Re: Frustrations

[Guest guest]

Maybe half a capsule of No-Fenol per meal might work out okay for

your son. Have you tried adding the AFP Peptizyde yet? We use the

original rice bran AFP and the combination of both of those enzymes

worked well together for us. We now use all 3 enzymes (the Zyme

Prime without Bromelain) with very good results.

It sounds like your son is dealing with yeast issues with his

behavior or possibly phenol issues. No-Fenol can eventually help

with these types of things. Did he eat something with artificial

colors in it? Maybe at school? Have you tried the Feingold Diet

(www.feingold.org).......Our daughter used to act that way when she

ate something with artificial colors, Soy, or smelled somebody's

perfume. Perfume and fragrance in general are very high in phenol's

and can cause these types of behavior to our sensitive children.

Keep reading all the messages on this support group. You'll learn a

lot!! Some of the info will be helpful for your situation now and

some will be helpful for later, with families you'll be able to help

in the future.

Hang in there. There's lots to learn, and things will get better as

you discover more things.

Best wishes,

Gretchen

>

> I am rather frustrated, we still haven't been able to add a full

cap

> of NoFenol, and Jordie's (6.5, autism) behavior in particular has

been

> very difficult. In some areas we did see some improvement, but

lately

> all I feel like we're seeing is regression. Emotional outbursts,

> screaming, one minute he's happy, the next minute he's in a puddle

of

> tears howling. Simple routines are becoming difficult, and he is

> fixated on " what are we doing next?? " What's for dinner, when is x

> happening, what about this, but you said we were doing such and

such.

> Overall, I'd count the enzymes a success (better sleep patterns,

more

> cooperation and improvement from the other kids) - but this sure is

> frustrating! Additionally, I had a not so great meeting with my 3.5

> yo's (no diagnosis) developmental preschool teacher. His speech is

not

> improving, sensory issues are becoming more apparent (he touches

> people ALL the time, if he is sitting near a family member he's got

> his hands all over that person). We're going to begin addressing

the

> sensory piece, and see if this helps his receptive language.

>

> Any other suggestions would be welcome.

>

> , the frustrated and frazzled

[Guest guest]

Maybe half a capsule of No-Fenol per meal might work out okay for

your son. Have you tried adding the AFP Peptizyde yet? We use the

original rice bran AFP and the combination of both of those enzymes

worked well together for us. We now use all 3 enzymes (the Zyme

Prime without Bromelain) with very good results.

It sounds like your son is dealing with yeast issues with his

behavior or possibly phenol issues. No-Fenol can eventually help

with these types of things. Did he eat something with artificial

colors in it? Maybe at school? Have you tried the Feingold Diet

(www.feingold.org).....>>

He's on the AFP Pep, and ZP - those adjustments were fine. ly,

that surprised me. I figured the AFP Pep would have been our hardest

adjustment. He was previously on the GFCF diet (non verbal until we

put him on it). We follow a pretty clean diet, although it's possible

he got some food dye. Given his behavior in recent weeks though, I'm

not sure that's the common denominator. Dh realized there is some mold

in the bathroom - it could be that. He reacts very very strongly to

molds, and his up and down behavior is reminiscent of previous long

term exposures. Yeast could be a possibility as well. I'm going to

bring that up when we see our chiro on Friday (he sees her twice/week,

and does nutritional therapy and such as well).

I'm just frustrated, frustrated, frustrated. Today wasn't as bad, but

maybe that's b/c I consoled myself with a bit of chocolate, and got

some sleep. ;-)

[Guest guest]

> all I feel like we're seeing is regression. Emotional outbursts,

> screaming, one minute he's happy, the next minute he's in a puddle of

> tears howling. Simple routines are becoming difficult, and he is

> fixated on " what are we doing next?? " What's for dinner, when is x

> happening, what about this, but you said we were doing such and such.

He might be eating foods the enzymes are not addressing [my kids did

not tolerate everything with enzymes], or he might have yeast, or if

you are giving supplements, he might not need as high a dose.

Dana

[Guest guest]

Dear Kay,

I may not know what it is like to have a parent that has cancer but I

do know what it is like to have to deal with it when cancer strikes

your child. I totally understand the frustration that you are going

through. I was and I still am a single parent. When my daughter,

she is now 10 years old, was diagnosed I didn't know what I was going

to do. It seemed that I had to be strong for everyone else except

for me. Looking back and remembering to that time I see it as a time

that I was numb to the world. Maybe I was. I remember how terrified

I was when I or anyone else around me such as my youngest daughter,

boyfriend, family and so on got sick. I was afraid that my daughter

would catch it. I would sweep and mop my kitchen floor-due to the

fact her bedroom was on the other side of the kitchen, eight times a

day. I was crazy about it. Not only did I wash my dishes by hand

but also put them through a cycle in the dish washer. It is a long

and hard road my friend that you will be traveling through. There

will be times that you feel like it is all a bad dream and there will

be times that you feel totally alone in the world. But, hang in

there.

I decided no matter what the outcome of my daughter's cancer, by the

way she had luekemia, that either way God was going to take care of

her. He was either going to help her get better or he would take her

away to where she didn't suffer anymore. I had to believe that

because there were times I thought that I would not make it and my

faith was nearly gone. There were times that I blamed God. There

were times that I blamed myself. For the first time in my life this

was something that my little girl had that I could not kiss away, hug

away or chicken noodle soup it away. I was helpless and that is a

dark and horrible feeling. But, in the end, I remembered what I

mentioned earlier talking about either way God was going to take care

of her.

I don't know what your religious beliefs are. And I don't intend to

offend you by any means with the talk of God if you are of another

faith. But, before my daughter got sick, I thought that God had left

me in a cruel world. I had decided that God didn't believe in me any

more, so why should I believe in him. However, even in the darkest

moments of my daughter's disease, when I was so tired from the long

drive to Fort Worth, staying up all hours of the night watching the

nurses come and go, working, taking care of my youngest daughter as

well, I felt a warmth that comfort me when I was a lone or I had

thought that I was alone.

I do not know what the outcome for your mother is. I hope and wish

the best for her and for your family. Just remember that there are

people out her praying for ya'll and you are not alone.

Barbara

[Guest guest]

Vent away Kay. I know the feeling only too well. Since my battle with a

virus in January and the residual infection since then, I have not been able

to minister to folks going through cancer and other diseases since.

I was about ready to get back into action when we found out that the shy

bacteria was still hanging in there. So antibiotic number four. Hopefully

that will get the bug.

We all want to be able to help our parents in their later years, but it

sometimes does not work out that well. My problem with both my parents was

the fact they lived a good 2000 miles away and moving back there to help was

out of the question because of the cost of living in Oshawa, Ontario.

Simply put, we just could not afford to move. I have agonized over this for

quite some time, I felt I let them down. Mom however, went into her own

little world a few years before her passing but Dad could have used my help.

Kay, your parents will realize that it is better for them not to see you at

the moment and no doubt if they knew, would be taking care of you.

Prayers ascend for your mother and father and the rest of your family. It

will be a rocky road for a while.

Fr. Dave