Re: I met a group of autistic/asperger kids today

[Guest guest]

My son is 9 and looks very NT also. I found this camp once that I decided not to

take him to because although it said it was for Aspies I also saw that they have

kids with Down Syndrome there too. Not that there's anything wrong with Down

Syndrome but my son was newly diagnosed at that point and did not want to be

seen as " different " . He doesn't look different at all from NT's so I didn't want

to put him in a camp where he might feel like he's more different from NT's than

he really is.

mickey514cp <mickey514cp@...> wrote: Hello,

I have never met a group like this before. So far, I only know of

my daughter, 13, with aspergers. But there was a group trip

organized for auties/aspies ranging in age from 12 to 18. I saw the

group picking apples and making apple cider.

All of the teenagers were visibly delayed in some way. (their

actions, their speech, etc.) Nobody had the invisible disease, as

some call asperger syndrome. My daughter was not with the group,

but if she had been, she would have been very different from the

rest of the kids. She looks and acts normal. My daughter looks

like an NT kid. She even fits in with NT kids (almost) and she

actually tries to fit in with them socially. Sometimes, she is very

anxious when she is around other teens. Other times, she is very

normal looking.

My question: Does anyone here have a very normal looking aspie son

or daughter? One who looks like an NT? And acts like an NT?

Yet, still has this " invisible " disease?

Mickey

w/ daughter, 13, aspie, SID, APD

[Guest guest]

In a message dated 9/17/2006 8:41:11 PM Eastern Daylight Time,

mickey514cp@... writes:

My question: Does anyone here have a very normal looking aspie son

or daughter? One who looks like an NT? And acts like an NT?

Yet, still has this " invisible " disease?

I'm willing to bet you are going to get alot of " YES " responses from this

group. I can definitely answer that questions " YES " . Pam

[Guest guest]

In a message dated 9/18/2006 7:13:05 A.M. Eastern Standard Time,

ppanda65@... writes:

I'm willing to bet you are going to get alot of " YES " responses from this

group. I can definitely answer that questions " YES " . Pam

YES and YES, my son looks and acts very normal but there are those few

clueless times that I say ok that is why he is AS.

[Guest guest]

My son looks very normal until you see his interaction in a social

setting. I can also see differences on the playground as he does

not attack the equipment like the other boys.

Debbie

>

>

> In a message dated 9/17/2006 8:41:11 PM Eastern Daylight Time,

> mickey514cp@... writes:

>

> My question: Does anyone here have a very normal looking aspie

son

> or daughter? One who looks like an NT? And acts like an NT?

> Yet, still has this " invisible " disease?

>

>

>

> I'm willing to bet you are going to get alot of " YES " responses

from this

> group. I can definitely answer that questions " YES " . Pam

>

>

>

[Guest guest]

Hello.

Here is my little input.

My 11 year old is definitely a 'hidden' Aspie. He tends to be the

social butterfly, but if my 'knowing' eyes are watching, I can see

how he does well, AND I can see how he is just different. He is

great at fitting in most of the time, however. Especially if the

kids are younger than him. His age, it just depends on the kids.

As far as myself, I was the type that did have friends, and I did

socialize, but they were in my neighbor hood. I didn't have any

friends in elementary school. Junior High, however, I made a friend,

and started to learn the social rules. (well, a little)

Us girls have it a lot easier, (Some of us, anyways, and in my

experiance) at fitting in. We just understand things easier.

As far as people telling you that A.S. is a disease, unless they are

biologist trying to 'cure' it, don't let them tell you that.

Asperger Syndrome is not a disease. Of course, when it comes to my

grandmother, at her ripe old age of 87 I have given up. She says it

is a disease, and keeps saying it. My kids get it and laugh it off.

But we all know, here, that it is not a disease.

*grin*

OH, you are so right! IT is a 'hidden' disorder. I will be talking

about that Next month to a group of people, and that is part of my

speech!

You can see a broken foot (Mine, for example) But unless you know

what you are looking for, you cannot see the " Aspie " (IN me!!) and

many others!

*smiles*

Hope that helps a little!!

LIsa B

>

> Hello,

> I have never met a group like this before. So far, I only know

of

> my daughter, 13, with aspergers. But there was a group trip

> organized for auties/aspies ranging in age from 12 to 18. I saw

the

> group picking apples and making apple cider.

>

> All of the teenagers were visibly delayed in some way. (their

> actions, their speech, etc.) Nobody had the invisible disease,

as

> some call asperger syndrome. My daughter was not with the group,

> but if she had been, she would have been very different from the

> rest of the kids. She looks and acts normal. My daughter looks

> like an NT kid. She even fits in with NT kids (almost) and she

> actually tries to fit in with them socially. Sometimes, she is

very

> anxious when she is around other teens. Other times, she is very

> normal looking.

>

> My question: Does anyone here have a very normal looking aspie

son

> or daughter? One who looks like an NT? And acts like an NT?

> Yet, still has this " invisible " disease?

>

> Mickey

> w/ daughter, 13, aspie, SID, APD

>

[Guest guest]

Yes, I was told by a teacher that there is nothing wrong with my son and she

inferred that I had Munchasen by proxy. This was a Early Childhood teacher. My

son had great teachers after that who could see his difficulties, but that was

one of the most difficult moments for me as a mother of a child with PDD-NOS.

In fact, it still bothers me.

Nora

ppanda65@... wrote:

In a message dated 9/17/2006 8:41:11 PM Eastern Daylight Time,

mickey514cp@... writes:

My question: Does anyone here have a very normal looking aspie son

or daughter? One who looks like an NT? And acts like an NT?

Yet, still has this " invisible " disease?

I'm willing to bet you are going to get alot of " YES " responses from this

group. I can definitely answer that questions " YES " . Pam

[Guest guest]

Yes, I was told by a teacher that there is nothing wrong with my son and she

inferred that I had Munchasen by proxy. This was a Early Childhood teacher. My

son had great teachers after that who could see his difficulties, but that was

one of the most difficult moments for me as a mother of a child with PDD-NOS.

In fact, it still bothers me.

Nora

ppanda65@... wrote:

In a message dated 9/17/2006 8:41:11 PM Eastern Daylight Time,

mickey514cp@... writes:

My question: Does anyone here have a very normal looking aspie son

or daughter? One who looks like an NT? And acts like an NT?

Yet, still has this " invisible " disease?

I'm willing to bet you are going to get alot of " YES " responses from this

group. I can definitely answer that questions " YES " . Pam

[Guest guest]

>YES!! everyone that sees or gets a chance to talk to my 23 year old

dd say they can't believe there's actually anything wrong with her!!

Folks at church, new doctors, at the bowling alley--but they don't have

to deal with her at home.

Norma

[Guest guest]

My son appears NT to most everyone. That is why we had such a problem when

he was little. Before his dx we had friends that thought we spoiled him

because he would have tantrums, they didn't like us to bring him over. Once

we had a dx and could explain they were very apologetic. That is also why I

think they wanted to call him ADD at first. He can communicate, but if he

melts down, even at 13 he can't talk. His new teacher is good at figuring

it out and she has a feelings chart that he can point to so he can tell them

what emotion he is experiencing. He weight is heavier now, due to some of

the meds, but he can't function w/o them. If someone is around him enough,

and knows what to listen for, you can tell he is Aspie, but most would not

know at first meeting. He is smart, but literal

Kathy K

toozie@...

_____

From:

[mailto: ] On Behalf Of mickey514cp

Sent: Sunday, September 17, 2006 6:33 PM

Subject: ( ) I met a group of autistic/asperger kids today

Hello,

I have never met a group like this before. So far, I only know of

my daughter, 13, with aspergers. But there was a group trip

organized for auties/aspies ranging in age from 12 to 18. I saw the

group picking apples and making apple cider.

All of the teenagers were visibly delayed in some way. (their

actions, their speech, etc.) Nobody had the invisible disease, as

some call asperger syndrome. My daughter was not with the group,

but if she had been, she would have been very different from the

rest of the kids. She looks and acts normal. My daughter looks

like an NT kid. She even fits in with NT kids (almost) and she

actually tries to fit in with them socially. Sometimes, she is very

anxious when she is around other teens. Other times, she is very

normal looking.

My question: Does anyone here have a very normal looking aspie son

or daughter? One who looks like an NT? And acts like an NT?

Yet, still has this " invisible " disease?

Mickey

w/ daughter, 13, aspie, SID, APD

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[Guest guest]

My boys look normal too! As a matter of fact they were so normal looking that we

didn't get a diagnosis until they were 16. We just thought they were really shy

and being twins didn't need friends, they had each other. Even people at our

church that see them all the time don't know they have 'problems' until they ask

where one of them is and I have to tell them that being at school all week is so

overwhelming that they can't come to church some days...

Toni and Wa-hya http://www.dogster.com/?370577

_____

From:

[mailto: ] On Behalf Of mickey514cp

Sent: Sunday, September 17, 2006 6:33 PM

Subject: ( ) I met a group of autistic/asperger kids today

Hello,

I have never met a group like this before. So far, I only know of

my daughter, 13, with aspergers. But there was a group trip

organized for auties/aspies ranging in age from 12 to 18. I saw the

group picking apples and making apple cider.

All of the teenagers were visibly delayed in some way. (their

actions, their speech, etc.) Nobody had the invisible disease, as

some call asperger syndrome. My daughter was not with the group,

but if she had been, she would have been very different from the

rest of the kids. She looks and acts normal. My daughter looks

like an NT kid. She even fits in with NT kids (almost) and she

actually tries to fit in with them socially. Sometimes, she is very

anxious when she is around other teens. Other times, she is very

normal looking.

My question: Does anyone here have a very normal looking aspie son

or daughter? One who looks like an NT? And acts like an NT?

Yet, still has this " invisible " disease?

Mickey

w/ daughter, 13, aspie, SID, APD

_____

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It has removed 15318 spam emails to date.

Paying users do not have this message in their emails.

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[Guest guest]

,

Did you ever get depressed because you didnt fit in or did you find

a niche or something you were good at that helped you?

Debbie

> >

> > Hello,

> > I have never met a group like this before. So far, I only know

> of

> > my daughter, 13, with aspergers. But there was a group trip

> > organized for auties/aspies ranging in age from 12 to 18. I saw

> the

> > group picking apples and making apple cider.

> >

> > All of the teenagers were visibly delayed in some way. (their

> > actions, their speech, etc.) Nobody had the invisible disease,

> as

> > some call asperger syndrome. My daughter was not with the

group,

> > but if she had been, she would have been very different from the

> > rest of the kids. She looks and acts normal. My daughter

looks

> > like an NT kid. She even fits in with NT kids (almost) and she

> > actually tries to fit in with them socially. Sometimes, she is

> very

> > anxious when she is around other teens. Other times, she is

very

> > normal looking.

> >

> > My question: Does anyone here have a very normal looking aspie

> son

> > or daughter? One who looks like an NT? And acts like an NT?

> > Yet, still has this " invisible " disease?

> >

> > Mickey

> > w/ daughter, 13, aspie, SID, APD

> >

>

[Guest guest]

I can understand exactly what you are saying. My son has struggled

socially since he was a toddler. BUT, he has an extremely high IQ

and was never diagnosed with Aspergers until age 14. He is totally

mainstreamed and to look at him or talk to him, you would not know

he has any issues at all. UNTIL he gets around his peers, or in a

situation where there is no structure or is loud. Then the

behaviours start. He cannot read social cues, and doesn't know

enough to stop when he gets excited. Unfortunately this makes him

an outcast among his peers and his teachers always tell me that he

is too smart to behave this way. I can't find a social skills group

that he fits into. He is in band, and actually joined the golf

team, but he is always on the outside looking in when it comes to

being a part of the group. He has a homecoming dance coming up,

(his first one) and wants to ask this girl to the dance, but is too

nervous to ask because he is afraid of rejection. His best friend

since Kindergarten lives next door, but he pretends he doesn't know

my son in school and never includes him socially anymore. If only

there was a place where all our kids could meet and become friends!!!

Sally

>

> Hello,

> I have never met a group like this before. So far, I only know

of

> my daughter, 13, with aspergers. But there was a group trip

> organized for auties/aspies ranging in age from 12 to 18. I saw

the

> group picking apples and making apple cider.

>

> All of the teenagers were visibly delayed in some way. (their

> actions, their speech, etc.) Nobody had the invisible disease,

as

> some call asperger syndrome. My daughter was not with the group,

> but if she had been, she would have been very different from the

> rest of the kids. She looks and acts normal. My daughter looks

> like an NT kid. She even fits in with NT kids (almost) and she

> actually tries to fit in with them socially. Sometimes, she is

very

> anxious when she is around other teens. Other times, she is very

> normal looking.

>

> My question: Does anyone here have a very normal looking aspie

son

> or daughter? One who looks like an NT? And acts like an NT?

> Yet, still has this " invisible " disease?

>

> Mickey

> w/ daughter, 13, aspie, SID, APD

>

[Guest guest]

Ok. I think I'm losing it. What is a NT kid? My son is extremely handsome

(if I do say so). The 13 year old girls are always flirting with him and he

just doesn't get it. Normal looks, but fairly expressionless.

Mom of Ashby, 13, as

[Guest guest]

My son makes the motions that are strange too. He also does not socialize

or " fit in " easily. He just calls himself a geek and a nerd. But he

certainly looks normal.

Mom of Ashby

[Guest guest]

My son is extremely handsome too! He has huge blue eyes and he is

very tall and thin. He also has a very sophisticated look but he is

only 6. I would like to know if you think his looks have helped him

as far as people accepting him more or do the guys get jealous

because the girls flirt with him? Girls already flirt with my son

but he seems to love the girls too!

Thanks,

Debbie

>

> Neurotypical (normal?, if there is a normal)

> Toni and Wa-hya http://www.dogster.com/?370577

> ( ) Re: I met a group of

autistic/asperger kids today

>

>

> Ok. I think I'm losing it. What is a NT kid? My son is extremely

handsome

> (if I do say so). The 13 year old girls are always flirting with

him and he

> just doesn't get it. Normal looks, but fairly expressionless.

>

>

>

> Mom of Ashby, 13, as

>

>

[Guest guest]

My son Trevor is very NT as well. He's a handsome kid, very

likeable, and friendly and has learned how to blend more as he's

gotten older.

To the point, in fact, that I had to recently sit family members

down and point out the situations and reactions that arise that

really show that he's NOT NT. For people who aren't around our

children day in and day out, who don't know them the way we do,

things aren't as apparent. Until I provided basic literature on

Asperger's to my aunt, she refused to believe that Trev was Aspie,

and instead felt that he was just high strung and a loner.

Nikki

>

> My son appears NT to most everyone. That is why we had such a

problem when

> he was little. Before his dx we had friends that thought we

spoiled him

> because he would have tantrums, they didn't like us to bring him

over. Once

> we had a dx and could explain they were very apologetic. That is

also why I

> think they wanted to call him ADD at first. He can communicate,

but if he

> melts down, even at 13 he can't talk. His new teacher is good at

figuring

> it out and she has a feelings chart that he can point to so he can

tell them

> what emotion he is experiencing. He weight is heavier now, due

to some of

> the meds, but he can't function w/o them. If someone is around

him enough,

> and knows what to listen for, you can tell he is Aspie, but most

would not

> know at first meeting. He is smart, but literal

>

>

>

>

>

> Kathy K

> toozie@...

>

> _____

>

> From:

> [mailto: ] On Behalf Of mickey514cp

> Sent: Sunday, September 17, 2006 6:33 PM

>

> Subject: ( ) I met a group of autistic/asperger

kids today

>

>

>

> Hello,

> I have never met a group like this before. So far, I only know of

> my daughter, 13, with aspergers. But there was a group trip

> organized for auties/aspies ranging in age from 12 to 18. I saw

the

> group picking apples and making apple cider.

>

> All of the teenagers were visibly delayed in some way. (their

> actions, their speech, etc.) Nobody had the invisible disease, as

> some call asperger syndrome. My daughter was not with the group,

> but if she had been, she would have been very different from the

> rest of the kids. She looks and acts normal. My daughter looks

> like an NT kid. She even fits in with NT kids (almost) and she

> actually tries to fit in with them socially. Sometimes, she is

very

> anxious when she is around other teens. Other times, she is very

> normal looking.

>

> My question: Does anyone here have a very normal looking aspie son

> or daughter? One who looks like an NT? And acts like an NT?

> Yet, still has this " invisible " disease?

>

> Mickey

> w/ daughter, 13, aspie, SID, APD

>

>

>

>

> _____

>

> I am using the free version of SPAMfighter for private users.

> It has removed 15318 spam emails to date.

> Paying users do not have this message in their emails.

> Try SPAMfighter <http://www.spamfighter.com/go.asp?t=249> for

free now!

>

>

>

>

[Guest guest]

Nikki, What are his aspie traits? My daughter is high strung and a

loner, also. Mickey

>

> My son Trevor is very NT as well. He's a handsome kid, very

> likeable, and friendly and has learned how to blend more as he's

> gotten older.

> To the point, in fact, that I had to recently sit family members

> down and point out the situations and reactions that arise that

> really show that he's NOT NT. For people who aren't around our

> children day in and day out, who don't know them the way we do,

> things aren't as apparent. Until I provided basic literature on

> Asperger's to my aunt, she refused to believe that Trev was Aspie,

> and instead felt that he was just high strung and a loner.

> Nikki

>

[Guest guest]

, my daughter's face is very expressionless, too. Do you think

that's an aspie sign? Mickey

<<but fairly expressionless. >>

[Guest guest]

I think the looks have helped. One thing-when he drifts off in a class,

there is always a female ready to " help " him get back on track. LOL He's

5 " 10 " , 165 pounds, size 13 shoe, hazel eyes and sandy blonde hair.

Mom of Ashby, 13

[Guest guest]

Mickey,

I think it must be. Also, the teacher's always tell me they can't tell if he

is even paying attention or understanding until he has to take a test. He

will not ask questions and yet he doesn't look confused when he is-he also

doesn't look like he's paying any attention when he is on top of it.

[Guest guest]

Mickey,

Trev has changed alot as he's gotten older. As a baby and toddler,

he just plain didn't transition without a huge amount of fuss and

tantrums. He was a rocker, didn't make eye contact at all and had

delayed development. Through his preschool years, that changed a bit-

--he rocked still, made better eye contact although still limited,

transitioned better but began to act out by biting people (he got

kicked out of one preschool because of it) and at that time really

began to prefer the company of adults over other kids.

Now, he transitions pretty well, makes eye contact maybe half the

time and has learned to socialize a bit with kids his own age. He

always has one person he gets along with well enough that he feels

they're his friend (all in perception--I classify them more as a

school acquaintance). He very much prefers adults over kids, still

rocks but typically it's when music is playing or when he's really

tired or upset by something. I've watched him at school and on the

playground and he prefers to be on the outskirts of EVERYTHING. He

very rarely is in the middle of an activity or situation.

He tends to get his feelings hurt very easily, can change moods like

someone flipping a switch. He's overly sensitive to any sort of

criticism but can rebound fairly quickly.

There are other things and behaviors that I say are " Trevor-centric "

because they're just things I've learned to adjust to and deal

with...but I think that gives a good overall picture as to why my

aunt has the opinion that he's high-strung and a loner.

Hope that helps!

Nikki

> >

> > My son Trevor is very NT as well. He's a handsome kid, very

> > likeable, and friendly and has learned how to blend more as he's

> > gotten older.

> > To the point, in fact, that I had to recently sit family members

> > down and point out the situations and reactions that arise that

> > really show that he's NOT NT. For people who aren't around our

> > children day in and day out, who don't know them the way we do,

> > things aren't as apparent. Until I provided basic literature on

> > Asperger's to my aunt, she refused to believe that Trev was

Aspie,

> > and instead felt that he was just high strung and a loner.

> > Nikki

> >

>