Re: Virsatop- round 2 update (longish)

[Guest guest]

Nell,

What a GREAT progress report! Thanks for sharing. What made you

start to treat for viral issues in the first place? I'm wondering

if my son also has viral issues and am thinking of treating him for

viruses. I thought I had read that OCD type behaviors can be linked

to viruses???

Thanks again for sharing your good news!

> n (now almost 7) was in 's viral enzyme study last

summer,

> with great results. Since viruses don't get killed but only

> suppressed, I started him another course of treatment with

Virastop

> almost 3 weeks ago.

>

> I started with 1 cap 4X/day, and at first the same thing happened

as

> last time -- snarling meltdowns, but not long-lasting ones. Yeast

> increased but not nearly as much as last time, it was manageable

with

> relatively small doses of GSE twice a day for a few days. At first

I

> did not see great improvement this time, although he was already

> doing so much better than last summer that I figured maybe the

> improvements were there, slightly, but hard to see.

>

> So I kept increasing the dosage. When I got to 4 and then 5 caps

4X

> day, once again, wow! We're on vacation now, so lots of change and

> disrupted routines, and he's doing absolutely beautifully. No

> meltdowns for 2 weeks and counting. No whining. He can amuse

himself

> and play with his little sister for hours. He seems much more

mature,

> even poised, and very cooperative and cheerful. A new thing is

going

> on that's hard to describe -- he appears to be introspective

instead

> of looking for all his stimulation externally. IOW a month ago he

was

> still whining a LOT to be played with, wanting my husband and me

to

> read to him, play cards, whatever. He had little capacity to just

sit

> and daydream or to find something to do on his own.

>

> Yet on the long drive to the beach he didn't complain one bit, but

> read and played cards with his sister. A long car ride with no

> whining! No fighting! No complaining! Whose family is this?

>

> He's been chatting and affectionate with family friends, open

about

> his feelings, able to hear " No " without falling apart. His empathy

> has really increased. My friends say no one would ever guess he

had

> autism. (I'm not saying he's recovered yet, because he still needs

> enzymes and supps, more chelation, and can't eat artificials

without

> getting a stomach ache or having a crying jag.)

>

> I'm going to continue the treatment for at least a few more weeks,

> and keep increasing the dosage. I'll report again after we're

done.

> Many thanks to for starting us down this path and to

Enzymedica

> for making the Virastop....

>

> Nell

[Guest guest]

some childrens' autistic symptoms are viral related. some are not. i was

on an immune/viral type protocol for three years with very little progress.

my son's issues are not viral in nature but GUT, GUT, GUT! he has always been

a gut kid and that is what i am currently working on.

so many things can suppress the immune system: metals, leaky gut, etc. i

have to clean up my son's gut issues first (not to mention chronic

constipation).

the best thing to do is like the prev post mentioned is get tested to see if

your child has viral issues. vicki

[Guest guest]

What made you

> start to treat for viral issues in the first place?

I had a viral panel done through Immunosciences, on the advice of a DAN

doc. At that point I had no idea he had a viral problem, but his

Epstein-Barr titer was 4X the reference range. He did get sick a lot

when he was younger. And I haven't verified this, but I heard yesterday

that a bad reaction to prednisone is an indication of immunity

problems, and he definitely went beserk on prednisone, fwiw.

During last summer's treatment I ran out of Virastop for about a week

and he developed a host of symptoms I'd never seen before -- very OCD,

both motor and verbal, extremely hyper and unfocussed. When I put him

back on Virastop those symptoms went away and haven't come back, so I'm

thinking they are connected to the virus somehow.

Nell

[Guest guest]

>>A new thing is going

> on that's hard to describe -- he appears to be introspective instead

> of looking for all his stimulation externally. IOW a month ago he was

> still whining a LOT to be played with, wanting my husband and me to

> read to him, play cards, whatever. He had little capacity to just sit

> and daydream or to find something to do on his own.

My #4 is like this. Flax oil and amino acids seem to help. Maybe I

will add back the OLE. Thanks for this.

Dana

[Guest guest]

Can you elaborate on what you mean by a gut child Behaviors, etc so

I can learn/compare.

Thanks

Aileen

> some childrens' autistic symptoms are viral related. some are

not. i was

> on an immune/viral type protocol for three years with very little

progress.

> my son's issues are not viral in nature but GUT, GUT, GUT! he has

always been

> a gut kid and that is what i am currently working on.

>

> so many things can suppress the immune system: metals, leaky gut,

etc. i

> have to clean up my son's gut issues first (not to mention chronic

> constipation).

>

> the best thing to do is like the prev post mentioned is get tested

to see if

> your child has viral issues. vicki

>

>

>

[Guest guest]

a child with gut issues includes: leaky gut, parasites, yeast, yeast and

more yeast, bad bacteria, etc. there is a definite " gut-brain " connection.

there are a few good books out there: " the second brain " by dr gershon; " gut

and

psychology syndrome " by dr campbell-McBride). also, dr wakefield's work

speaks to the gut problems in autistic kids.

my son in particular, major yeast issues, leaky gut, parasites, chronic

constipation, etc. causes major stimming, behaviors (aggressive), ocd, etc.

vicki

[Guest guest]

-Dana about OLE, Do you give one whole cap all at once? and what do

you mix it with.

Aileen

-- In , " danasview " <danasview@y...>

wrote:

>

> >>A new thing is going

> > on that's hard to describe -- he appears to be introspective

instead

> > of looking for all his stimulation externally. IOW a month ago he

was

> > still whining a LOT to be played with, wanting my husband and me

to

> > read to him, play cards, whatever. He had little capacity to just

sit

> > and daydream or to find something to do on his own.

>

>

> My #4 is like this. Flax oil and amino acids seem to help. Maybe I

> will add back the OLE. Thanks for this.

>

> Dana

[Guest guest]

I will look into these refs. thanks. I know my child has gut issues.

Not sure about Viral- What does the test and an anti viral protocol

involve.

Also what does OCD mean? I'm sure it is something obvious but it is

Friday evening and my brain cells have gone for a lie down!

Also where can I read about viral issues - I'm a bit confused as I

thought all our kids had gut issues and are the behaviours

difference. i.e gut behaviours and viral behaviours?

Thanks

Aileen

> n (now almost 7) was in 's viral enzyme study last

summer,

> with great results. Since viruses don't get killed but only

> suppressed, I started him another course of treatment with Virastop

> almost 3 weeks ago.

>

> I started with 1 cap 4X/day, and at first the same thing happened

as

> last time -- snarling meltdowns, but not long-lasting ones. Yeast

> increased but not nearly as much as last time, it was manageable

with

> relatively small doses of GSE twice a day for a few days. At first

I

> did not see great improvement this time, although he was already

> doing so much better than last summer that I figured maybe the

> improvements were there, slightly, but hard to see.

>

> So I kept increasing the dosage. When I got to 4 and then 5 caps 4X

> day, once again, wow! We're on vacation now, so lots of change and

> disrupted routines, and he's doing absolutely beautifully. No

> meltdowns for 2 weeks and counting. No whining. He can amuse

himself

> and play with his little sister for hours. He seems much more

mature,

> even poised, and very cooperative and cheerful. A new thing is

going

> on that's hard to describe -- he appears to be introspective

instead

> of looking for all his stimulation externally. IOW a month ago he

was

> still whining a LOT to be played with, wanting my husband and me to

> read to him, play cards, whatever. He had little capacity to just

sit

> and daydream or to find something to do on his own.

>

> Yet on the long drive to the beach he didn't complain one bit, but

> read and played cards with his sister. A long car ride with no

> whining! No fighting! No complaining! Whose family is this?

>

> He's been chatting and affectionate with family friends, open about

> his feelings, able to hear " No " without falling apart. His empathy

> has really increased. My friends say no one would ever guess he had

> autism. (I'm not saying he's recovered yet, because he still needs

> enzymes and supps, more chelation, and can't eat artificials

without

> getting a stomach ache or having a crying jag.)

>

> I'm going to continue the treatment for at least a few more weeks,

> and keep increasing the dosage. I'll report again after we're done.

> Many thanks to for starting us down this path and to

Enzymedica

> for making the Virastop....

>

> Nell

[Guest guest]

> -Dana about OLE, Do you give one whole cap all at once?

Yes, or more than one capsule, depending on the child and why I am

giving it.

>>and what do

> you mix it with.

I give whole capsules to three of my kids, the other one wants it

mixed with peanut butter and honey.

Dana

[Guest guest]

> Not sure about Viral- What does the test and an anti viral protocol

> involve.

Dr. McCandless recommends the Immunosciences Lab virus panel.

I use olive leaf extract as anti-viral.

> Also what does OCD mean?

Obsessive compulsive disorder.

> Also where can I read about viral issues

Info here

http://www.danasview.net/parent3.htm#nids

>> - I'm a bit confused as I

> thought all our kids had gut issues

Most kids have gut issues, not all. Some kids have virus issues.

>>and are the behaviours

> difference. i.e gut behaviours and viral behaviours?

Sometimes yes and sometimes no.

Dana