Re: Please Help! TMG/OAT/Headbanging?

[Guest guest]

i keep posting about scd and yeast. what r u giving in the way of

zinc?

its all in the detail............ other minerals and

vitmains.............like what.

tmg is a strong stimulant/brain sugar metaboliser , at the doses

usually recommended a marine would burn out.

personally i don't like these mid chain metabolic supplements.

scd has to be modifyed to to work.

do you have a scan of the hair test.

lauricidn has problems

i dispute healthy foods

until the innate immune system is on deck.................

> I am very confused and at wit's end. Gibson's speech has been

> somewhat better for the past month since we started goat yogurt. He

> has been saying words of songs and books that he's obviously

> memorized, though his pronunciation is still bad most of the time

and

> his interactiveness is quite bad (though sometimes he will stay in

the

> room with me) and he was still crying a lot.

>

> The day before we did his second OAT test he seemed happy and hardly

> cried for a day and a half. Since then we added Alpha Ketoglutaric

> Acid because his urine had always been strong smelling and we

thought

> he could have ammonia from the bacteria.

>

> Five days later we added Kirkman's TMG and Folinic at half the dose

of

> the Jill Protocol. Two days after we did this he SUDDENLY

> BECAME VERY VERBAL one afternoon, repeating a lot of what I was

saying

> and he seemed to want to learn again. He was allowing me to

interact

> with him and I just had the feeling that I had my baby back! I

> thought " Wow! The TMG is working! " . He hardly slep at all that

night

> and was babbling a lot. He was very upset in the morning but still

> very very verbal and interactive. Then he had a nap. After his nap

> he was less interactive, less wanting to learn and has stayed at

that

> level since then.

>

> Gibson did not originally bang his head at all. He did a bit in

> December and January. About 4 days after the OAT test he started

> again and since we started the TMG/Folinic (might be coincidence)

this

> has increased a lot. Today he banged his head so much that he has

> bruises all over his forehead. He does it out of the blue and is

very

> upset and frustrated. It is very scary!

>

> We did an OAT test at the end of the summer after being on Nystatin,

> no sugar and no fruit and probiotics for 2 months. His yeast was

132

> and his Clostridia was 261. We did Nystatin till November and did

> high doses of probiotics since October.

>

> We have been SCD since November, limited fruit. We also do

> Lauricidin, enzymes, including Peptizyde between meals, various

> vitamins and minerals.

>

> I got the recent OAT back today. His Clostridia is 40 (well below

> 150) and his yeast (Arabinose) went up to 165. I was surprised

given

> we have been doing SCD since November, though he has been acting

drunk

> lately and people have told me that is yeast.

>

> As a bit of a background, Gibson is almost 3 years. He had a

dramatic

> regression at 23 months (after last DPT) after being extremely

verbal.

> We went strict GFCF etc. 2 months later and tried DMG and

Nystatin.

> He continued to regress and his stims are here one day and replaced

> with a new stim the next day. We did a lot of therapy for several

> months but he was very nonresponsive so we cut back, also due to

> finances. Gibson has a distended abdomen and toe-walks, though he

has

> about 3 well-formed stool a day. He eats a lot of healthy food.

>

> Maybe someone with insight/experience can help me with this:

>

> Why is he headbanging? Could the TMG/Folinic have made this worse

or

> could this be some form of die-off? Could it just be a new habit he

> started? It is very scary! Why is this happening around the same

> time as more speech/interactiveness? We were planning on starting

> B-12 shots soon.

>

> Should we do a stronger antifungal for yeast or try the naturals

like

> Yeast Aid, Candex or GSE? We have a bottle of Kirkman's GSE

capsules.

> Are those as good as the tinctures? What dose should I give?

>

> If I get rid of yeast will bacteria come back? I think he might

have

> originally had high yeast and we brought about Clostridia by giving

> him Nystatin. What do I do to prevent Clostridia from growing back

> while I treat yeast?How accurate is the OAT anyways?

>

> Why did his yeast increase? Could it have been from going on

> Nystatin? Could it have made the yeast more resilient? Could it be

> from the 1 serving of fruit every day or so on the SCdiet? Coiuld

it

> be from eating a lot of squash?

>

> If I do manage to get rid of yeast and bacteria will it help his

> behaviour and functioning, or is it likely, with his numbers that

> something else needs to be addressed? His hair test showed metals

in

> the green and yellow ranges. He is a healthy boy, other than ASD

> symptoms and I don't think he has viral issues. We tested for some

> viruses. We have addressed food sensitivities.

>

> Sorry this is so long. If anyone has any advice I'd really

appreciate

> it. I am at wit's end.

>

> Thanks,

> Hope

[Guest guest]

> The day before we did his second OAT test he seemed happy and hardly

> cried for a day and a half. Since then we added Alpha Ketoglutaric

> Acid because his urine had always been strong smelling and we thought

> he could have ammonia from the bacteria.

Not sure what is that supplement, but you can try eliminating the

bacteria.

http://www.danasview.net/yeast.htm

Ammonia smell in urine can also be improperly digested protein, so

consider enzymes if you don't already use them.

> thought " Wow! The TMG is working! " . He hardly slep at all that night

> and was babbling a lot. He was very upset in the morning but still

> very very verbal and interactive. Then he had a nap. After his nap

> he was less interactive, less wanting to learn and has stayed at that

> level since then.

You might need to give 1/2 the dose you are giving now, and give it 2x

during the day, morning and after lunch.

> Gibson did not originally bang his head at all. He did a bit in

> December and January. About 4 days after the OAT test he started

> again and since we started the TMG/Folinic (might be coincidence) this

> has increased a lot. Today he banged his head so much that he has

> bruises all over his forehead. He does it out of the blue and is very

> upset and frustrated. It is very scary!

My kids did not tolerate TMG and I almost took one of them to the

hospital. Try DMG. You can also consider adding B12 and extra folic

acid.

I will get major nasty migraines from certain foods, and from yeast.

> We have been SCD since November, limited fruit. We also do

> Lauricidin, enzymes, including Peptizyde between meals, various

> vitamins and minerals.

Lauricidin causes viral die off which for all my kids causes MAJOR

yeast episodes. I have to give a LOT of GSE with EACH dose of

Lauricidin just to keep the yeast down.

Certain vitamins can also cause head banging.

> I got the recent OAT back today. His Clostridia is 40 (well below

> 150) and his yeast (Arabinose) went up to 165. I was surprised given

> we have been doing SCD since November, though he has been acting drunk

> lately and people have told me that is yeast.

Yes, you need a more aggressive yeast protocol.

> As a bit of a background, Gibson is almost 3 years. He had a dramatic

> regression at 23 months (after last DPT) after being extremely verbal.

This probably means he has a lot of virus, which is dying off and

causing a lot of yeast.

>>We were planning on starting

> B-12 shots soon.

High doses of B12 cause my #3 to bang his head. Start low and be sure

to give it with lots of folic acid.

> Should we do a stronger antifungal for yeast or try the naturals like

> Yeast Aid, Candex or GSE? We have a bottle of Kirkman's GSE capsules.

> Are those as good as the tinctures? What dose should I give?

Start with the Kirkman GSE, since you already have it. I don't know

the dose of the Kirkman capsules, but you might want to start by

giving him 1-2 capsules with each dose of Lauricidin, see if that helps.

> If I get rid of yeast will bacteria come back? I think he might have

> originally had high yeast and we brought about Clostridia by giving

> him Nystatin. What do I do to prevent Clostridia from growing back

> while I treat yeast?How accurate is the OAT anyways?

Culturelle worked for bacteria for me.

I have NEVER had to worry about bacteria so long as I was giving

Lauricidin and the yeast was soooooo bad.

> Why did his yeast increase?

For my son, Lauricidin.

> If I do manage to get rid of yeast and bacteria will it help his

> behaviour and functioning,

I would guess that yes, you should see improvement.

>>I don't think he has viral issues. We tested for some

> viruses.

Based on this description, I do believe you are dealing with some sort

of virus/es.

Dana

[Guest guest]

>

>

> i keep posting about scd and yeast.

Do you think SCD is bad for yeast? We do not do honey and not a lot

of fruit.

what r u giving in the way of

> zinc?

Kirkman's hypoallergenic (elemental citrate and chelate)

20 mg/day

plus 5 mg Zinc Citrate from Nuthera

>

> its all in the detail............ other minerals and

> vitmains.............like what.

We give a lot:

Magnesium Chloride 18% solution –

1 teaspoon /day

Magnesium Glycinate 100 mg/day I think

Elemental Manganese Sulphate – 1 ml/day

Kirkman's Calcium Powder enriched with Vitamin C

(1/2 teaspoon contains 175 1U vitamin D and 1000 mg of Calcium

Carbonate and Citrate)

Kirkman's Selenium – ½ capsule daily=50 mcg/day

Buffered Vitamin C Crystals – New Roots Herbal Calcium Ascorbate

1/8 teaspoon/day=445 mg ascorbic acid

>

> tmg is a strong stimulant/brain sugar metaboliser , at the doses

> usually recommended a marine would burn out.

I don't understand this. Would it make my son tired?

>

> personally i don't like these mid chain metabolic supplements.

Why not?

>

> scd has to be modifyed to to work.

How? We do it without fried food, eggs, nuts, honey and not lots of fruit

> do you have a scan of the hair test.

No scan. His hair test was done in August. He had several metals in

the yellow and was low in some minerals. Did not meet counting rules

but barely.

>

> lauricidn has problems

What problems exactly?

>

> i dispute healthy foods

>

> until the innate immune system is on deck.................

Yes. You're right.

Thanks, Hope

>

>

>

>

[Guest guest]

Thanks Dana,

This is very helpful. Why do you think viruses are a big issue for

him? Are you talking about vaccine viruses? Also, I did not know

that viral die-off fed yeast. How long does viral die-off last?

Hope

> > The day before we did his second OAT test he seemed happy and hardly

> > cried for a day and a half. Since then we added Alpha Ketoglutaric

> > Acid because his urine had always been strong smelling and we thought

> > he could have ammonia from the bacteria.

>

>

> Not sure what is that supplement, but you can try eliminating the

> bacteria.

>

> http://www.danasview.net/yeast.htm

>

> Ammonia smell in urine can also be improperly digested protein, so

> consider enzymes if you don't already use them.

>

>

> > thought " Wow! The TMG is working! " . He hardly slep at all that night

> > and was babbling a lot. He was very upset in the morning but still

> > very very verbal and interactive. Then he had a nap. After his nap

> > he was less interactive, less wanting to learn and has stayed at that

> > level since then.

>

>

> You might need to give 1/2 the dose you are giving now, and give it 2x

> during the day, morning and after lunch.

>

>

> > Gibson did not originally bang his head at all. He did a bit in

> > December and January. About 4 days after the OAT test he started

> > again and since we started the TMG/Folinic (might be coincidence) this

> > has increased a lot. Today he banged his head so much that he has

> > bruises all over his forehead. He does it out of the blue and is very

> > upset and frustrated. It is very scary!

>

>

> My kids did not tolerate TMG and I almost took one of them to the

> hospital. Try DMG. You can also consider adding B12 and extra folic

> acid.

>

> I will get major nasty migraines from certain foods, and from yeast.

>

>

> > We have been SCD since November, limited fruit. We also do

> > Lauricidin, enzymes, including Peptizyde between meals, various

> > vitamins and minerals.

>

>

> Lauricidin causes viral die off which for all my kids causes MAJOR

> yeast episodes. I have to give a LOT of GSE with EACH dose of

> Lauricidin just to keep the yeast down.

>

> Certain vitamins can also cause head banging.

>

>

> > I got the recent OAT back today. His Clostridia is 40 (well below

> > 150) and his yeast (Arabinose) went up to 165. I was surprised given

> > we have been doing SCD since November, though he has been acting drunk

> > lately and people have told me that is yeast.

>

>

> Yes, you need a more aggressive yeast protocol.

>

>

> > As a bit of a background, Gibson is almost 3 years. He had a dramatic

> > regression at 23 months (after last DPT) after being extremely verbal.

>

>

> This probably means he has a lot of virus, which is dying off and

> causing a lot of yeast.

>

>

> >>We were planning on starting

> > B-12 shots soon.

>

>

> High doses of B12 cause my #3 to bang his head. Start low and be sure

> to give it with lots of folic acid.

>

>

> > Should we do a stronger antifungal for yeast or try the naturals like

> > Yeast Aid, Candex or GSE? We have a bottle of Kirkman's GSE capsules.

> > Are those as good as the tinctures? What dose should I give?

>

>

> Start with the Kirkman GSE, since you already have it. I don't know

> the dose of the Kirkman capsules, but you might want to start by

> giving him 1-2 capsules with each dose of Lauricidin, see if that helps.

>

>

> > If I get rid of yeast will bacteria come back? I think he might have

> > originally had high yeast and we brought about Clostridia by giving

> > him Nystatin. What do I do to prevent Clostridia from growing back

> > while I treat yeast?How accurate is the OAT anyways?

>

>

> Culturelle worked for bacteria for me.

>

> I have NEVER had to worry about bacteria so long as I was giving

> Lauricidin and the yeast was soooooo bad.

>

>

> > Why did his yeast increase?

>

>

> For my son, Lauricidin.

>

>

> > If I do manage to get rid of yeast and bacteria will it help his

> > behaviour and functioning,

>

>

> I would guess that yes, you should see improvement.

>

>

> >>I don't think he has viral issues. We tested for some

> > viruses.

>

>

> Based on this description, I do believe you are dealing with some sort

> of virus/es.

>

> Dana

[Guest guest]

there seem to be issues with my posting on this board so am switching

to my own board.

i have posted a reply there

who_knows/

> >

> >

> > i keep posting about scd and yeast.

> Do you think SCD is bad for yeast? We do not do honey and not a lot

> of fruit.

>

>

> what r u giving in the way of

> > zinc?

> Kirkman's hypoallergenic (elemental citrate and chelate)

> 20 mg/day

> plus 5 mg Zinc Citrate from Nuthera

> >

> > its all in the detail............ other minerals and

> > vitmains.............like what.

> We give a lot:

> Magnesium Chloride 18% solution –

> 1 teaspoon /day

> Magnesium Glycinate 100 mg/day I think

>

> Elemental Manganese Sulphate – 1 ml/day

> Kirkman's Calcium Powder enriched with Vitamin C

> (1/2 teaspoon contains 175 1U vitamin D and 1000 mg of Calcium

> Carbonate and Citrate)

> Kirkman's Selenium – ½ capsule daily=50 mcg/day

> Buffered Vitamin C Crystals – New Roots Herbal Calcium Ascorbate

> 1/8 teaspoon/day=445 mg ascorbic acid

>

>

> >

> > tmg is a strong stimulant/brain sugar metaboliser , at the doses

> > usually recommended a marine would burn out.

> I don't understand this. Would it make my son tired?

>

> >

> > personally i don't like these mid chain metabolic supplements.

> Why not?

>

> >

> > scd has to be modifyed to to work.

> How? We do it without fried food, eggs, nuts, honey and not lots

of fruit

>

> > do you have a scan of the hair test.

> No scan. His hair test was done in August. He had several metals

in

> the yellow and was low in some minerals. Did not meet counting

rules

> but barely.

> >

> > lauricidn has problems

> What problems exactly?

> >

> > i dispute healthy foods

> >

> > until the innate immune system is on deck.................

> Yes. You're right.

>

> Thanks, Hope

> >

> >

> >

> >

[Guest guest]

>>i keep posting about scd and yeast.

Sorry , but I didn't remember seeing you say that SCD caused yeast

before or maybe I just don't remember what I read anymore.

Is that what you are saying? It would make some sense to me as I feel that

the 1 month of SCD I did with my son messed up some balance in my gut. Now

I'm having to try to address it.

Abby

[Guest guest]

> This is very helpful. Why do you think viruses are a big issue for

> him?

Because it looks like Lauricidin is causing major yeast, and for my

son with that problem, viruses are a big issue.

>>Are you talking about vaccine viruses?

Yes

>> Also, I did not know

> that viral die-off fed yeast.

Neither do most of the " medical-types " that I have conversed with.

But it is a common report by parents, especially with use of Lauricidin.

>>How long does viral die-off last?

I don't know. For one of my kids, looks like about 2 months, altho I

only have her on one pellet of Lauricidin per day and her virus issue

was relatively mild. For another, he is going on 4 months with still

minor lingering issues. I give him 5 pellets per day altho today I

will increase it to 8 and see what happens. For my #2 with the most

issues, he is on one scoop of Lauricidin 3x per day. It has been 4

months and yesterday I was able to drop the OLE and he improved [he

had started regressing, which is generally his sign that he no longer

needs a supplement]. So whatever virus the OLE was addressing must be

gone now. He still needs the Lauricidin.

Dana

[Guest guest]

yeah scd needs cream, optizinc and molybdenum and plain whey if

tolerated.

no nut flours

theres so many ways that scd seems to be done its hard to comment.

theres the deep fried squash school, the goat yoghurt school,

the 'ten hours of angst over a micron of illegals school'.........

yeah its odd what makes a vibe in a post and you remember........

small amounts of optizinc after every meal can right the stomach

quickly.

candex, oreganol also for yeast. banana passionfruit crunching the

seeds as you eat also helps.

> >>i keep posting about scd and yeast.

>

> Sorry , but I didn't remember seeing you say that SCD caused

yeast

> before or maybe I just don't remember what I read anymore.

>

> Is that what you are saying? It would make some sense to me as I

feel that

> the 1 month of SCD I did with my son messed up some balance in my

gut. Now

> I'm having to try to address it.

>

> Abby