Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 In a message dated 5/26/2004 5:42:24 AM Eastern Standard Time, pruep@... writes: > The paed is going to try OLE for other kids with tic disorders now! > That's great, Prue! I love hearing when someone makes some headway like that. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 thanks Prue. I think I might try this with . Did you experience any kind of " dye-off " or negative behaviors when you first introduced this to Harry? OCD/ natural treatments- > Harry was 'chewing' all the time and would touch his right elbow on his right hip twice then the left etc. Plus these weird hand movements. It was really awful. With all his problems he has always looked 'normal'. I thought this was more of a disability, because it was so obvious. I hated it - so very happy that it went. > > The paed is going to try OLE for other kids with tic disorders now! > Prue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 --- We saw a lot of ph's Obsessive compulsive stuff disappear while on the Valtrex, in fact I'd venture to say we saw it all disappear. Definitly a viral thing for us. With OLE, we get less, but it's still there. Mostly it's observed when something " bad " has happened, he'll persevere on the topic, almost obsessed, many reassurances later, he'll stop. So I guess the OCD stuff is mostly verbal with us now, not so much physical. We stopped Valtrex, and that's when we saw the OCD return. But it's never gotten back to the degree of severity it use to be. Prior to Valtrex, it was awful, I mean this kid on his way up to his top bunk, if he skipped a step on the ladder, and I mean hands and feet didn't touch it, he'd have to go the bottom and start all over again, and this was constant about everything. Transitioning only took place if everything fell neatly in order. You want to talk about a regime, this kid had me trained. And I indulged him because I realized even back then his eyes, ears and body didn't perceive his environment the way I did, and this was the only way for him to maintain control. Good luck to you on the viral issue. We're still fighting it. In , " PP " <pruep@b...> wrote: > Harry was 'chewing' all the time and would touch his right elbow on his right hip twice then the left etc. Plus these weird hand movements. It was really awful. With all his problems he has always looked 'normal'. I thought this was more of a disability, because it was so obvious. I hated it - so very happy that it went. > > The paed is going to try OLE for other kids with tic disorders now! > Prue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 --- We saw a lot of ph's Obsessive compulsive stuff disappear while on the Valtrex, in fact I'd venture to say we saw it all disappear. Definitly a viral thing for us. With OLE, we get less, but it's still there. Mostly it's observed when something " bad " has happened, he'll persevere on the topic, almost obsessed, many reassurances later, he'll stop. So I guess the OCD stuff is mostly verbal with us now, not so much physical. We stopped Valtrex, and that's when we saw the OCD return. But it's never gotten back to the degree of severity it use to be. Prior to Valtrex, it was awful, I mean this kid on his way up to his top bunk, if he skipped a step on the ladder, and I mean hands and feet didn't touch it, he'd have to go the bottom and start all over again, and this was constant about everything. Transitioning only took place if everything fell neatly in order. You want to talk about a regime, this kid had me trained. And I indulged him because I realized even back then his eyes, ears and body didn't perceive his environment the way I did, and this was the only way for him to maintain control. Good luck to you on the viral issue. We're still fighting it. In , " PP " <pruep@b...> wrote: > Harry was 'chewing' all the time and would touch his right elbow on his right hip twice then the left etc. Plus these weird hand movements. It was really awful. With all his problems he has always looked 'normal'. I thought this was more of a disability, because it was so obvious. I hated it - so very happy that it went. > > The paed is going to try OLE for other kids with tic disorders now! > Prue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Wow-this sounds so familiar. I never thought of my daughter having OCD problems but I guess she does. I just started OLE myself so I'll have to start her on it soon. Thank you for sharing! Becky > > Harry was 'chewing' all the time and would touch his right elbow on > his right hip twice then the left etc. Plus these weird hand > movements. It was really awful. With all his problems he has always > looked 'normal'. I thought this was more of a disability, because it > was so obvious. I hated it - so very happy that it went. > > > > The paed is going to try OLE for other kids with tic disorders now! > > Prue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 > --- We saw a lot of ph's Obsessive compulsive stuff disappear > while on the Valtrex, in fact I'd venture to say we saw it all > disappear. Definitly a viral thing for us. With OLE, we get less, but > it's still there. I have never used Valtrex. My son needs OLE and Lauricidin for his viral issues, plus GSE/OoO/Uva ursi for the yeast that the anti-virals cause. If I drop any of these, he will regress. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Why did you stop the Valtrex? What were the side effects? > > Harry was 'chewing' all the time and would touch his right elbow on > his right hip twice then the left etc. Plus these weird hand > movements. It was really awful. With all his problems he has always > looked 'normal'. I thought this was more of a disability, because it > was so obvious. I hated it - so very happy that it went. > > > > The paed is going to try OLE for other kids with tic disorders now! > > Prue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Valtrex is a medication originally designed to treat Herpes 1 and 2, not cure, but treat, in that it keeps it in dormant stage and you don't suffer through the active stages. It has been found to work surprisingly well for kids with Herpes 6, active cases that is. Pretty decent med. from what I could read up on it, I read up on each individual ingredient, and I look for things like side effects, potential damage to organs, how long does it circulate in the body, where and how does it get dumped by the body, what happens when it encounters cells not carrying the virus, does it utilize or block any natural biochemical process' in the body. From what I could find, it bumps along in the body until it encounters cells carrying the virus, then it's activated, otherwise it just bumps along until it is excreted, neither requiring nor utilizing anything to be excreted. While we saw excellent things while my son was on it, actually phenomenal things, to the degree a couple of agencies tried to take the autism label off my son, the active levels of the virus were exactly as high as they had been six month prior. I've learned that mercury in tissue in the body is an excellent hiding place for the virus, so while it is doing something, it wasn't wiping it out for us. And when Dr. Goldberg ceased to be my son's doctor, away went our prescription for Valtrex. We are using other things to treat the viral component now. Re: Re: OCD/ natural treatments- > What is Valtrex? > Migdalia (DEE) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Valtrex is not used to treat OCD, only prescribed for active virus Herpes 1, 2 and 6. Re: Re: OCD/ natural treatments- > so which on is recommended for OCD Valtrex or OLe? > Migdalia (DEE) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 We had to stop the Valtrex because it is a prescription only med. and Dr. Goldberg was no longer our sons' doctor. Our pediatrician wasn't comfortable enough with it to continue the prescription, and once we saw Dr. Megson, several months had already gone by. Dr. Megson offered to continue the prescription, but I wanted to see how we would do with natural anti-virals. Dr. Megson isn't going to order any blood draws or stools until after the flagyl treatment, so it'll be a couple of months yet before I see if the natural treatments have had any effect on the virus. Re: OCD/ natural treatments- > > Why did you stop the Valtrex? What were the side effects? > > > > > > > > Harry was 'chewing' all the time and would touch his right elbow > on > > his right hip twice then the left etc. Plus these weird hand > > movements. It was really awful. With all his problems he has always > > looked 'normal'. I thought this was more of a disability, because > it > > was so obvious. I hated it - so very happy that it went. > > > > > > The paed is going to try OLE for other kids with tic disorders > now! > > > Prue > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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