Re: Two Sons with AS

[Guest guest]

Hey ,

I can say my oldest was almost 12 when he got his official

diagnosis.

I had studied A.S. a lot before that, and talked about it a lot, and

how I knew it was me, too. Finally, when I knew he was getting the

diagnosis, I began talking to him about the good things of AS and

then I talked about the struggles, and how he had those same

struggles.

I often said, " sometimes we think we are lazy or stupid, but in

reality it is something else. It is called A.S. "

We easily were able to slip into the diagnosis because by the time

he was 'labeled' he understood AS not as a bad thing but as a reason

for things that are....

He is very happy to know and so are my other kids.

IT also makes it easy when someone is mean. WE say< " See, he just

doesn't get kids with AS. That is too bad. maybe someday he will,

but until then, we have nothing to worry about! "

>

> Hello. My name is and I am the mother of Mykal. He was

diagnosed late (not til age 9) with AS. It has been a real struggle

for our family (4 sisters also) getting used to understanding his

diagnosis. However, now alot of his actions (past and present) make

more since. I understand about the feelings of having possibly

more than one, because I am starting to wonder about his sister that

is 11 years old. Both of them are on grade level or above

academically. Is there anyone else whose kids were diagnosed late?

If so, any advice on how to get them to understand better what is

going on with them?

>

>

[Guest guest]

Hi Pam, I did start advocating just for my boys.

Then I became an Information Specialist for our Local Autism Society.

Then I joined Toastmasters ( to learn to better and more effectively

communicate) and found myself advocating for Aspies and Auties in my

meetings,,, suddenly I find myself having a big variety of places

where I can advocate my spreading education (at least information

that I know!)

I don't even have a job (except the occasional job through the

society.)

Oh and I am homeschooling my 3 boys and back in college! So, ok I

have a non cash paying job (The pay is in the glory of seeing

wonderful things happening)

*smiles*

thanks for asking:)

B

>

> Where do you advocate ? Do you work for your school

district? Just

> curious. Pam

>

>

>

[Guest guest]

HELLO TO ALL,

BOTH OF MY DAUGHTERS HAVE A FORM OF AS....THE OLDEST...ALEXIS(5) IS HFA

WHILE THE OTHER IS AS...KASSIDY(2). UNFORTUNATLY FOR MY FAMILY THIS IS

SOMETHING THAT RUNS RAMPID ON MY SIDE. FOUR MORE CHILDREN ON MY SIDE

HAVE A FORM OF AUTISM. I HAVE A HARD TIME DEALING WITH THE FACT THAT I

HAVE THIS GREAT RESPONSIBILITY THAT IS GREATER THAN A PARENT WITH A

" NORMAL " CHILD. BUT THIS IS HOW I GET THROUGH IT ALL...........WE WERE

GIVEN THESE WONDERFUL CHILDREN FOR A REASON.......BECAUSE SOMEONE OUT

THERE KNOWS WE CAN HANDLE WHAT THIS DISEASE CAN THROW AT US.

GOOD LUCK TO EVERYONE OF YOU!!!!!!!!

TRICIA SMITH

>

> Hello to all--

> Just got a second diagnosis for AS with my youngest son. I could

> really see it in my oldest son, because he is not an empathetic

> person and never did really understand hugging and kissing, but my

> youngest is such a sweetheart and is always giving me " love " . But I

> guess he has enough other social issues and fine motor concerns

> going on that they figure he " qualifies " to be diagnosed with AS,

> also. I am so discouraged. I had the thought in my head that at

> least it was only one of my boys, or " I can handle one of them

> having it " but now the thought of two of the three having it is so

> overwhelming.

> My oldest son is now 15 and we have seen some progress with him this

> past year as far as socially and having some understanding of how

> other people are feeling. We even got him to start football this

> year and he has gone four days now, and seems to be willing to keep

> with it. He is a computer game addict and does not do much

> socializing so it means a lot to us that he gets out and gets some

> positive strokes from other boys-they seem to have a very good way

> of getting the older boys to mentor the younger ones and it makes

> him feel a part of something. And as I am sure you understand, he

> has SOMETHING OTHER than his video games to talk about which is a

> welcome treat!! Just wondering if there are any other parents out

> there with 2 (or more) Aspies and how it is going for you? My

> youngest son just turned 10. I love them very much, sometimes I wish

> that I didn't have so many challenges in my life. I am sure that

> many of you can understand this much better than parents of

> neurotypical children can.

>

>

> Dawn

>

[Guest guest]

He has an LD in writing. We are in Montana. (Who was recently taken to

court for not putting enough $$ into their school system. - now they are

supposed to be fixing that.)

Kathy K

toozie@...

_____

From:

[mailto: ] On Behalf Of Jackie Geipel

Sent: Friday, August 11, 2006 5:34 PM

Subject: Re: ( ) Re: Two Sons with AS

On Aug 11, 2006, at 3:59 PM, toozie wrote:

> The School considers PPD-NOS

> and AS differently - As is considered part of the autism

> diagnosis, while

> PDD-NOS is not.

Bummer, my school considers both ASDs. I have one of each, and they

are both classified as ASD, with my AS son having a secondary class as

communication disorder. Their IEPs have almost nothing in common,

though, as

my PDD-NOS son has LDs, too.

What state are you in, if you want to answer?

Jackie

_____

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[Guest guest]

Hi Dawn,

I have two sons with as and a husband. All are different. And everyday is

different. Everyday is another day that I wake up wondering what it will be

like. My sons are 13 and 10. And yes video games are also their favorite. I have

learned to take one day at a time. And somedays every 10 minutes at a time.

dscheppke <dscheppke@...> wrote: Hello

to all--

Just got a second diagnosis for AS with my youngest son. I could

really see it in my oldest son, because he is not an empathetic

person and never did really understand hugging and kissing, but my

youngest is such a sweetheart and is always giving me " love " . But I

guess he has enough other social issues and fine motor concerns

going on that they figure he " qualifies " to be diagnosed with AS,

also. I am so discouraged. I had the thought in my head that at

least it was only one of my boys, or " I can handle one of them

having it " but now the thought of two of the three having it is so

overwhelming.

My oldest son is now 15 and we have seen some progress with him this

past year as far as socially and having some understanding of how

other people are feeling. We even got him to start football this

year and he has gone four days now, and seems to be willing to keep

with it. He is a computer game addict and does not do much

socializing so it means a lot to us that he gets out and gets some

positive strokes from other boys-they seem to have a very good way

of getting the older boys to mentor the younger ones and it makes

him feel a part of something. And as I am sure you understand, he

has SOMETHING OTHER than his video games to talk about which is a

welcome treat!! Just wondering if there are any other parents out

there with 2 (or more) Aspies and how it is going for you? My

youngest son just turned 10. I love them very much, sometimes I wish

that I didn't have so many challenges in my life. I am sure that

many of you can understand this much better than parents of

neurotypical children can.

Dawn

---------------------------------

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