Re: help-trying to challenge diet

[Guest guest]

Hi there,

Others may have more experience in challenging, but I have a good

deal of it. I have made plenty of mistakes, but I think the nature

of the beast is that you will have some times where you're not sure

of the results of the challenge. This is, of course, because you

cannot control certain variables, like viruses, normal development,

etc. You may also, as I have done plenty of times, accidently

introduce another variable into the equation (for example, I recently

tested a food, but also absent-mindedly let my son have one of his

sister's chewable vitamin C tablets, even though he notoriously has

problems with orange-anything).

So, what I've learned is the following. First, if possible, wait for

a time where your child seems relatively stable - their behavior has

been more or less the same for a little while. Good, if you can get

it good. Next, keep their diet pretty much the same when you

introduce the new food. Keep it mellow and not terribly exciting-

you are trying to perturb just one variable (if you want an example

of what not to do, try the following test for egg whites that I tried

on my son - make a white cake and let him eat tons of batter,

followed with egg white french toast with lots of syrup, straight up

frosting with egg whites, and plenty of marshmallows). Follow the

general advice of giving that food for three days, stopping at the

third day, or earlier if you see reaction. Then stop, and if you

haven't seen a reaction yet, wait another three days. (Really stop at

three days, even with no reaction, you may have a delayed reaction

that's really bad, and you don't want an enormous build-up).

Then, unfortunately, the best thing to do is wait a few days for the

return to the stable child, have them be stable for a few days, and

try it again. If you have a really terrible reaction the first time,

and you are certain, then no need to repeat.

In your case, since there are a lot of variables here, I would stop,

resume a diet with the enzymes, and get her to where you think she is

pretty good. If you think you need to deal with yeast, do this

first. Then try again. If you get the same results - she's off, her

bm's smell, etc., then you will be more sure it's the wheat.

I know this is pretty hard and time consuming (in our case, getting

our son back to " good " has often been challenging - throw in a flu,

or just the general unwellness of leaky gut, it's hard to tell what's

going on). As you take really good care of controlling as many

variables as you can, and repeat the experiments, you will get very

good information.

Right now you know that you added wheat, soy and nystatin, and a

possible flu, and she wasn't good. This is great information. If

you add wheat next time, without the nystatin or soy, and you get the

same symptoms (or don't), then you have much more information!

Hope this is helpful,

Judy

> My 2 year old daughter has been gfcfsf since Nov and gfcfsf and

> rice, egg, beef,nuts,coconut, fruit, etc..free since January.

>

> About 21/2 months ago I introduced AFP. Then about 1 month ago I

> started ZP. With AFP her diapers were a little better (usually a

> mess) and she seemed a bit more aware of her surroundings. With ZP

> her diapers became great and even more aware of her surroundings

> (although not yet where we want her. A few bad days with enzymes

> along with a few bad diapers, but more better than bad.

>

> We met with our GI doc and decided to challenge her diet. First

> with wheat. WIth each meal with wheat we give her 1 afp and 1 zp

> (usually 3/4 capsul without wheat)

>

> 1st day: gave her wheat with breakfast: she seemed ok

> gave her wheat with lunch: semed quieter and less

> responsive.

> At night she seemed better.

>

> 2nd day: gave her wheat (and soy) with breakfast and gave her

wheat

> with lunch. Seemed off all day (less talkative, less responsive,

> singing more-instead of responding and talking).

>

> Both days her bm went downhill (especially day 2). She also seemed

> to have a slight rash on her face and on her lip.

>

> day 3: gave her wheat with breakfast. Seemed ok then got very

> quiet. I also gave her 1 ml nystatin-thinking she might have yeast

> problems (always a concern of mine).

> By 3 pm, she had a 102.5 fever.

>

> Now I am not sure if she is off because of the fever, or did she

get

> the fever in response to the wheat or the nystatin....

>

> Anyone have any experiences with the reintroduction of foods that

> are similar or have any advise/thoughts?

>

> she seems a bit more hyper-I have read this happens after

> introducing enzymes, but what about after adding foods back?

> Her therapists do not see the difference that my husband and I

see.

> She is still talking but is " off " .

>

> We really are hoping that the enzymes allow us to go off the diet.

>

> Any input would be appreciated.

>

> Thanks

>

> Georgine

[Guest guest]

> We met with our GI doc and decided to challenge her diet. First

> with wheat. WIth each meal with wheat we give her 1 afp and 1 zp

> (usually 3/4 capsul without wheat)

Was this " just wheat " , or was it something purchased from a grocery

store? For example, when I challenged " wheat " , I was giving my kids

bread from the store, which contained corn syrup. They had a

reaction, but it was not to the wheat, it was to the corn syrup.

Dana

[Guest guest]

I gave her shreaded wheat cereal (wheat/salt) and shreaded wheat

crackers (the same). One morning I gave her waffles that also had

soy and that day she had the worse diaper.

> > We met with our GI doc and decided to challenge her diet. First

> > with wheat. WIth each meal with wheat we give her 1 afp and 1

zp

> > (usually 3/4 capsul without wheat)

>

>

> Was this " just wheat " , or was it something purchased from a grocery

> store? For example, when I challenged " wheat " , I was giving my

kids

> bread from the store, which contained corn syrup. They had a

> reaction, but it was not to the wheat, it was to the corn syrup.

>

> Dana

[Guest guest]

> I gave her shreaded wheat cereal (wheat/salt) and shreaded wheat

> crackers (the same). One morning I gave her waffles that also had

> soy and that day she had the worse diaper.

If the labels included ONLY wheat and salt, then she might need gf,

even with enzymes.

Dana