Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 If you guys are really serious... and will help me outline what we want to say... and will sign your names as well... > > Nothing's wrong with you. You love your child. You want the best > for > > him. It's very hard to accept that the dreams you had for your > child > > will probably never come to be. But you know what? Your dreams > don't > > have to die. They just have to be adjusted. I first had the > PDDNOS > > diagnosis for my child 8 years ago, and while I mostly accept it, > I > > have my days when I don't. Y'know, my child is probably never > going > > to make it through university. But she might make it through a > > remedial vocational training program at the local community > college. > > My child is probably never going to be a track star or > cheerleader or > > prom queen. But she might make a few friends and have a blast at > > Challenger T-Ball. My child will probably never marry the boy > next > > door. But she might find love at a support group for young adults > > with disabilities. And they might even give me grandchildren. > Which > > I'll probably have to help raise, but hey, after surviving her > > childhood, I can do anything! And when the ' are glowing and > > going on and on about how their child made the honor roll three > > semesters in a row, I can boast just as happily and proudly that > my > > child has finally learned to tie her shoes! And yeh, they'll give > me > > bizarre pitying looks, but I usually don't care. Because my child > > loves me, and every moment, every accomplishment, is such a joy, > and > > what those people think are really irrelevant to my life. These > are > > not the accomplishments I originally expected to be joyful about > for > > my kids. But while we can't control the hand we're dealt in life, > we > > most definitely can choose how we play our cards. > > We're here for you. And it IS going to be okay. > > Meira > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 I'll sign the letter too. I agree the Oprah show last week never even mentioned AS, and Spectrum only once or twice. Even if our kids are on the " high " end of the spectrum or considered " mildly " affected, well trying to raise him is'nt " mild " to me - it's truly a struggle for everyone- and because he looks so NT no one thinks there's any issues unless they are around him for a prolonged period of time. That's frustrating- and his " bad " -inappropriate behaviors are many times the AS- he's not a bad kid. I second the tieing shoes milestone. Conner did not make any baskets in Upward Basketball this past year, but once on the court he leaned over and tied his own shoes{ ( we were adventuresome with laces !! ) By the way the Velcro ends about size 4- 5- then you can get the slip ons !!} I just about cried since he just learned that skill this past Fall at almost 10yo. Nobody but moms/parents like us understand how proud I was over this simple accomplishment. And you're right, I don't care what the rest of the world thinks !! We secretly celebrated his independent shoe tying that weekend !!! Kim-tired mom Conner , 10 yo, AS/ADD/ BP ?? dx. AS " officially " 1/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Sorry but I missed about the Oprah thing, but I do think if anyone should address the issue with AS it should be her because so many people respect her and might actually pay attention to the information. About velcro shoes... well Blake learned to tie his shoes around 5yrs old. But for some reason when he ties his shoes they never stay tied or they have this long string hanging off that I am always afraid he is going to trip over. I would still be buying him velcro but his feet are such that buying any type of shoe is difficult. He has flat feet, walks on the side of his feet, and has a huge bunion on his left foot. Sure makes it tough. > > I'll sign the letter too. I agree the Oprah show last week never even > mentioned AS, and Spectrum only once or twice. Even if our kids are on > the " high " end of the spectrum or considered " mildly " affected, well > trying to raise him is'nt " mild " to me - it's truly a struggle for > everyone- and because he looks so NT no one thinks there's any issues > unless they are around him for a prolonged period of time. That's > frustrating- and his " bad " -inappropriate behaviors are many times the > AS- he's not a bad kid. I second the tieing shoes milestone. Conner > did not make any baskets in Upward Basketball this past year, but once > on the court he leaned over and tied his own shoes{ ( we were > adventuresome with laces !! ) By the way the Velcro ends about size 4- > 5- then you can get the slip ons !!} I just about cried since he just > learned that skill this past Fall at almost 10yo. Nobody but > moms/parents like us understand how proud I was over this simple > accomplishment. And you're right, I don't care what the rest of the > world thinks !! We secretly celebrated his independent shoe tying that > weekend !!! > > Kim-tired mom > Conner , 10 yo, AS/ADD/ BP ?? dx. AS " officially " 1/07 > Quote Link to comment Share on other sites More sharing options...
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