RE: Teenage Boy with Aspergers

[Guest guest]

It's funny you should send me this info. I was looking into an Advocacy

group locally to help families new to the system and AS. I probably wont

make much difference since I'm neck deep in it myself, however a lot of

people have questions regarding symptoms in early childhood & we have

already been there. Anyway, I have to go to Richmond to become an Advocate

first. So, thank you for the address & phone #. I will call on Monday.

How do you find all this info?? As much as I'm on my computer to work, I

rarely have time to surf the net, so to speak.

_____

From:

[mailto: ] On Behalf Of ppanda65@...

Sent: Thursday, January 05, 2006 7:08 AM

Subject: Re: ( ) Teenage Boy with Aspergers

In a message dated 1/4/2006 9:48:34 PM Eastern Standard Time,

michellepbj@... writes:

I am so angry at this system right now, I will be hiring a

lawyer tomorrow to go with me & AJ to the hearing.

, I'm assuming you are in Virginia? You need to contact these

people ASAP.

PROTECTION AND ADVOCACY AGENCY

Reen, Director

Department for Rights of Virginians with Disabilities

Ninth St. Office Building, 9th Floor

202 North 9th Street

Richmond, VA 23219

(804) 225-2042 (Voice/TTY); (800) 552-3962 (In VA)

[Guest guest]

On Fri, 2006-01-06 at 11:18, Liz Bohn wrote:

> She should be okay, Roxanna. She'll have to take Coumadin all her

> life,

> which is a blood thinner. So she'll bruise very easily. And she may

> well have problems having children the biological way. Women do, but

> the rate of miscarriage and stillbirth is very high. But as long as

> she

> takes her Coumadin, she'll be fine. She's just grumbly about it. Right

> now she's in the " Why me? " stage.

>

** Does she have anti-cardio lipins?

** **

>

> ______________________________________________________________________

[Guest guest]

Yes, she does. And we think she has anticardiolipin syndrome as well,

which is an autoimmune condition. Which means that she's a lifer on

Coumadin. Ugh. But, to look on the bright side, at least they have

these meds now!

Liz

On Jan 7, 2006, at 7:13 PM, wrote:

> On Fri, 2006-01-06 at 11:18, Liz Bohn wrote:

>> She should be okay, Roxanna. She'll have to take Coumadin all her

>> life,

>> which is a blood thinner. So she'll bruise very easily. And she may

>> well have problems having children the biological way. Women do, but

>> the rate of miscarriage and stillbirth is very high. But as long as

>> she

>> takes her Coumadin, she'll be fine. She's just grumbly about it. Right

>> now she's in the " Why me? " stage.

>>

>

>

>

> ** Does she have anti-cardio lipins?

>

> ** **

>>

>> ______________________________________________________________________

>

>

>

>

>

[Guest guest]

, I work as a Special Education Family Support Coordinator for my

local Parent Information Network, so I have a lot of time to research supports

and resources. You may also want to contact your local Autism Society and

your school district's Local Advisory on Special Education to get further

information about what is out there as far as resources in your area.

_Autism Society of America - Central Virginia Chapter_

(http://www.asacv.org/)

_http://www.peatc.org/Fact Sheets/seac.pdf_

(http://www.peatc.org/Fact%20Sheets/seac.pdf)

[Guest guest]

Thank you for the info. My son was accepted today in a Day Treatment

program at another HS. Yeah!! He is out of the school that scares him so

bad. Maybe tonight we will actually sleep. Reading thru the last two days

of posts & I see most people have the same problems at night. My son slept

in a sleeping bag beside my bed until he was 6 & we didn't even know what AS

was. It's funny to look back, now that there is so much more info out

there. Anyway, thanks for the links.

Take care,

_____

From:

[mailto: ] On Behalf Of ppanda65@...

Sent: Monday, January 09, 2006 6:07 AM

Subject: Re: ( ) Teenage Boy with Aspergers

, I work as a Special Education Family Support Coordinator for my

local Parent Information Network, so I have a lot of time to research

supports

and resources. You may also want to contact your local Autism Society and

your school district's Local Advisory on Special Education to get further

information about what is out there as far as resources in your area.

_Autism Society of America - Central Virginia Chapter_

(http://www.asacv.org/)

_http://www.peatc.org/Fact Sheets/seac.pdf_

(http://www.peatc.org/Fact%20Sheets/seac.pdf)

[Guest guest]

Hi ,

Congratulations for you both. I hope & pray things continue to work out well

for you all.

A Quick <michellepbj@...> wrote:

Thank you for the info. My son was accepted today in a Day Treatment

program at another HS. Yeah!! He is out of the school that scares him so

bad. Maybe tonight we will actually sleep. Reading thru the last two days

of posts & I see most people have the same problems at night. My son slept

in a sleeping bag beside my bed until he was 6 & we didn't even know what AS

was. It's funny to look back, now that there is so much more info out

there. Anyway, thanks for the links.

Take care,

_____

From:

[mailto: ] On Behalf Of ppanda65@...

Sent: Monday, January 09, 2006 6:07 AM

Subject: Re: ( ) Teenage Boy with Aspergers

, I work as a Special Education Family Support Coordinator for my

local Parent Information Network, so I have a lot of time to research

supports

and resources. You may also want to contact your local Autism Society and

your school district's Local Advisory on Special Education to get further

information about what is out there as far as resources in your area.

_Autism Society of America - Central Virginia Chapter_

(http://www.asacv.org/)

_http://www.peatc.org/Fact Sheets/seac.pdf_

(http://www.peatc.org/Fact%20Sheets/seac.pdf)