Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Hi, I feel in the same boat as you. I have a seven year old son just diagnosed with mild asperger's this year. I was the same - always thought of him as my quirky, funny kid with a lot of personality (and I still do think of him that way!) This autism/asperger's maze is crazy. I'm hoping to learn more on this group too but again I agree, I don't know about a lot of what is talked about on this group yet! Glad to have it for lots of info though. ASPERGER'S AND ENZYMES FOR DUMMIES WOW, I have to say you guys are amazing and unfortunately way over my head. My eight year old son was dx MILD ASPERGER'S 2 yrs. ago. My husband and I always considered him our bright, creative, quirky little guy, and then he started school. The kindergarten teacher was very interested in everything he did (good and bad) and suggested we have him tested for autism. We were shocked and confused and unfortunately after 2 years still are. We've been to so many different Drs., while some acknowledge he has characteristics of Asperger's others aren't familiar w/ it. They all say we just need to get him involved in more social activities. We are sick about this because his school reports have gone from " EAGER TO LEARN " " CURIOUS " " HAPPY " " LOVABLE " to " INATTENTIVE " " OFF-TASK. " Last week I took my son to our family chiropractor (trampoline accident) and he asked me about sleep problems. The conversation lead to Asperger's and within an hour I was making arrangements to have my sons urine sent in for a Metabolic Analysis. The Doc started talking about Enzymes, Supplements, , Allergies. The results should be in this week and I have to say I'm more confused then ever. Any help would be greatly appreciated, Thanks Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 the only worthwhile test is a hair test. don't chelate. all the medical testing is just a waste of time, aspergers and autism is just a mew game to fleece whoever wants to pay no more vaccines until his immune system can handle it which may be many years. does he have any digestive issues? you really have to look at stools i am afraid. hes probably entering a period of neural pruning which is always regressive and a sign that there could be major regression on adolesence. you really want to minimise stress in the form of schooling and any other activites while this is going on. NOW summer is fleeting, you really need to understand about skin vitamin d and the 'right sun' because the public health advice is just wrong minded check out skin vitamin d in the index of http://mueller_ranges.tripod.com/links/compendium/compendium.html and the other items flouride is no good esp toothpaste all the stuff you can do doesn't need doctors, they only mess it anyway ........... > WOW, I have to say you guys are amazing and unfortunately way over my > head. My eight year old son was dx MILD ASPERGER'S 2 yrs. ago. My > husband and I always considered him our bright, creative, quirky > little guy, and then he started school. The kindergarten teacher was > very interested in everything he did (good and bad) and suggested we > have him tested for autism. We were shocked and confused and > unfortunately after 2 years still are. We've been to so many > different Drs., while some acknowledge he has characteristics of > Asperger's others aren't familiar w/ it. They all say we just need > to get him involved in more social activities. We are sick about > this because his school reports have gone from " EAGER TO > LEARN " " CURIOUS " " HAPPY " " LOVABLE " to " INATTENTIVE " " OFF-TASK. " > > Last week I took my son to our family chiropractor (trampoline > accident) and he asked me about sleep problems. The conversation > lead to Asperger's and within an hour I was making arrangements to > have my sons urine sent in for a Metabolic Analysis. The Doc started > talking about Enzymes, Supplements, , Allergies. The results > should be in this week and I have to say I'm more confused then > ever. > > Any help would be greatly appreciated, > Thanks Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Beth, I think school can be very stresful for our kids. My son has been fully mainstreamed starting in pre-school and he just finished first grade. He holds himself together all day but I see the stress levels when he gets home. If no one is there to guide them through the social maze and hidden curriculum at school, it is tough. Then if he has additional issues, like communication/language/, learning differences, etc., it is even harder. I am pulling my son out of public school next year. He is going to a private school with only 36 kids in it. They range from 1-8 grade and each class is multiage with only 12 kids. They are on an indiviualized learning path. There is a great book I would like to recommend. It is called A Parent's Guide to Asperger Syndrome and High-Functioning Autism: How to Meet the Challenges and Help Your Child Thrive by Sally Ozonoff, et al (Paperback ) Good luck, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 >>My eight year old son was dx MILD ASPERGER'S 2 yrs. ago. My > husband and I always considered him our bright, creative, quirky > little guy, and then he started school. My #1 is like this. I have never had him dx tho. I pulled him out of the private K he was in, and he has been homeschooled now for 4 years. He will be age 10 in two weeks. >>They all say we just need > to get him involved in more social activities. We are sick about > this because his school reports have gone from " EAGER TO > LEARN " " CURIOUS " " HAPPY " " LOVABLE " to " INATTENTIVE " " OFF-TASK. " For my son, he wanted very limited social activities until I chelated him. Now he enjoys being with other kids, altho he will still show signs of stress if the group is too large. > talking about Enzymes, Supplements, , Allergies. The results > should be in this week and I have to say I'm more confused then > ever. I have biomedical information on my site page here http://www.danasview.net/parent3.htm Good luck. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 I wouldn't worry too much about labels if it wasn't obviously clear he fit into one category or another. Many diagnoses are made just by observable behavior and different specialists will evaluate different ways. At times, 'autism' is put down so the parent can get financial help with services. And many of the labels just end you up in the same position you are now....fumbling around trying to figure out what to DO to help your individual child. Different therapies are going to help different kids. Here is one way of organizing them: http://www.enzymestuff.com/conditionpdd.htm#3 Each person doesn't need to do all the things listed, so don't feel you must do everything you hear someone else is doing. Sometimes it is a matter of just trying something and see if it helps or not. If it doesn't go on to something else. One of the aims of this group is to shortened the distance in 'trying' everything. >>>>They all say we just need to get him involved in more social activities. We are sick about this because his school reports have gone from " EAGER TO LEARN " " CURIOUS " " HAPPY " " LOVABLE " to " INATTENTIVE " " OFF-TASK. " What is your son doing while he is " inattentive " or " off-task? " Is he roaming around the room? Is he banging his head on the floor? What is the teacher doing and what are the other kids doing at these times? Schools nowadays are highly sensory stimulating and this can send a very sensory sensitive person, or more introverted person, into a tailspin. My son was much better at home where things are quieter than at school. At school, there was so much commotion he would just get confused. At home, he does brilliant work. The environment can be everything. (Adults are the same way.) Public schools are set up to assist the majority of the children's learning styles. If you are in the ~20% that doesn't learn best that way, you have to manage the best you can. When I was in school, you sat at individual desks all year in a drab room. I was an A student. I did great that way (and so does my son). But classrooms are very different now, and he struggles with it (just as I would in the same situation). Sensory integration deals with that. 'The Out of Sync Child' book is a good resource because it outlines how one situation may be interpreted by a highly sensitive child versus a 'typical' child. Here is some of the best bets for getting started without going broke and you can do some right away. They all work towards the same goals: 1. Sleep routine - get a good sleep schedule going to bed and rising about the same time (with 'the same time' being within 15 mintutes). As much as possible. This gets the nerve system into a pattern. When we started this I didn't think it accomplished much, but after a couple weeks I noticed a huge difference if we stayed up even an hour later. The next day my son would be more cranky and difficult. 2. Hypoglycemia - basically gives a carb and protein each time the person eats; have the eat within every 3-4 hours. Helps with blood sugar swings. Drink good clean water. http://www.enzymestuff.com/hypoglycemia.htm 3. Reduce artificial colorings and flavorings as much as possible in everything he eats - this can be huge for sensitive kids. http://www.enzymestuff.com/dietsfg.htm 4. Epsom salts - very cheap and the effects are usually seen after the first time. If you don't have any lying around the house, you can get a quart for a couple bucks at any grocery, drugstore, or pharmacy in the foot care section. http://www.enzymestuff.com/epsomsalts.htm 5. Digestive enzymes - you get a LOT of bang for your buck with enzymes. It takes care of all sorts of gut problems, healing, and often makes a special restrictive diet and numerous supplements unncessary. Most people with autism spectrum issues do best with Houston enzymes www.houstonni.com, but there are many other types out too. Does your son have any allergies you know of? There are a few other things but these are excellent starters. A few things to think about for the next step are: A good multivitamin, essential fatty acids, a good probiotic, and detoxing or reducing environmental stresses. The measures I listed will help with detoxing the body as well. But you might want to consider more in depth detox later. Antioxidants are commonly used. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 In a message dated 5/27/2004 10:53:16 AM Eastern Standard Time, wwoytila@... writes: > I'm hoping to learn more on this group too but again I agree, I don't know > about a lot of what is talked about on this group yet! I felt that way too. Just keep reading, and it will start to make sense... Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 In a message dated 5/27/2004 8:02:05 PM Eastern Standard Time, alevin@... writes: > so what is the sense? > Oh, you know . Doctors are of little help, quality food makes a huge difference, how to tinker with supplements, enzymes, enzymes, enzymes... Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 so what is the sense? > In a message dated 5/27/2004 10:53:16 AM Eastern Standard Time, > wwoytila@p... writes: > > > I'm hoping to learn more on this group too but again I agree, I don't know > > about a lot of what is talked about on this group yet! > > I felt that way too. Just keep reading, and it will start to make sense... > > Nell > > > Quote Link to comment Share on other sites More sharing options...
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