Re: Super Nu Thera & side effects

[Guest guest]

Hey Liz: I dont have an answer, because this is the first

supplement our DAN doctor gave us also. We just started it 6 days

ago and I dont know what the good improvements should be or the

negative reactions, so I will be very interested in seeing what

others write.

I also would love to know " when " the good OR bad stuff would be

happening. Take it easy!

So far, I have seen no improvements or negative things either.

Kim

>

> I am thinking of starting my 6 year old son on Super Nu Thera.

Does

> anyone know of any negative side effects that it may cause?

>

> Thanks

> Liz

[Guest guest]

>>>> I am thinking of starting my 6 year old son on Super Nu Thera.

Does anyone know of any negative side effects that it may cause?

It is popular because of popular marketing but I wouldn't start on

it. It is evaluated by one of the orgs that helped create it that it

only helps a minority of autism people (so the majority of those with

autism are not helped by it, and might suffer an adverse effect). It

has a very very high dose of B6 which can cause nerve problems. In

fact, the 'side-effects' were so bad that they had to put in

magnesium just to keep the kids stable.

It might be that the higher B6 is only beneficial for those with a

condition called pyrolurria. This causes wasting of B6 and zinc. You

can have pyrolurria and not autism too. The recommendation for

pyrolurria is supplementing more B6 and zinc so your body 'sees' the

correct amount. After really looking at the numbers, the percentage

of autism kids thought to do well with higher levels of B6 is about

the same as the number of autism kids thought to have pyrolurria.

It is very common to read kids doing quite badly with SuperNuThera.

An alternative is to get a version without the high B6 or a good

multi-vitamin. Try that first and see if it helps. Then if you want

to try additional B6, buy that vitamin separately. That way you can

adjust the B6 dose without having to toss out the entire supplement

or change levels of other nutrients.

The SuperNuThera is also famous for tasting terrible. If you want to

go that way, definitely try a trial size first and see if the child

will even allow it near his body.

Recently there was a post on the autism-mercry group saying that B6

is an antagonist for magnesium (interfers with it). Synthetic B6 is

made from coal-tar (petroleum) like the artificial additives. So if

your child runs ADHD or has phenol/salicylate intolerances, this

wouldn't be the way to start.

It is also quite common for someone to think their child is

tolerating a mega-B6 supplement. Then they start enzymes and the body

is actually absorbing more of what goes in the mouth. Then there is

regression from the B6. Taking the B6 out fixes the problem. Starting

with enzymes, and then maybe magnesium, and then a multi-

vitamin/mineral, and then experimenting with B6 levels seems like an

efficient way to go.

.

[Guest guest]

>

Starting

> with enzymes, and then maybe magnesium, and then a multi-

> vitamin/mineral, and then experimenting with B6 levels seems like

an

> efficient way to go.

>

,

What do you suggest for a child who has been taking a high B6 (P5P

actually) & magnesium supplement for many years while on GFCF/SCD,

and is now beginning enzymes? He doesn't have pyrolurria. Would you

stop the multivitamin supplements altogether or reduce the dose

gradually?

Mae Lynn

[Guest guest]

I think Terri is being very professional here, and thus is leaving

out part of her experience due to current employment. Since I am not

affiliated with either company, I will take the liberty of adding on.

Terri's son actually did 'okay' on a high B supplement. But then she

tried him on Brainchilds vitamins and her son did W-O-W-wonderful on

it. A whole other level up in improvement. I would read her posts

regularly for a couple years before she went to work for Brainchilds.

It also shows the line has been successful for quite awhile.

Brainchilds has trial sizes too, which is a great way to test

something.

.

[Guest guest]

http://www.brainchildnutritionals.com/Brainchild_Nux.html

Great Plains lab offers them too.

.

[Guest guest]

>

> I am thinking of starting my 6 year old son on Super Nu Thera. Does

> anyone know of any negative side effects that it may cause?

It can calm kids, but it can also cause wild hyper, especially in

phenol intolerant kids. So give a low dose, in the morning, and watch

to see what sort of reaction your child will have.

Dana

[Guest guest]

> ,

>

> What do you suggest for a child who has been taking a high B6 (P5P

> actually) & magnesium supplement for many years while on GFCF/SCD,

> and is now beginning enzymes? He doesn't have pyrolurria. Would you

> stop the multivitamin supplements altogether or reduce the dose

> gradually?

I am not , but my son needed insanely high doses of B vitamins

for quite a while, even after he was fully chelated and no longer

needed enzymes. If your child has been doing well with the

B6/magnesium, he might need less of it, but I would recommend you

reduce the dose gradually, not remove it entirely. You might find you

can remove it, but I would learn that fact by gradual reduction.

Altho you wrote " stop the multivitamin supplements " , and B6/magnesium

would not qualify as a multivitamin, so not sure if this is the info

you want.

Dana