Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Thanks so much for the link! I love reading whats its like from personal accounts. Tammie ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 I love her comments on all these different issues, like ADHD, and how they relate to autism. I have two children, ages 10 and 9. My 10 year old son is diagnosed as high functioning autistic/ Asperger's syndrome and my 9 year old daughter is diagnosed as ADHD. But after reading through that website I can see how simliar they are. mytwoboys97_00 <mytwoboys97_00@...> wrote: I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori ~Fantasy P.S. Check out http://360./fantasykay to get to know me better. --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 I absolutely hate it when people reinvent autism to be this wonderful " personality trait. " I often feel as if they really do not have AS or HFA. There are so many these days who decide to dx themselves as adults - suddenly they can't function or suddenly they realize they are sensitive to sound or like to tap their fingers. Aha, I must be autistic! And what is really wrong with stimming anyway? I should stim if I want to, they like to say. They have no clue. I heard one adult " aspie " speak at a conference once and it was so awful. She had such minor problems compared to my entire family unit that it was a joke. I was in tears and was ready to leave the room because it was a big joke to her but it was not to me or to my family! Her biggest hurdle these days was to have problems walking through the mall because people like to spray perfume at you and she is " hypersensitive " to that. Well duh. Who is not? I walk the long way around the perfume counter so it's not like this is a huge strain on one's ability to manage life. Get a grip. Meanwhile, I work with a 4 yo who has autism. And I promise everyone - it is not a little personality trait at all. Stimming is not just a cute little way to burn off excess energy. Poking one's eyes is not just a way to focus. Biting things is not a normal activity. What a joke to even suggest that when there are people who are literally eating their hands until they are mishappen, who are stimming so much that they tune out their ENTIRE world and learn nothing. Toe walking is not a little fear of putting ones feet down flat on the ground due to sensory issues. what a joke that one was! And ridiculous when you are dealing with a kid who has serious problems with muscles because he does not know how to NOT toe walk. Let's really examine the difference between a little glitch a severe problem! And therein lies the difference between someone who is just a groupie vs someone with a serious severe disability like autism and AS. I feel that if some of these folks had a real disability, they would not be online making light of what is a real neurological disorder. And to describe low functioning autism as just a form of AS was a bigger joke, IMO. I suppose it makes those folks happy to have this little club where they can compare their little problems and come up with cute ways to make it mainstream or " typcial " or " acceptable. " They are probably odd people to begin with so this makes it acceptable and gives them a reason to group together and belong. And all that is fine - I don't care and it might even be helpful to them. But the truth is, that's all bull. People with autism and AS have a " severe " disability. It's not just a cute little " oops, I have to stim now... " I wonder at how many are being dx'd today who seem to have no more problems than they can't make friends easily. Well, a lot of people can have that problem and it doesn't mean they have a " SEVERE " disability. Maybe they are just not good at social stuff. that can happen and it can have nothing to do with autism. People over-identify with and over-inspect themselves until they suddenly have problems with sensory stuff. Well duh. Who does not have sensory issues in this world? It was never intended to be a problem that you either had or didn't have. Sensory integration is something we all have/do and we are all at varying places on a spectrum of abilities to manage our sensory experiences. Some folks hate loud noises and they just do. It doesn't make them autistic. I cover my ears at times, I used to hear the alarms in stores. Some folks prefer soft touches, some hard. Now we have people dx'ing themselves with AS and walking through a perfume section becomes an assault against them and their " disability. " Yes, it is the NT's of the world out to get them! Suddenly we have people hyperfocusing on themselves and coming up with the idea that they cannot function (where they were functioning before) because they have named themselves as having AS. Further, now they are experts at AS because they have it! ANd so they want to let us all know what it is " really " like - as if they speak for everyone and really ARE experts. that is my rant for today. Roxanna ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Dear Roxanna, you forgot to mention one big part in you post.... the part where some " parents " now become " therapist " and start to DX everybody they see with Autism/Aspergers. outch! Roxanna <madideas@...> wrote: I absolutely hate it when people reinvent autism to be this wonderful " personality trait. " I often feel as if they really do not have AS or HFA. There are so many these days who decide to dx themselves as adults - suddenly they can't function or suddenly they realize they are sensitive to sound or like to tap their fingers. Aha, I must be autistic! And what is really wrong with stimming anyway? I should stim if I want to, they like to say. They have no clue. I heard one adult " aspie " speak at a conference once and it was so awful. She had such minor problems compared to my entire family unit that it was a joke. I was in tears and was ready to leave the room because it was a big joke to her but it was not to me or to my family! Her biggest hurdle these days was to have problems walking through the mall because people like to spray perfume at you and she is " hypersensitive " to that. Well duh. Who is not? I walk the long way around the perfume counter so it's not like this is a huge strain on one's ability to manage life. Get a grip. Meanwhile, I work with a 4 yo who has autism. And I promise everyone - it is not a little personality trait at all. Stimming is not just a cute little way to burn off excess energy. Poking one's eyes is not just a way to focus. Biting things is not a normal activity. What a joke to even suggest that when there are people who are literally eating their hands until they are mishappen, who are stimming so much that they tune out their ENTIRE world and learn nothing. Toe walking is not a little fear of putting ones feet down flat on the ground due to sensory issues. what a joke that one was! And ridiculous when you are dealing with a kid who has serious problems with muscles because he does not know how to NOT toe walk. Let's really examine the difference between a little glitch a severe problem! And therein lies the difference between someone who is just a groupie vs someone with a serious severe disability like autism and AS. I feel that if some of these folks had a real disability, they would not be online making light of what is a real neurological disorder. And to describe low functioning autism as just a form of AS was a bigger joke, IMO. I suppose it makes those folks happy to have this little club where they can compare their little problems and come up with cute ways to make it mainstream or " typcial " or " acceptable. " They are probably odd people to begin with so this makes it acceptable and gives them a reason to group together and belong. And all that is fine - I don't care and it might even be helpful to them. But the truth is, that's all bull. People with autism and AS have a " severe " disability. It's not just a cute little " oops, I have to stim now... " I wonder at how many are being dx'd today who seem to have no more problems than they can't make friends easily. Well, a lot of people can have that problem and it doesn't mean they have a " SEVERE " disability. Maybe they are just not good at social stuff. that can happen and it can have nothing to do with autism. People over-identify with and over-inspect themselves until they suddenly have problems with sensory stuff. Well duh. Who does not have sensory issues in this world? It was never intended to be a problem that you either had or didn't have. Sensory integration is something we all have/do and we are all at varying places on a spectrum of abilities to manage our sensory experiences. Some folks hate loud noises and they just do. It doesn't make them autistic. I cover my ears at times, I used to hear the alarms in stores. Some folks prefer soft touches, some hard. Now we have people dx'ing themselves with AS and walking through a perfume section becomes an assault against them and their " disability. " Yes, it is the NT's of the world out to get them! Suddenly we have people hyperfocusing on themselves and coming up with the idea that they cannot function (where they were functioning before) because they have named themselves as having AS. Further, now they are experts at AS because they have it! ANd so they want to let us all know what it is " really " like - as if they speak for everyone and really ARE experts. that is my rant for today. Roxanna ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Roxanna, I have to agree with you. In regaurds to the descriptions on stimming on this site, they imply that our kids are stimming mostly due to anxiety, or do it when they are concentrating, that is BS, at least for Jake. When he is picking sores into his legs, it is because the scar tissue on his legs, or the scabs, feel different than the rest of his skin, and he can't stand it, he wants it off! If he gets a scrape (God forbid), he pulls off all the loosened skin, and will continue to pick at it for years. Yes, YEARS; he never lets anything heal. His shins look like those of a severe burn victom. Nervous tick my ass. One more thing. If some of these " aspies " made it through childhood, college, well into adulthood, without any intervention or ASD supports, how the hell did they do so well?? I know the work that all of us here are putting into our kids, and how hard our kids are working, and many of us can only hope that our kids will be that well. Theresa > > I absolutely hate it when people reinvent autism to be this wonderful " personality trait. " I often feel as if they really do not have AS or HFA. There are so many these days who decide to dx themselves as adults - suddenly they can't function or suddenly they realize they are sensitive to sound or like to tap their fingers. Aha, I must be autistic! And what is really wrong with stimming anyway? I should stim if I want to, they like to say. They have no clue. > > I heard one adult " aspie " speak at a conference once and it was so awful. She had such minor problems compared to my entire family unit that it was a joke. I was in tears and was ready to leave the room because it was a big joke to her but it was not to me or to my family! Her biggest hurdle these days was to have problems walking through the mall because people like to spray perfume at you and she is " hypersensitive " to that. Well duh. Who is not? I walk the long way around the perfume counter so it's not like this is a huge strain on one's ability to manage life. Get a grip. > > Meanwhile, I work with a 4 yo who has autism. And I promise everyone - it is not a little personality trait at all. Stimming is not just a cute little way to burn off excess energy. Poking one's eyes is not just a way to focus. Biting things is not a normal activity. What a joke to even suggest that when there are people who are literally eating their hands until they are mishappen, who are stimming so much that they tune out their ENTIRE world and learn nothing. Toe walking is not a little fear of putting ones feet down flat on the ground due to sensory issues. what a joke that one was! And ridiculous when you are dealing with a kid who has serious problems with muscles because he does not know how to NOT toe walk. Let's really examine the difference between a little glitch a severe problem! And therein lies the difference between someone who is just a groupie vs someone with a serious severe disability like autism and AS. > > I feel that if some of these folks had a real disability, they would not be online making light of what is a real neurological disorder. And to describe low functioning autism as just a form of AS was a bigger joke, IMO. I suppose it makes those folks happy to have this little club where they can compare their little problems and come up with cute ways to make it mainstream or " typcial " or " acceptable. " They are probably odd people to begin with so this makes it acceptable and gives them a reason to group together and belong. And all that is fine - I don't care and it might even be helpful to them. But the truth is, that's all bull. People with autism and AS have a " severe " disability. It's not just a cute little " oops, I have to stim now... " I wonder at how many are being dx'd today who seem to have no more problems than they can't make friends easily. Well, a lot of people can have that problem and it doesn't mean they have a " SEVERE " disability. Maybe they are just not good at social stuff. that can happen and it can have nothing to do with autism. > > People over-identify with and over-inspect themselves until they suddenly have problems with sensory stuff. Well duh. Who does not have sensory issues in this world? It was never intended to be a problem that you either had or didn't have. Sensory integration is something we all have/do and we are all at varying places on a spectrum of abilities to manage our sensory experiences. Some folks hate loud noises and they just do. It doesn't make them autistic. I cover my ears at times, I used to hear the alarms in stores. Some folks prefer soft touches, some hard. Now we have people dx'ing themselves with AS and walking through a perfume section becomes an assault against them and their " disability. " Yes, it is the NT's of the world out to get them! Suddenly we have people hyperfocusing on themselves and coming up with the idea that they cannot function (where they were functioning before) because they have named themselves as having AS. Further, now they are experts at AS because they have it! ANd so they want to let us all know what it is " really " like - as if they speak for everyone and really ARE experts. > > that is my rant for today. > > > Roxanna > ( ) Insight on AS-website > > > I found this website that is very interesting. It is written by a > woman dx with Aspergers. I love her insight and explanation of AS. > Check out some of her info-I enjoyed the stimming and social > interaction parts. > > http://www.creative-minds.info/Lorelei/Home.htm > > Cori > > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 I guess the thing to remember is that even within Asperger's there is a spectrum and just because some people make it through with little to no intervention doesn't mean they don't have Aspergers. ( ) Insight on AS-website > > > I found this website that is very interesting. It is written by a > woman dx with Aspergers. I love her insight and explanation of AS. > Check out some of her info-I enjoyed the stimming and social > interaction parts. > > http://www.creative-minds.info/Lorelei/Home.htm > > Cori > > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Oh how embarrassing, lol That is so me. It's not my fault though! I swear since my son was dx with HFA earlier this year every second person I meet has an undiagnosed ASD. My dh refuses to pick his underwear up of the bathroom floor even though I constantly tell him it annoys me, (theory of mind), my mother is always bluntly telling me what she thinks even if it's rude and in appropriate, my 3 year old daughters ability to tell me just what she thinks of my cooking is way to advanced for her age.... do you see what I mean ASD everywhere...... Beck ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 I understand what you are saying Roxanna but we do have to be careful not to go too far the other way. I have lost count of the number of stories that I've heard of people struggling to get a dx because their child wasn't ASD enough in the therapists office. The spectrum is so broad that it can be hard unless you are that person to tell how their disability affects them. I am sick of people telling me that my son has been misdiagnosed because he doesn't act the way they think an autistic person should act. We live with him, we know how he thinks and behaves behind closed doors when he is relaxed enough to be himself. Most people who come into brief contact with him just see a child who is so " shy " that he doesn't talk or respond to them. We deal with the meltdowns and the tears because he has misunderstood every day concepts. Another boy I know who is my sons age has the same CARS score as my son yet they are so different. Brady is hyperactive and calls out all the time, Isaac is pretty much mute when we are out an about and he clings to my legs. You know what they say " If you've met one person with autism, you've met one person with autism. " Beck ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 > > > > I absolutely hate it when people reinvent autism to be this > wonderful " personality trait. " I often feel as if they really do not > have AS or HFA. There are so many these days who decide to dx > themselves as adults - suddenly they can't function or suddenly they > realize they are sensitive to sound or like to tap their fingers. > Aha, I must be autistic! And what is really wrong with stimming > anyway? I should stim if I want to, they like to say. They have no > clue. > > > > I heard one adult " aspie " speak at a conference once and it was so > awful. She had such minor problems compared to my entire family unit > that it was a joke. I was in tears and was ready to leave the room > because it was a big joke to her but it was not to me or to my > family! Her biggest hurdle these days was to have problems walking > through the mall because people like to spray perfume at you and she > is " hypersensitive " to that. Well duh. Who is not? I walk the long > way around the perfume counter so it's not like this is a huge strain > on one's ability to manage life. Get a grip. > > > > Meanwhile, I work with a 4 yo who has autism. And I promise > everyone - it is not a little personality trait at all. Stimming is > not just a cute little way to burn off excess energy. Poking one's > eyes is not just a way to focus. Biting things is not a normal > activity. What a joke to even suggest that when there are people who > are literally eating their hands until they are mishappen, who are > stimming so much that they tune out their ENTIRE world and learn > nothing. Toe walking is not a little fear of putting ones feet down > flat on the ground due to sensory issues. what a joke that one was! > And ridiculous when you are dealing with a kid who has serious > problems with muscles because he does not know how to NOT toe walk. > Let's really examine the difference between a little glitch a severe > problem! And therein lies the difference between someone who is just > a groupie vs someone with a serious severe disability like autism and > AS. > > > > I feel that if some of these folks had a real disability, they > would not be online making light of what is a real neurological > disorder. And to describe low functioning autism as just a form of > AS was a bigger joke, IMO. I suppose it makes those folks happy to > have this little club where they can compare their little problems > and come up with cute ways to make it mainstream or " typcial " > or " acceptable. " They are probably odd people to begin with so this > makes it acceptable and gives them a reason to group together and > belong. And all that is fine - I don't care and it might even be > helpful to them. But the truth is, that's all bull. People with > autism and AS have a " severe " disability. It's not just a cute > little " oops, I have to stim now... " I wonder at how many are being > dx'd today who seem to have no more problems than they can't make > friends easily. Well, a lot of people can have that problem and it > doesn't mean they have a " SEVERE " disability. Maybe they are just > not good at social stuff. that can happen and it can have nothing to > do with autism. > > > > People over-identify with and over-inspect themselves until they > suddenly have problems with sensory stuff. Well duh. Who does not > have sensory issues in this world? It was never intended to be a > problem that you either had or didn't have. Sensory integration is > something we all have/do and we are all at varying places on a > spectrum of abilities to manage our sensory experiences. Some folks > hate loud noises and they just do. It doesn't make them autistic. I > cover my ears at times, I used to hear the alarms in stores. Some > folks prefer soft touches, some hard. Now we have people dx'ing > themselves with AS and walking through a perfume section becomes an > assault against them and their " disability. " Yes, it is the NT's of > the world out to get them! Suddenly we have people hyperfocusing on > themselves and coming up with the idea that they cannot function > (where they were functioning before) because they have named > themselves as having AS. Further, now they are experts at AS because > they have it! ANd so they want to let us all know what it > is " really " like - as if they speak for everyone and really ARE > experts. > > > > that is my rant for today. > > > > > > Roxanna > > ( ) Insight on AS-website > > > > > > I found this website that is very interesting. It is written by a > > woman dx with Aspergers. I love her insight and explanation of > AS. > > Check out some of her info-I enjoyed the stimming and social > > interaction parts. > > > > http://www.creative-minds.info/Lorelei/Home.htm > > > > Cori > > > > > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Theresa, why do " some people " self DX themselves or others as having AS so quickly. I wish my son didn't have it! There are some days, I will say the doctors mis-DXed him. He did real good for that day. but reality sinks in with other days, where he is off focused, confused, etc, (lots more). that there is no mistake in the DX. It took me lots of questions, research, and a great therapist. before I would say & tell my son he has AS. I agree with you. When so many people find a " little trait " that can be NT and they say there child has AS. it does make it harder for people trying to get help for their AS child. One teacher in a classroom said. if a therapist that specializes in AS were to come into my classroom, he can DX the whole class as having AS. Because each child has some trait of it. but its like you said. its the " extreme " the getting stuck, preservation and more, that combined together, that makes a parent concerned. as I was once told by someone. a NT child could self correct him/her self. an AS child would have to be taught " how " to correct him/her self. disorderlybehavior <disorderlybehavior@...> wrote: > > > > I absolutely hate it when people reinvent autism to be this > wonderful " personality trait. " I often feel as if they really do not > have AS or HFA. There are so many these days who decide to dx > themselves as adults - suddenly they can't function or suddenly they > realize they are sensitive to sound or like to tap their fingers. > Aha, I must be autistic! And what is really wrong with stimming > anyway? I should stim if I want to, they like to say. They have no > clue. > > > > I heard one adult " aspie " speak at a conference once and it was so > awful. She had such minor problems compared to my entire family unit > that it was a joke. I was in tears and was ready to leave the room > because it was a big joke to her but it was not to me or to my > family! Her biggest hurdle these days was to have problems walking > through the mall because people like to spray perfume at you and she > is " hypersensitive " to that. Well duh. Who is not? I walk the long > way around the perfume counter so it's not like this is a huge strain > on one's ability to manage life. Get a grip. > > > > Meanwhile, I work with a 4 yo who has autism. And I promise > everyone - it is not a little personality trait at all. Stimming is > not just a cute little way to burn off excess energy. Poking one's > eyes is not just a way to focus. Biting things is not a normal > activity. What a joke to even suggest that when there are people who > are literally eating their hands until they are mishappen, who are > stimming so much that they tune out their ENTIRE world and learn > nothing. Toe walking is not a little fear of putting ones feet down > flat on the ground due to sensory issues. what a joke that one was! > And ridiculous when you are dealing with a kid who has serious > problems with muscles because he does not know how to NOT toe walk. > Let's really examine the difference between a little glitch a severe > problem! And therein lies the difference between someone who is just > a groupie vs someone with a serious severe disability like autism and > AS. > > > > I feel that if some of these folks had a real disability, they > would not be online making light of what is a real neurological > disorder. And to describe low functioning autism as just a form of > AS was a bigger joke, IMO. I suppose it makes those folks happy to > have this little club where they can compare their little problems > and come up with cute ways to make it mainstream or " typcial " > or " acceptable. " They are probably odd people to begin with so this > makes it acceptable and gives them a reason to group together and > belong. And all that is fine - I don't care and it might even be > helpful to them. But the truth is, that's all bull. People with > autism and AS have a " severe " disability. It's not just a cute > little " oops, I have to stim now... " I wonder at how many are being > dx'd today who seem to have no more problems than they can't make > friends easily. Well, a lot of people can have that problem and it > doesn't mean they have a " SEVERE " disability. Maybe they are just > not good at social stuff. that can happen and it can have nothing to > do with autism. > > > > People over-identify with and over-inspect themselves until they > suddenly have problems with sensory stuff. Well duh. Who does not > have sensory issues in this world? It was never intended to be a > problem that you either had or didn't have. Sensory integration is > something we all have/do and we are all at varying places on a > spectrum of abilities to manage our sensory experiences. Some folks > hate loud noises and they just do. It doesn't make them autistic. I > cover my ears at times, I used to hear the alarms in stores. Some > folks prefer soft touches, some hard. Now we have people dx'ing > themselves with AS and walking through a perfume section becomes an > assault against them and their " disability. " Yes, it is the NT's of > the world out to get them! Suddenly we have people hyperfocusing on > themselves and coming up with the idea that they cannot function > (where they were functioning before) because they have named > themselves as having AS. Further, now they are experts at AS because > they have it! ANd so they want to let us all know what it > is " really " like - as if they speak for everyone and really ARE > experts. > > > > that is my rant for today. > > > > > > Roxanna > > ( ) Insight on AS-website > > > > > > I found this website that is very interesting. It is written by a > > woman dx with Aspergers. I love her insight and explanation of > AS. > > Check out some of her info-I enjoyed the stimming and social > > interaction parts. > > > > http://www.creative-minds.info/Lorelei/Home.htm > > > > Cori > > > > > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Everyone has some sort of issue that is on the spectrum. BUT we need to remember that our children have them way more severely and more of them, that it affects life for them. There are different severities of all ASD's. Some AS kids are quite, mine doesn't shut up. Some AS kids are shy-oh not mine. Some kids have sensory dysfunction but not all. Everyone is different. My 9 year old NT, hand flaps. He does not have AS he just hand flaps. who has AS-does not hand flap. I twirl my hair-I am not ASD. My dh is an adult aspie with no childhood intervention except that his mother beat him because of his behavior. Because no one knew what was wrong with him. They thought he was just a bad seed. They didn't have interventions back then (he is 37). Just like dyslexia- my mother was dyslexic and when she went to school they thought she was retarded. So she had no intervention. When dyslexia was findly dx-she was dx and it all made sense it was just a learning disability and she was able to understand and learn differently as an adult. Our children all have Aspergers, yet they are all different from one another. No two are the same. Someone earlier mentioned-you meet one person with autism-then you have met one person with autism. I am sorry to have upset some people-that was not my intent. Some of the things on the website really helped my understand things. Not everything but some. I did not take anything personal-not to mention this is how one person feels. Cori ph 9, Left clubfoot, NT 6, Asperger Syndrome and Sensory Dysfunction and DH-Joe 37, Asperger Syndrome with no intervention Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 I really like the way you put that into perspective. So true, no two are the same! mytwoboys97_00 <mytwoboys97_00@...> wrote: Everyone has some sort of issue that is on the spectrum. BUT we need to remember that our children have them way more severely and more of them, that it affects life for them. There are different severities of all ASD's. Some AS kids are quite, mine doesn't shut up. Some AS kids are shy-oh not mine. Some kids have sensory dysfunction but not all. Everyone is different. My 9 year old NT, hand flaps. He does not have AS he just hand flaps. who has AS-does not hand flap. I twirl my hair-I am not ASD. My dh is an adult aspie with no childhood intervention except that his mother beat him because of his behavior. Because no one knew what was wrong with him. They thought he was just a bad seed. They didn't have interventions back then (he is 37). Just like dyslexia- my mother was dyslexic and when she went to school they thought she was retarded. So she had no intervention. When dyslexia was findly dx-she was dx and it all made sense it was just a learning disability and she was able to understand and learn differently as an adult. Our children all have Aspergers, yet they are all different from one another. No two are the same. Someone earlier mentioned-you meet one person with autism-then you have met one person with autism. I am sorry to have upset some people-that was not my intent. Some of the things on the website really helped my understand things. Not everything but some. I did not take anything personal-not to mention this is how one person feels. Cori ph 9, Left clubfoot, NT 6, Asperger Syndrome and Sensory Dysfunction and DH-Joe 37, Asperger Syndrome with no intervention Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Oh Rose! I am so glad I am not alone on that. Yes, that one makes me crazy as well. Suddenly, every introvert on every tv show or movie becomes AS as well as the postman, the check out girl, anyone who doesn't socialize well. ugh ugh! Roxanna ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 It is usually hard finding people who will say these things. I totally agree with your point as well - if one can get through life to a certain age, does one really have a " severe " disability? I think people who manage to do ok are people who probably have minor aspects of AS that they tend to magnify once they think too hard about it. I think there are also probably " compensated Aspies " as well - people who probably would have been dx'd as kids but who managed to improve dramatically over time until they could do just fine grown up. I am sure a lot of this stuff is genetic because it is rampant in my family. And I have two boys with HFA and one with dev. delays. I think we can find in a lot of families that there are many people who have pieces or traits of autism - little dabs here and there. I also see that families will have schizophrenia, bipolar, learning disabilities or depression in family members as well. I get so tired of seeing these kinds of website where they glorify having AS and make people feel stupid for calling it a disability. They can never know what this disability can do to people. I don't mean we shouldn't try to find the good parts of our children and encourage them and be proud of them. But let's be honest as well. And yes, we have all worked so hard to improve the lives of our children - and we still have no guarantee that they will live independent lives either. So it is hard to imagine this as being just a little " personality trait. " That is probably my one big pet peeve in life! Roxanna ( ) Insight on AS-website > > > I found this website that is very interesting. It is written by a > woman dx with Aspergers. I love her insight and explanation of AS. > Check out some of her info-I enjoyed the stimming and social > interaction parts. > > http://www.creative-minds.info/Lorelei/Home.htm > > Cori > > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 I have no idea how one would make it through without intervention. The DSM lists this as a " severe " disability. It's not meant to be a minor glitch or problem that is easily overcome. Roxanna ( ) Insight on AS-website > > > I found this website that is very interesting. It is written by a > woman dx with Aspergers. I love her insight and explanation of AS. > Check out some of her info-I enjoyed the stimming and social > interaction parts. > > http://www.creative-minds.info/Lorelei/Home.htm > > Cori > > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 I have one of my boys who is a lot like you describe - he is selectively mute, doesn't talk to people in public. I did not have a problem having him dx'd though. I think if therapists do a full evaluation, these issues should become obvious. It can't be a 5 minute look and dx. Or even a one hour discussion and then a dx. And there should be input given from the parents, the people at the school as well as observation there at the evaluators office. Also, I did not say that all people with autism act alike either. I don't believe that is true - I have two with HFA and they are both very different. But each are severe and have gotten a dx. Being shy, as they like to call it, is just a way to say, " He isn't bothering us with behaviors. " That does not mean one doesn't have autism either. So I would wonder at a professional who would use that as a reason to dismiss a dx of autism. Roxanna ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori . . No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.405 / Virus Database: 268.11.3/423 - Release Date: 8/18/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 ROFL, you sound like me. It is such a huge subject and the problem is so much deeper than just a little " quirk " that trying to explain this stuff is so hard and time consuming. We should start an " anti-dx " website. lol. That is also a good point you made about having problems accessing programs. That is a BIG problem I run into around here - and many times it is due to people running around giving talks about having AS and they are those adult-self-dx'd types. They make having AS/HFA seem almost like a joke. Our school autism " consultant " once said to me after attending such a conference, " Well, what is an obsession anyway? Don't we all have them? Look at men on Sundays during football season! " And then she laughs. Meanwhile, my kid dropped out of school because he lacked the very real supports he needed while she was busy attending such ridiculous conferences and not taking his needs seriously. I did reply that it wasn't like that at all - that obsessions are beyond the scope of wanting to watch football on Sundays. But she shrugged it off and was on to the next subject to laugh about. I just want to scream at these people - hello! does it look like we are having a super bowl party here?? Another problem we have here is that the local MR/DD will not accept people who have an IQ over 80 even if they have autism dx or an AS dx. They automatically dismiss these people and you only get approved if you argue and fight such a dismissal. They do not feel that these people have " severe " enough problems. And part of that is the influx of these adult-self-dx'd people who run around giving talks without having a clue about the problems that real kids are having and that these kids need help and support - so do their families - because it is not just a personality glitch. Roxanna ( ) Insight on AS-website > > > > > > I found this website that is very interesting. It is written by a > > woman dx with Aspergers. I love her insight and explanation of > AS. > > Check out some of her info-I enjoyed the stimming and social > > interaction parts. > > > > http://www.creative-minds.info/Lorelei/Home.htm > > > > Cori > > > > > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Roxanna, your couldn't have said that any better!!!! Ugh! Roxanna <madideas@...> wrote: Oh Rose! I am so glad I am not alone on that. Yes, that one makes me crazy as well. Suddenly, every introvert on every tv show or movie becomes AS as well as the postman, the check out girl, anyone who doesn't socialize well. ugh ugh! Roxanna ( ) Insight on AS-website I found this website that is very interesting. It is written by a woman dx with Aspergers. I love her insight and explanation of AS. Check out some of her info-I enjoyed the stimming and social interaction parts. http://www.creative-minds.info/Lorelei/Home.htm Cori .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Very interesting!! I think the thing you have to keep in mind is that if indeed this person is Aspie, then she has a very black and white way of thinking about what is going on in her head. She may read other stuff that describes it as a severe disability & not consider herself severely disabled. So she justifies that on her website. What she probably has a hard time understanding is the alternate viewpoint that on the less functioning end of the spectrum it IS a severe disability. Because that's not her. That's not her experience. It's a difficult thing for an Aspie to change their own point of view unless they are motivated to change. We've all seen that in our kids, right? Except kids are more maleable to change. So we are able to get them to change their point of view with intervention. With adult Aspies, it's much harder. They are more set in their ways because they are adults (try asking my undiagnosed hubby lol) As someone else said, AS is a spectrum. A HUGE rainbow with very different colors on each end. No two are alike. Just because an adult Aspie appears to be high functioning (holding down a job, married, etc) doesn't mean they haven't gone through lifetime of pain from being misunderstood all their lives & that it doesn't effect their spouse and their AS & NT children in a MAJOR way. Are they 'disabled'? I don't know. Certainly not in the sense that someone who can't live on their own is. But that doesn't mean they aren't Aspie. > > I found this website that is very interesting. It is written by a > woman dx with Aspergers. I love her insight and explanation of AS. > Check out some of her info-I enjoyed the stimming and social > interaction parts. > > http://www.creative-minds.info/Lorelei/Home.htm > > Cori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 I think when teachers make comments like " my whole class could be dx with AS " they are really not understanding the whole AS picture. I have found people who make comments in general like that usually have a very poor understanding of AS in general. There are times when I also look at my son and think he seems so much like his N.T peers. In fact the other day I saw a boy a year older than my son who has HFA at a school I was working at. I said hello to him and he responded by pretending to be a rocket. I thought wow he is so much worse than my own son. But then this morning I sais good morning to my son and he started clapping and calling out " got it! got it! Got it! " And I realized that we get so used to our own children's idiosyncrasies that they start to seem " normal " . Beck ( ) Insight on AS-website > > > > > > I found this website that is very interesting. It is written by a > > woman dx with Aspergers. I love her insight and explanation of > AS. > > Check out some of her info-I enjoyed the stimming and social > > interaction parts. > > > > http://www.creative-minds.info/Lorelei/Home.htm > > > > Cori > > > > > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Pretty good Roxanne,, Feel better? LOL I have to say, being an Aspie that I agree with you. I wouldn't mind NOT having an ASD because it is so frustrating daily. It is true that some people think that having a Sensory disorder is A.S. I was VERY mad one day when a lady told me I WAS AN Atypical Aspie (and had a MILD form of Aspergers) This person FIRST doesn't have AS and Second doesn't know what it is like to be me at all. I have come a long way since I was little, but I still struggle, and to hear someone minimize what I go through REALLY got me mad! At least my husband is finally getting it. He still complains about me but he finally is understanding why I do what I do. I grow and learn and change, but the basics are still there! I .. am... an Aspie!! *grin*\ lisa b > > I absolutely hate it when people reinvent autism to be this wonderful " personality trait. " I often feel as if they really do not have AS or HFA. There are so many these days who decide to dx themselves as adults - suddenly they can't function or suddenly they realize they are sensitive to sound or like to tap their fingers. Aha, I must be autistic! And what is really wrong with stimming anyway? I should stim if I want to, they like to say. They have no clue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 I would love to think I have made it to adult hood with out help. Unfortunately I have had about 12 or so years of therapy and had to deal with depression, Panic Attacks, Anxiety up the 'ying' yang and it wasn't until last year, when I actually got diagnosed with A.S.that I realized it was going to be up to me to help myself. I still struggle, but I got married, so I have been 'carried' to adult hood by a caretaker. my Hubby. I wonder what would have happened if I had never gotten married. Or met someone that wasn't at least half way decent. some people are just lucky Maybe they didn't have intervention but then again, maybe they didn't have nearly the issues a lot of our kids have to deal with these days, or even myself. Hmm Interesting:) lisa b > > I guess the thing to remember is that even within Asperger's there is a spectrum and just because some people make it through with little to no intervention doesn't mean they don't have Aspergers. > > Quote Link to comment Share on other sites More sharing options...
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