Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Aww, , I feel your pain -- hugs to you, it's no picnic and people just don't get it. I am tempted to buy one of the shirts for events where I know people will stare if he starts to act out. I too tire of people thinking 'he looks fine to me' or 'that's normal behavior,' when they don't realize that while that one thing itself may be normal behavior, if he does it 50x a day, it's not, or he carries it to extremes so a normal behavior is no longer 'normal.' It's frustrating. But, as my neuro has told me more than once, we have to ignore those people -- they are ignorant and won't understand until they're in the same boat, and while I'd not wish it on anyone, there are times where I feel so blessed that my son is so unique and clever and think how maybe we're the abnormal ones, if that makes sense. He does what he wants, dances in the middle of the street, is honest, etc., without worrying what others think, and the rest of us walk around worried about it. My thoughts are with you... Donna wrote: > > I wish there was a Public service Announcement about Autism. > > A voice over says: The many faces of autism aren't what you think. > > And then show a variety of people with autism doing whatever it is > they do. Some who avoid eye contact and some who " look normal " and > everything in between. > > You can't tell if someone has autism and I'm sick of my son being > misunderstood and my family getting weird looks about it. > > Cafepress has a tshirt that reads: I'm not spoiled or a brat or rude. > I have autism. > > They also carry one that reads: I have autism. What's your excuse? > > Maybe I'll buy both. I want to scream at everyone about it, " STOP > JUDGING!!!!! " > > Ok, I'm all crying now. It's been a rough couple of weeks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 I often think the same thing . There needs to be a community awareness campaign about the many degrees of autism. People either have this idea that autism means a person like rain man or they think of classic autism. Our poor misunderstood kids have a hard enough time in society without the ignorance of onlookers. Beck ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here Thanks for the welcome, everyone. I think I ended up posting another intro, too, because this one didn't come through for a week or more. Odd. LOL! Anyway, school starts in 2.5 weeks and I'm NERVOUS! We'll walk Max to school each morning (love living close by!) and walk home each afternoon. I hope he does well in school. I'll have to talk to his teacher & the principal about evaluation. We'll see what happens. He's a good boy, but I'll tell ya, the interaction w/ friends who don't know we're in the process of eval hasn't been easy. I tend to just blurt it out so that they know and won't hold his behavior against him. I know some of our acquaintances htink he's a brat and I'm looney, but that's why they're acquaintances and not friends! Currently we're dealing w/ a boy who likes to surprise us, but he does so by YELLING in our ears or pinching our legs! Any help n that? I can't figur eout how to make him stop! Also, when he fights discipline (time out) he FIGHTS w/ kicking and punching and I get hurt. What do I do? Everything I read says to continue teaching them as you would an NT kid. Don't let unacceptable behavior go, in other words. But HOW do I make him quit hitting and kicking me? It's not EVERY time, but it's definitely often neough that I get worn out form it and any onlookers who might be nearby htink he's a brat or somehting. If he's not avoiding eye contact or staring into space or focused on a train then he isn't autistic. You know? I wish there was a Public service Announcement about Autism. A voice over says: The many faces of autism aren't what you think. And then show a variety of people with autism doing whatever it is they do. Some who avoid eye contact and some who " look normal " and everything in between. You can't tell if someone has autism and I'm sick of my son being misunderstood and my family getting weird looks about it. Cafepress has a tshirt that reads: I'm not spoiled or a brat or rude. I have autism. They also carry one that reads: I have autism. What's your excuse? Maybe I'll buy both. I want to scream at everyone about it, " STOP JUDGING!!!!! " Ok, I'm all crying now. It's been a rough couple of weeks. ~ > > Welcome, ...this is a wonderful place for information and > encouragement---in my opinion ;-) Looking forward to getting to know you and your family > better... > Blessings, > Gail > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 I don't necessarily agree that you would treat a child with autism " the same " as a typical child. There is a lot more work involved, IMO. For behaviors, in general, you need to find out the purpose of the behavior and then try teaching a behavior that will take the place of the behavior you don't like. So if he is fighting you, it could be he doesn't want to get a time out (just guessing, but probably a good guess) and so he fights against it. I would start teaching him the " time out rules " and when he is in a good mood and not upset, teach him how it will be when he gets in trouble. " When you smack your sister, you will be sent to time out. You will sit on this chair for 3 minutes. Then if you have behaved, you will apologize to sister and be allowed to leave the time out chair. " Practice it. Write the list down (or use pictures if he can't read.) Another thing is that some kids can't follow the rules when they are screaming and angry no matter how hard you practice. My older ds would throw the time out chair at me but would not sit in it. And like you, I was bruised from the battle. I learned to drag him to his room and shut the door instead of trying to use one chair. So he had a " time out room " really. But it was easier for me to implement. My younger ds, he was taught before he started having " meltdowns " to " learn self control. " He would practice his " self control " on a regular basis at school by sitting on his hands and counting to ten. It was part of his program. It got so that when he was starting to yell, the teacher would just have to say, " Use your self control " and he knew he had to stop screaming or he would have to sit on his hands and count. I don't know how that worked so well. I can't imagine that working with my older ds. But at any rate, if he is doing something - it could be he doesn't know a better way to ask for something or a better way to engage your interest or whatever it is he is wanting. Once you figure out why he's doing it, you can teach him better behaviors or more appropriate ones. Roxanna ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here Thanks for the welcome, everyone. I think I ended up posting another intro, too, because this one didn't come through for a week or more. Odd. LOL! Anyway, school starts in 2.5 weeks and I'm NERVOUS! We'll walk Max to school each morning (love living close by!) and walk home each afternoon. I hope he does well in school. I'll have to talk to his teacher & the principal about evaluation. We'll see what happens. He's a good boy, but I'll tell ya, the interaction w/ friends who don't know we're in the process of eval hasn't been easy. I tend to just blurt it out so that they know and won't hold his behavior against him. I know some of our acquaintances htink he's a brat and I'm looney, but that's why they're acquaintances and not friends! Currently we're dealing w/ a boy who likes to surprise us, but he does so by YELLING in our ears or pinching our legs! Any help n that? I can't figur eout how to make him stop! Also, when he fights discipline (time out) he FIGHTS w/ kicking and punching and I get hurt. What do I do? Everything I read says to continue teaching them as you would an NT kid. Don't let unacceptable behavior go, in other words. But HOW do I make him quit hitting and kicking me? It's not EVERY time, but it's definitely often neough that I get worn out form it and any onlookers who might be nearby htink he's a brat or somehting. If he's not avoiding eye contact or staring into space or focused on a train then he isn't autistic. You know? I wish there was a Public service Announcement about Autism. A voice over says: The many faces of autism aren't what you think. And then show a variety of people with autism doing whatever it is they do. Some who avoid eye contact and some who " look normal " and everything in between. You can't tell if someone has autism and I'm sick of my son being misunderstood and my family getting weird looks about it. Cafepress has a tshirt that reads: I'm not spoiled or a brat or rude. I have autism. They also carry one that reads: I have autism. What's your excuse? Maybe I'll buy both. I want to scream at everyone about it, " STOP JUDGING!!!!! " Ok, I'm all crying now. It's been a rough couple of weeks. ~ . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 On Aug 4, 2006, at 1:39 PM, Roxanna wrote: > > Another thing is that some kids can't follow the rules when they > are screaming and angry no matter how hard you practice. My older > ds would throw the time out chair at me but would not sit in it. > And like you, I was bruised from the battle. I learned to drag him > to his room and shut the door instead of trying to use one chair. > So he had a " time out room " really. But it was easier for me to > implement. Ah, you should read my parents' dissenting decision to our manifestation determination!! They were saying " Well, at the beginning of the year, was he listening when you told the class that there is a rule against pushing at this school? " Well, ya. But he was taking a break in his Cool Zone after his classroom teacher had said something rude to him, then yelled at him to go to the Cool Zone. Another teacher came in and said " I can tell you're not asleep, your eyes are moving. " He pushed her. Words were said, but then they went on with the spelling test, as if that was important. And kept going even though he threw the pencil, threw the paper, cried, yelled, etc. Which led to a worse offense. Rational thought processes had been suspended at this point. From the classroom teacher, I got (paraphrased here) " well, I am only human, I have emotions, of course I was frustrated. " My kid is supposed to have control of his emotions and actions, though. He's human, too. He's 10. And he has a neurological disorder. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 I never could understand why there is an urge to push a child already having trouble gaining control of himself. Why would they provide a " cool down " place but not let him COOL DOWN? I imagine you wanted to strangle a few people listening to that. Roxanna Re: ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here On Aug 4, 2006, at 1:39 PM, Roxanna wrote: > > Another thing is that some kids can't follow the rules when they > are screaming and angry no matter how hard you practice. My older > ds would throw the time out chair at me but would not sit in it. > And like you, I was bruised from the battle. I learned to drag him > to his room and shut the door instead of trying to use one chair. > So he had a " time out room " really. But it was easier for me to > implement. Ah, you should read my parents' dissenting decision to our manifestation determination!! They were saying " Well, at the beginning of the year, was he listening when you told the class that there is a rule against pushing at this school? " Well, ya. But he was taking a break in his Cool Zone after his classroom teacher had said something rude to him, then yelled at him to go to the Cool Zone. Another teacher came in and said " I can tell you're not asleep, your eyes are moving. " He pushed her. Words were said, but then they went on with the spelling test, as if that was important. And kept going even though he threw the pencil, threw the paper, cried, yelled, etc. Which led to a worse offense. Rational thought processes had been suspended at this point. From the classroom teacher, I got (paraphrased here) " well, I am only human, I have emotions, of course I was frustrated. " My kid is supposed to have control of his emotions and actions, though. He's human, too. He's 10. And he has a neurological disorder. Jackie . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 I just made another connection, which I just take for granted. ph hates being held under his arms (in his pits). After his two pushing things that made them determined to get him to office, they got him into a couple different holds. And he fought it. Hmmm. Aside from the fact he was definitely overwhelmed at that point, I bet you anything the holds involved putting their arms in his armpits. He hates that even when he's in a good mood. He dug his fingernails into his teacher's hands in an escape attempt, and drew blood. We didn't bring that up much at our meeting since that's not why he was suspended. The plan we put together at the end of the year states that noone is to enter the Cool Zone unless he is in imminent danger of hurting himself. They are supposed to wait outside until he is ready to come out. They are to talk outside the Cool Zone, and if it gets overwhelming for him again, he can go back into the Cool Zone. I just requested the official district policy on physical contact from the principal. I need to know what they allow as far as positive gestures, because some districts are really strict about even pats on the back and such. But also what holds and under what circumstances. If they all involve grabbing him under the arms, he is going to fiercely fight it. Jackie On Aug 4, 2006, at 6:22 PM, Roxanna wrote: > I never could understand why there is an urge to push a child > already having trouble gaining control of himself. Why would they > provide a " cool down " place but not let him COOL DOWN? I imagine > you wanted to strangle a few people listening to that. > > Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Also see if they are trained in appropriate holding techniques. People can get hurt and even killed when they are being held down inappropriately. So you might want to see if anyone is trained to do this before they all sit on him. A boy here had his hand broken when the teacher dragged him down to the office. ugh, can you imagine? Another thing is to put this information in a Behavior plan and attach it to the IEP. Make sure it's all written down what they can and cannot do. Roxanna Re: ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here I just made another connection, which I just take for granted. ph hates being held under his arms (in his pits). After his two pushing things that made them determined to get him to office, they got him into a couple different holds. And he fought it. Hmmm. Aside from the fact he was definitely overwhelmed at that point, I bet you anything the holds involved putting their arms in his armpits. He hates that even when he's in a good mood. He dug his fingernails into his teacher's hands in an escape attempt, and drew blood. We didn't bring that up much at our meeting since that's not why he was suspended. The plan we put together at the end of the year states that noone is to enter the Cool Zone unless he is in imminent danger of hurting himself. They are supposed to wait outside until he is ready to come out. They are to talk outside the Cool Zone, and if it gets overwhelming for him again, he can go back into the Cool Zone. I just requested the official district policy on physical contact from the principal. I need to know what they allow as far as positive gestures, because some districts are really strict about even pats on the back and such. But also what holds and under what circumstances. If they all involve grabbing him under the arms, he is going to fiercely fight it. Jackie On Aug 4, 2006, at 6:22 PM, Roxanna wrote: > I never could understand why there is an urge to push a child > already having trouble gaining control of himself. Why would they > provide a " cool down " place but not let him COOL DOWN? I imagine > you wanted to strangle a few people listening to that. > > Roxanna ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.10.5/407 - Release Date: 8/3/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 You better believe it! I took a big risk and emailed the teacher another question tonight. In March, I asked him whether they had told him much about my son or AS or if this was a baptism by fire. He said baptism. I requested the inservice stuff and thought it was pretty good. But I don't know if that is what he received or not. And as I went through it again, it's sorta lofty stuff and covers things that aren't necessarily Asperger level, KWIM? It makes sense to me because I've been living it for a decade. But for the uninitiated... Of course, every child is different, too. So I asked him if the material he got (whatever that was) was too technical, too general, not enough or if my son was just so over the top nothing could have prepared him. I told him all of the above and that I was prepping some stuff for this upcoming year. But I said I completely understand if he didn't want to discuss it. :-) I don't think he'll answer (it was a loooong year), but it's worth a try. Jackie On Aug 4, 2006, at 7:24 PM, Roxanna wrote: > Also see if they are trained in appropriate holding techniques. > Another thing is to put this information in a Behavior plan and > attach it to the IEP. Make sure it's all written down what they > can and cannot do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 So they did an inservice? Maybe they could do " ongoing " inservicing and not just one teacher but teachers that will be coming up for him as well. That might help. Sometimes just " one " inservice is just not going to get it. Then behaviors happen and they want to know what to do, never connecting the dots between the information and the behaviors. One year things were going terribly for my older ds (5th grade!) and we did at least get inservicing once a month. But of course, that didn't help since the teachers didn't really pay attention or apply anything. I remember a parent/teacher conference where the teacher did not even bother to say a nice thing about my kid before she began, " He spins constantly. He spins his pencils, his ruler, he is obsessive and compulsive... " and on she went. My dh started yelling, " Really? Do ya think he might be autistic? " It was so awful but of course, now, I can laugh. But then, ay-yi-yi!! Roxanna Re: ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here You better believe it! I took a big risk and emailed the teacher another question tonight. In March, I asked him whether they had told him much about my son or AS or if this was a baptism by fire. He said baptism. I requested the inservice stuff and thought it was pretty good. But I don't know if that is what he received or not. And as I went through it again, it's sorta lofty stuff and covers things that aren't necessarily Asperger level, KWIM? It makes sense to me because I've been living it for a decade. But for the uninitiated... Of course, every child is different, too. So I asked him if the material he got (whatever that was) was too technical, too general, not enough or if my son was just so over the top nothing could have prepared him. I told him all of the above and that I was prepping some stuff for this upcoming year. But I said I completely understand if he didn't want to discuss it. :-) I don't think he'll answer (it was a loooong year), but it's worth a try. Jackie On Aug 4, 2006, at 7:24 PM, Roxanna wrote: > Also see if they are trained in appropriate holding techniques. > Another thing is to put this information in a Behavior plan and > attach it to the IEP. Make sure it's all written down what they > can and cannot do. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.10.5/407 - Release Date: 8/3/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 I listened to their phrasing very carefully. When they gave me the inservice material, they said it was for his fifth grade teacher. Not " this is what we always use. " But I could just be being anal. LOL At Back to School night, because of the teacher's little presentation, I went and asked him if someone had clued him in on ph's special needs. He said yes, he's been working with the resource gal and ph's very bright. That's not what I was asking. It could be that he didn't really want to talk at length with anyone standing around, or could mean he didn't really have much beyond the IEP. And this was a year of whole new levels of autistic behavior. Thinking he had a good base on knowledge, I just gave him some general info that I thought would synthesize with the base knowledge. Now I am thinking he didn't have the base I assumed, so he thought I was just trying to get him to change the whole way he runs his classroom. Not a good start. But I could be wrong. There is a lot more going on, which I won't go into again. When we were all in a good mood one day right before school ended, I brought in my dissenting opinion and came to sign the IEP. I joked to the resource gal that maybe this year we could get away with 1 case conference instead of 4...how I love them all, but (we can't spend this much time together). She said they felt the same way about me. I said " we'll just keeping adding things until it works. " Now I am thinking a monthly meeting might not be so bad. If anything starts going downhill, I will be at that school observing...even autistic children don't go ballistic without a reason. Jackie On Aug 4, 2006, at 9:01 PM, Roxanna wrote: > So they did an inservice? Maybe they could do " ongoing " > inservicing and not just one teacher but teachers that will be > coming up for him as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2006 Report Share Posted August 5, 2006 Monthly meetings are not bad in some respects. Yes, you do have to go in every month and smile at everyone so that's the bad part. <g> For me, it helped in many ways though. They started revealing problems he was having that I never got to hear about in just one meeting where they come up with two nice things to say and that's it. lol. So they started feeling more comfortable and started talking more. I got a more accurate picture of them and my ds. I could also start handing out little " factoids " . That way you don't have to overwhelm them with all sorts of information at one time. You can spread it out and more chance that they will read it. OR, alternately you can read it at the meeting if you don't think they will actually read it. They will also tell you more details and you have a chance to educate them as to why he did this or that. This helps save the entire year where they decide he's just being a brat and needs to learn some responsibility. With each successful problem, they let it confirm their " theory. " This way, you can stop that theory or at least pause it. I did monthly meetings with my younger ds for several years as well because we ran an ABA program. That helped me see where he was at exactly plus I could get the data monthly. You can do this if there is a behavior problem - make up a form for them to take data on - how often does he do it? what each person did in response and the effect it had. You can figure things out that way or at least show the need for an aide as well. Roxanna Re: ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here I listened to their phrasing very carefully. When they gave me the inservice material, they said it was for his fifth grade teacher. Not " this is what we always use. " But I could just be being anal. LOL At Back to School night, because of the teacher's little presentation, I went and asked him if someone had clued him in on ph's special needs. He said yes, he's been working with the resource gal and ph's very bright. That's not what I was asking. It could be that he didn't really want to talk at length with anyone standing around, or could mean he didn't really have much beyond the IEP. And this was a year of whole new levels of autistic behavior. Thinking he had a good base on knowledge, I just gave him some general info that I thought would synthesize with the base knowledge. Now I am thinking he didn't have the base I assumed, so he thought I was just trying to get him to change the whole way he runs his classroom. Not a good start. But I could be wrong. There is a lot more going on, which I won't go into again. When we were all in a good mood one day right before school ended, I brought in my dissenting opinion and came to sign the IEP. I joked to the resource gal that maybe this year we could get away with 1 case conference instead of 4...how I love them all, but (we can't spend this much time together). She said they felt the same way about me. I said " we'll just keeping adding things until it works. " Now I am thinking a monthly meeting might not be so bad. If anything starts going downhill, I will be at that school observing...even autistic children don't go ballistic without a reason. Jackie On Aug 4, 2006, at 9:01 PM, Roxanna wrote: > So they did an inservice? Maybe they could do " ongoing " > inservicing and not just one teacher but teachers that will be > coming up for him as well. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 I guess, what I meant is, do I need to change the way I treat him, and I have, of course since answered my own question. I find myself with more patience and understanding towards him. I know you can understand this is all very new to me and although some ignorant people would tell me something is wrong with , (or better yet they would discuss him behind my back for me to find out later). I know you didn't ask for all of this, but I would like to talk about the dx....at the eval. the Dr. said some positive things, however he kept saying Aspergers is nothing but a little nerdy behaviour when he is a teenager...so, when I got my dx letter...his official dx is ADHD, Dysgraphia and some kind of Language problem. Possible Asperger Syndrom or some autistic tendancies.....that will require futher eval. I was told to put him in regular school, (he is 5 and going into kindergarden), but to talk to his teachers. I tried, but no one would talk to me...we don't start school until 9/5..and I do know they don't have any Autistic children in the school...so my anxiety increases daily.....he does have upcoming appts with an OT and a ST....so there is a little hope, unfortunately it took so long to get all these appts....I may have to move him after school starts...and my ds doesn't like change at all....I really think he has AS, after doing tons of research and reading and writing posts on this website..but why did the Dr. who is a Pediatric Development Dr. make the AS seem so unimportant??? It really scares me..that my ds is not going to get the proper education because everyone is being blind or blase about the AS...any advice would be appreciated..... Signed, very anxious mom of 5, adhd, dysgraphia and possible AS... KIm Roxanna <madideas@...> wrote: Well, I am waaaaay behind in reading emails but how do you know you have treated him " the same? " Roxanna ( ) pinching, yelling, fighting discipline- help! / was Re: Hi, new here Thanks for the welcome, everyone. I think I ended up posting another intro, too, because this one didn't come through for a week or more. Odd. LOL! Anyway, school starts in 2.5 weeks and I'm NERVOUS! We'll walk Max to school each morning (love living close by!) and walk home each afternoon. I hope he does well in school. I'll have to talk to his teacher & the principal about evaluation. We'll see what happens. He's a good boy, but I'll tell ya, the interaction w/ friends who don't know we're in the process of eval hasn't been easy. I tend to just blurt it out so that they know and won't hold his behavior against him. I know some of our acquaintances htink he's a brat and I'm looney, but that's why they're acquaintances and not friends! Currently we're dealing w/ a boy who likes to surprise us, but he does so by YELLING in our ears or pinching our legs! Any help n that? I can't figur eout how to make him stop! Also, when he fights discipline (time out) he FIGHTS w/ kicking and punching and I get hurt. What do I do? Everything I read says to continue teaching them as you would an NT kid. Don't let unacceptable behavior go, in other words. But HOW do I make him quit hitting and kicking me? It's not EVERY time, but it's definitely often neough that I get worn out form it and any onlookers who might be nearby htink he's a brat or somehting. If he's not avoiding eye contact or staring into space or focused on a train then he isn't autistic. You know? I wish there was a Public service Announcement about Autism. A voice over says: The many faces of autism aren't what you think. And then show a variety of people with autism doing whatever it is they do. Some who avoid eye contact and some who " look normal " and everything in between. You can't tell if someone has autism and I'm sick of my son being misunderstood and my family getting weird looks about it. Cafepress has a tshirt that reads: I'm not spoiled or a brat or rude. I have autism. They also carry one that reads: I have autism. What's your excuse? Maybe I'll buy both. I want to scream at everyone about it, " STOP JUDGING!!!!! " Ok, I'm all crying now. It's been a rough couple of weeks. ~ .. Quote Link to comment Share on other sites More sharing options...
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