Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 In a message dated 1/13/01 5:57:12 PM Eastern Standard Time, k.smith@... writes: << has all of these factors so we are having blood tests and if they come back positive he wants to do an endoscope. Why if the blood test comes back positive is the scope necessary?? >> My daughter had the positive blood samples, but the endoscopy showed no celiac. Instead they found that she had a motility problem (GERD---gastoesophageol reflux disease). The scope really is the only clear cut way to determine celiac. However, there appears to be many people who go on the diet and see results no matter. It is considered controversial in some arenas. I say, whatever works, do it. BUT, There was a woman on this listserv who is now in turmoil because she put her son on the diet, only to find out that he probably does not have autism. So, to determine if he did indeed have celiac and not autism, they had to put gluten back in his diet and it has been torture for her/him. But it was a necessary step so that they might take away his autism dx. Everyone has an opinion, but FWIW, mine is to get the endoscopy. We've had two, and while there're no picnic, it was not a big deal. Maddie had a non-invasive sleep study that was WAY worse, believe me!!!! Good luck!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 In a message dated 1/13/01 7:06:46 PM Eastern Standard Time, duffey48@... writes: << BUT, There was a woman on this listserv who is now in turmoil because she put her son on the diet, only to find out that he probably does not have autism. So, to determine if he did indeed have celiac and not autism, they had to put gluten back in his diet and it has been torture for her/him. >> Hey, haven't heard anything about that in a long time! Before Christmas when things were getting hectic I think. What has happened, anyone know? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 In a message dated 1/15/01 1:51:30 PM Eastern Standard Time, brink_00@... writes: << What's a Pediatric Gastroenterologist? I know what a pediatriction is but that other big G word I have no clue. I'm guessing that Pediatric Gastroeteroligst has something to due with discussing some type of diseases. >> , A pediatric gastroenterologist is one that specializes in children. Gastroenterologists take care of the parts of the body that include the stomach, intestines, esophagus, liver, gallbladder and pancreas. Maddie sees one every four months because she has GERD (gastoesophageol reflux disease), which means she brings up her food and has acid in her stomach with comes up with her food and burns the esophagus. Maddie actually only brings up liquid, but that's fairly typical with those suffering with GERD. She takes medicines for it and it is under control. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 What's a Pediatric Gastroenterologist? I know what a pediatriction is but that other big G word I have no clue. I'm guessing that Pediatric Gastroeteroligst has something to due with discussing some type of diseases. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 rebecca a gastroenterologist is a doc who specializes in stomach and intestinal stuff this one does with kids. >From: " Dunning " <brink_00@...> >Reply-egroups >egroups >Subject: Re: Vitamin Therapy >Date: Mon, 15 Jan 2001 11:33:59 -0600 > > > What's a Pediatric Gastroenterologist? I know what a pediatriction is >but >that other big G word I have no clue. I'm guessing that Pediatric >Gastroeteroligst has something to due with discussing some type of >diseases. > > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 : It isn't CF, but that is interesting. My son chews on sticks, but doesn't try to swallow them. We've tried a lot of supplements at our DAN doctor's suggestion, but nothing has helped with this behavior. Maybe I just need to up the dose of his vitamin mixture. " " <Dormmom34@...> 10/21/2004 02:50 PM Please respond to autism To autism cc Subject Vitamin Therapy My daughter was placed on Vitamins by her M.D. She was experiencing severe Pica (eating non-food items.) Since she rejected any form of chewables, we used Pediasure. You can buy a generic brand at Wal- mart that is less expensive than the name brand. We ended up taking her off the Pediasure, because of weight gain, but it resolved the Pica issues. I don't know if it is CF, or not...? Rome, Georgia Planet Earth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 He could just be seeking sensory input, and not actually need more vitamins. You can only absorb so much of most vitamins, so increasing them usually doesn't do any good. Amnesty > : > > It isn't CF, but that is interesting. My son chews on sticks, but doesn't > try to swallow them. We've tried a lot of supplements at our DAN doctor's > suggestion, but nothing has helped with this behavior. Maybe I just need > to up the dose of his vitamin mixture. > > > > > > > > > " " <Dormmom34@a...> > 10/21/2004 02:50 PM > Please respond to > autism > > > To > autism > cc > > Subject > Vitamin Therapy > > > > > > > > > My daughter was placed on Vitamins by her M.D. She was experiencing > severe Pica (eating non-food items.) Since she rejected any form of > chewables, we used Pediasure. You can buy a generic brand at Wal- > mart that is less expensive than the name brand. We ended up taking > her off the Pediasure, because of weight gain, but it resolved the > Pica issues. I don't know if it is CF, or not...? > > > Rome, Georgia > Planet Earth > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Amnesty: Good point. We give him Kirman's Complete, which dissolves in a drink. I'm not sure he drinks all of it, though, so I think I may just add a 1/2 teaspoon to another drink later in the day, to see if that helps. " Amnesty " <amnestyb@...> 10/21/2004 11:00 PM Please respond to autism To autism cc Subject Re: Vitamin Therapy He could just be seeking sensory input, and not actually need more vitamins. You can only absorb so much of most vitamins, so increasing them usually doesn't do any good. Amnesty > : > > It isn't CF, but that is interesting. My son chews on sticks, but doesn't > try to swallow them. We've tried a lot of supplements at our DAN doctor's > suggestion, but nothing has helped with this behavior. Maybe I just need > to up the dose of his vitamin mixture. > > > > > > > > > " " <Dormmom34@a...> > 10/21/2004 02:50 PM > Please respond to > autism > > > To > autism > cc > > Subject > Vitamin Therapy > > > > > > > > > My daughter was placed on Vitamins by her M.D. She was experiencing > severe Pica (eating non-food items.) Since she rejected any form of > chewables, we used Pediasure. You can buy a generic brand at Wal- > mart that is less expensive than the name brand. We ended up taking > her off the Pediasure, because of weight gain, but it resolved the > Pica issues. I don't know if it is CF, or not...? > > > Rome, Georgia > Planet Earth > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Hi all While surfing on my computer acouple of weeks ago I ran across an artical about vitamins and autism, specificaly B6 and Magnisium. The recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the dosage every 3 to 4 days. you of course have to give a multivitamin with this as to not create a dificinecy. I started my son on this about 3 weeks ago and this week I am seeing marked improvement in behavior, less anixiety. Just a happier more balanced kid in general. has anyone else tried this? if so did it help? Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Ingrid, I also have tried the B6 and Magnesium vitamin therapy with my 6 year old daughter and I definitely saw an improvement in her behavior. Vicki ( ) vitamin therapy Hi all While surfing on my computer acouple of weeks ago I ran across an artical about vitamins and autism, specificaly B6 and Magnisium. The recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the dosage every 3 to 4 days. you of course have to give a multivitamin with this as to not create a dificinecy. I started my son on this about 3 weeks ago and this week I am seeing marked improvement in behavior, less anixiety. Just a happier more balanced kid in general. has anyone else tried this? if so did it help? Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Ingrid, could you please post the link from the site you found on vitamin therapy? This is something I am definately interested in, I really hate having my son so medicated and I'm ready to try just about anything! Thanks =) Theresa Vicki <vsmith@...> wrote: Ingrid, I also have tried the B6 and Magnesium vitamin therapy with my 6 year old daughter and I definitely saw an improvement in her behavior. Vicki ( ) vitamin therapy Hi all While surfing on my computer acouple of weeks ago I ran across an artical about vitamins and autism, specificaly B6 and Magnisium. The recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the dosage every 3 to 4 days. you of course have to give a multivitamin with this as to not create a dificinecy. I started my son on this about 3 weeks ago and this week I am seeing marked improvement in behavior, less anixiety. Just a happier more balanced kid in general. has anyone else tried this? if so did it help? Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 we tried this but, my son gagged on the stuff so we discontinued. what form are you giving your son? liquid or pill? we went thru a place called kirkman let me know carrie iamiller98366 <ingrid322@...> wrote: Hi all While surfing on my computer acouple of weeks ago I ran across an artical about vitamins and autism, specificaly B6 and Magnisium. The recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the dosage every 3 to 4 days. you of course have to give a multivitamin with this as to not create a dificinecy. I started my son on this about 3 weeks ago and this week I am seeing marked improvement in behavior, less anixiety. Just a happier more balanced kid in general. has anyone else tried this? if so did it help? Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 I wanted to start my son on the same vit's, but couldn't get the primary care Dr. to support us since the dosages were so high. Not to sound niave, how did you figure out the correct dosage amount to administer? Thanks, > > Hi all > > While surfing on my computer acouple of weeks ago I ran across an > artical about vitamins and autism, specificaly B6 and Magnisium. The > recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. > Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the > dosage every 3 to 4 days. you of course have to give a multivitamin > with this as to not create a dificinecy. > > I started my son on this about 3 weeks ago and this week I am seeing > marked improvement in behavior, less anixiety. Just a happier more > balanced kid in general. has anyone else tried this? if so did it help? > > Ingrid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Interesting post. I just started my son on Melatonin 3 mg at night to help him sleep and St. 's Wort during the day. The Melatonin was recommended by our therapist. I started him on the St. s Wort because I didn't know what else to try. I can tell a difference in the daily reports I get from his teachers, but the anxiety is still there. I will have to look into the B6 and Magnesium. Thanks for the info. Marsha iamiller98366 <ingrid322@...> wrote: Hi all While surfing on my computer acouple of weeks ago I ran across an artical about vitamins and autism, specificaly B6 and Magnisium. The recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the dosage every 3 to 4 days. you of course have to give a multivitamin with this as to not create a dificinecy. I started my son on this about 3 weeks ago and this week I am seeing marked improvement in behavior, less anixiety. Just a happier more balanced kid in general. has anyone else tried this? if so did it help? Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Dear Marsha, you are the first person I read that wrote about St. s Wart. I (myself) took it going through a very ugly marriage. (another story). this helped me and I would highly recommend it. My daughter does not have a DX but has concerns with another problem. I want to put her on the children's " St. 's Wart " she is age 7 approx 70lbs solid weight. I didn't put her on it because I don't know how much to give her. I Will Not give her psych medication. (My personal reasons). but I will try St. 's Wart. I know she would benefit from it.) would you know how much to give her?. You can also e-mail me direct if you like. can you tell me more about your experience with it. when did you start?, how soon did you notice improvement & improvement with what? Would you continue it? Thank you - Rose Marsha White <mabwhite89@...> wrote: Interesting post. I just started my son on Melatonin 3 mg at night to help him sleep and St. 's Wort during the day. The Melatonin was recommended by our therapist. I started him on the St. s Wort because I didn't know what else to try. I can tell a difference in the daily reports I get from his teachers, but the anxiety is still there. I will have to look into the B6 and Magnesium. Thanks for the info. Marsha iamiller98366 <ingrid322@...> wrote: Hi all While surfing on my computer acouple of weeks ago I ran across an artical about vitamins and autism, specificaly B6 and Magnisium. The recomended dosage was 6mg of B6 per pound and 2 mg pp of magnisium. Starting at 2 mg pp of B6 and 1 mg pp of magnisum and increasing the dosage every 3 to 4 days. you of course have to give a multivitamin with this as to not create a dificinecy. I started my son on this about 3 weeks ago and this week I am seeing marked improvement in behavior, less anixiety. Just a happier more balanced kid in general. has anyone else tried this? if so did it help? Ingrid Quote Link to comment Share on other sites More sharing options...
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