Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 , Thanks for the advice. I checked out 's website this morning and looks like we have already done 3 out of 4 steps. Nick takes Zyme-Prime, No-Fenol and Pep. already and also takes Kirkman's Lactobacillus Acidophilus, single strain, once a day at the end of his meal. I'm starting today adding the no-fenol in between meals. Is it safe now to add the grapefruit seed extract or should I wait some time for the no-fenol between meals to kick in a little?? Also, another question that you may be able to help me with; I just had to pick Nick up from school because his teacher said that he was very clingy and tearful for about 20 minutes. She said that he wouldn't let her put him down. He was like this yesterday with my mom and was generally very whiney on Saturday and Sunday. Coincidentally (or not?), I just started Nick back on the no-fenol with his meals after being off it for a few weeks right maybe a few days before these bouts of whininess. ( I hadn't noticed much of a change after initially putting him on it in Oct. so I decided to try him off of it.). Also, these 20 minute episodes of clinginess seem to occur approx. 1 hour after having his acidophilus. Could this be a die-off symptom or maybe the acidophilus is too harsh or not the right one?? Thank you so much for the advice already given and again in advance for this post! -Sincerely, Tracey, Nick, 3-ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Tracey, I'm glad you were able to look at 's website and I'm so glad that you have already taken some of the steps. YEA. The behaviors you decscribed seem to be die off to me. The no-fenol is awesome on yeast and since you just reintroduced it, it is probably starting to clear away the gunk. You may want to consider just staying the way you are for a few days until the initial die-off from reintroducing no-fenol is over, then start the no-fenol between meals. Also, the probiotic is doing the same thing. The good stuff works on the bad. When did you start the probiotic? Has he been on it a while? Keep an eye on the probiotic. For some kids, they are difficult to tolerate. Look for positive things as well. You may not see them for a few days because the die-off can be tough. Go very slow on the no-fenol between meals. I would definitely give this a few days (maybe even a week) before adding the Grapefruit seed extract. The die-off can be so uncomfortable for them. For me, it was so hard to watch my son because I knew he could not put into words how he was feeling. He was very cliny and emotional. Pamper him as much as possible. Make sure he gets A LOT of water (preferable bottled water), consider the epsom rubs to help with die-off. If it gets too bad, you may want to consider activated charcoal. I don't know why, but activated charcoal scared me at first. I guess it was hard to think about giving him charcoal..sounds toxic. But actually, it helps him greatly to get through the die-off. I only use 1/4 of a cap of it for my son. Give it about 30-45 minutes after you give the no-fenol. I hope that helps! Good Luck. > , > > Thanks for the advice. I checked out 's website this morning and > looks like we have already done 3 out of 4 steps. Nick takes Zyme-Prime, > No-Fenol and Pep. already and also takes Kirkman's Lactobacillus Acidophilus, > single strain, once a day at the end of his meal. I'm starting today adding > the no-fenol in between meals. Is it safe now to add the grapefruit seed > extract or should I wait some time for the no-fenol between meals to kick in a > little?? Also, another question that you may be able to help me with; I just > had to pick Nick up from school because his teacher said that he was very > clingy and tearful for about 20 minutes. She said that he wouldn't let her put > him down. He was like this yesterday with my mom and was generally very > whiney on Saturday and Sunday. Coincidentally (or not?), I just started Nick > back on the no-fenol with his meals after being off it for a few weeks right > maybe a few days before these bouts of whininess. ( I hadn't noticed much of a > change after initially putting him on it in Oct. so I decided to try him off > of it.). Also, these 20 minute episodes of clinginess seem to occur approx. > 1 hour after having his acidophilus. Could this be a die-off symptom or > maybe the acidophilus is too harsh or not the right one?? Thank you so much for > the advice already given and again in advance for this post! > -Sincerely, > Tracey, Nick, 3-ASD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 , You have been so helpful. Thank you from the bottom of my heart. Nick was on a probiotic from whole foods for maybe a month and now the one from kirkman for maybe four weeks. However, I just recently (maybe 6-7 days ago) started to give him the probiotic seperately from the enzymes. He used to get 3 enzymes and a probiotic in his juice every morning but after reading the section in 's book about not giving probiotics and enzymes at the same time, I give the probiotic in between a meal. Could that be the reason for the crankiness 1 hour after? He becomes very clingy and emotional for about 20 minutes so I just hold him until it passes. Then he's just fine. Is this Ok? Is it too much for him? I only have two opportunities throughout the day to really give the no-fenol in between meals. I gave it just once today in between and he seemed fine with it. When will I know that it's time for the grapefruit seed extract?? How is it given? Is it liquid or capsule? I'm so sorry for so many questions but I feel like I'm walking into a dark room trying to find the lightswitch. I guess my concern is that he's been on the enzymes for months now and his sudden crankiness makes me question what's going on with him. Could my re-intoducing the no-fenol and the acidolphilus given without enzymes have sparked the die-off? He didn't seem to have any of these symptoms when I gave the probiotic at the same time as the enzymes. One thing that could be a problem is his current diet. It's loaded with carbs and he only takes his enzymes in orange juice. I know you suggested he stay away from these things but I'd literally have to starve him. I'm actually going to try baking some bread from the SCD diet that is yeast-free. Hopefully he will go for it. And lastly, when will I know when his yeast is actually under control?? Ugh. Thank you. Thank you. Thank you. Tracey, Nick-3, ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Tracey, I do think that the behavior that you are seeing from Nick is a result of giving the probiotic away from enzymes as well as reintroducing no-fenol. I think the probiotic is probably working better. The probiotic will start to kill the bad stuff. Is his clingy, crying behavior only lasting that 20 minutes and then he is well the rest of the day? If that is the case, I would guess he is tolerating it fine and that is ok. Once you get the gut bugs under control it should improve. Are you seeing positive changes since adding the probiotic? It may take a day or two of giving the no-fenol between meals before you see die off (or possibly, you may not see die-off and he will just start to improve). I think giving him the no-fenol twice a day between meals is enough. You could start the GSE anytime. Just be careful not to go too quickly and make him too uncomfortable. I use the concentrated drops of GSE by Nutribiotic. I give Sam 2 drops 1- 2 times a day(between meals) for 3 days. You can give it in juice. I would just watch his behavior and see how he is responding. Look for positives. I probably wouldn't go much longer than 3 days. Yeast can be very difficult to get rid of. For Sam, he has these behaviors that I know indicate yeast. For example, he only spins himself when he has yeast. He only spins toys when he has yeast. He only giggles inappropriately when he has yeast. As soon as I start to see those behaviors, I start treating him and they stop. I understand about not wanting to take away the food he eats. I would just keep an eye on it. He may improve without needing any diet changes. Hope that helps! > , > > You have been so helpful. Thank you from the bottom of my heart. Nick > was on a probiotic from whole foods for maybe a month and now the one from > kirkman for maybe four weeks. However, I just recently (maybe 6-7 days ago) > started to give him the probiotic seperately from the enzymes. He used to get 3 > enzymes and a probiotic in his juice every morning but after reading the > section in 's book about not giving probiotics and enzymes at the same time, I > give the probiotic in between a meal. Could that be the reason for the > crankiness 1 hour after? He becomes very clingy and emotional for about 20 minutes > so I just hold him until it passes. Then he's just fine. Is this Ok? Is it > too much for him? I only have two opportunities throughout the day to really > give the no-fenol in between meals. I gave it just once today in between and > he seemed fine with it. When will I know that it's time for the grapefruit > seed extract?? How is it given? Is it liquid or capsule? I'm so sorry for so > many questions but I feel like I'm walking into a dark room trying to find the > lightswitch. I guess my concern is that he's been on the enzymes for months > now and his sudden crankiness makes me question what's going on with him. > Could my re-intoducing the no-fenol and the acidolphilus given without enzymes > have sparked the die-off? He didn't seem to have any of these symptoms when I > gave the probiotic at the same time as the enzymes. One thing that could be a > problem is his current diet. It's loaded with carbs and he only takes his > enzymes in orange juice. I know you suggested he stay away from these things but > I'd literally have to starve him. I'm actually going to try baking some bread > from the SCD diet that is yeast-free. Hopefully he will go for it. And > lastly, when will I know when his yeast is actually under control?? Ugh. Thank > you. Thank you. Thank you. > > Tracey, Nick-3, ASD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 >>Also, these 20 minute episodes of clinginess seem to occur approx. > 1 hour after having his acidophilus. Could this be a die-off symptom or > maybe the acidophilus is too harsh or not the right one?? It can be die off, or intolerance to the acidophilus you use. If you suspect die off, try giving activated charcoal about 30-45 minutes after the probiotic, see if that helps. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 , Today, after giving Nick the probiotic, he seemed much better. He has been a little whinier in general and quick to cry one sec then laugh immediately after. So, a little emotional. My husband says that he does seem a little less stimmy. Nick doesn't spin or flap his arms but he will hold things very close to his eyes and look at it from different angles. This does seem like it is a bit decreased. He does seem more attentive and following direction very well. Even 2 step commands. When I said his name tonight ( I worked during the day), every time he turned to me right away and listened to what I had to say. I'm going to order the GSE tomorrow and give that a try when it arrives. Did I understand your last post that I should only give it to him for 3 days, no longer? Also, in reading these different websites, should I be having Nick tested for what type of yeast he may have?? Would it change how I treat it or should these treatments work on all yeast overgrowth?? I'm nervous because you urged that I should look for the positives but, they're not glaring at me. Is it that sometimes the positives don't show up until the intial die-off period? I'm concerned that the positives I think i see may be a result of my looking so hard for them and maybe there's really not any improvement. Ugh. Again, thanks for so much help, . Dana, too. You guys are great. Sincerely, Tracey, Nick-3, ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Thank you, .... again! I am waiting on the GSE to come next week but for now, we're just keeping up with the no-fenol in between meals and the probiotic. I tried to give Nick some of the no-yeast bread that I made today using an SCD recipe but he literally gagged. So much for that idea. Good news though.. When I picked Nick up from school today, his teacher told me that Nick had a very tough day.... crying and whining and just generally not himself. Ok, so that's not the good news. Damn die-off. The good news is that she said he kept saying, " my daddy, want daddy " . WOW! So, perhaps this is one of those positives you were talking about! After he came home from school, he ate lunch and seemed in a much better mood. So, we'll see how the rest of the day goes. By the way, how does the GSE taste?? Do you put it in juice? Thanks again, . You have been so very helpful. -Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Tracey, It sounds like things are going OK. The crying one minute ok the next can be another indicator of yeast. At least that seems true with my son. Die-off can mask the positives, but it sounds like you are seeing some small changes. When I mentioned look for positives, they may be quite small. I know for us, when we started Sam on enzymes, I was looking for positives and the one that stuck out to me was that not as much food was on the floor after eating and he had slowed down eating some. Those changes didn't seem like much then, but I remember posting and someone told me that those are positive changes. Now, when he starts eating really fast or there is food all over the floor, I know something is starting to go astray, so I make changes. A little less stimmy is a good sign and responding to his name is also good. So, I think you are on the right track. You could have him tested for yeast but they are not always accurate. It seems like the best indicator is if they respond to yeast treatment. The GSE is supposed to be really good. If you don't see changes after using that, you may want to re- evaluate and possibly try something else. As for 3 days, I tend to be quite cautious and I know on Dana's website, she said it took care of her sons yeast in 2-3 days. So, I use the 3 day as a mark to work towards. I learned awhile back that I didn't want to do something too long as that could also cause regression. After 3 days, I evaluate what has changed and what hasn't and see if he needs more. We just did 3 days of GSE about 2 weeks ago and are doing another 3 days now so I probably didn't get it all the first time. Hang in there. I know for me, I would analyze and re-analyze his behavior and I often wondered if I was " seeing " the changes because that is what I wanted to see. I have come to realize that the drastic changes weren't going to happen overnight. They take time and slowly he is coming out of his fog! Good Luck and please keep us updated on how he is doing. P.S. The bottle of GSE says you can do it 2 times a day. You could consider that. We only do it once a day but I am considering 2 times if we need to. Again, I am really conservative almost to a fault :-) > , > > Today, after giving Nick the probiotic, he seemed much better. He has > been a little whinier in general and quick to cry one sec then laugh > immediately after. So, a little emotional. My husband says that he does seem a > little less stimmy. Nick doesn't spin or flap his arms but he will hold things > very close to his eyes and look at it from different angles. This does seem > like it is a bit decreased. He does seem more attentive and following > direction very well. Even 2 step commands. When I said his name tonight ( I worked > during the day), every time he turned to me right away and listened to what > I had to say. I'm going to order the GSE tomorrow and give that a try when > it arrives. Did I understand your last post that I should only give it to him > for 3 days, no longer? > > Also, in reading these different websites, should I be having Nick tested > for what type of yeast he may have?? Would it change how I treat it or should > these treatments work on all yeast overgrowth?? I'm nervous because you > urged that I should look for the positives but, they're not glaring at me. Is it > that sometimes the positives don't show up until the intial die- off period? > I'm concerned that the positives I think i see may be a result of my looking > so hard for them and maybe there's really not any improvement. Ugh. Again, > thanks for so much help, . Dana, too. You guys are great. > > Sincerely, > Tracey, Nick-3, ASD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Tracey, YEA! " my daddy, want daddy " That is just awesome! That is definitely the little positives I was talking about. And, the bonus, it was noticed by a teacher which helps you to know that it's not just you " looking " for the positives. Die-off is awful. It really is. I remember thinking the first time we treated yeast for Sam that he was going to die. Not litteraly, but he was so miserable. Whining, crying, etc. I was beside myself with worry about it and if I was doing the right thing. It's probably a good thing that you start the GSE next week. It will ease him into it. The GSE is very strong tasting. On the bottle,it says you can mix in juice. I always worry that Sam won't drink all the juice so I actually mix it with the no-fenol in a small amount of baby food pears. Give that to him, then immediately give him some water or juice. Sam doesn't seem to mind it that way. We typically give it first thing in the morning about 30-45 minutes before breakfast. You really may want to consider activated charcoal to help absorb the die-off. I resisted that at first, but it really does help. We definitely use it the first few days of treatment when die-off is at it's worse. We give Sam 1/4 cap of the activated charcoal about 30-45 minutes after we give the GSE. Sam is 2.6 yrs old and 37 lbs just to give you an idea. Please keep us updated on how he is doing! Take Care > Thank you, .... again! I am waiting on the GSE to come next week but > for now, we're just keeping up with the no-fenol in between meals and the > probiotic. I tried to give Nick some of the no-yeast bread that I made today > using an SCD recipe but he literally gagged. So much for that idea. > > Good news though.. When I picked Nick up from school today, his teacher told > me that Nick had a very tough day.... crying and whining and just generally > not himself. Ok, so that's not the good news. Damn die-off. The good news > is that she said he kept saying, " my daddy, want daddy " . WOW! So, perhaps > this is one of those positives you were talking about! After he came home > from school, he ate lunch and seemed in a much better mood. So, we'll see how > the rest of the day goes. > > By the way, how does the GSE taste?? Do you put it in juice? Thanks again, > . You have been so very helpful. > > -Tracey > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 , Turns out that the " my daddy, want daddy " may not have necessarily meant for my husband. It seems as though Nick may mean me and my husband. I don't know. He babbles so much and I am only able to understand a word or two in each sentence. Seeing my husband didn't seem to fill whatever void he was trying to fill with saying daddy. Also, he seems to babble something about " the baby " and my husband seems to think he is referring to himself. Third person?? Thanks Elmo. Confusing really. But, at least he is trying to tell us something. Also, when Nick has been waking up in the morning this past week, he has been waking up crying which I have been attributing to the die-off. This morning, he actually woke up talking and calmer as he used to before the yeast-killing mission. So, that's probably a good sign?? I am on pins and needles hoping that yeast overgrowth is an issue for Nick so that we may see some positive results from treating it. Nick sort of reached a pleateau after a few months on the enzymes. After reading 's book, it sounds a little like Dana's situation wtih her son who had made improvements with the enzymes but had hit a plateau. That's Nick's situation. I've been feeling as if the enzymes had made a huge difference in Nick but there was something else going on. Now, I'm convinced that it's yeast and/or bacteria. I'm keeping my fingers crossed. Thanks again, and I will keep you posted over the next week! Tracey Quote Link to comment Share on other sites More sharing options...
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