Re: Why wheat free/gluten free?

[Guest guest]

Gluten and casein has been found to be like morphine to our kids

brains. They can not break it down. Here is a good site:

www.danasview.net

It explained a lot for me.

>

> Okay I have been reading the posts about the wheat free, gluten free

diets and I am confused!

>

> Why or should I say What would you see that would make you try the

diet? Okay that wasn't clear at all....what symptoms would lead you

to trying such diets? What are they suppose to improve?

>

> Thanks

>

> - C.

> Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

>

>

>

[Guest guest]

Some children on the spectrum have intollerace to gluten and/ or

casein. They have a condition called 'leaky' gut and the proteins

are not digested. Often they are underweight, constipated or

diarrhea, stomach cramping/gas, and can appear like they are

addicted to foods with gluten/casein. People should consider the

diet if child eats mostly milk and other dairy products and gluten

products (including wheat), and does not want to eat much else.

Dietary interventions like this diet can affect the way the child

feels (less pain, decreased hypersensativity to sound/touch, etc) to

allow other interventions to be effective.

Jen

>

> Okay I have been reading the posts about the wheat free, gluten

free diets and I am confused!

>

> Why or should I say What would you see that would make you try the

diet? Okay that wasn't clear at all....what symptoms would lead you

to trying such diets? What are they suppose to improve?

>

> Thanks

>

> - C.

> Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

>

>

>

[Guest guest]

Both my kids are GF and my daughter is CF (she can't tolerate dairy

protein). My son has Aspergers and my daughter, well, she vomited way

too much. The dietary changes helped both-for different reasons.

THey have also both tested negative for Celiac gene or leaky gut.

For my son, his improvements were primarily neurological (balance &

coordination) and noticible behavior differences. Not a typical

improvment on this diet. Search internet for Gluten Ataxia.

-Ann

[Guest guest]

Not everyone is going to agree, but I think it is important as part

of initial research into treatments to look at the data. I also

think that if a child fits the profile, than it would not take long

to see if gluten and casein are the problem. Kids may complain, but

if their health is at risk than it is the parents' job to

investigate. 50% + of children with autism who tried the diet in

studies showed improvement. That is a much larger claim than any

medication.

Jen

> >

> > Okay I have been reading the posts about the wheat free,

gluten free

> diets and I am confused!

> >

> > Why or should I say What would you see that would make you try

the

> diet? Okay that wasn't clear at all....what symptoms would lead

you

> to trying such diets? What are they suppose to improve?

> >

> > Thanks

> >

> > - C.

> > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

SPD/SID

> >

> >

> >

[Guest guest]

May be opinion but just getting rid of the casein for my son got rid

of his asthma - no more nebulizer treatments no more Singulair and

Zyrtek going on 3 months now. Im not one for this diet as I was very

skeptical but I have seen major improvements... no more itching his

butt or privates anymore (used to have his hand down there all the

time), his eyes no longer have dark circles around them, His BMs are

much more normal looking, no more red cheeks that looks like he has a

high fever.. etc

Of course, he shows signs of intolerance when he was a baby. He had

to be on soy formula, was tested for celiac (negative) but I figured

my son is worth the effort to try it!

Now, if we have an infraction (which happens) His cheeks turn red

immediately. No major issues yet - like an out of the blue asthma

attack - but I believe anything is worth a try for such an unknown

ailment like aspergers.

> > >

> > > Okay I have been reading the posts about the wheat free,

> gluten free

> > diets and I am confused!

> > >

> > > Why or should I say What would you see that would make you try

> the

> > diet? Okay that wasn't clear at all....what symptoms would lead

> you

> > to trying such diets? What are they suppose to improve?

> > >

> > > Thanks

> > >

> > > - C.

> > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> SPD/SID

> > >

> > >

> > >

[Guest guest]

All I can advise you to do if you wish is try it. I was totally

overwhelmed with it. Our DAN doc recommended it at our first visit.

I ignored. I did my own research and decided to try it and go easy

with it. We began by taking the milk out first. We still are not

100% gluten free as I am finding that most stuff needs to be ordered

online...cause I am to far away from a whole foods store. However,

when we have an infraction from gluten, cheeks are red. Since our

daughters emergency, he has been off the diet because my grandmother

watched him and I couldn't/didn't have time to explain everything.

His temper is back, his cheeks are red and his eyes have circles

around them. Its all personal belief in what you want to do. If it

is for your child you will see the changes. Then try to give them

some again, if the redness comes back, you have found the trigger.

its a long process, but in the end, its worth it.

> > > >

> > > > Okay I have been reading the posts about the wheat free,

> > gluten free

> > > diets and I am confused!

> > > >

> > > > Why or should I say What would you see that would make you try

> > the

> > > diet? Okay that wasn't clear at all....what symptoms would lead

> > you

> > > to trying such diets? What are they suppose to improve?

> > > >

> > > > Thanks

> > > >

> > > > - C.

> > > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> > SPD/SID

> > > >

> > > >

> > > >

[Guest guest]

My daughter was having pretty bad stomach aches and diarrhea and

vomitting. Her pediatrician and I put her back to baby food, and

added things slowly, one at a time. Wheat, oats, rye, barley were a

few of the things that made her sick. Those four things are gluten.

Later, when she was officially diagnosed with Asperger's, the

pediatrician said we were one step ahead. Pain can cause anyone to

behave yucky because they feel yucky. Asperger's kids are less able

to tell us when they hurt, and less able to figure out why.

Meira

> >

> > >

> > > Okay I have been reading the posts about the wheat free,

> gluten free

> > diets and I am confused!

> > >

> > > Why or should I say What would you see that would make you

try

> the

> > diet? Okay that wasn't clear at all....what symptoms would lead

> you

> > to trying such diets? What are they suppose to improve?

> > >

> > > Thanks

> > >

> > > - C.

> > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> SPD/SID

> > >

[Guest guest]

For my daughter, just removing gluten and casein decreased her

hypersensativity to taste and auditory stimulation. She started to

try new foods. The theory is that they are able to control the

sensory input when the stomach pain and 'opiate high' are gone. -

In , " Roxanna " <madideas@...> wrote:

>

> You didn't copy and paste who you were referring to, so I can only

imagine it's me. While it's ever so kind of you to invite me to

leave, I can't go somewhere else since all your great posts would

never make it to the list without me here. Imagine that.

>

> I also don't think the fact that I disagree with this whole idea

that we have to go nutso over kids with picky eating habits is

something that warrants your post telling me to leave. I personally

feel that calling it a " sensory problem " is just a way to excuse a

behavior instead of dealing with it. I am also not making fun of

children. I actually did gag when my mom made peas as a child and I

don't eat them to this day. I actually did grow up as a picky eater

with a lot of problems with a lot of foods. If that is a joke to

you, then enjoy the laugh. But it's still very true. I personally

think all this huge attention when a child won't eat a particular

food is the opposite of what we should be doing. We run and find an

OT to " fix " the problem (Do they actually fix the problem?) or we

remember the problem for them and perpetuate it. This says nothing

about the kids who are NT and have the same " sensory problems. " And

I still have no clue what a special diet will do for a kid who has

a 'sensory problem' to eating certain foods, but I'm sure someone

somewhere will have " proof " that it works.

>

>

> Roxanna

> ( ) Re: Why wheat free/gluten free?

>

>

> Wow.. you are negative. Sure seems funny though not AS in your

opinion, we all seem to have the same problems....

> Maybe you should take your advice and go bounce on something.

You are negative and you were making fun of our children with that

statement. so we are all here to try to help each other with our

personal facts, as no one knows for sure what the heck to do to help

our kids. If you don't wish to help and would rather be negative,

please go somewhere else.

>

> ---------------------------------

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Travel to find your fit.

>

>

[Guest guest]

When I first was researching I found studies that had 1/2 do the

diet and 1/2 did not. The parents and teachers reported significant

improvement in the group that did the diet. Another study looked at

full recovery from the diet. The percentage was lower in this study

though. I don't remember the statistics. On the gfcfkids forum on

, parents also report significant recovery in a short time span

for those who do the diet 100% following the DAN protocol. For my

daughter, her recovery also involved supplements.

Jen

> > >

> > > Okay I have been reading the posts about the wheat free,

> gluten free

> > diets and I am confused!

> > >

> > > Why or should I say What would you see that would make you

try

> the

> > diet? Okay that wasn't clear at all....what symptoms would

lead

> you

> > to trying such diets? What are they suppose to improve?

> > >

> > > Thanks

> > >

> > > - C.

> > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> SPD/SID

> > >

> > >

> > >

[Guest guest]

By full recovery, do you mean that any and all learning issues are resolved? My

son has difficulty with learning to read via phonics sound-out method, math that

is not concrete (so far only touch math works for addition and subtraction) and

significant difficulty with written expression, and difficult time with spelling

words.

Are you telling me that these children recover and learn with a normal level of

effort without problems?

>>> " jennifer_thorson " <jennifer_thorson@...> 3/19/2007 2:30 PM >>>

When I first was researching I found studies that had 1/2 do the

diet and 1/2 did not. The parents and teachers reported significant

improvement in the group that did the diet. Another study looked at

full recovery from the diet. The percentage was lower in this study

though. I don't remember the statistics. On the gfcfkids forum on

, parents also report significant recovery in a short time span

for those who do the diet 100% following the DAN protocol. For my

daughter, her recovery also involved supplements.

Jen

> > >

> > > Okay I have been reading the posts about the wheat free,

> gluten free

> > diets and I am confused!

> > >

> > > Why or should I say What would you see that would make you

try

> the

> > diet? Okay that wasn't clear at all....what symptoms would

lead

> you

> > to trying such diets? What are they suppose to improve?

> > >

> > > Thanks

> > >

> > > - C.

> > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> SPD/SID

> > >

> > >

> > >

[Guest guest]

Just do the research. I would post further but God knows I get shot

down lol! Most Autism books speak of the diet. You can research on

the net too. All kids are different and react differently. It may

help, it may not - as with all things we go through!

> > > >

> > > > Okay I have been reading the posts about the wheat free,

> > gluten free

> > > diets and I am confused!

> > > >

> > > > Why or should I say What would you see that would make you

> try

> > the

> > > diet? Okay that wasn't clear at all....what symptoms would

> lead

> > you

> > > to trying such diets? What are they suppose to improve?

> > > >

> > > > Thanks

> > > >

> > > > - C.

> > > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> > SPD/SID

> > > >

> > > >

> > > >

[Guest guest]

In one year my daughter went from a disconnected 4 year old with

serious behavior and sensory issues to a pretty normal 5 year old.

Before the diet she did not speak except in memorized phrases and

full cartoon shows. I could not get her potty trained because of

severe rigidity and sensory issues. Today I see a somewhat

eccentric child with some ADHD tendencies she is learning to

manage. She is done with speech therapy and will be mainstreamed

into an eccelated private school in the fall. She still does not

like to spend the time perfecting her handwriting and tends to write

sloppy. Otherwise she is doing great in school. I use a special

toy to encourage her to complete her homework well. At the end of

the trimester she gets to have the toy if she did her best. She is

half in special ed and half in the private school. I expect she

will lose her diagnosis by the school at the next IEP meeting.

Jen

> > > >

> > > > Okay I have been reading the posts about the wheat free,

> > gluten free

> > > diets and I am confused!

> > > >

> > > > Why or should I say What would you see that would make you

> try

> > the

> > > diet? Okay that wasn't clear at all....what symptoms would

> lead

> > you

> > > to trying such diets? What are they suppose to improve?

> > > >

> > > > Thanks

> > > >

> > > > - C.

> > > > Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS &

> > SPD/SID

> > > >

> > > >

> > > >

[Guest guest]

My daughter tested positive for Celiac with one of their tests, and

negative with another. It doesn't matter to me either way. I see

the difference, so we're sticking with it.

Meira

>

> Both my kids are GF and my daughter is CF (she can't tolerate

dairy

> protein). My son has Aspergers and my daughter, well, she vomited

way

> too much. The dietary changes helped both-for different reasons.

> THey have also both tested negative for Celiac gene or leaky gut.

>

> For my son, his improvements were primarily neurological (balance

&

> coordination) and noticible behavior differences. Not a typical

> improvment on this diet. Search internet for Gluten Ataxia.

>

> -Ann

>

[Guest guest]

That has nothing to do with Aspergers. That has to do with asthma

and allergies and intolerance.

Meira

>

> May be opinion but just getting rid of the casein for my son got

rid

> of his asthma - no more nebulizer treatments no more Singulair and

> Zyrtek going on 3 months now. Im not one for this diet as I was

very

> skeptical but I have seen major improvements... no more itching his

> butt or privates anymore (used to have his hand down there all the

> time), his eyes no longer have dark circles around them, His BMs

are

> much more normal looking, no more red cheeks that looks like he

has a

> high fever.. etc

> Of course, he shows signs of intolerance when he was a baby. He

had

> to be on soy formula, was tested for celiac (negative) but I

figured

> my son is worth the effort to try it!

>

> Now, if we have an infraction (which happens) His cheeks turn red

> immediately. No major issues yet - like an out of the blue asthma

> attack - but I believe anything is worth a try for such an unknown

> ailment like aspergers.