Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 > } this is why when I'm reading books about autism/aspergers it was too confusing for me. nothing relates. then maybe after reading a whole book only one thing would relate. then I would think, maybe it's not autism/aspergers. then we would have days that I 'know' its correct. but, this site is better than all the books I've read. so many parents post so many different topics/things from their experience with their child that " I can relate " , and learn from. I guess that's why it's so hard for the school/teachers to understand our situation. They are taught from books, not a child with autism/aspergers living it 24/7 like us. being though each AS child is so very different. books help, but not as much as another parent that lives it, that can help. > > I hear you, Rose - when I was first concerned about Bam, I would read site > after site and just get more confused than ever. Sometimes it sounded > like him, but then there were things that were so different... the > first time I found a book that really did relate (The Parents Guide > to High Functioning Autism and Asperger Syndrome) it was such a relief! > Especially since all the autism sites were so gloom and doomy. > > It can be really hard to find the right information, especially when > you're not entirely sure what you're looking for. I honestly think > the Internet can hurt more than it helps in this stage, though it > is tremendously helpful once you know what you're actually dealing with. > But for diagnosis, I really think you need professional help. > > Willa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Rose wrote "Not all O.T. specialize in sensory. " That is what I found too. I would look to see if you can find a "pediatric" occupational therapy center. There is one in the next town that the school system sent my daughter to but they really weren't very good. Instead, I chose a place that was a 45 mile drive but worth it! I was able to tell that the first place was below "my expectations" because they graduated my daughter and she still had a long way to go in my book! The other place was so thorough and did extensive testing. Every session I would get detailed info about what she did etc. They were just so professional by comparison. Good luck!! Oh, my daughter did 3 years of OT starting off with 3 x per week then 2 x then once and it made tremendous difference in her functioning and ability to tolerate life in general. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Hi Willa, that is so true. When I was so new to this, it was so hard for me to understand. frustrating when some books didn't relate. gets me thinking more. I'm not the type of person that's afraid to ask questions. and boy did I. My first CSE meeting, I was suppose to speak and mention my concerns. I didn't know of any because I didn't understand aspergers myself. (thank God for advocates). speaking to parents that went through this and a few steps ahead of me, really educated me lots. I'm able to speak up for my son's needs now and know what to ask for, but boy oh boy, it was lots of research, doctors, therapy's, support groups, advocates, resources. I learned, but then he gets older and new stuff happens. back to research. but it's alot easier once I understood something about aspergers. And still learning. I feel the Internet can hurt when parents are very new to this and start mixing vitamins, herbs, and other natural remedies from the health stores. or removing lead or Mercury from their children. (on their own). Yes, once you know what your looking for, its helpful. Willa Hunt <willaful@...> wrote: On Dec 15, 9:10pm, Rose wrote:} this is why when I'm reading books about autism/aspergers it was too confusing for me. nothing relates. then maybe after reading a whole book only one thing would relate. then I would think, maybe it's not autism/aspergers. then we would have days that I 'know' its correct. but, this site is better than all the books I've read. so many parents post so many different topics/things from their experience with their child that "I can relate", and learn from. I guess that's why it's so hard for the school/teachers to understand our situation. They are taught from books, not a child with autism/aspergers living it 24/7 like us. being though each AS child is so very different. books help, but not as much as another parent that lives it, that can help. I hear you, Rose - when I was first concerned about Bam, I would read siteafter site and just get more confused than ever. Sometimes it soundedlike him, but then there were things that were so different... thefirst time I found a book that really did relate (The Parents Guideto High Functioning Autism and Asperger Syndrome) it was such a relief!Especially since all the autism sites were so gloom and doomy.It can be really hard to find the right information, especially whenyou're not entirely sure what you're looking for. I honestly thinkthe Internet can hurt more than it helps in this stage, though itis tremendously helpful once you know what you're actually dealing with.But for diagnosis, I really think you need professional help.Willa Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 LOL or guide your child to become an orthodontist or dentist. and/or Robin Lemke <jrisjs@...> wrote: Maybe gum will be the new "med" of the future. I better get some stock in Hubba Bubba right now. RobinRose <beachbodytan2002 > wrote: Hello Robin, that is something that you posted this about the gum. My therapist said to give my son gum or something to chew on because it calms him down. Also, if he is over stimulated, gum works for that too. And for some reason, it works. when he is chewing gum, he seems more focused. AMAZING???. our therapist is trying to teach him to recognize when he is anxious, hyper, overstimulated, for 'him' to ask for gum to calm down. *great idea*... and/or Robin Lemke <jrisjs > wrote: My son is allowed to chew gum. It's obvious when you give a kid gum cause the "like it" and when you give a kid gum, cause it calms them.Robin Neylon <Lindee37verizon (DOT) net> wrote: From: debramelamed <melamedjcomcast (DOT) net>Date: 2007/04/17 Tue PM 10:17:23 CDT Subject: Re: ( ) bitting or hitting when happy or excitedgum chewing is being used more and more even in schools.He sounds like he is in high arousal mode - overstimulated and seeking oral sensory input. If he had a drink in his hand with a straw in it that he could suck on, perhaps with a thick milkshake in it he could suck and chew instead of biting. Read about SI and get some ideas. Chewing gum is another one. Some things are alerting and some are calming. Try some things at home and see what works, then you can let the school know.Good luck,Debbie"I must have walked ten million milesMust have walked ten million milesWore some shoes that weren't my styleFell into the rank and fileSo just say I was here a whileA fool in search of your sweet smileTen million miles"~Patty ~ Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 LOL I guess each OT person is different as well. I'm glad you got one that worked out really well for you. <mkisses@...> wrote: We did OT for sensory and had great results. They trained me to carry on at home and it's worked out really well. > You definitley need to get an eval from an OT versed in sensory > integration. It will help and things will get better.> > All my best,> > Debbie> > > > > > > ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Autos.> Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Yes!! Gum chewing is a great thing for our kids!!! I had my son "on gum" for quite a while LOL And.. Its better than cigarettes LOL For fantastic AUTISM awareness gear go here! http://www.cafepress.com/autismawarenes Got pets? Go here for great items! http://www.cafepress.com/petloversrus and Ribbons of Hope.. breast cancer,support our troops etc http://www.cafepress.com/ribbonsofhope GO Veggie!!! Great vegitarian gear here! http://www.cafepress.com/vegetarianrus For Fun attitude gear look here! http://www.cafepress.com/stronggear -- Re: Re: ( ) bitting or hitting when happy or excited My son is allowed to chew gum. It's obvious when you give a kid gum cause the "like it" and when you give a kid gum, cause it calms them.Robin Neylon <Lindee37verizon (DOT) net> wrote: From: debramelamed <melamedjcomcast (DOT) net>Date: 2007/04/17 Tue PM 10:17:23 CDT Subject: Re: ( ) bitting or hitting when happy or excitedgum chewing is being used more and more even in schools.He sounds like he is in high arousal mode - overstimulated and seeking oral sensory input. If he had a drink in his hand with a straw in it that he could suck on, perhaps with a thick milkshake in it he could suck and chew instead of biting. Read about SI and get some ideas. Chewing gum is another one. Some things are alerting and some are calming. Try some things at home and see what works, then you can let the school kno w.Good luck,Debbie"I must have walked ten million milesMust have walked ten million milesWore some shoes that weren't my styleFell into the rank and fileSo just say I was here a whileA fool in search of your sweet smileTen million miles"~Patty ~ Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Hi Chiara! I'm new here also but just had to respond to your post! I adopted my daughter from China when she was 5. She also had a very difficult time learning English and I remember at one point she was determined that I was going to learn Chinese to speak with her rather than she learn English! She was so cute with hands on hips telling me off in Chinese!! I've also been the only one to just know in my gut that things were "off". I had alot of various testing done on her over the past 8 years but I finally got the Asperger's last week and it all makes so much sense to me! Anyway, after 6 months my daughter lost all her Chinese and didn't have English which she had a hard time learning so there was a period of about 2 years where she was extremely frustrated by being unable to communicate. Now sometimes my ears "hurt" from all her talking!! LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Rose wrote: "or removing lead or Mercury from their children" Does this mean that its possible for mercury or lead to cause asperger's? My daughter had mercury and/or lead poisoning when she was a small child in the Chinese orphanage. The doctors have determined that with the nutrition, etc that I provided, she has totally overcome the effects of that. But when I read what you wrote it makes me wonder if it could have caused her asperger's. She also has dyslexia and a host of other LD's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 When my son goes to the learning center (a classroom near his real classroom where the kids that have a hard time can go to do their tests or homework or whatever they need help with) they give them gum to chew on. Neylon <Lindee37@...> wrote: From: debramelamed <melamedjcomcast (DOT) net>Date: 2007/04/17 Tue PM 10:17:23 CDT Subject: Re: ( ) bitting or hitting when happy or excitedgum chewing is being used more and more even in schools.He sounds like he is in high arousal mode - overstimulated and seeking oral sensory input. If he had a drink in his hand with a straw in it that he could suck on, perhaps with a thick milkshake in it he could suck and chew instead of biting. Read about SI and get some ideas. Chewing gum is another one. Some things are alerting and some are calming. Try some things at home and see what works, then you can let the school know.Good luck,Debbie"I must have walked ten million milesMust have walked ten million milesWore some shoes that weren't my styleFell into the rank and fileSo just say I was here a whileA fool in search of your sweet smileTen million miles"~Patty ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 They should allow any child to chew gum especially when taking test. that little bit of sugar will perk them up again. When I'm driving long distance and driving into the night. chewing a piece of gum keeps me alert. I've also noticed when my AS son is chewing a piece of gum in the car. He is calmer and not focused on annoying his sister. Essenfeld <lessen@...> wrote: When my son goes to the learning center (a classroom near his real classroom where the kids that have a hard time can go to do their tests or homework or whatever they need help with) they give them gum to chew on. Neylon <Lindee37verizon (DOT) net> wrote: From: debramelamed <melamedjcomcast (DOT) net>Date: 2007/04/17 Tue PM 10:17:23 CDT Subject: Re: ( ) bitting or hitting when happy or excitedgum chewing is being used more and more even in schools.He sounds like he is in high arousal mode - overstimulated and seeking oral sensory input. If he had a drink in his hand with a straw in it that he could suck on, perhaps with a thick milkshake in it he could suck and chew instead of biting. Read about SI and get some ideas. Chewing gum is another one. Some things are alerting and some are calming. Try some things at home and see what works, then you can let the school know.Good luck,Debbie"I must have walked ten million milesMust have walked ten million milesWore some shoes that weren't my styleFell into the rank and fileSo just say I was here a whileA fool in search of your sweet smileTen million miles"~Patty ~ Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 To mom questioning dx of son, Our son(just turned 9) has again begun biting when upset/angry. We didn't get Asperger's dx until age 7, since finally found the right diagnostic psychologist who is a specialist in Autism/AS. But it was actually a relief to know what he had, as we knew something was wrong, and were pretty sure, but also couldn't get school services w/o dx. He also diangosed ADHD. My son sometimes gets aggressive when asked to get off tv/video--it's one of our worst issues--a very hard break for him, esp if he's been on more than say 30-45 min. has no friends his age (likes younger kids), but sometimes can relate with one child his age at at time for a little while; groups are very tough--lately he's trying to avoid them. the GOOD NEWS IS...we have LOTS OF HOPE for a FULL RECOVERY. That's hard to " feel " some days, but we know it will happen. We are doing 2 therapies now, after going through quite a few, and seeing some better results this year than any prior. After 2 treatments last week, he was awesomely better. But we're having some trouble this week, but hope it's temporary. Also finding this -- we moms, dads, have to find time to take care of ourselves, and get spiritual/mental uplift. I pray for other AS kids and parents. It's a tough place to be, but there is HOPE. > > I am almost in tears thinking that there really is a reason that my son > is the way he is. I don't know if this is what he has and won't know > till I get him tested but it is a start. I first thought he had ADD > and I'm still not sure that he doesn't seems AS is very similar to > ADD. The thing about AS that I'm not sure about is the major anger > issues. My son does have some but he doesn't go around breaking > furniture or anything like that. I do know that when he used to brake > his toys it was because he wanted to see what was inside. Once he did > this he didn't have an intrest in that toy again. He now is into Video > games which I'm not sure I like because he does get frustrated > sometimes and he is so intent on the game. He has lashed out at me and > hit me because I needed to use the computer and he has thrown a paddle > at me and hit me in the head but that was the only time that he has > ever don't something like that. I'm just not sure. Guess I do need to > do some more research. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 If you google 'mercury autism' it will tell you A LOT!!!! It's amazing to see the incredible connection!!!! Terrible. Robin <mom2mia@...> wrote: Rose wrote: "or removing lead or Mercury from their children" Does this mean that its possible for mercury or lead to cause asperger's? My daughter had mercury and/or lead poisoning when she was a small child in the Chinese orphanage. The doctors have determined that with the nutrition, etc that I provided, she has totally overcome the effects of that. But when I read what you wrote it makes me wonder if it could have caused her asperger's. She also has dyslexia and a host of other LD's. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
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