Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 is 5 yrs old and has been diagnosed with Asperger Syndrome. I have been told that it is a good idea to have him Allergy tested. Has anyone else done this? Have you found any allergies that may have made a difference in behavior? Cori mom to 5, AS and ph 8, Lt Clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hello, what kind of allergy testing was done? mytwoboys97_00 <mytwoboys97_00@...> wrote: is 5 yrs old and has been diagnosed with Asperger Syndrome. I have been told that it is a good idea to have him Allergy tested. Has anyone else done this? Have you found any allergies that may have made a difference in behavior? Cori mom to 5, AS and ph 8, Lt Clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 We did the Great Plains Laboratory testing. It was extremely helpful, and worth the money. > > is 5 yrs old and has been diagnosed with Asperger Syndrome. I > have been told that it is a good idea to have him Allergy tested. Has > anyone else done this? Have you found any allergies that may have made > a difference in behavior? > > Cori > mom to 5, AS > and ph 8, Lt Clubfoot > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 I haven't had him tested yet, I was wondering if anyone else did, I see some posts regarding allergies and I am definitely going to get allergy tested. I used to work for an allergist and I might take his there, being they will test what I need. I just hate having to put him through the testing. > is 5 yrs old and has been diagnosed with Asperger Syndrome. I > have been told that it is a good idea to have him Allergy tested. Has > anyone else done this? Have you found any allergies that may have made > a difference in behavior? > > Cori > mom to 5, AS > and ph 8, Lt Clubfoot > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 I haven't had him tested yet, I was wondering if anyone else did, I see some posts regarding allergies and I am definitely going to get allergy tested. I used to work for an allergist and I might take his there, being they will test what I need. I just hate having to put him through the testing. > is 5 yrs old and has been diagnosed with Asperger Syndrome. I > have been told that it is a good idea to have him Allergy tested. Has > anyone else done this? Have you found any allergies that may have made > a difference in behavior? > > Cori > mom to 5, AS > and ph 8, Lt Clubfoot > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Hi everyone- This is my favorite topic because I am going though it right now with DS, Connor AS age 6. Our issues have been intertwined with his resistance to a variety of foods. I also suspected allergies and a sugar sensitivity (maybe due to lack of protien?). He had been tested several times and I even had a second opinion. NO ONE wanted to do more than a tyne test--and the results varied even within the same practitioner's testing. Skin test one said- allergies to mold, mildew, pollen, and slight chocolate reation Skin test two- same environmental allergies, no to chocolate, yes to peanuts Skin test 3- another ped allergist did extensive testing up each of his arms on ANYthing suspected, peanuts, chocolate, etc. and came back with NO ALLERGIES at all! Hmmm...went to an opthamologist with my daughter--she takes one look at my son and says " allergies " -- refers to the dark circles under his eyes and bumps on his inner lower lids. I said, " What should I do?? " She says-- nothing unless he is symptomatic, then maybe some drops-- Diet became increasingly limited once he hit the age of 3 to the point of gagging over the sight of new foods. The gagging subsided as he became very stringent on what he would and would not ingest and it got worse from there. He turned 6 in August, still normal on the height and weight charts. Having been diagnosed with AS last February, we went to a conference on " Food & Mood, nutrition for children on the spectrum " -- in walks a radical chiropractor who is a young 50 years old, totally dedicated to the connection of food sensitivities and behavior (and subsequentially disease) as well as intensely against the modern methods of vaccinations (36 shots given before the age of 2 where the child hasn't fully developed their own immune system). He describes himself as somewhat of a general practitioner. He is the director of a wellness center, has a reiki practioner, nutritionist, massage therapist and a holistic pediatrician working there. Well, here is what happened: $50 to see him with my son for an initial consult. He reviews the case and we set an appointment to meet with him as parents only ($150), he spends well over an hour reviewing every report you have on your child, he recommends removing casein and gluten from the child's diet (he recommends this for everyone, he himself is GFCF as well as shellfish free, meat free, alcohol free, etc.) he also says stop all vitamins (he does not believe in a one size fits all vitamin) He begins treatment of your child with light massage type chiro visits ($20 a visit every two weeks) and begins blood and urinework on the child. Testing is all out-of-pocket, some reimbursement may be obtained under the chiropractic aspect. 3 tests were given- testing what toxins were present in the body, the body's ability to detoxify, also to test if the child is nutrient deficient (finally!!) and lastly to examine late onset food sensitivities. I am waiting on the last results. It is remarkable the change in Connor: dark circles have lifted, better school performance, improved eye gaze and attention, decreased fatigue and we only started in November. The doc promises to develop a custom vitamin for Connor once the results are in for his nutritional needs. He has however started him on some homeopathic remedies for toxins and parasites (eek--he actually had a substantial amount of spider venom in him, the doc says that is common!) in the form of drops I put in his drinks, he also gave him a probiotic to increase the good bacteria in his stomach and decrease the bad, and also an EFA (kids strawberry-flavored chewable cod liver oil...and my picky eater LOVES them!) Thanks for those of you who stuck with my long winded sharing--I still don't know how it will all turn out but in the meantime, I have a kid that lived on gluten and milk that has quite willingly given it all up and is much better for it so far. Skin tests told me nothing, it was only going to someone radical like this that I was able to get some more information on what was going on in my son's body....and PS- there were flu vaccine toxins in his blood too! Try whatever you feel is right for you but just know there are doctors out there (apparently hiding as chiropractors!) who can and will take you very seriously and do any and all the testing that others seem to not want to do. Good luck and God bless-- Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 > > I haven't had him tested yet, I was wondering if anyone else did, I > see some posts regarding allergies and I am definitely going to get > allergy tested. I used to work for an allergist and I might > take his there, being they will test what I need. I just hate having > to put him through the testing. ******** IGE allergy testing is not difficult at all any longer. After having the IGG testing done through Great Plains Lab via blood serum we went to our Ped for help in decifering all of this. He sent us on a wild goose chase of sorts to a doctor at Childrens in Columbus Ohio ( well respected hospital ). After driving all that way and having to pay for a hotel since they would " only " give us an 8:00 a.m. appointment he knew NOTHING about IGG allergies. Since we had come a long way we went ahead and had him test her for general IGE allergies. It was a piece of cake.. the just used a skin surface grid and pressed them on the skin..no needles used with exception of testing for bees. The one place that welted up was itchy and she had to refrain from scratching it but that was all the discomfort. Turns out the one and only welt was a test of histamine to determine if she would react. She was not allergic to anything they tested her for and charged me $1500.00 plus a $300.00 service fee for the hospital! ( which I am currently protesting!). Hope this helps. ******* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Alison....Wow - thanks for posting this...I find it terribly interesting. Please let us know what the results are. Also, I have a question....you said your son was a picky eatter living on milk and gluten and willingly gave it up. What does he eat now? If my son gave up both of those there would be nothing left to his current list of foods he will eat. Just curious. I know several people who have had a good deal of success with CFGF diets. Thanks again, Chris > > > > Hi everyone- > This is my favorite topic because I am going though it right now with DS, > Connor AS age 6. Our issues have been intertwined with his resistance to a > variety of foods. I also suspected allergies and a sugar sensitivity (maybe due to > lack of protien?). He had been tested several times and I even had a second > opinion. NO ONE wanted to do more than a tyne test--and the results varied > even within the same practitioner's testing. > Skin test one said- allergies to mold, mildew, pollen, and slight chocolate > reation > Skin test two- same environmental allergies, no to chocolate, yes to peanuts > Skin test 3- another ped allergist did extensive testing up each of his arms > on ANYthing suspected, peanuts, chocolate, etc. and came back with NO > ALLERGIES at all! > Hmmm...went to an opthamologist with my daughter--she takes one look at my > son and says " allergies " -- refers to the dark circles under his eyes and bumps > on his inner lower lids. I said, " What should I do?? " She says-- nothing > unless he is symptomatic, then maybe some drops-- > Diet became increasingly limited once he hit the age of 3 to the point of > gagging over the sight of new foods. The gagging subsided as he became very > stringent on what he would and would not ingest and it got worse from there. He > turned 6 in August, still normal on the height and weight charts. Having been > diagnosed with AS last February, we went to a conference on " Food & Mood, > nutrition for children on the spectrum " -- in walks a radical chiropractor who is a > young 50 years old, totally dedicated to the connection of food sensitivities > and behavior (and subsequentially disease) as well as intensely against the > modern methods of vaccinations (36 shots given before the age of 2 where the > child hasn't fully developed their own immune system). He describes himself as > somewhat of a general practitioner. He is the director of a wellness center, > has a reiki practioner, nutritionist, massage therapist and a holistic > pediatrician working there. > Well, here is what happened: $50 to see him with my son for an initial > consult. He reviews the case and we set an appointment to meet with him as > parents only ($150), he spends well over an hour reviewing every report you have on > your child, he recommends removing casein and gluten from the child's diet (he > recommends this for everyone, he himself is GFCF as well as shellfish free, > meat free, alcohol free, etc.) he also says stop all vitamins (he does not > believe in a one size fits all vitamin) He begins treatment of your child with > light massage type chiro visits ($20 a visit every two weeks) and begins blood > and urinework on the child. Testing is all out-of-pocket, some reimbursement > may be obtained under the chiropractic aspect. 3 tests were given- testing > what toxins were present in the body, the body's ability to detoxify, also to > test if the child is nutrient deficient (finally!!) and lastly to examine late > onset food sensitivities. I am waiting on the last results. > It is remarkable the change in Connor: dark circles have lifted, better > school performance, improved eye gaze and attention, decreased fatigue and we only > started in November. The doc promises to develop a custom vitamin for Connor > once the results are in for his nutritional needs. He has however started him > on some homeopathic remedies for toxins and parasites (eek--he actually had a > substantial amount of spider venom in him, the doc says that is common!) in > the form of drops I put in his drinks, he also gave him a probiotic to increase > the good bacteria in his stomach and decrease the bad, and also an EFA (kids > strawberry-flavored chewable cod liver oil...and my picky eater LOVES them!) > Thanks for those of you who stuck with my long winded sharing--I still don't > know how it will all turn out but in the meantime, I have a kid that lived on > gluten and milk that has quite willingly given it all up and is much better > for it so far. Skin tests told me nothing, it was only going to someone radical > like this that I was able to get some more information on what was going on > in my son's body....and PS- there were flu vaccine toxins in his blood too! > Try whatever you feel is right for you but just know there are doctors out > there (apparently hiding as chiropractors!) who can and will take you very > seriously and do any and all the testing that others seem to not want to do. > Good luck and God bless-- Alison > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I am a bit worried because if he comes back as being > sensitive to PB and corn (which the doctor suspects), I do not know what we > will do for protien. > > > Any suggestions are greatly appreciated--hope this is helpful, Chris!! ********* We went GFCF with my dd for 4 months and are still CF but decided to slowly introduce gluten once again in small amounts. We felt she had more issues with dairy, her test scores were much higher in that catagory and she has lost too much weight. She is also very selective in what she will eat. When we started she was a bit above average in weight but has now lost ten pounds which is a fair amount on a child. I am not sure if it is due to eating less or the fact that she is not eating all the junk she used to but we have had people comment on the weight loss. She lost this weight even on all the supplements they had prescribed. A lifesaver for us was asking the doc if she could have soy. They suggested we give it a try since the test results did not show a significant sensitivity. She refused the rice milk after gagging terribly on it. We have since found 8th Continent which she really likes but won't drink it straight ( only on cereal ) and also Soy Delicious ice cream which she claims is better that the real thing although it sets up like concrete so you have to set it out for a while before scooping. Pamela's cookies were the only treat we found that were not awful but they do have a trace of milk protein. We will probably never go back to regular cereal as she LOVES EnviroKidz Gorilla Munch which we can even buy at Kroger ( they also make a few other flavors ). We found that Potato pasta was much better than rice but found a pasta that combined the two which cooked up the best and did not taste any different from enriched pasta. My daughter scored off the chart on peanuts and was addicted to peanut butter. We replaced it with Almond butter which she liked. We have also tried Soy butter and it was OK too. We have been cooking with coconut oil and as long as we can find it we will buy it diet or no diet ( and no it does not make food taste like coconut ). Another item I like is Stevia for sweetening..I am currently using Stevia Plus which is laced with a prebiotic supplement. Good luck with the diet and I hope you may have found some of this helpful. ********************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 -- thank you soooo much for the feedback-- very helpful indeed and thanks to everyone. More than anything, the relief comes in knowing you are not alone!! Thanks so much for the tips!! Alison Quote Link to comment Share on other sites More sharing options...
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