New to all of this

[Guest guest]

> No one (teachers) at your childs school brought up concerns to you

>about your son?>>>>>>>>>>>>

Rose,

In our schools the teachers are not allow to say anything to

parents if they think that something is wrong/going on with their

child.

Also the school can't even give out the name of a parent that has

a child with a special need to another parent if that parents asks.

What I mean is that I have asked if the school could give my name to

another parent whos child has autism and they said that they can't

do that.

If a parent feels that something is going on with their child

then they can request in writing that their child be tested. Or the

parents can go through their Insurance and get the child tested that

way and then show the results to the school.

Marj

[Guest guest]

Dear Marj.

How would a parent know whats going on if the teachers are not allowed to say

anything. How would we find out?

kellystar734 <kellystar734@...> wrote:

> No one (teachers) at your childs school brought up concerns to you

>about your son?>>>>>>>>>>>>

Rose,

In our schools the teachers are not allow to say anything to

parents if they think that something is wrong/going on with their

child.

Also the school can't even give out the name of a parent that has

a child with a special need to another parent if that parents asks.

What I mean is that I have asked if the school could give my name to

another parent whos child has autism and they said that they can't

do that.

If a parent feels that something is going on with their child

then they can request in writing that their child be tested. Or the

parents can go through their Insurance and get the child tested that

way and then show the results to the school.

Marj

[Guest guest]

> How would a parent know whats going on if the teachers are not

>allowed to say anything.>>>>>>>

What I meant was that if I asked the teacher if there were any moms of

the students that had special needs they can't tell me that info.

Also what I meant was that the teachers are not allowed to say to a

parent, " I see that __childs name here__ may have autism or ADHD " .

They are not allowed to say this as they are NOT doctors so they can't

diagnose anything that they see in that perticular child.

All teachers can tell a parent how their child is doing in school so

that if they are having say reading trouble then the child can get

reading help.

Marj

[Guest guest]

Hi,

I had volunteered in my son's class last year. The teacher had her hands full,

and said she has more than she can handle! when I volunteered. I've seen

children that needed as much help as my son. she told me she said in so many

words to their parents, they need more help than she has time to give. But the

parents didn't see it as their child with the problem, they said it was the

teacher and blamed her. I thought that teacher taught very well. some of the

children couldn't sit in their seats too long so they would get up and bother

other children that were trying to do their work, while the teacher was helping

another child. this caused more distraction for my AS child. another child in

his class could not read or write a complete thought on a paper and also was

told several times to go back to her seat. another, if you didn't watch him, or

notice him, he would stay in the bathroom till another child complained that

he's in their too long. this went on all day long. One

parent did get help for her child and found out her child had ADDHD but she

hated the teacher for bringing that out and made a lot of complaints about her

out of anger. Today, I wouldn't want to be a teacher. Us parents tried to get

a classroom aid for her to help with that class. but, they wouldn't because of

the budget. so, us parents volunteered in that classroom whenever we could, so

the children could learn something. I'm surprised the teacher can't do

something for the child if a parent does not get involved. the child looses

out. and distracts the other children. I wish I were allowed to check on this

one little girl that needed so much help. I was able to help her and get her to

do the classroom work because, she needed the same help as my son. the things I

did for my son worked for her too. but, like you said, is true, we can't check

up or ask about another student. (so sad). because I would continue to help

her.

kellystar734 <kellystar734@...> wrote:

> How would a parent know whats going on if the teachers are not

>allowed to say anything.>>>>>>>

What I meant was that if I asked the teacher if there were any moms of

the students that had special needs they can't tell me that info.

Also what I meant was that the teachers are not allowed to say to a

parent, " I see that __childs name here__ may have autism or ADHD " .

They are not allowed to say this as they are NOT doctors so they can't

diagnose anything that they see in that perticular child.

All teachers can tell a parent how their child is doing in school so

that if they are having say reading trouble then the child can get

reading help.

Marj

[Guest guest]

Thank You !!! He will be going to school very soon. Is there

anything I should know before I have a meeting on his IEP?

>

>

> Hi

>

> Welcome ! I know its overwhelming at first.

>

> First find out what resources are in your area for your 4 yr old.

Then with the help of his doctor , make a plan.

>

> Decide what is the first and most immediate concern and start

dealing with that.

>

> Be good to yourself, you will need a group like this to help you

thru the ups and the downs. The good news is that it

> will get better. Take one day at a time and within that day take

each hour at a time and so on.

>

> We are here for you.

>

> hugs

>

> Wags! Wags! Wags!

>

> Lowry

>

> " There is no psychiatrist in the world like a puppy licking your

face. "

> Author Ben

>

>

> @...: metzlerheather@...: Mon, 14 Jan 2008

02:18:48 +0000Subject: ( ) New to all of this

>

>

>

>

> Hi I'm brand new to all of this. My 4 yr old was diagnosed 2 weeks

ago and I need advice on how to handle all the info thrown at you and

how to keep him in line I feel like I have no control in my house.

>

>

>

>

>

>

> _________________________________________________________________

> Use fowl language with Chicktionary. Click here to start playing!

> http://puzzles.sympatico.msn.ca/chicktionary/index.html?icid=htmlsig

>

[Guest guest]

Hi

This is where others need to help you out....my aspergers son is married and so growing up we didn't know why he was the way he was and so I never had IEP meetings etc....but others will step up to the plate to answer these questions for you , this is a great group of people.

hugs

Wags! Wags! Wags!

Lowry

"There is no psychiatrist in the world like a puppy licking your face."

Author Ben

From: metzlerheather@...Date: Mon, 14 Jan 2008 20:24:46 +0000Subject: Re: ( ) New to all of this

Thank You !!! He will be going to school very soon. Is there anything I should know before I have a meeting on his IEP? >> > Hi > > Welcome ! I know its overwhelming at first.> > First find out what resources are in your area for your 4 yr old. Then with the help of his doctor , make a plan.> > Decide what is the first and most immediate concern and start dealing with that.> > Be good to yourself, you will need a group like this to help you thru the ups and the downs. The good news is that it> will get better. Take one day at a time and within that day take each hour at a time and so on.> > We are here for you.> > hugs> > Wags! Wags! Wags!> > Lowry> > "There is no psychiatrist in the world like a puppy licking your face."> Author Ben > > > @...: metzlerheather@...: Mon, 14 Jan 2008 02:18:48 +0000Subject: ( ) New to all of this> > > > > Hi I'm brand new to all of this. My 4 yr old was diagnosed 2 weeks ago and I need advice on how to handle all the info thrown at you and how to keep him in line I feel like I have no control in my house. > > > > > > > __________________________________________________________> Use fowl language with Chicktionary. Click here to start playing!> http://puzzles.sympatico.msn.ca/chicktionary/index.html?icid=htmlsig>

[Guest guest]

Hi and welcome,

Check out this web site. The IEP is a big deal and requires a lot of knowledge on your part.

Regarding keeping your son " in line, " you will probably need to change your mindset. You will be working with your child to help him behave in a more appropriate manner. I think others will agree that the thing that always backfires is forcing something.

Jen

DD Aspie, SID, 3yo

On Jan 15, 2008 4:07 PM, Lowry <flyballmom@...> wrote:

Hi This is where others need to help you out....my aspergers son is married and so growing up we didn't know why he was the way he was and so I never had IEP meetings etc....but others will step up to the plate to answer these questions for you , this is a great group of people. hugs

Wags! Wags! Wags!

Lowry

" There is no psychiatrist in the world like a puppy licking your face. "

Author Ben

From: metzlerheather@...

Date: Mon, 14 Jan 2008 20:24:46 +0000Subject: Re: ( ) New to all of this

Thank You !!! He will be going to school very soon. Is there anything I should know before I have a meeting on his IEP? >> > Hi > > Welcome ! I know its overwhelming at first.> > First find out what resources are in your area for your 4 yr old. Then with the help of his doctor , make a plan.> > Decide what is the first and most immediate concern and start dealing with that.> > Be good to yourself, you will need a group like this to help you thru the ups and the downs. The good news is that it> will get better. Take one day at a time and within that day take each hour at a time and so on.> > We are here for you.> > hugs

> > Wags! Wags! Wags!> > Lowry> > " There is no psychiatrist in the world like a puppy licking your face. " > Author Ben > >

> @...: metzlerheather@...: Mon, 14 Jan 2008 02:18:48 +0000Subject: ( ) New to all of this> > > > > Hi I'm brand new to all of this. My 4 yr old was diagnosed 2 weeks ago and I need advice on how to handle all the info thrown at you and how to keep him in line I feel like I have no control in my house. > > > > > > > __________________________________________________________

> Use fowl language with Chicktionary. Click here to start playing!> http://puzzles.sympatico.msn.ca/chicktionary/index.html?icid=htmlsig

>

[Guest guest]

Hi . All I can say, is, to take a deep breath. He's still your child,,,,,,still awesome. You're a good mom. You can start reading everything that you can. Online and off. Check out the local schools (elementary, middle, high) and even local Health Dept or Mental Health offices.......maybe even local Psychiatry Doc offices......anyway,,,,check with them to see if there are any Social Skills classes for kids with social issues. Get in as good as you can with the schools. They SHOULD know more....but lots of times, they don't. Some may WANT to learn and others may not want you tol teach them...,,,,,,,,,but some MAY!!!!! Stay in groups like this.......they've been the best for me. When I've struggled,,,,,,,and cried,,,,,and fought for my son,,,,and still got NOWHERE,,,,,,there were groups like this.....where some of the gals have become REAL

friends. So,,,,ask away. Stay as calm as you can. Oh=======leave any doc that you don't feel "right" about. It's not worth fighting them, too. Have a super day. Robinmetzlerheather <metzlerheather@...> wrote: Hi I'm brand new to all of this. My 4 yr old was diagnosed 2 weeks ago and I need advice on how to handle all the info thrown at you and how to keep him in line I feel like I have no control in my house.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I suggest you start with one problem at a time. Trying to fix everything at once is impossible. Also, try to come to terms with the "ideal" family/child/house you may be expecting because you won't ever get there. IOW, you might have to alter your expectations at times. If you want to discuss specific problems, I'm sure many people can relate and share what they did in those situations.

RoxannaAutism Happens

( ) New to all of this

Hi I'm brand new to all of this. My 4 yr old was diagnosed 2 weeks ago and I need advice on how to handle all the info thrown at you and how to keep him in line I feel like I have no control in my house.

[Guest guest]

Basically when you have the CWD surgery it makes the cavity one part rather than

in a CWU it has 2 separate cavities. I am having a CWD tomorrow and it is better

for cleaning and treating this disease. When you have the canal wall up it can

sometimes be tricky to clean and treat the c-toma but with the CWD it makes

everything more visual and easier to access.

New to all of this

Hey,

Sorry to be a pest again but I know nothing about this disease. I’ve been

reading some of the threads and it seems that after having surgery the

problems don’t go away and we need more surgery, is this right? The

operation I had was similar to a radical modified mastiodectomy, having

researched this a little it seems this is a canal wall down procedure, what

is the difference between a canal wall up and canal wall down? I’m going to

get in touch with my surgeon at some point before my outpatients appt as I

don’t know alot about what happened in my surgery – I was meant to only be

getting a new eardrum but he found that I had cholesteatoma which had

destroyed one of my hearing bones, the surgery ended up taking 4 ½ hours.

Thanks for any help

[Guest guest]

Kenna,I had a CWD procedure in spring 2007. With my routine (every 3-4 months) visits to my surgeon I'm happy to report that I have had no re-occurrence of the c-toma (knocking on wood). As so, I just had a follow up on Monday of this week and the surgeon was pleased with my how well my ear looked and was the best he's seen since surgery.Thought you did not mention in your post, and you may not be aware, but if I were you on your next visit ask your doctor if your Eustachian tube collapses. Mine does and I inflate my ears 2-3 times a day using the Politzer technique, http://www.pediatricsupersite.com/view.aspx?rid=35966Here's the technique I perform as written

by the Pediatric ENT that wrote the article:"Third, the bulb syringe is seated firmly against one nasal aperture and the other nostril is gently pinched closed by the index finger tip not holding the bulb syringe. The final step is when the patient is commanded to swallow a bolus of water and synchronous to deglutition, the bulb syringe is gently squeezed. If the Politzer procedure is performed correctly, some of the bolus of air released into the nasal passage enters and traverses both Eustachian tubes and exits into both middle ear clefts. The act of deglutition causes activation of the tensor palatini muscle and this opens the mouth of the Eustachian tube allowing the bolus of air to enter. A quick look with the pneumatic otoscope will allow the examiner to tell if the eardrum remains in the retracted position or reverts to the normal neutral position. At the same time, the patient is queried if he or she felt discomfort when air entered one or both middle ear clefts. ative patients can practice

this technique and relieve the effects of negative middle ear pressure on descent during air travel or after coming up from deep water diving."For the past year I've actively swam at both indoor and outdoor pools and the ocean. I am not a diver, so do not have any information on this aspect as a result of CWD. Post swimming I make sure that I flush any residual water from the ear by shaking it out and using Swim Ear solution, http://www.drugstore.com/qxp12443_333181_sespider/swim_ear/ear_drying_aid.htm. It contains Isopropyl Alcohol (95%), which mixes well with water and dries quickly. I just use 4-5 drops, then inflate to help drain and open u-tube.Again as stressed by others on these boards, consult your physician before doing anything suggested. My purpose is to arm you, and others that may read, with information of what has been prescribed by my

surgeon and has been proven effective to date.Hope this helps.-NateFrom: Kenna Balion <kenna_balion@...>cholesteatoma Sent: Tue, September 14, 2010 4:51:46 AMSubject: New to all of this

Hey, Sorry to be a pest again but I know nothing about this

disease. I’ve been reading some of the threads and it seems that after

having surgery the problems don’t go away and we need more surgery, is

this right? The operation I had was similar to a radical modified mastiodectomy,

having researched this a little it seems this is a canal wall down procedure,

what is the difference between a canal wall up and canal wall down? I’m

going to get in touch with my surgeon at some point before my outpatients appt

as I don’t know alot about what happened in my surgery – I was

meant to only be getting a new eardrum but he found that I had cholesteatoma

which had destroyed one of my hearing bones, the surgery ended up taking 4 ½ hours. Thanks for any help