Re: Is there such a thing as a do over & hypoglycemia?-long

[Guest guest]

Hi :

Sorry you've been struggling so much. Listen, if you saw improvement with

GFCF and you saw improvement with enzymes, and you didn't see regression

until you started supplements, then it really sounds like he might not be

tolerating one or more of the supplements. I feel like we are all always

reading about kids who couldn't tolerate any probiotic, or the CLO, or a

multi-vitamin - or magnesium or apples even with No-fenol or that the

nystatin isn't addressing the right strain of yeast or whatever. You know

the drill!! It sounds like a great idea to back off of all the things you

added before the regression started and to go slowly one at a time and see

what happens. If you were in a place where things were improving, then you

KNOW he can improve and, as frustrating as this must be right now, that is

the good news!!! Also it is great news that he " will " eat so many different

things when they are not restricted. That will help you a lot as you move

forward!! Are his stools giving you any indicators of anything?? Didn't

you and I have the same stool problems with our kids a couple of months

ago!!?!! What are they doing now?? B/c it also sounds like the bacteria

could be playing a role here even if the yeast isn't.

Hang in there!!!

Josie

Is there such a thing as a do over & hypoglycemia?-long

Hi,

My ASD son is 2.5 yrs old. In June we began dietary intervention to

help treat him. We went GFCF (cold turkey). He responded well at

first to the diet. His language skills (especially receptive)

drastically increased. After about 1 month on the diet, he began to

regress. We believe it was due to red food dye in jello and thus

caused major sensitivity to phenols. In August we began Houston

enzymes. He uses all 3 at each meal. Again, when introducing

enzymes he improved. By mid-October, his socials skills had

improved along with imaginative play and language. We decided to

work with a DAN Dr. as I felt completely overwhelmed at how else to

help him. We performed 3 diagnostic tests immediately and began to

introduce supplements. Since the end of October, again he has

drastically regressed. It is very sad to watch. He has no play

skills. Only wants to watch TV. His language has decreased. He

adds new words, but then doesn't use the words he already had. Also

the biggest problem is sleep. (He has never been a good sleeper,

but with the diet initially and enzymes, he was beginning to sleep

through the night, or get up just 1. He has always wanted to eat at

night). He now gets up every 2 hours to eat. He also just wants

comfort as he wiggles around and moans (seemingly in pain). His

supplements include a probiotic, CLO, Multi Vitamin, Magnesium,

Calcium and enzymes. We have also treated for yeast with Nystatin,

uvi ursi and black walnut hull. His stool analysis did not indicate

a yeast problem, but did indicate a bacteria problem. It showed an

over growth of Klebeslia Pnemoni (SP?). Also, it showed no growth

of bifidobacterium. The other good stuff was in the normal range.

His food allergy tests showed that he was reactive to 6 items.

Cottonseed oil, grapes, cane sugar, locust bean gum (carob), and a

mold and 1 other item I can't remember (not gluten or casein). By

the time of his test, he had been GFCF for 3+ months. We have since

removed grapes and sugar as well as the other items. He also

doesn't get many phenols at all and none after lunch.

It doesn't seem like what we are doing is working. His diet now

only includes whole foods. He eats most fruits (which I've mainly

elminated except for peeled pears and golden delicious apples. He

occasionally gets bananas and peaches). I don't notice any

difference in him on the days he gets bananas and peaches. He eats

most vegetables, but we have limited those as well. He eats meats

some. Depends on the day. He has a few types of chips that he eats

along with GFCF bread. I don't know for certain if the supplements

are working or not. My guess is no. I do think that such a

restrictive diet is our problem as I think it is causing him

hypoglycemia. I know yeast and phenols cause night problems. We've

addressed them both. When he wakes it is for the sole purpose of

drinking his rice milk. It's like he gets a fix he settles right in

after that and goes back to sleep. It doesn't matter the brand of

rice milk. He is on rice dream (trace gluten) but it happens on

other brands as well. He no longer eats any sweets as I can't find

one that is GFCF and sugar free and not sweetend with grape juice

UGH). As I'm typing this, it occurs to me that he doesn't get many

fats as well. He does eat a margerine on his bread.

So, I would like to start over. My question, How do I do it? My

mom instinct is telling me to NOT stop enzymes but to stop

everything else. Also, to begin slowly reintroducing gluten so that

I can find him some items sweetend with honey as well as expand on

the choices we offer him. As for casein, I am scared about milk as

he always reacted to milk as a baby, but thought about introducing

cheese and possibly yogurt and half and half. Also, we know he has

the bacteria, should I treat for that? We decided today to stop his

2nd round of Nystatin. How about all the supps? Should I stop them

and If I do, for how long before I try to reintroduce. I honestly

don't think the Magnesium is a problem but I'm not certain.

Could his night wakings by Hypoglycemia? How can I address this?

How can I change his diet to address this? Also, his amino acid

test indicates he is very low on 3 of the amino acids. Can this be

addressed through food or should I start his custom blend of amino

acids? Lastly, his stool analysis indicated he was low in fat. If

I reintroduce gluten and casein, will that help?

Sorry this is so long. Any insight or suggestions is greatly

appreciated!

mom to Sam 2.5 ASD and Madelyn 15 months NT

[Guest guest]

I saw the same things than Josie mentioned. Diet and enzymes were

working to bring positive improvements. The dyes and supplements were

not. Why don't you list the supplement brands you are giving

including amounts that you started. Since you child reacts to

artificials, notice if there are any artifical additives in any of

these. Also, B6 is very often made the same as artificial additives

(phenolic coal-tar base). If you are giving any high B6 supp, that

would be the first thing to drop.

Anything your body can't use as a nutrient needs to be 'detoxed' from

the body. Supplements included. If you son can get the nutrition from

whole foods via good food and enzymes, that is great. Did you doc say

why each thing should be added? some of these doc just go so

overboard on tons of supps.

>>>the biggest problem is sleep.

This is consistent with getting artificials and not being able to

detox them out. Try reducing or dropping the supplements and start

them one at a time if you even want to do them again right now. Sure,

you can have a do-over any time you like. Try the epsom salts...that

can help with the detox and sleep problem, is cheap and easy to do.

www.enzymestuff.com/epsomsalts.htm

Which probiotic are you giving? Culturelle is very good on bacteria.

Magnesium would be one to keep, depending on the brand and form. You

want something besides oxide or carbonate for better absorption.

For amino acid, wait a bit until this other stuff is straightened

out. If he eats a good diet, he may get enough through meats and

protein foods, moreso as his gut heals.

I've been avoiding trans fats/hydrogenated oils as much as possible.

That might help too if you aren't doing it now.

.

[Guest guest]

The basic idea with hypoglycemia is to give a complex carb plus a

protein 6 times a day (3 meals and 3 snacks). So the person is eating

within avery 3.5 hours. It can be as simple as cheese and crackers,

peanut butter and apple slices, etc. If you don't have a reference

for the glycemic index there is one at the bottom of this page:

http://www.enzymestuff.com/hypoglycemia.htm

The lower the number on the glycemic index, the slower it is

metabolized to the blood stream and impacting blood sugar. High

numbers mean quickly in the blood. These are general guidelines.

.

[Guest guest]

Thanks and Josie for your words of encouragement. We have

taken every supplement out except for Magnesium and calcium. All

the supplements he was taking is free of dyes and preservatives and

is GFCF yeast free etc. We started out with Magnesium (reacted

magnesium from ortho molecular products. It is magnesium citrate

and chelazome as amino acide chelate ). We were giving it at night

(75 mg) and at first it would give him a tummy ache, then after a

few nights, he seemed better. We then added Calcium. It is the

Kirman's Calcium powder enriched with Vitamin D. We also gave 1/4

tsp (500 mg) of that at bedtime. We also introduced a probiotic.

He was getting 1 cap of orthobiotic by ortho molecular products(at

waking). I think it has 7 billion live stuff. At breakfast he gets

all 3 enzymes (full doses usually) with 1 cap of a multi by child

essence and 1/2 tsp of Carlsons CLO with lemon flavoring. Lunch, he

would get the multi again with enzymes. Dinner just enzymes. If he

was constipated, we would give additional magnesium throughout the

day to help move him along. Yesterday, we stopped the Nystatin

after 1 dose in the morning. We also stopped the probiotic

(yesterday was the 1st day). We stopped the multi and the CLO a few

days ago. We had also stopped the Calcium, but decided last night

to cut it back to 1/8 tsp (250 mg) and give it with magnesium at

dinner. We cut the magnesium back to 1/4 cap (37.5 mg). We also

decided to test casein as a friend highly recommend giving him half

and half (for fat and healing purposes). We gave him 1/4 cup at mid

afternoon snack with 1 full dose of AFP pep and 1/4 cup at dinner

(with enzymes). We also allowed him to have his GFCF cookies that

contain sugar. He was in heaven (I was happy to see him so happy).

We had the best day yesterday in therapy since mid october. His

sleep last night was better. He was up only 2 times and did have a

sleep period of 4 hours without getting up. He didn't seem to be in

pain last night.

I am thinking that we will keep things this way for a while if it

continues to work and if sleep can improve. We have ordered

culturelle as a new probiotic and it hasn't arrived yet. I don't

know if I should give that or not. Also, I don't know about the

Calcium. I would just love for him to get the nutrients he needs

from food.

Today, I am keeping a close eye on him to look for reactions to the

casein. I'm not sure what I am looking for but I suppose I will

know it when I see it? He has been 6 months GFCF and 3 months on

enzymes, so I am hoping we have had considerable healing. Should i

wait a while before testing gluten?

As for epsom salts, we had been doing the rub, but it seemed like

that caused him to have to urinate A LOT at night and maybe that was

causing his night wakings because he was so wet. Could it be that

the epsom were working overtime to rid the body of all the

supplements and should I try it again to see if it helps? Also,

could it be that it took a few days to get all the supps out of his

system and therefore yesterday he is finally getting past it.

Lastly (and thanks for reading all of this), his stools are

typically looser. Even after starting the diet and enzymes he

tended to have looser more frequent stools. With all the supps, he

tended to be constipated as it seemed we had to give him magnesium

to help him almost daily. Prior to the supps, could the bacteria

problem he has cause the looser (foul smelling stools) and the supps

kind of blocked him up? Should I just wait and see what happens to

his stools now that we are off of everything?

Again, thanks so much for your guidance. , the part in your

book where you said you took the pep and gave 1 to the kids and had

ice cream gave me the courage to test the diet. I am so hopeful

that we can leave such a restrictive diet.

mom to Sam 2.5 ASD and Madelyn 15 months NT

p.s. We are 100 dye free and have been for about 4 months and are

about 95 percent preservative free. We have switched back to butter

to get rid of the hydrogenated oils and trans fat.

>

> I saw the same things than Josie mentioned. Diet and enzymes were

> working to bring positive improvements. The dyes and supplements

were

> not. Why don't you list the supplement brands you are giving

> including amounts that you started. Since you child reacts to

> artificials, notice if there are any artifical additives in any of

> these. Also, B6 is very often made the same as artificial

additives

> (phenolic coal-tar base). If you are giving any high B6 supp, that

> would be the first thing to drop.

>

> Anything your body can't use as a nutrient needs to be 'detoxed'

from

> the body. Supplements included. If you son can get the nutrition

from

> whole foods via good food and enzymes, that is great. Did you doc

say

> why each thing should be added? some of these doc just go so

> overboard on tons of supps.

>

>

> >>>the biggest problem is sleep.

>

> This is consistent with getting artificials and not being able to

> detox them out. Try reducing or dropping the supplements and start

> them one at a time if you even want to do them again right now.

Sure,

> you can have a do-over any time you like. Try the epsom

salts...that

> can help with the detox and sleep problem, is cheap and easy to do.

>

> www.enzymestuff.com/epsomsalts.htm

>

> Which probiotic are you giving? Culturelle is very good on

bacteria.

> Magnesium would be one to keep, depending on the brand and form.

You

> want something besides oxide or carbonate for better absorption.

>

> For amino acid, wait a bit until this other stuff is straightened

> out. If he eats a good diet, he may get enough through meats and

> protein foods, moreso as his gut heals.

>

> I've been avoiding trans fats/hydrogenated oils as much as

possible.

> That might help too if you aren't doing it now.

>

> .

[Guest guest]

> work with a DAN Dr. as I felt completely overwhelmed at how else to

> help him. We performed 3 diagnostic tests immediately and began to

> introduce supplements. Since the end of October, again he has

> drastically regressed.

My son did not tolerate most supplements until about round 50 of ALA

chelation. Try removing the supplements. If you want, add them back

one at a time, and watch for reactions.

> He now gets up every 2 hours to eat.

For my son, this meant he was eating something he did not tolerate

[either food or supplement].

He also just wants

> comfort as he wiggles around and moans (seemingly in pain). His

> supplements include a probiotic, CLO, Multi Vitamin, Magnesium,

> Calcium and enzymes.

My son still does not tolerate probiotics, CLO, multivitamins. It

took me quite a while to find calcium and magnesium that he tolerated.

He tolerated enzymes, but some kids don't tolerate certain enzymes.

> His food allergy tests showed that he was reactive to 6 items.

Have you done a food *intolerance* test?

> It doesn't seem like what we are doing is working. His diet now

> only includes whole foods. He eats most fruits (which I've mainly

> elminated except for peeled pears and golden delicious apples. He

> occasionally gets bananas and peaches).

Give these with No-Fenol enzymes. Watch him each time, to see if he

still does not tolerate any of them. My son did not tolerate peaches

[orange food] even with enzymes.

> hypoglycemia. I know yeast and phenols cause night problems. We've

> addressed them both. When he wakes it is for the sole purpose of

> drinking his rice milk. It's like he gets a fix he settles right in

> after that and goes back to sleep.

Yep, same with my son. He did not tolerate rice, even with enzymes.

Try removing rice, see if that helps.

> So, I would like to start over. My question, How do I do it? My

> mom instinct is telling me to NOT stop enzymes but to stop

> everything else.

Go with your instinct.

Also, to begin slowly reintroducing gluten so that

> I can find him some items sweetend with honey as well as expand on

> the choices we offer him. As for casein, I am scared about milk as

> he always reacted to milk as a baby, but thought about introducing

> cheese and possibly yogurt and half and half.

Start with wheat and Peptizyde or AFP enzyme.

>>Also, we know he has

> the bacteria, should I treat for that?

You can if you want. Garlic, oil of oregano, probiotics.

We decided today to stop his

> 2nd round of Nystatin. How about all the supps? Should I stop them

> and If I do, for how long before I try to reintroduce.

Stop them for about a week, or until you think he has reached his

baseline. Then add back one at a time and watch for reactions.

Keeping a journal will help.

> Could his night wakings by Hypoglycemia?

Yes, possibly.

>>How can I address this?

> How can I change his diet to address this?

Give him a high protein snack just before bed. If he wakes in the

night, offer him protein instead of rice milk.

Also, his amino acid

> test indicates he is very low on 3 of the amino acids. Can this be

> addressed through food or should I start his custom blend of amino

> acids?

Probably thru the blend, altho you can give proteins with enzymes and

see if that does it.

If you want to do the blend, start it by itself, so you can watch for

reactions.

Lastly, his stool analysis indicated he was low in fat. If

> I reintroduce gluten and casein, will that help?

Probably. Zyme Prime enzyme can also help.

Dana