Adult Son

[Guest guest]

all the hyper behaviour I thought was enzymes when we started turned out to

be yeast die off. We had three months of it! I hope yours doesn;t last that

long, its bad enough with a 60 pounder LOL. Give it time, add the inositol and

keep up the good work IMHO

Mandi in UK

is still hyper-Can be due to the enzymes which I just recd my

second batch of regular so I would like to finish them first before

I switch to the AFP and SCD (if this continues) or it could be yeast

due to the Antibiotic he is on which I started to use

Candex/Culturelle with,(giving 1 Candex 1hr before meal in am and 1

Candex 2hr after meal in pm) so I think it is too soon to say if it

is yeast or Enzymes. Also can the negatives reoccurr after

increasing the dose to 2 instead of 1 PEP with meals. I am trying

to figure this all out. His teacher said he was anxious and

compulsive in school today. He is just loud and hyper and jumping

at home(imagine this 220lb guy jumping like a 5 year old)!!!

[Guest guest]

i didn;t realise what is was at first - we came stright off the diet with

the very first enzymes, this was 3.5 years ago when they first came out and we

didn't have the guidlines we have now. I first thought it was the enzymes,

then I realised that in my joy in giving him 'real food' he was getting more su

gar again. The enzymes were helping with the yeast - creating a long term mini

die off but extra guns were needed and we did GSE. After things were back

under control the improvements shone through and the hyper was gone. Stuff

takes a while longer with the older ones. The hyper may just be the outcome of

dealing with new feelings. Your Candex/Cullturelle protocl sounds fine. Syick

ewith it and the enzymes

MAndi in UK

Did you treat this die-off.

[Guest guest]

Did you treat this die-off. I am getting everyone confused and I cant

remember if you told me about the Candex and Culturelle-SOrry EIleen

>From: Mum231ASD@...

>Reply-

>

>Subject: Re: Adult son

>Date: Mon, 29 Nov 2004 18:20:02 EST

>

>all the hyper behaviour I thought was enzymes when we started turned out to

>be yeast die off. We had three months of it! I hope yours doesn;t last that

>long, its bad enough with a 60 pounder LOL. Give it time, add the inositol

>and

>keep up the good work IMHO

>Mandi in UK

>

> is still hyper-Can be due to the enzymes which I just recd my

>second batch of regular so I would like to finish them first before

>I switch to the AFP and SCD (if this continues) or it could be yeast

>due to the Antibiotic he is on which I started to use

>Candex/Culturelle with,(giving 1 Candex 1hr before meal in am and 1

>Candex 2hr after meal in pm) so I think it is too soon to say if it

>is yeast or Enzymes. Also can the negatives reoccurr after

>increasing the dose to 2 instead of 1 PEP with meals. I am trying

>to figure this all out. His teacher said he was anxious and

>compulsive in school today. He is just loud and hyper and jumping

>at home(imagine this 220lb guy jumping like a 5 year old)!!!

>

>

>

>

>

>

[Guest guest]

Thanks Mandi: Im in this for the long haul. I want to run out and start

all the testing just to know where he's at, but we are going to Pfeiffer in

February and they will do the testing. I did GSE one day with the NO FENOl

to avoid phenol problems but really cant seem to tolerate the NF, so I

opted for the Candex. I'll stick with this awhile I think. Thanks again

Eileen PS My daughter went to London for Classes a few summers ago with

College. She was there for 3 weeks-She fell in love with England.. She

stayed in Oxford. I have familiy in Ireland and my husband has familiy in

France. We thought she would travel to either place of her ancestory but

she just had too much fun in London.

>From: Mum231ASD@...

>Reply-

>

>Subject: Re: Adult son

>Date: Mon, 29 Nov 2004 19:39:28 EST

>

>i didn;t realise what is was at first - we came stright off the diet with

>the very first enzymes, this was 3.5 years ago when they first came out and

>we

>didn't have the guidlines we have now. I first thought it was the enzymes,

>then I realised that in my joy in giving him 'real food' he was getting

>more su

>gar again. The enzymes were helping with the yeast - creating a long term

>mini

>die off but extra guns were needed and we did GSE. After things were back

>under control the improvements shone through and the hyper was gone. Stuff

>takes a while longer with the older ones. The hyper may just be the

>outcome of

>dealing with new feelings. Your Candex/Cullturelle protocl sounds fine.

>Syick

>ewith it and the enzymes

>MAndi in UK

>

>Did you treat this die-off.

>

>

>

>

>

[Guest guest]

> Dana: I am using tablets for Ca/Mg. Citracal for CA, dont remember

the

> name of Mg. I am using 2:1 ratio. 1000 mg CA (broken up am and dinner

> time-just got to this dose level) and 350 Mag so far (also broken up

am and

> just before bedtime).

Well, 500 mg Mag would be 2:1 ratio, so if it turns out that he is

tolerating the Mag, try giving him a little more.

> I am going to order the AFP and SCD also to see if that makes a

difference.

> Are there any negative behaviors to watch for with this switch.

Not usually.

Dana

[Guest guest]

>

> Hi it's me again: I have something to throw out there. Has anyone

> had problems with sore throats since starting enzymes. I have to

> tell you my son has been so sick for the last 2 weeks( on again off

> again). Started with double ear infections and sore throat, then

> went to Stomach virus(did determine that this was a virus and not

> antibiotics), now he's complaining of a sore throat the past few days

> again (no fever) throat is slightly red.

Yeast, or die off, can do this in my family.

Dana

[Guest guest]

Thanks Dana: I really am suspecting this is what is going on. I thought

maybe I was looking a little too hard for explanations!!! By the way I

stopped the CA/MG for now until I get the Candex/Culturelle in order. He

has slept much better and much less hyper past 2 days. Thanks Again Eileen

> >

> > Hi it's me again: I have something to throw out there. Has anyone

> > had problems with sore throats since starting enzymes. > > > > again).

>Yeast, or die off, can do this in my family.

>

>Dana

>

>

>

>

[Guest guest]

>>By the way I

> stopped the CA/MG for now until I get the Candex/Culturelle in

order. He

> has slept much better and much less hyper past 2 days.

Sounds good. If/when you start the cal/mag again, start one at a

time, mag first. It took me five different calcium types/products

before I found one my son tolerated, so you might be having a similar

problem.

Dana

[Guest guest]

Hi -Eileen

I am so sorry about your story. You are not lonely. My son be Dx as

an autistic when he was alomst 2 years old. I have been cried for

alomst 2 years. I believe that you are suffer more than I am. I just

want you know you are not lonely. I wish you will feel better

tomorrow and find the way to help your son.

-- In , " eileen brischoux "

<ebrischoux@h...> wrote:

> Hi Sorry to be a bother. My son just had a total melt down and

I need to

> write. I am by nature a very strong person but I just am at my

whits end.

> The meltdown was precipitated by him throwing his dish in the

sink, which he

> was corrected for. Well he just lost it. Rage behavior which i

havent seen

> in a very long time. I tell you I am ready to call it quits. He

is pretty

> strong and it took everything in me to restrain him. Boy he can

pinch and

> knows all the right spots. He now has added shoving along with

the grabbing

> of the wrists.

>

> His teacher called today and told me school has been tough this

week. She

> apologized for not writing as gets upset when she writes in

his book.

> So she just told me that he has been anxious this week. I told

her I

> stopped the magnesium and I was not aware there was problems so

now I have

> to look at what else is going on. She also has not given him any

more fruit

> so its not from that. Could be the inositol which I am also

stopping. I

> have him crying in his room and Im crying in the other room. (I

am not a

> cryer)

>

> Anyway, I think I will just do enzymes for now. Not add anything

else. His

> menu at home hasnt changed either. Well thanks for the shoulder.

Eileen

>

> >

[Guest guest]

Dear Mandi, ,, Laurie and Yenju and everyone esle that is so

supportive:

Thank You for all your kind words and encouragement. After a good nights

sleep I am ready to start again. I didnt realize that I was not alone with

the rages. He too has had problems with any SSRI drugs in the past just

cant handle them. Wasnt aware of this with inositol. THanks for the info.

I didnt think of the Charcoal. I really should have some in the house. He

was very calm last night and gave a hug (his way of apologizing). Part of

the problem is when he gets like this there is just no way of stopping it.

Walking away doesnt work, he follows and continues the rage. He was

drenched in sweat and shaking. I am still waiting for the Hair Element test

kit to get to me and I cant wait for Feb to have other tests done to see

what is going on internally with him if nothing else. I think my other

fears are the changes he will be going thru when he graduates and I am just

not happy about his choices, actually I am scared to death about this

transition.

This board has been a saving grace for me and I cant thank you all enough.

I will keep pecking away at this (as you all knew I would, hehe) pure

exhaustion talking last night. Thank Eileen

[Guest guest]

My son is the same, however my son hits me and himself about the head

area and sometimes bites. His latest development is the he will lean

against the wall and bang his head, I have many holes in the wall

from this... he has been much worse lately. However, my son doesn't

tolerate the enzymes at this time. He has many GI problems and they

get worse when I try the enzymes. My son's psychiatrist (who also

believes that food is a factor in behaviors) thinks maybe he needs

raw milk. So when I get some extra money I will try this. I have

not found a type of magnesium or calcium that my son will tolerate.

I do use l-glutamine, that seems to help calm him. My son is 21

years old, and mainly non-verbal.

VickiB

> Hi Sorry to be a bother. My son just had a total melt down and I

need to

> write. I am by nature a very strong person but I just am at my

whits end.

> The meltdown was precipitated by him throwing his dish in the sink,

which he

> was corrected for. Well he just lost it. Rage behavior which i

havent seen

> in a very long time. I tell you I am ready to call it quits. He

is pretty

> strong and it took everything in me to restrain him. Boy he can

pinch and

> knows all the right spots. He now has added shoving along with the

grabbing

> of the wrists.

>

> His teacher called today and told me school has been tough this

week. She

> apologized for not writing as gets upset when she writes in

his book.

> So she just told me that he has been anxious this week. I told her

I

> stopped the magnesium and I was not aware there was problems so now

I have

> to look at what else is going on. She also has not given him any

more fruit

> so its not from that. Could be the inositol which I am also

stopping. I

> have him crying in his room and Im crying in the other room. (I am

not a

> cryer)

>

> Anyway, I think I will just do enzymes for now. Not add anything

else. His

> menu at home hasnt changed either. Well thanks for the shoulder.

Eileen

>

> >

[Guest guest]

Hello Eileen, will you please chart when this happens compared to

when your son eats(how long after) and chart what he has

eaten...when this happens-- I think you will find a corlation

between the 2( is this a reaction to Aspartame the sugar substitute)

OR

your sons thyroid is not telling your son body when and how to use

energy right.-peoples who thyriods are under active really can not

control themselves at times- is this how you would decribe your

son? We use to not be able to tell my son " no " for fear of an

outburst he is very even tempered now.

I love to send web pages to explain why I have these ideas and my

son use to rage and does not any longer.. so there is a reason..

This is a procces.. you must go on

I know you want to stop the supplements and medications -- I have

never had my son on any medication and would love everyone to find

natural ways to help our kids like I have.. this is a process-that

means supplements ; at one point I remember reading that adrenaline(

a stress hormon) and phenolic foods are made of the same kind of 5

ring alcohol compounds( I want to send you to the web page but can

not) Will you find that a phenol food is making your son have a

adrenaline rush like mine was ? if you have not been to web

page you need to do some reading

http://www.enzymestuff.com/nofenolfile.htm-- I have to go now I will

pray the answer will come to you- It is strange... your own gut will

tell you if it is the right course of action - follow your gut. My

2 cents Ann

[Guest guest]

> The meltdown was precipitated by him throwing his dish in the sink,

which he

> was corrected for. Well he just lost it. Rage behavior which i

havent seen

> in a very long time.

Have you tried raging back at him? Now this probably won't be a good

idea if he is 6'4 " and 250 pounds, and you are 4'10 " and 90 pounds.

But my son is 8-1/2, and about when he was age 6, he raged at me one

day, and I turned around and just screamed and ranted right back at

him. [My other 3 kids all disappeared into the dark recesses of the

house!]

My son was so absolutely shocked at this that he literally just froze

and stared at me for maybe as long as a minute. Then he started to

cry and I gave him a big hug. Since that time, he has NEVER raged at

me again.

I am fortunate tho, in that his typical reaction to intolerances is

that he gets giggly and spacy, and starts waving his hands in front of

his eyes. He does not have meltdowns, and in fact this one that I

referenced above, was probably one of the 3-4 times in his life that

he has done that.

> Anyway, I think I will just do enzymes for now. Not add anything

else. His

> menu at home hasnt changed either.

This sounds like a good idea.

Dana

[Guest guest]

Eileen

So glad to hear from you this morning! I've been thinking of you and hoping

things had calmed down again. Our doctor felt that our sons rages were

actually a form of seizure activity. Something you might want to check into.

Someone else mentioned Aspartame and this will definitely trigger rages in

my son and we avoid that stuff like the plague. It is in so many kids supps and

medicines!!

I know what you mean by not being able to walk away from it. If only!!

If he has had problems with SSRI's I'd definitely wonder about the inositol.

So glad to hear about the hug! They really don't mean to get this way and it

really isn't their fault. It is so heartbreaking to see them go through this.

Things are so much better for my son now but I still worry that those

behaviours will come back. It takes a long time for mom's to recover

emotionally from this

Keep us posted!

Laurie

> Dear Mandi, ,, Laurie and Yenju and everyone esle that

is so

> supportive:

>

> Thank You for all your kind words and encouragement. After a good nights

> sleep I am ready to start again. I didnt realize that I was not alone with

> the rages. He too has had problems with any SSRI drugs in the past just

> cant handle them. Wasnt aware of this with inositol. THanks for the info.

> I didnt think of the Charcoal. I really should have some in the house. He

> was very calm last night and gave a hug (his way of apologizing). Part of

> the problem is when he gets like this there is just no way of stopping it.

> Walking away doesnt work, he follows and continues the rage. He was

> drenched in sweat and shaking. I am still waiting for the Hair Element test

> kit to get to me and I cant wait for Feb to have other tests done to see

> what is going on internally with him if nothing else. I think my other

> fears are the changes he will be going thru when he graduates and I am just

> not happy about his choices, actually I am scared to death about this

> transition.

>

> This board has been a saving grace for me and I cant thank you all enough.

> I will keep pecking away at this (as you all knew I would, hehe) pure

> exhaustion talking last night. Thank Eileen

[Guest guest]

Dear Eileen,

I really feel for you. We had been dealing with such behaviors from my

daughter as she hit puberty. From trial and error and talking to other

parents on this list, we started a calming amino acid called glycine first,

It took about 2 weeks to see any benefit. While it greatly reduced many of

her aggressive rages and melt downs, she started having problems again as we

got into the December month. I switched over to TMG, which naturally raises

your serotnin levels and within 2 days we had our sweet girl back. By the

way, is 15 1/2 now, doing very well at school and hasn't had an

aggressive incident at school in over (minor grab) 3 months. Just type in

calming neurotransmitters or TMG and autism into your search engine and

you'll find lots of valuable info to help you. It was a God send here.

Re: Adult son

>

> Hi Sorry to be a bother. My son just had a total melt down and I need

to

> write. I am by nature a very strong person but I just am at my whits end.

> The meltdown was precipitated by him throwing his dish in the sink, which

he

> was corrected for. Well he just lost it. Rage behavior which i havent

seen

> in a very long time. I tell you I am ready to call it quits. He is

pretty

> strong and it took everything in me to restrain him. Boy he can pinch and

> knows all the right spots. He now has added shoving along with the

grabbing

> of the wrists.

>

> His teacher called today and told me school has been tough this week. She

> apologized for not writing as gets upset when she writes in his book.

> So she just told me that he has been anxious this week. I told her I

> stopped the magnesium and I was not aware there was problems so now I have

> to look at what else is going on. She also has not given him any more

fruit

> so its not from that. Could be the inositol which I am also stopping. I

> have him crying in his room and Im crying in the other room. (I am not a

> cryer)

>

> Anyway, I think I will just do enzymes for now. Not add anything else.

His

> menu at home hasnt changed either. Well thanks for the shoulder. Eileen

>

> >

>

>

>

>

>

>

>

[Guest guest]

Thank you : I will look up this info. 's negative behaviors also

started during puberty. Very bad time for us. He was finally put on

risperdal and gained 60 lbs in a few months. He is still on this with the

addition of trileptal. My main goal in all this was to get him off these

meds. He has been on risperdal for 8 or so years now. I didnt realize

there were so many other parents with older children on this board. I knew

a few but I have had many responses and I thank you all. EIleen

>From: " Dougherty " <JBelle456@...>

>Reply-

>< >

>Subject: Re: Adult son

>Date: Sat, 18 Dec 2004 11:41:24 -0500

>

>Dear Eileen,

> I really feel for you. We had been dealing with such behaviors from my

>daughter as she hit puberty. From trial and error and talking to other

>parents on this list, we started a calming amino acid called glycine first,

>It took about 2 weeks to see any benefit. While it greatly reduced many of

>her aggressive rages and melt downs, she started having problems again as

>we

>got into the December month. I switched over to TMG, which naturally raises

>your serotnin levels and within 2 days we had our sweet girl back. By the

>way, is 15 1/2 now, doing very well at school and hasn't had an

>aggressive incident at school in over (minor grab) 3 months. Just type in

>calming neurotransmitters or TMG and autism into your search engine and

>you'll find lots of valuable info to help you. It was a God send here.

>

> Re: Adult son

>

>

> >

> > Hi Sorry to be a bother. My son just had a total melt down and I need

>to

> > write. I am by nature a very strong person but I just am at my whits

>end.

> > The meltdown was precipitated by him throwing his dish in the sink,

>which

>he

> > was corrected for. Well he just lost it. Rage behavior which i havent

>seen

> > in a very long time. I tell you I am ready to call it quits. He is

>pretty

> > strong and it took everything in me to restrain him. Boy he can pinch

>and

> > knows all the right spots. He now has added shoving along with the

>grabbing

> > of the wrists.

> >

> > His teacher called today and told me school has been tough this week.

>She

> > apologized for not writing as gets upset when she writes in his

>book.

> > So she just told me that he has been anxious this week. I told her I

> > stopped the magnesium and I was not aware there was problems so now I

>have

> > to look at what else is going on. She also has not given him any more

>fruit

> > so its not from that. Could be the inositol which I am also stopping.

>I

> > have him crying in his room and Im crying in the other room. (I am not

>a

> > cryer)

> >

> > Anyway, I think I will just do enzymes for now. Not add anything else.

>His

> > menu at home hasnt changed either. Well thanks for the shoulder.

>Eileen

> >

> > >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I have not posted in awhile as has been having some real problems

and I have been trying hard to figure out what was going on. I was

going to wait until Dr. visit to inform the group but feel it is

important enough to mention now. was just dx with Lyme, present

and past exposure. I have an appt with a lyme literate doctor late

this month and will know more than I hope. I read an article relating

Autism and lyme and had testing done on a hunch. I have never seen a

tick on him but we do live in a lyme epedimic area and have had many

tics in the house from pets. I am hoping that this underlying,albeit

horrible desease is the reason why my son has had such a hard time with

every intervention we try. My hope is that once he gets the proper

treatment from a knowledgable lyme doctor than he will start to feel

much better and not be in so much pain. If anyone suspects lyme,

please have your child tested. I plan on having my entire family

tested. My husband shows signs of lyme and after doing some reading so

do I. I'll keep you all informed as you have always been so much help

to me. Eileen

[Guest guest]

Is there a particular test to ask for to test for Lyme?

I know someone doing SCD that had trouble 'getting anything to work'.

Her son and other members in the family were found to have Lyme. Thank

you for posting this.

.