel for my son, as the principal said today 'he is a good kid'

and there is hope. There has been such a big improvement since we had the

diagnosis and started modifying how we handle certain things - I have no doubt

he can learn to cope and lead a good life. After all, I'm sure that's what all

parents want for their children! Even if it's a little different to others,

isn't that what makes life interesting?

Sorry, ended up being a waffle!!!

Hugs,

( ) Re: Introduction from new member

Thank goodness for the family *grin*

Great job on the diplomatic letter. I think that is the way to go.

And yes, I think adding a bit of sarcasm probably fit in well

Good job with the printouts! (I believe you got those from Pam's

site:)

See, you have done well!

Kudos' for sure!

You have an Aspie for a husband? I think mine fits that too, but he

only admits it on A RARE occasion.

Having 5 on the spectrum in our house (three kids, a mom (me) and

dad (undiagnosed)) makes life interesting!!!

(To say the least!)

Isn't it fun? (not sure if I am saying that with sarcasm or not.

hehehe

*smiles*

lisa b

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[Guest guest]

My husband has AS too--not officially diagnosed, but both my son's therapist and

psychiatrist have said, " You know has Asperger's too, don't you? " which is

close

enough to a diagnosis for me. Once I thought about it, it was obvious. (He's

positively

obsessed with Buffy the Vampire Slayer. It's been off the air for years now,

and he still

watches an episode every day, posts on a board with other devotees, makes screen

caps

and turns them into 'comic books.' etc. He's also pretty noninteractive

socially. He

normally takes a book with him when we go out to dinner and reads it while we're

waiting

for our food. He sees nothing unusual about this. He also reads in the

psychiatrist's

presence while we're (read: I am) talking to her and other odd things like

that.) It gives me

great hope for the future of my kids though. has a Ph.D., a wonderful job

that he

finds endlessly absorbing, a wife, five kids, a good home, and everything I hope

my

children will find in life. It tells me that AS doesn't have to mean that life

will be limited.

Sometimes it's just a matter of finding your niche and getting comfortable

there.

Sue

> >

> > Thanks !

> >

> > To cut a long story short - I got a letter from the Maths teacher

> (you know the standardised 'tick a box' ones that infuriate the heck

> out of me <grin>), did my block, got on my soap box (understanding

> family can be a god-send!), calmed down and wrote a diplomatic

> letter with a few bits of sarcasm etc. My boss loved that I attached

> printouts ( 10 in total) about Asperger's. Her favourite one

> was 'Strategies for Teachers on dealing with students with AS' or

> something like that!

> >

> > My husband isn't so subtle, he is AS too!

> >

> > Hugs,

> >

> >

> > =

>

[Guest guest]

WOW! What a note:) Thanks for sharing that all with me

Yes I would have been VERY upset with the Deputy Principal.

Sounds like he got what he deserved (I hope!)

Geesh, to stress you out even more, and suggest what sounds like a

school that is ABSOLUTELY NOT appropriate for your son,,,,, he's got

another thing coming!!!

*grin*

I am really happy to see you being able to 'accentuate the positive'

and see the great things in your son. , that is fantastic of

you and shows how far you have really come. I like your principal,

too. You are right, life has been much more interesting for me,

too!!!!!

So yes, it is what makes everything interesting, and worth living.

struggles are a part of life. It's how we survive through them that

makes us who we are!!!

*smiles*

lisa b

> Yep, life definately isn't boring! And you know what, the good

outweighs the bad and I wouldn't have it any other way! I have had

the fortune of learning so many different things because of the

special people in my life and I have learnt to think more about the

why something is happening too. It's opened up my eyes and my heart

and I am truly blessed. Despite the frustrations at times and the

guilt and the sorrow I feel for my son, as the principal said

today 'he is a good kid' and there is hope. There has been such a

big improvement since we had the diagnosis and started modifying how

we handle certain things - I have no doubt he can learn to cope and

lead a good life. After all, I'm sure that's what all parents want

for their children! Even if it's a little different to others, isn't

that what makes life interesting?

>

> Sorry, ended up being a waffle!!!

>

> Hugs,

>

>

[Guest guest]

You said it, Sue. No thoughts of limits, because everyone has them.

We have to find our Niche!!!!

Couldn't have said it better myself!!!!!!!!

*smiles* lisa

>

> My husband has AS too--not officially diagnosed, but both my son's

therapist and

> psychiatrist have said, " You know has Asperger's too, don't

you? " which is close

> enough to a diagnosis for me. Once I thought about it, it was

obvious. (He's positively

> obsessed with Buffy the Vampire Slayer. It's been off the air for

years now, and he still

> watches an episode every day, posts on a board with other

devotees, makes screen caps

> and turns them into 'comic books.' etc. He's also pretty

noninteractive socially. He

> normally takes a book with him when we go out to dinner and reads

it while we're waiting

> for our food. He sees nothing unusual about this. He also

reads in the psychiatrist's

> presence while we're (read: I am) talking to her and other odd

things like that.) It gives me

> great hope for the future of my kids though. has a Ph.D., a

wonderful job that he

> finds endlessly absorbing, a wife, five kids, a good home, and

everything I hope my

> children will find in life. It tells me that AS doesn't have to

mean that life will be limited.

> Sometimes it's just a matter of finding your niche and getting

comfortable there.

>

> Sue

> --- In , " advocateforaspies " <

[Guest guest]

My husband has lots of traits and I am NT. It was difficult to find

out that my son has AS but then when I also realized my husband was

AS (or almost!) that was more than I could handle and I started

getting very depressed. I met my husband when he was 21 so I

thought his ways were just immature. Now he is 33 and I know he is

not growing out of it (I am 6 1/2 years older, very social,

maternal).

My question is how are NT women doing in their marriage with an AS

husband? I find it hard to tell what he can't handle from what he

is trying to get out of. I guess I feel manipulated because my

husband protects his energy level, comfort, etc. Sometimes I think

he needs to and sometimes I feel taken advantage of. Also, there is

a certain self-centeredness or lack of considering my needs above

his own. I have been resentful and have long considered getting out

of the marriage but I really love him and don't want my son to ever

think he is not acceptable because I couldn't accept his father. We

have an NT marriage counselor that doesn't fully get my position.

Any thoughts would be greatly appreciated

Thanks,

Debbie

>

>

>

> >

> > My husband has AS too--not officially diagnosed, but both my

son's

> therapist and

> > psychiatrist have said, " You know has Asperger's too, don't

> you? " which is close

> > enough to a diagnosis for me. Once I thought about it, it was

> obvious. (He's positively

> > obsessed with Buffy the Vampire Slayer. It's been off the air

for

> years now, and he still

> > watches an episode every day, posts on a board with other

> devotees, makes screen caps

> > and turns them into 'comic books.' etc. He's also pretty

> noninteractive socially. He

> > normally takes a book with him when we go out to dinner and

reads

> it while we're waiting

> > for our food. He sees nothing unusual about this. He also

> reads in the psychiatrist's

> > presence while we're (read: I am) talking to her and other odd

> things like that.) It gives me

> > great hope for the future of my kids though. has a Ph.D.,

a

> wonderful job that he

> > finds endlessly absorbing, a wife, five kids, a good home, and

> everything I hope my

> > children will find in life. It tells me that AS doesn't have to

> mean that life will be limited.

> > Sometimes it's just a matter of finding your niche and getting

> comfortable there.

> >

> > Sue

> > --- In , " advocateforaspies " <

>

[Guest guest]

Sorry to hear it's come to that. As you know, had a similar

end to his senior year. His problem seemed to be massive anxiety. We

had him read lots at home and write papers. Eventually we got him

back to school a little bit. I'm glad you've found a program that

works for him.

Liz

On Sep 5, 2006, at 2:47 PM, Roxanna wrote:

> Welcome!

> For ignorant high school teachers I would try to keep educating

> them. Copy short articles or cut and paste parts of articles that

> pertain to problems your child is having. And keep having lots of

> meetings. If necessary, move him away from a teacher who doesn't

> want to learn (if possible.)

>

> My ds finally refused to go to high school anymore. He is taking

> his senior year via a tutor the school provides.

>

> Roxanna

> ( ) Introduction from new member

>

> Hi All,

>

> I have just joined up so I thought I would introduce myself. My name

> is and I live in Dubbo NSW. I have a 13 and a half year old son

> that was diagnosed with Asperger's in October last year. It has made

> sense of things we knew were different about him but couldn't really

> explain. We are continually learning new things and fighting for him.

> I have two other sons who are nearly 12 and 8 and a half.

>

> Anyhow, looking forward to learning more here and getting to talk to

> others who know the struggles.

>

> I haven't read the archives yet, but has anyone got any advice for

> dealing with ignorant high school teachers who are supposed to be

> looking after special needs kids but just don't get Asperger's?

>

> Regards,

>

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.405 / Virus Database: 268.11.7/437 - Release Date:

> 9/4/2006

>

>

[Guest guest]

I am still somewhat sad that he is missing his senior year. But that is based

on my experiences and what I wish he could enjoy as well. He is happy not to be

at school any longer. It reduced a huge amount of stress for him. And tutoring

is working out well. He actually is learning and doing great grade wise. I

think not being in a class with a bunch of kids and having the direct

instruction is what he needed to learn all along.

Still, there is little social going on. He likes that. But I do not. So it's

sorta good and sorta not good. lol.

Roxanna

( ) Introduction from new member

>

> Hi All,

>

> I have just joined up so I thought I would introduce myself. My name

> is and I live in Dubbo NSW. I have a 13 and a half year old son

> that was diagnosed with Asperger's in October last year. It has made

> sense of things we knew were different about him but couldn't really

> explain. We are continually learning new things and fighting for him.

> I have two other sons who are nearly 12 and 8 and a half.

>

> Anyhow, looking forward to learning more here and getting to talk to

> others who know the struggles.

>

> I haven't read the archives yet, but has anyone got any advice for

> dealing with ignorant high school teachers who are supposed to be

> looking after special needs kids but just don't get Asperger's?

>

> Regards,

>

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.405 / Virus Database: 268.11.7/437 - Release Date:

> 9/4/2006

>

>

[Guest guest]

Hi Gloria –

I am sure you are right. These

surgeons are caught in a nasty bind. They learn from people who went to

school more than ten years earlier. They develop an expertise and track

record with one procedure and device. Then someone develops a new approach

and device and they have to start all over from the beginning. My problem

is that the Michigan

surgeon said some apparently inappropriate negative things about

resurfacing.

Cheers,

From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of mthoover

Sent: Thursday, October 18, 2007

11:43 AM

Joint Replacement

Subject: RE:

Re: Introduction from new member

> fifty BioMets and my broad experience leads me to recommend X for

you. "

> Has

> anybody met such a renaissance surgeon?

Hi

My surgeon and the Institute comes pretty close to that. I asked about what

was available and he went down the list of the pros and cons of each one and

why they felt I can't remember what I have was the best overall. The same

way with the different procedures, I got the full run down.

It really comes down to many of the newer devices/procedures just do not

have a proven track record. Some hospitals will allow the cutting edge to

be used, many prefer a more traditional approach.

Gloria

[Guest guest]

My husband's doctor did not suggest the resurfacing for him because

of the detiortaion of his bone. He said there is a 20% chance the

bone could break, and in Tom's case a 50% chance. He has been doing

great. 3 weeks from surgery and he has been back to work for a week

and just about ready to throw the cane away.

>

> Hi Gloria -

>

>

>

> I am sure you are right. These surgeons are caught in a nasty

bind. They

> learn from people who went to school more than ten years earlier.

They

> develop an expertise and track record with one procedure and

device. Then

> someone develops a new approach and device and they have to start

all over

> from the beginning. My problem is that the Michigan surgeon said

some

> apparently inappropriate negative things about resurfacing.

>

>

>

> Cheers,

>

>

>

>

>

> _____

>

> From: Joint Replacement

> [mailto:Joint Replacement ] On Behalf Of

mthoover

> Sent: Thursday, October 18, 2007 11:43 AM

> Joint Replacement

> Subject: RE: Re: Introduction from new

member

>

>

>

>

> > fifty BioMets and my broad experience leads me to recommend X for

you. "

> > Has

> > anybody met such a renaissance surgeon?

> Hi

>

> My surgeon and the Institute comes pretty close to that. I asked

about what

> was available and he went down the list of the pros and cons of

each one and

>

> why they felt I can't remember what I have was the best overall.

The same

> way with the different procedures, I got the full run down.

>

> It really comes down to many of the newer devices/procedures just

do not

> have a proven track record. Some hospitals will allow the cutting

edge to

> be used, many prefer a more traditional approach.

>

> Gloria

>

[Guest guest]

, which OS did you consult in Michigan? There are a number of

them doing resurfacings since the FDA approval of the BHR. Not all

of them have a lot of background in it. The most experienced

resurfacing OS is at UofM Ann Arbor. I had mine done there in Feb.

Deb

>

> Hi Gloria -

>

>

>

> I am sure you are right. These surgeons are caught in a nasty

bind. They

> learn from people who went to school more than ten years earlier.

They

> develop an expertise and track record with one procedure and

device. Then

> someone develops a new approach and device and they have to start

all over

> from the beginning. My problem is that the Michigan surgeon said

some

> apparently inappropriate negative things about resurfacing.

>

>

>

> Cheers,

>

>

>

>

>

> _____

>

> From: Joint Replacement

> [mailto:Joint Replacement ] On Behalf Of

mthoover

> Sent: Thursday, October 18, 2007 11:43 AM

> Joint Replacement

> Subject: RE: Re: Introduction from new

member

>

>

>

>

> > fifty BioMets and my broad experience leads me to recommend X

for you. "

> > Has

> > anybody met such a renaissance surgeon?

> Hi

>

> My surgeon and the Institute comes pretty close to that. I asked

about what

> was available and he went down the list of the pros and cons of

each one and

>

> why they felt I can't remember what I have was the best overall.

The same

> way with the different procedures, I got the full run down.

>

> It really comes down to many of the newer devices/procedures just

do not

> have a proven track record. Some hospitals will allow the cutting

edge to

> be used, many prefer a more traditional approach.

>

> Gloria

>