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Thanks for the contact info . And for continuing to be there, on behalf of all those with JRA.

Aloha, Georgina

----- Original Message -----

From: A Morse

I attended a Advocacy conference Wed. 22th in Lansing MI.which was followed up by a Legislative reception. Unfortunately the housewent in session so we didn't get to speak with but a couple of Reps. Butt all in all it was a good time, a rep from a drug company spoke atthe conference, Pifzer! And Michele, no need to post bail! I behaved my self!! Anyone on this group, who live in MI. contact Doris Sims at the ArthritisFoundation. She looking for voice's. Tell your or your childs' story about living with arthritis! Rusty Limbs

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  • 3 years later...
Guest guest

,

Thank you so much for responding. I know I can always get great advice and

support here! I am from Missouri. Lori

Yes, an advocate is wonderful to have if even just to be able to call this

person to ask advise on how to handle sistuations that arise at school. I have

learned a lot from her and don't need her quite as much as I used to. She also

goes to IEP meetings with me if I need her. What state are you in?

(mom to triplet daughters - one of which is an aspie)

lozzy3us wrote: I took my 6 yr old aspie to the Dr. yesterday and I was telling

her

some of the things that was happening at school. She suggested that he

needs a advocate. We have a liazon(sp). Has anyone ever had to have a

advocate? Lori

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Thanks so much!!!

Misty Gillispie

mlgillispie1980@...

Re: ( ) advocate

Contact this person to ask about obtaining an advocate.

Carol Blades, Director

Special Education Action Committee

P.O. Box 161274

Mobile, AL 36616-2274

(334) 478-1208 (800) 222-7322

Email seacmob1juno.com

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Hi Lori,

We had an advocate (an attorney, actually) help us get services for my

son in the first place. She did a great job. Once we were in the

special ed system, the city has been great. They just didn't want to

give him services in the first place. An advocate can be a great help.

Our advocate knew who to send us to - for an independent educational

evaluation, and all the pieces of that, such as speech evaluation, OT,

etc. She got all that reimbursed, as well as getting six months of

private school reimbursed. Go for it!

Liz

On Mar 21, 2006, at 11:17 AM, lozzy3us wrote:

> I took my 6 yr old aspie to the Dr. yesterday and I was telling her

> some of the things that was happening at school. She suggested that he

> needs a advocate. We have a liazon(sp). Has anyone ever had to have a

> advocate? Lori

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Re: ( ) Re: advocate

So, when you are bringing an advocate to a case conference,

do you tell the school in advance? Do you introduce them

as " my advocate " ? It just sounds weird, although I am getting

less and less concerned about what any of my requests sound like.

Jackie

I would try and tell them in advance so enough chairs are there. You can

introduce the person as anything you like - a friend, someone to take notes

for you, my brother from Spain or the head advocate from " Don't screw with

my Kid, Inc. " lol. Personally, I think it sounds nice to say, " My advocate

will be joining us. " It makes them wonder if this person is going to know

anything (hopefully so!) and might keep them on their good behavior. :-)

Roxanna

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or the head advocate from " Don't screw with

> my Kid, Inc. "

LOL so hard I scared the bajeezus out of my son. :-)

My case conference is in a month and I have my word file open on my

desktop so when I read all your posts, I keep adding things in the

right categories.

Jackie

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Guest guest

We are having difficulty finding an advocate. We live between Athens and

Washington in GA. Does anyone know one in this area we may conact??

Lynn

Re: advocate

Yes, an advocate is wonderful to have if even

just to be able to call this person to ask advise

on how to handle sistuations that arise at

school. I have learned a lot from her and don't need

her quite as much as I used to. She also goes to

IEP meetings with me if I need her. What state

are you in?

---------------------------------

New Messenger with Voice. Call regular phones from your PC for low, low

rates.

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Either of these agencies should be able to steer you in the right direction

as far as getting an advocate. Pam :)

Shepard, Project Director

Parents Educating Parents & Professionals

For All Children (PEPPAC)

8318 Durelee Lane, Suite 101

ville, GA 30134

(770) 577-7771

Spraetz, Executive Director

Parent to Parent of Georgia, INC.

2900 Woodcock Boulevard, Suite 240

Atlanta, GA 30341

(770) 451-5484

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  • 1 year later...
  • 4 months later...

We found a free advocate through Coalition

For Independent Living. She is a lawyer, but does not practice law. Her “take”

is that the more a child is included with typical children in school the better

the chance of living independently as an adult. Don’t overlook local

autism groups, they may have advocates available, ours are known as CARD.

ette

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of bwalke00

Sent: Thursday, August 23, 2007

8:12 AM

Down Syndrome Treatment

Subject:

advocate

Ok, guys I need some help. We live in oklahoma, and our

daughter Ali

(Ds) is about to turn 3 next month. We just had our second meeting

with the school yesterday, and I wasn't very comfortable with how it

went. It was suggested to us that we get an advocate, besides

ourselves, that would be with us at the meetings and know the laws

(better than us). The problem is I don't know who to contact or where

to start to find an advocate that could do that. Does anyone have any

suggestions? Thank you.

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Are you near Tulsa? We have DSAT and Kim Wofford can help you, she is a parent advocate. If you will email me privately I will send you her email and phone number.

Patty patty_carey@...

advocate

Ok, guys I need some help. We live in oklahoma, and our daughter Ali(Ds) is about to turn 3 next month. We just had our second meeting with the school yesterday, and I wasn't very comfortable with how it went. It was suggested to us that we get an advocate, besides ourselves, that would be with us at the meetings and know the laws (better than us). The problem is I don't know who to contact or where to start to find an advocate that could do that. Does anyone have any suggestions? Thank you.

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Other parents in your area who has used advocates are the best resource for finding one.Call you local DS group or as ette mentioned Autism groups and start asking around.I hired an advocate the year before and even though I still did all the work, he worked like a magic charm. Carol in IL AIM doihavtasay1Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: bwalke00 <bwalke00@...>Down Syndrome Treatment Sent:

Thursday, August 23, 2007 7:12:17 AMSubject: advocate

Ok, guys I need some help. We live in oklahoma, and our daughter Ali

(Ds) is about to turn 3 next month. We just had our second meeting

with the school yesterday, and I wasn't very comfortable with how it

went. It was suggested to us that we get an advocate, besides

ourselves, that would be with us at the meetings and know the laws

(better than us). The problem is I don't know who to contact or where

to start to find an advocate that could do that. Does anyone have any

suggestions? Thank you.

Pinpoint customers who are looking for what you sell.

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