Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Any chance you can find a different doctor? Roxanna ( ) Can a diagnosis change in those teenage years???? My son seems to be going downhill real fast since he hit 15 years old. He doesn't seem to understand half of what he understood a year ago. We never know when he's going to snap and explode and he's strong and I don't have real good physical control of him anymore, except at his Drs. office. Sometimes the Dr. says " He's acting like he's aspergers, are you sure his diagnosis is HFA? " But one thing I don't think the Dr. is realizing he sees him once a month, and my son walks into his office like a perfect angel and sits on the couch without saying a word, rests his arms on the back of the couch, you know up like where our shoulders hit. and sits there and doesn't move or say anything. The Dr. looks at him and says " So how are you today " My son says " w-----e----l----l, it's just fine. " The Dr. says " How is school? My son says " w-----e---- l----l, it's just fine. " And the Dr. says " how is everything at home, again my son says My son says " w-----e----l----l, it's just fine. " Doesn't he get a clue my son isn't fully understanding how to answer this? Everything isn't just fine, He accepts this and tells me " he says everything's fine and I'm concerned that you are telling me that he is reacting badly to the medications I'm prescribing him. " To get back to my question, my son is also losing his academic ability, and understanding of talking, outbursts are becoming stronger and anywhere (except the Drs. office) He is getting depressed (even though he's on 20 mg. of Lexapro) and scared to death to go anywhere, we've stayed home more in the last few months than we have for years put together. If I got him diagnosed (by a different Dr.) I'm thinking he will be lower than HFA. Could this be possible or will he bounce back when he hits 20 or so? Thank you, sue . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Your son's current condition mirrors my daughters condition 2 years ago. She is 15. Your son has many AS traits and you should try to find a residential program which treats troubled teens, even though it may not be specifically cater to AS. Be careful with the place you choose if you like I can give you the name of place we sent our daughter. If you do not act quickly your son's condition may deteriorate. Feel feel to contact me directly to my email. Ana Acuitino@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Can you tell me what AS traits my son might have that would be different from high functionin autism? How is a residential program different from a group home? Did your daughter stay there for two years? Do you have her home now? I don't want him in a place with regular troubled teens, my son is a pro at picking up the negative behavior, he'd pick up every negative behavior there and he doesn't need that. Thanks, I definately will email you if we decide this. > > Your son's current condition mirrors my daughters condition 2 years ago. > She is 15. Your son has many AS traits and you should try to find a > residential program which treats troubled teens, even though it may not > be specifically cater to AS. Be careful with the place you choose if you > like I can give you the name of place we sent our daughter. If you do > not act quickly your son's condition may deteriorate. Feel feel to > contact me directly to my email. > Ana > Acuitino@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Seroiusly thinking about it, I just don't know how to go about it, in this office if you miss or break an appointment they charge you very much, also I've called many other Drs. and most of them wont take someone under 18 years old and they place that did take children was full and wasn't taking anymore patients, so I'm back to this place. But one visit I told him my son was afraid to go into stores. He said " so " I said " So he has to be able to go out into public, if something should happen to my husband or I he's going to half to know how to shop for himself. " He said " You have such a minor problem!, there are people who have kids that wont eat anything, there are people with kids who have rages that they tear the house up, and you think not going into a store is a problem? There are 40 year old autistic men who wont go into a store. So you and your husband go out separately. You think this is a problem? " So I am trying to think of a way to break the appt. and find a new Dr. He wants to put him on Chlonidine next time and I really don't want him on one more medication. > > Any chance you can find a different doctor? > > Roxanna > ( ) Can a diagnosis change in those teenage years???? > > > My son seems to be going downhill real fast since he hit 15 years > old. He doesn't seem to understand half of what he understood a > year ago. We never know when he's going to snap and explode and > he's strong and I don't have real good physical control of him > anymore, except at his Drs. office. Sometimes the Dr. says " He's > acting like he's aspergers, are you sure his diagnosis is HFA? " > But one thing I don't think the Dr. is realizing he sees him once a > month, and my son walks into his office like a perfect angel and > sits on the couch without saying a word, rests his arms on the back > of the couch, you know up like where our shoulders hit. and sits > there and doesn't move or say anything. The Dr. looks at him and > says " So how are you today " My son says " w-----e----l----l, it's > just fine. " The Dr. says " How is school? My son says " w-----e---- > l----l, it's just fine. " And the Dr. says " how is everything at > home, again my son says My son says " w-----e----l----l, it's just > fine. " Doesn't he get a clue my son isn't fully understanding how > to answer this? Everything isn't just fine, He accepts this and > tells me " he says everything's fine and I'm concerned that you are > telling me that he is reacting badly to the medications I'm > prescribing him. " To get back to my question, my son is also > losing his academic ability, and understanding of talking, outbursts > are becoming stronger and anywhere (except the Drs. office) He is > getting depressed (even though he's on 20 mg. of Lexapro) and > scared to death to go anywhere, we've stayed home more in the last > few months than we have for years put together. If I got him > diagnosed (by a different Dr.) I'm thinking he will be lower than > HFA. Could this be possible or will he bounce back when he hits 20 > or so? > Thank you, sue > > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2006 Report Share Posted August 10, 2006 > How is a residential program > different from a group home? A residential program is usually much larger than a group home. A group home will usually consist of only a few kids with similar problems, and are located in a house. A residential program is much larger, and deals the kids there have a broad range of problems. At 15 years old, I would think a group home with transitional services would be better. Transitional services will teach him how to shop, manage finances, get a job, ride a bus, general things people do on a daily basis. You would also have a better chance at locating a group home that deals with autism, I agree with you about placing our kids in facilities that deal with emotional/behavioral disorders. My son is 11, been in an EBD class for 3 years now and it has been counterproductive, I REFUSE to send him back there again this year. Good luck to you and your son. God bless! Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2006 Report Share Posted August 10, 2006 In my humble opinion, you need a different dr that specializes in autistic disorders and get someone who will listen to YOU as well as your son. It sounds to me like your dr has the conveyor belt attitude and that won't help you or your son. He may also need a total change in meds. If you are looking for long term help for your son, try Girls and Boys Town. They can also help you find help for your son if you don't want to go to them directly. I hope you get the help that you need soon. Dave > > My son seems to be going downhill real fast since he hit 15 years > old. He doesn't seem to understand half of what he understood a > year ago. We never know when he's going to snap and explode and > he's strong and I don't have real good physical control of him > anymore, except at his Drs. office. Sometimes the Dr. says " He's > acting like he's aspergers, are you sure his diagnosis is HFA? " > But one thing I don't think the Dr. is realizing he sees him once a > month, and my son walks into his office like a perfect angel and > sits on the couch without saying a word, rests his arms on the back > of the couch, you know up like where our shoulders hit. and sits > there and doesn't move or say anything. The Dr. looks at him and > says " So how are you today " My son says " w-----e----l----l, it's > just fine. " The Dr. says " How is school? My son says " w-----e---- > l----l, it's just fine. " And the Dr. says " how is everything at > home, again my son says My son says " w-----e----l----l, it's just > fine. " Doesn't he get a clue my son isn't fully understanding how > to answer this? Everything isn't just fine, He accepts this and > tells me " he says everything's fine and I'm concerned that you are > telling me that he is reacting badly to the medications I'm > prescribing him. " To get back to my question, my son is also > losing his academic ability, and understanding of talking, outbursts > are becoming stronger and anywhere (except the Drs. office) He is > getting depressed (even though he's on 20 mg. of Lexapro) and > scared to death to go anywhere, we've stayed home more in the last > few months than we have for years put together. If I got him > diagnosed (by a different Dr.) I'm thinking he will be lower than > HFA. Could this be possible or will he bounce back when he hits 20 > or so? > Thank you, sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2006 Report Share Posted August 10, 2006 I do think personally from dealing with my 14 year old son, that you have a lot of teenage hormones playing into this, definitely something to consider, all teenagers are difficult, at any level, but when you have one with AS on meds, and all kinds of other behaviors.....the problems just seem to multiply......by thousands.......I think your first step is to get on the internet and find a good Doctor if not in your town, one close by, your Doctor is a jerk, and that is an under statement, I would of made a complaint on him to the board of medical professionals, there is no need to be treated like that! Lynda (I am a nurse and believe me, do not tolerate that kind of unprofessionalism) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 I totally agree. Just because it isn't the most " serious " problem in the whole world, does not mean it doesn't matter or is not important. It IS important because it is happening to you/your family. That doctor is an ass! Roxanna Re: ( ) Can a diagnosis change in those teenage years???? I do think personally from dealing with my 14 year old son, that you have a lot of teenage hormones playing into this, definitely something to consider, all teenagers are difficult, at any level, but when you have one with AS on meds, and all kinds of other behaviors.....the problems just seem to multiply......by thousands.......I think your first step is to get on the internet and find a good Doctor if not in your town, one close by, your Doctor is a jerk, and that is an under statement, I would of made a complaint on him to the board of medical professionals, there is no need to be treated like that! Lynda (I am a nurse and believe me, do not tolerate that kind of unprofessionalism) . Quote Link to comment Share on other sites More sharing options...
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