Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Hi All, I am new to this group and have just started reading about enzymes used for autism. I have three children. Both of my boys (13 and 5) are ASD. My NT daughter is 9 1/2. My older son is very verbal and higher functioning, but has a lot of behavior problems. He attends a SDC in junior high. My younger son is nonverbal but pretty easy going. He is also not completely toilet trained. He attended a SDC two days a week and we do a home program the remaining days. I would like to try the enzymes with my boys, especially the youngest, and possible my daughter. I have been reading DeFelice's book. I highly recommend it. It has a lot of information in it and has a great sense of humor. I have just a few questions after reading the book. I am sure that these have been answered many times before, and I appreciate you doing so again. I should start my son off with 1/2 capsule of Zyme Prime with each meal increasing to one capsule. Then I start adding the Peptizyde, increasing to one capsule per meal. After those, start adding the No-Fenol slowly. Is this correct? What is preferred/difference between Peptizyde and Peptizyde AFP? I am going to get these ordered ASAP so I can get him started on them. Thanks in advance. I am sure that I will have more questions in the very near future. Janelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Dear Zack, A very big welcome to our friendly helpful group. You've come to the right place. Thanks for sharing your story. It's good to get the whole picture of what's happening. First, may I check with you? Have you had a chance to read my article, the url of which is now in the Links on the left sidebar? If not, maybe read that as soon as possible. It may answer a lot of your questions and give you an understanding of what we stand for and the basis on which this forum was set up. When you say you are on " the diet " it sounds mainly good, but when you read the article you will find you can tweak it to a more healthy one, i.e. yogurt is not recommended in the early stages of the Candida Program. It appears as if you are avoiding red meat, and I can imagine why. Other groups and articles have false information about red meats, i.e. that it causes acid/alkaline imbalances or that it putrefies in the gut. While some people's digestion is poor and meat will purtrefy in their large colon, that applies to all meats and other substances, not just red meat. Also the acid/alkaline issue has become a " fad issue " that has no basis in fact. Animal meats are very necessary in order for the body to balance it's own acidity/alkalinity. Check out: " Myths & Truths about Beef " at: http://www.westonaprice.org/myths_truths/myths_truths_beef.html If you haven't taken the Candida Questionnaire by Dr. Crook you might want to, in order to give yourself more certainty on whether you have candida at: http://cassia.org/candida.htm From what you've described you do have candida. I am not familiar with Candex. What is it and what is it used for? Maybe our Doc/Roy can answer questions on it - he checks in on Mondays. I wouldn't be too concerned about what you see or don't see in your stool. Your many other symptoms and health problems will improve as time goes on. It would be best if you were under the care of a good holistic M.D. or a naturopath. Many chiropractors also work with candida patients. Your probiotics and supplements seem okay too, but after reading my article you may tweak those too. Since you've only been on the diet 6 weeks you can't expect too fast of a response. The true natural healing process takes time and patience. There are no quick fixes. It seems like you need the most work on your digestion, some of which you are doing. Maybe after you read my article you will learn more and may have questions. Please do get back to us after that. Again welcome. The very best to you. Your friendly Bee > Hello, > > I just joined this group. I'm pretty sure I have " leaky gut syndrome " or > even more systemic candida infection. > > To make a long story short, back in January I started having a swollen > feeling below my chest wall and pains in my chest. After many trips to my > doctor and various tests and procedures, the doctor said he couldn't find > anything wrong with me. His last diagnosis was irritable bowel syndrome. I > didn't like the medication he prescribed for it, and it didn't do me any > good. > > I didn't know anything about irritable bowel symdrome, so I investigated it > on internet. That led me to candidiasis, which I also didn't know anything > about. But as I learned, I was surprised that I had many of the symptoms - > things I thought were totally disrelated and mostly nuisances. This > included constant bowel growling/bloating/gas, alternating diarrhea and > constipation, " jock itch " and athlete's foot that wouldn't go away, often > waking up feeling like I was drugged or had a hangover even though I'd taken > no alcohol or drugs, feeling " sick all over " , feeling spaced out, lack of > memory, inability to concentrate, extreme fatigue even though I had plenty > of rest, bouts of lethargy, itching/burning hands and feet, cold feet, > temperature generally a few degrees below normal, burning eyes and a few > other things. I did the saliva test one morning and within just a few > minutes the several blobs of saliva all looked like little " Portuguese > Man-O-War " jellyfish - streamers several inches long. That convinced me to > begin a diet to starve out the candida. I figured at the worst it would do > nothing. > > I've been on a diet for 6 weeks now that consists mostly of fresh, steamed > or lighly sauteed vegetables (no potatoes or corn), meats (heavy on fowl and > seafood), eggs, sometimes buckwheat pancakes with butter for breakfast and > occasionally a little brown rice. I've also had a little plain yogurt now > and then. > > I've also been taking some supplements for 6 weeks - 5000 to 7000 mg of > vitamin C a day, selenium, vitamin E, digestive enzymes, probiotocs > (acidophilus, etc) and three cups of pau d'arco tea each day. > > About 2 weeks after I started the diet, all of the symptoms got really bad > for several days and then went back to what they were. > > I guess the first question I have is - does it seem like I am on the right > track? Do I most likely have a candida concern? My regular MD doesn't know > anything about candida. > > I also started taking Candex 3 weeks ago. About a week into that the > symptoms got even worse than the previous time but settled down again after > about a week. I haven't seen much mention about Candex - does it work? The > theory of it certainly makes sense. > > I haven't noticed any lessening of the main symptoms yet since starting the > diet. These are the intestinal growling/bloating/gas and gut spasms. I > still have the feeling of a lump/tightness below my chest wall, and an > unpleasant tightness or pressure on the sides of my neck. The bloating/gas > seems to come and go; usually I'll go through a period of heavy growling/gas > which will be followed by spasms. The thing with my stomach area doesn't > seem to be the stomach but rather muscles in that area. It varies in size > from about the size of a golf ball to the whole upper abdomen and it moves > around. It's pretty much always there to some extent. I'm a bit concerned > about that because I haven't seen anyone else here mention symptoms like > that. I suspect it has something to do with the gut spasms. The feelings > on the side of my neck come and go maybe for 5-10 minutes at a time every > couple hours. That could also be from the spasms. > > Looking back over the last few years, I think the symptoms probably started > between 1 and 3 years ago, possibly not more than that. I'm curious when I > might expect to notice some definite results from what I'm doing. > > Also, I've been keeping an eye on my stools to see if there are any signs of > candida dying and being passed out, like the " cotton balls " , etc. I haven't > seen anything abnormal in them yet. Should I be concerned about that? > Should I be noticing something by now? > > Well, I hope I wasn't too long-winded. Thanks for reading this and I hope we > can all help each other out! > > Zack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hi Zack, Your story is a common one and yes it is plausable that you've got candida overgrowth. However while more times than not its ok, I've found that arbitrarily deciding on candida and killing yeast can be disasterous if there are pathogenic bacteria in the gut. Its common and very hard to culture for say in a stool sample. If you were my client I'd likely suggest that you have a really simple urine test from Great Plains Laboratory called an Organic Acid Test. This test analyzes your urine for metabolites (waste products) produced by a host of different pathogenic bacteria and several yeast species. By doing this you can A) be absolutely certain of your yeast situation ang b)be absolutely certain that its safe to go after the yeast if necessary. If you kill the yeast in the presence of pathogenic bacteria you leave your gut WIDE OPEN for more proliferation of the bacteria. Which is WORSE than the candida overgrowth itself. Its worth every penny. Keep in mind that some will scoff at this and say its perfectly safe to go right after the yeast, problem is they've never seen what happens as I've described it and worse yet when they've had a person they think has candida respond poorly they either blame the patient or they're just plain clueless. I really find there's little excuse for NOT KNOWING. Keep in mind also that some people will be jerks and say that testing is just a way to get patients to spend more money. While I do have the O.A.T. done on every suspected candidiasis client I see, I don't make one red cent on the test. Whatever they pay, all of it goes to the lab. Bottom line is its an excellent test for this purpose and I highly recommend it. Sincerely, Dr. Mike Marasco www.cedarcanyonclinic.com www.IBSDoc.com > Hello, > > I just joined this group. I'm pretty sure I have " leaky gut syndrome " or > even more systemic candida infection. > > To make a long story short, back in January I started having a swollen > feeling below my chest wall and pains in my chest. After many trips to my > doctor and various tests and procedures, the doctor said he couldn't find > anything wrong with me. His last diagnosis was irritable bowel syndrome. I > didn't like the medication he prescribed for it, and it didn't do me any > good. > > I didn't know anything about irritable bowel symdrome, so I investigated it > on internet. That led me to candidiasis, which I also didn't know anything > about. But as I learned, I was surprised that I had many of the symptoms - > things I thought were totally disrelated and mostly nuisances. This > included constant bowel growling/bloating/gas, alternating diarrhea and > constipation, " jock itch " and athlete's foot that wouldn't go away, often > waking up feeling like I was drugged or had a hangover even though I'd taken > no alcohol or drugs, feeling " sick all over " , feeling spaced out, lack of > memory, inability to concentrate, extreme fatigue even though I had plenty > of rest, bouts of lethargy, itching/burning hands and feet, cold feet, > temperature generally a few degrees below normal, burning eyes and a few > other things. I did the saliva test one morning and within just a few > minutes the several blobs of saliva all looked like little " Portuguese > Man-O-War " jellyfish - streamers several inches long. That convinced me to > begin a diet to starve out the candida. I figured at the worst it would do > nothing. > > I've been on a diet for 6 weeks now that consists mostly of fresh, steamed > or lighly sauteed vegetables (no potatoes or corn), meats (heavy on fowl and > seafood), eggs, sometimes buckwheat pancakes with butter for breakfast and > occasionally a little brown rice. I've also had a little plain yogurt now > and then. > > I've also been taking some supplements for 6 weeks - 5000 to 7000 mg of > vitamin C a day, selenium, vitamin E, digestive enzymes, probiotocs > (acidophilus, etc) and three cups of pau d'arco tea each day. > > About 2 weeks after I started the diet, all of the symptoms got really bad > for several days and then went back to what they were. > > I guess the first question I have is - does it seem like I am on the right > track? Do I most likely have a candida concern? My regular MD doesn't know > anything about candida. > > I also started taking Candex 3 weeks ago. About a week into that the > symptoms got even worse than the previous time but settled down again after > about a week. I haven't seen much mention about Candex - does it work? The > theory of it certainly makes sense. > > I haven't noticed any lessening of the main symptoms yet since starting the > diet. These are the intestinal growling/bloating/gas and gut spasms. I > still have the feeling of a lump/tightness below my chest wall, and an > unpleasant tightness or pressure on the sides of my neck. The bloating/gas > seems to come and go; usually I'll go through a period of heavy growling/gas > which will be followed by spasms. The thing with my stomach area doesn't > seem to be the stomach but rather muscles in that area. It varies in size > from about the size of a golf ball to the whole upper abdomen and it moves > around. It's pretty much always there to some extent. I'm a bit concerned > about that because I haven't seen anyone else here mention symptoms like > that. I suspect it has something to do with the gut spasms. The feelings > on the side of my neck come and go maybe for 5-10 minutes at a time every > couple hours. That could also be from the spasms. > > Looking back over the last few years, I think the symptoms probably started > between 1 and 3 years ago, possibly not more than that. I'm curious when I > might expect to notice some definite results from what I'm doing. > > Also, I've been keeping an eye on my stools to see if there are any signs of > candida dying and being passed out, like the " cotton balls " , etc. I haven't > seen anything abnormal in them yet. Should I be concerned about that? > Should I be noticing something by now? > > Well, I hope I wasn't too long-winded. Thanks for reading this and I hope we > can all help each other out! > > Zack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 On Thu, 20 May 2004, Bee wrote: > Dear Zack, > > A very big welcome to our friendly helpful group. You've come to the > right place. > > Thanks for sharing your story. It's good to get the whole picture of > what's happening. > Hi Bee, It's great to be here. I have been " reading the mail " at the candida group at curezone.com, and that led me to this one. > First, may I check with you? Have you had a chance to read my > article, the url of which is now in the Links on the left sidebar? > If not, maybe read that as soon as possible. It may answer a lot of > your questions and give you an understanding of what we stand for and > the basis on which this forum was set up. > I did look at that article but not as thoroughly as I should. I'll give it more looking at soon. It seems to connect very slowly here for some reason. > When you say you are on " the diet " it sounds mainly good, but when > you read the article you will find you can tweak it to a more healthy > one, i.e. yogurt is not recommended in the early stages of the > Candida Program. Well, I can leave it. I actually think I prefer it to the flavored, fruit version but I can do without for a while. > > It appears as if you are avoiding red meat, and I can imagine why. > Other groups and articles have false information about red meats, > i.e. that it causes acid/alkaline imbalances or that it putrefies in > the gut. While some people's digestion is poor and meat will > purtrefy in their large colon, that applies to all meats and other > substances, not just red meat. > > Also the acid/alkaline issue has become a " fad issue " that has no > basis in fact. Animal meats are very necessary in order for the body > to balance it's own acidity/alkalinity. Check out: " Myths & Truths > about Beef " at: > http://www.westonaprice.org/myths_truths/myths_truths_beef.html > Thanks! I am not actually trying to avoid red meats - in fact, tonight I had a hamburger (just the meat along with a salad) for dinner. Also, I have a very busy schedule and I find it's easy to make a pot roast with vegetables in a crock pot. Saves me some time at dinner time. > If you haven't taken the Candida Questionnaire by Dr. Crook > you might want to, in order to give yourself more certainty on > whether you have candida at: http://cassia.org/candida.htm From what > you've described you do have candida. > I did that test before I tried the saliva test. I had a score that indicated most likely a candida concern. > I am not familiar with Candex. What is it and what is it used for? > Maybe our Doc/Roy can answer questions on it - he checks in on > Mondays. It's a combination of cellulase, hemicellulase, amylase, invertase, malt diastase and glucoamylase. It's supposed to do two things - dissolve the cell walls of candida, which are cellulose, and destroy certain things that are food for candida. You're supposed to take two capsules at least 2 hours after dinner (so you're not dissolving any vegetables you ate) and two capsules an hour before breakfast. I gather that it doesn't go into the bloodstream but rather passes through the intestines, killing off the candida there. About a week into my diet, I had horrible constipation. I tried psyllium husks for a week but it didn't help the constipation at all. (I now know about your recommendations concerning psyllium). But after I started taking the Candex, the constipation went away and I haven't had it since. So even if it doesn't do much for candida, it's at least good to get rid of that (for me, anyway). :-) > > I wouldn't be too concerned about what you see or don't see in your > stool. Your many other symptoms and health problems will improve as > time goes on. It would be best if you were under the care of a good > holistic M.D. or a naturopath. Many chiropractors also work with > candida patients. > It's funny, I just had a BM a while ago and it was covered with white fuzz, with a few larger blobs about the size of the cotton on the end of a Q-tip. That's the first time I've ever seen that. I'm taking that as a promising sign. > Your probiotics and supplements seem okay too, but after reading my > article you may tweak those too. Since you've only been on the diet > 6 weeks you can't expect too fast of a response. The true natural > healing process takes time and patience. There are no quick fixes. > > It seems like you need the most work on your digestion, some of which > you are doing. Maybe after you read my article you will learn more > and may have questions. Please do get back to us after that. > > Again welcome. The very best to you. > > Your friendly Bee > OK - I'll look at that article thoroughly and let you know if I have any more questions. Thanks for all the help right at the start! Zack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 > I should start my son off with 1/2 capsule of Zyme Prime with each meal > increasing to one capsule. Then I start adding the Peptizyde, increasing to one > capsule per meal. After those, start adding the No-Fenol slowly. Is this > correct? Sounds like a good plan. Remember that some kids ramp up easily and others have a longer adjustment period. It could take up to three weeks to be fully acclimated to just one of the products. Take your time and keep posting with results, progress and questions. > What is preferred/difference between Peptizyde and Peptizyde AFP? AFP is All Fungal Protease, meaning there aren't any of the phenolic issues that may occur with regular Peptizyde. If you know phenols are an issue, you might want to use the AFP. Also, the AFP is tasteless and odorless (tho I think some kids do still taste and smell something there...) > I am going to get these ordered ASAP so I can get him started on them. > Thanks in advance. I am sure that I will have more questions in the very near > future. Ask away and good luck. Quote Link to comment Share on other sites More sharing options...
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