Re: Oh bother...doctor wants us to do a trial of GF/CF...HELP!

May 13, 2004

Did he say why? And for how long? Do you do Houston enzymes already? It

would take a lot of convincing for me to do it again but then I've been there,

hated the T-shirt.............

Mandi in UK

This Friday will be the end of six weeks on the Feingold diet for

us. We had our first DAN! doctor appointment this week and the

doctor wants us to try GF/CF.

May 13, 2004

To see if it has an impact on his hyperactivity and aggressiveness. We do use

all three enzymes and have for almost a year but my son's BM's are still very

abnormal. I'm hoping the stool and urine tests for yeast, parasites and

bacteria will yield the missing piece to this puzzle and that once whatever he

has is treated he will settle down and won't need GF/CF. If I try this GF/CF

and it is the key, how soon will it take for me to see results?

Thanks, KIM

P.S. Maybe I just need to give him more enzymes? Currently giving 1 of each

with every meal and snack. Maybe I should be giving 2 Zyme Prime, 2 AFP Pep and

1 No Fenol?

Re: Oh bother...doctor wants us to do a " trial " of

GF/CF...HELP!

Did he say why? And for how long? Do you do Houston enzymes already? It

would take a lot of convincing for me to do it again but then I've been there,

hated the T-shirt.............

Mandi in UK

This Friday will be the end of six weeks on the Feingold diet for

us. We had our first DAN! doctor appointment this week and the

doctor wants us to try GF/CF.

May 14, 2004

I don't know if this will help, but I took away the ZP and NF and give just

the AFP Pep (along with other things). We saw aggressiveness and tear

bursts when using ZP and AFP. NF appeared to cause crying and moodiness,

but we did not try this one long enough to know for sure.

We did try the ZP for quite awhile along with the AFP. When I removed the

ZP, the crying and aggressiveness stopped. I then added fish oil (Nordic

Naturals), and chromium. We saw great behavior and wonderful cognitive

gains, especially in the social arena and self awareness. We then added

minerals and vitamins and saw teary behavior again. We removed the vitamins

and minerals, and back to the previous gains.

For diet, we follow Feingold (and I throw in salicylates here and there with

a whole NF) and we still use selected GFCF foods because I have them. We

are not GFCF, but we eat GFCF cereal and milk, waffles -- I like the

variety. We rotate milks including almond, rice, soy, etc. and occasionally

I will throw in some Stoneybrook Farms yogurt with AFP mixed in. Meals are

usually meat and veggies, with a small serving of rice or other Feingold

approved carb. We do not use GFCF bread anymore but stick to organic bread

without additives/preservatives, etc. It's a real mish mash, but overall,

appears to be well balanced for now. We change as we go...

Hope you find your solution.

S.

May 14, 2004

gfcf is wrong.

if the sprinkled enzymes are not enough then scd empahsis is needed

http://www.pecanbread.com/scdscience.html

i don't agree with scd on the use of nut flours and elimination of

non fermented dairy esp cream, but bascially its sound.

> To see if it has an impact on his hyperactivity and

aggressiveness. We do use all three enzymes and have for almost a

year but my son's BM's are still very abnormal. I'm hoping the stool

and urine tests for yeast, parasites and bacteria will yield the

missing piece to this puzzle and that once whatever he has is treated

he will settle down and won't need GF/CF. If I try this GF/CF and it

is the key, how soon will it take for me to see results?

> Thanks, KIM

>

> P.S. Maybe I just need to give him more enzymes? Currently giving

1 of each with every meal and snack. Maybe I should be giving 2 Zyme

Prime, 2 AFP Pep and 1 No Fenol?

> Re: Oh bother...doctor wants us to do

a " trial " of GF/CF...HELP!

>

> Did he say why? And for how long? Do you do Houston enzymes

already? It

> would take a lot of convincing for me to do it again but then

I've been there,

> hated the T-shirt.............

> Mandi in UK

>

> This Friday will be the end of six weeks on the Feingold diet

for

> us. We had our first DAN! doctor appointment this week and the

> doctor wants us to try GF/CF.

>

May 14, 2004

> This Friday will be the end of six weeks on the Feingold diet for

> us. We had our first DAN! doctor appointment this week and the

> doctor wants us to try GF/CF. Where do we start? I can't imagine

> what my child would eat, he is so picky as is. What is the best

> resource for me to learn where to shop and what I can buy? My son

> has been on all three Houston enzymes for almost a year now with

> inconsistant stools still. We're testing stool and urine for

yeast,

> bacteria and parasites and I'm hoping that solves the mystery. I

> don't think it is food, but what do I know? My son's stool

> consistency varies greatly and I can't examine it and know what I'm

> dealing with. Anyone here doing Feingold and GF/CF? How hard is

> that??? Where can I go to learn what I can buy. My son has never

> craved or even liked milk. He does like Yo Baby Yogurt drinks,

> cheese, ice cream and bread. If I try GF/CF and it is going to

make

> a difference, how soon will I see this dramatic change? Feingold

> can take anywhere from 4-6 weeks. I'm praying the same time frame

> doesn't apply to GF/CF? Any help or advice is greatly

appreciated.

> Thanks, KIM

We just completed our first week gf/cf! Breakfast is a hard one. The

cereals are yuck, I couldn't get my son to eat them, rice milk did

him in, hated the taste. We now eat dinner type foods for breakfast,

chicken, or beef. We couldn't do the gf/cf waffles because they have

soy in them, nearly everything under the son has soy added. If my son

didn't eat meat, I would be in trouble. One saving grace was that he

is allowed UTZ regular potato chips, at least one junk food thing to

tie him over when everyone else is snacking on stuff.We did a

Feingold trial, worked ok, but not as good as the gf/cf in our

situation. My son has boundless eneergy, chooses to play outside

rather than watch TV! Ran a 1/4 mile today at track practice, he is

only 5, my 13 y/o can just about do it.However, I am concerned now

because of his increased energy, he will lose weight. He is already

on the skinny side, hard time gaining, even when he was a slug on the

couch. So I need to get in touch with MD re: possible weight loss.

But so far it has worked wonders for us, and only one week. Hard for

everyone, but I think worth it right now for the benefits I am seeing.

May 14, 2004

I went gfcf with my son from 19-25 months. It didn't do anything

for us except for educate me on what goes in to my children's

bodies. I now have an organic household, trans-fat free household

and working on a chemical free household.

If you are really serious about looking in to this diet, you can

buy " Special Diets for Special Kids II " from the bookstore or

Amazon.com Also, you can take a peek at another group,

gfcfkids.

Of course, some leaders on this site say that it can take over 6

months to see results! Something about gluten being stored in the

body. I say that is garbage and a way to explain away criticism,

but so be it.

I found the diet fairly easy once I cleared out the kitchen. There

are also several on-line stores that sell gfcf exclusively. For the

life of me, I can't recall the adresses. You can always go to the

bookstore and buy the most recent issue of " Living Without "

magazine. It is for gf people and the ads are all for gf products.

The stores advertise there and will have their on-line addresses.

SCD seems more logical. I think supplied you with the

pecanbread address.

Good luck!

Pam

> This Friday will be the end of six weeks on the Feingold diet for

> us. We had our first DAN! doctor appointment this week and the

> doctor wants us to try GF/CF. Where do we start? I can't imagine

> what my child would eat, he is so picky as is. What is the best

> resource for me to learn where to shop and what I can buy? My son

> has been on all three Houston enzymes for almost a year now with

> inconsistant stools still. We're testing stool and urine for

yeast,

> bacteria and parasites and I'm hoping that solves the mystery. I

> don't think it is food, but what do I know? My son's stool

> consistency varies greatly and I can't examine it and know what

I'm

> dealing with. Anyone here doing Feingold and GF/CF? How hard is

> that??? Where can I go to learn what I can buy. My son has never

> craved or even liked milk. He does like Yo Baby Yogurt drinks,

> cheese, ice cream and bread. If I try GF/CF and it is going to

make

> a difference, how soon will I see this dramatic change? Feingold

> can take anywhere from 4-6 weeks. I'm praying the same time frame

> doesn't apply to GF/CF? Any help or advice is greatly

appreciated.

> Thanks, KIM

May 14, 2004

Hi,

We started with GFCF (also no corn, soy or eggs), then gradually went

mostly Feingold. The GFCF was by far the hardest to start, but once

we were underway, not so bad. Again, since most manufactured food

(even GFCF) had unwanted soy or corn in it, we also changed our

lifestyle (to organic, unprocessed, make-it-yourself). My children

are younger, so while there was some complaining, initially, they are

completely used to it now.

I also used 's book, Special Diets for Special Kids. I

first went to www.gfcfdiet.com and found the forbidden list. I

bought foods I knew he could eat for a few days before I started. I

made " normal " dinners and lunches, just making sure my ingredients

were GF/CF. The biggest change here was no cheese. But, for

instance, we wouldn't eat cheese on porkchops and salad. Tinkyada

makes a rice pasta that we liked. Potato chips were handy the first

week. Any fruits and vegetables you can have now are still good.

After I saw gains the first week, I went ahead and invested in this

book, which was a big help. I also invested in a bread machine. I

also started looking for recipes on GFCFrecipes. As time went on,

with success, I made further investments, like purging my kitchen of

gluten items, etc.

If you have the Feingold shopping guide, it won't be too hard to

start from here. Just get the illegal list off the gfcfdiet web

page, and at the store, just check the Feingold approved labels for

the forbidden items (modified food starch, hvp, etc.).

I don't know anybody for whom GFCF worked after 6 months, when they

didn't see any gains really quickly, but you could check the GFCFKids

board and see if you find someone on there who says they stuck with

it for three months before they saw improvements. In our case it was

fairly immediate (within three days), which, of course, added some

impetus for really sticking with it. (I have a friend, bless her,

who stuck with the diet for a year without seeing anything. I

couldn't have done this.)

We also had boundless energy the first week (gluten had the effect of

putting my son in a stupor - he would literally lie down on

playground equipment and stare up in space for 20 minutes at a

time). I read a book by an ASD boy who was older who went GFCF. He

said he felt this overwhelming sense of energy and well-being. He

described it as just wanting to run and jump for the first time in

his life.

Also, a sign for me that this diet was essential for my son is that

he stopped eating all carbs, and started eating vegetables, meat and

fish - vegetables, literally, for the first time in two years. In

other words, the pickiness really almost stopped.

In our case, it was crystal clear that whatever else was going on,

gluten was a huge problem for our child. I think you KNOW if you've

hit upon the right thing.

Judy

..

> This Friday will be the end of six weeks on the Feingold diet for

> us. We had our first DAN! doctor appointment this week and the

> doctor wants us to try GF/CF. Where do we start? I can't imagine

> what my child would eat, he is so picky as is. What is the best

> resource for me to learn where to shop and what I can buy? My son

> has been on all three Houston enzymes for almost a year now with

> inconsistant stools still. We're testing stool and urine for

yeast,

> bacteria and parasites and I'm hoping that solves the mystery. I

> don't think it is food, but what do I know? My son's stool

> consistency varies greatly and I can't examine it and know what I'm

> dealing with. Anyone here doing Feingold and GF/CF? How hard is

> that??? Where can I go to learn what I can buy. My son has never

> craved or even liked milk. He does like Yo Baby Yogurt drinks,

> cheese, ice cream and bread. If I try GF/CF and it is going to

make

> a difference, how soon will I see this dramatic change? Feingold

> can take anywhere from 4-6 weeks. I'm praying the same time frame

> doesn't apply to GF/CF? Any help or advice is greatly

appreciated.

> Thanks, KIM

May 14, 2004

Thanks for the reply. My son doesn't eat meat, although he will eat eggs and

bacon (although I don't know if bacon is allowed). My son is the opposite of

your son. He is 100 miles an hour all day long...extremely motor driven and too

aggressive with his little sister. I wonder if GF/CF would calm him down and I

wonder if we'd see quick results. If we didn't, I don't think I could keep it

up. Thanks again, KIM