Enzymes and Gluten Challenge for Celiac disease?

[Guest guest]

My Ped. contacted a Ped. Gasterentologist who wants the boys to go back on

Gluten for 10 days to test for Celiac and a few other things. Anybody know

if using the enzymes during this period is OK? I was hoping to test out

the enzymes during the challenge to see how the enzymes (Chewable AFP)

worked with gluten in the diet and to minimize the effects (GI and

behavioral) while we are doing the Gluten for 10 days.

Any suggestions?

in LA

[Guest guest]

10 days is not long enough to be ingesting gluten in order to test

for celiac. My son's doctor wanted him to be off the diet for 2

months in order to test. Dana Korn wrote in her book Kids with

Celiac Disease that in order for the testing to be valid, they must

be eating gluten for at least 6 months. I wouldn't think enzymes

would have an effect on testing for celiac but may possibly

invalidate the other tests he wants to do.

> My Ped. contacted a Ped. Gasterentologist who wants the boys to go

back on

> Gluten for 10 days to test for Celiac and a few other things.

Anybody know

> if using the enzymes during this period is OK? I was hoping to

test out

> the enzymes during the challenge to see how the enzymes (Chewable

AFP)

> worked with gluten in the diet and to minimize the effects (GI and

> behavioral) while we are doing the Gluten for 10 days.

>

> Any suggestions?

>

> in LA

>

>

[Guest guest]

At 04:55 PM 7/30/2004, you wrote:

>10 days is not long enough to be ingesting gluten in order to test

>for celiac. My son's doctor wanted him to be off the diet for 2

>months in order to test. Dana Korn wrote in her book Kids with

>Celiac Disease that in order for the testing to be valid, they must

>be eating gluten for at least 6 months. I wouldn't think enzymes

>would have an effect on testing for celiac but may possibly

>invalidate the other tests he wants to do.

>

>

Hmm, just heard back from Ped. who said we cannot take enzymes for the 10

days as they need to see how the body reacts w/o any help. Perhaps it's

different for us since they haven't been GF very long - actually

technically they've never been fully GF as we didn't realize the RiceDream

milk had .002 gluten from the barely processing. So they had only been

mostly GF and not fully GF - we had removed Wheat and the other obvious

glutens but have only been even trying for about 2 months and it took me at

least a month to find replacements for all their favorites..

Anyhow, either way not looking forward to the next 10 days, esp. since we

can't try the enzymes with the gluten at least till after the testing...

Thanks for sharing,

in LA

[Guest guest]

Are either of you guys familiar with the new blood test for celiac?

It is supposed to be very quick and accurate.

.

[Guest guest]

If they truly have Celiac's disease, then enzymes won't make a difference at

all.

Enzymes and Gluten Challenge for Celiac disease?

> My Ped. contacted a Ped. Gasterentologist who wants the boys to go back on

> Gluten for 10 days to test for Celiac and a few other things. Anybody

know

> if using the enzymes during this period is OK? I was hoping to test out

> the enzymes during the challenge to see how the enzymes (Chewable AFP)

> worked with gluten in the diet and to minimize the effects (GI and

> behavioral) while we are doing the Gluten for 10 days.

>

> Any suggestions?

>

> in LA

>

>

[Guest guest]

Personally, I wouldn't add gluten back in. According to Dr. McCandless, it

takes SIX MONTHS for gluten to be out of the system. Gluten really isn't

healthy, anyway; I've read that over time, gluten contributes to a lot of

health problems, as it's difficult to digest completely (of course, enzymes

helps with this). I think gluten-free is healthy for everyone. It also

forces people to avoid a lot of prepackaged foods which are low in nutrients.

At 01:12 PM 7/30/2004 -0700, you wrote:

>My Ped. contacted a Ped. Gasterentologist who wants the boys to go back on

>Gluten for 10 days to test for Celiac and a few other things. Anybody know

>if using the enzymes during this period is OK? I was hoping to test out

>the enzymes during the challenge to see how the enzymes (Chewable AFP)

>worked with gluten in the diet and to minimize the effects (GI and

>behavioral) while we are doing the Gluten for 10 days.

>

>Any suggestions?

>

> in LA

>

>

[Guest guest]

>>>According to Dr. McCandless, it takes SIX MONTHS for gluten to be

out of the system.

,

Could you please ask Dr. McCandless how this is determined and what

it is based on? Every time I try to pin down exactly where this comes

from or what it is based on, there isn't an answer...or the answer is

that...well, it doesn't really take 6 months but that is what they

were told and so just pass it on without checking it out. Or it

doesn't really happen like that but they just tell parents that. This

is from well-known people who regularly work in autism and dan. A

number of the casein/gluten stories have turned out to be not-so-true

upon scrutiny.

I am not saying there might not be a real reason, I am just saying

that in 3 years I haven't been able to find a concrete one or anyone

to produce facts to back it up. And a couple of labs and gastro

people have said it doesn't take 6 months.

So when someone says it takes 6 months, do they mean it really takes

6 months for a piece of gluten peptide to finish wandering around the

body, or to become dislodged from where-ever it is supposedly lodged

from, and get flushed out? How is it physically possible that a

gluten-peptide would last 6 months?

Or do they mean that the EFFECTS of gluten might take 6 months to

thoroughly heal. For example, I found that the average time for gut

healing is 3-6 months. If the gluten wasn't sufficiently digested and

was a problem because of leaky gut...and you stopped the

gluten...then in the 6 month time frame for the gut to heal, you

would reasonably expect there not to be a huge problem with gluten

anymore, right? If you could get some input on this, I would really

appreciate it.

I don't think gluten-free is the healthiest course for everyone

myself, but there is plenty of room in this world for lots of

opinions and lots of different eating plans. For one thing, just the

numerous reports of kids doing better with gluten in the diet (with

enzymes) raises questions right there. Maybe someday we will know why

this happens.

Thank you for finding out what you can.

.

[Guest guest]

>>Gluten really isn't

> healthy, anyway; I've read that over time, gluten contributes to a

lot of

> health problems, as it's difficult to digest completely (of course,

enzymes

> helps with this). I think gluten-free is healthy for everyone.

Be careful of making generalizations. My son improved noticeably when

I added gluten back to his diet with enzymes.

Dana