Question for /very long

[Guest guest]

: First, I wanted to tell you that I enjoy this list very much

and have learned SO much. I also read/contribute to other lists

which pertain to other issues, and this has been a Godsend as we are

just starting out on the biomedical interventions. I still have

more questions than answers, and I hope that someday, even I can

answer people's questions.

I particularly liked reading your story of you and your 2 sons.

Very interesting. Because of reading your story, I would like to

ask you some questions. We started No-fenol last night. From what

I have read, I should give this enzyme slowly, and build up to the

correct dosage and expect to wait for 3 weeks until he has adjusted

to it. Then, I can add AFP peptizyde, similarly...start slowly, and

wait for about 3-4 weeks adjustment period before starting the next

one. Please let me know if this is true.

Then, I just needed to share my total confusion about this whole ASD

thing, hoping that you may have some insight. From your story, you

sure have seen alot. First, my son is 4-1/2 years old and

is in the process of being diagnosed with possible PDD/NOS or

Aspergers. Isn't this awful late to be diagnosed? Everyone else

seems to be diagnosed around ages 2-3. Did we miss something?

He did not have all of those typical mercury overload symptoms. He

had no vaccine reactions, no allergies, no food issues, great eye

contact, was social, smiling, no colic, no vomiting, etc. Then, we

noticed he wasn't speaking around age 18 months to 24 months, so we

had him tested. They said that he had verbal apraxia and to seek

out speech and OT therapy. I asked if he was PDD and they

said " absolutely not " . OK, so we got him his therapy. Along the

way, I found out that EFA's could help speech, so we gave him his

EFA's which have helped tremendously. At age 3, he was tested

again. They said he was a wonderful little boy who was now speaking

in 2 word phrases. Still, they said that he was not PDD, but did

suggest putting him into our district's special ed pre-school

program for speech and fine motor delay. So, again, we did as they

suggested.

He did well with the school, the teachers loved him, his therapists

said that he was doing so well, that they thought he would not

qualify for services next year and he would be able to go to

mainstream kindergarten when he turned 5 years old. This was just 6

months ago when they told me this. I was elated!

That is when the bottom fell out, so to speak. This past spring, he

started lining up toys. He definitely limited his diet to

Mcs, pizza, bagels, spaghetti, ice-cream, bologna...He wanted

to only watch movies, not go out of the house, not play with other

kids. He did play with his 2 older sisters ...and his sisters

friends, but not his peers. Then he started the very annoying habit

of scripting his videos. To date, this behavior has NOT stopped,

and I am praying constantly that enzymes may help this behavior.

I took to see a neurological pediatrician last month, and

she could not give a definite diagnosis, but she did say atypical

behavior, possibly aspergers or high functioning PDD/NOS. She

referred us to a local childrens hospital for further evaluation.

In the meantime, I started reading this list and I started the GFCF

diet. Very hard diet! He is currently CF and a reduced GF, but I

am having a hard time finding foods that he will eat. And, of

course, we just started enzymes last night.

What I wanted to know is....how could we have missed this all

along? He was doing so well, could he have had subtle signs all

this time that we missed and the symptoms are just now exploding?

Are there any other kids on the spectrum that did not have bad

vaccine reactions? That just really started showing autistic

behaviors later? And, why is it that I never hear of anyone else's

kids having this scripting problem? IT is SO annoying!

I apologize for the long story, I am so confused...any insight would

be fabulous.

Thanks. Kim in Gurnee, Illinois