RE:Nystatin and Brainchilds ultra sensitive vitamins.

[Guest guest]

Mandi,Terri, and Dana,

Thankyou for your advise.

I will restart the vitamins at the weekend at a drop a time and see

how she is.I've ordered the Nystatin and will give with No fenol.

Presently she does not seem well,she is ranging from periods of

hyperness,to beeing very spacey and at times has a fixed grin and

seems to move her head around in little circles ,she is also drawing

circles in the air with her fingers occassionally.Could this be some

Die off,she is only taking the No fenol and a very weak solution of

Acidophylus for Candida.

She has also been having MB12 injections every third night,she had

been on these for about 6 months and we have seen gains in her

language and cognitive skills ,she had a break from these in August

because of supply problems and restarted a month ago,the past few

times she has been very quite and lethargic the following morning.We

have been advised to continue,but I am concerned that could this be

Detoxing her to quickly.I'm sorry if I have got this wrong,but as you

know there is so much to learn and maybe I've got confused.She also

has Epsom salt baths which she seems fine with.

Thank you for any advise.

Sharon

[Guest guest]

>>she is also drawing

> circles in the air with her fingers occassionally.

Glutathione can help with this.

> She has also been having MB12 injections every third night,she had

> been on these for about 6 months and we have seen gains in her

> language and cognitive skills ,she had a break from these in August

> because of supply problems and restarted a month ago,the past few

> times she has been very quite and lethargic the following morning.

Do you give B12 with folic acid? Try that and see if it helps.

Dana

[Guest guest]

> >>she is also drawing

> > circles in the air with her fingers occassionally.

>

>

> Glutathione can help with this.

>

>Dana.

>

> Thankyou for your advice.

Katy has gone dramatically downhill.On Friday she she seemed to be

having spasms,lots of involuntary movements of her mouth ,jerking her

arms out and at times having to run stamping her toes and balls of

her feet down,she was conscious throughout and tried to stop when I

asked her to ,she also was biting herself at times .She also had a

hugely distended tummy ,and had diarrhoea later in the evening,and

also I think had eye pain,because she was rubbing her eyes a lot,was

light senstive ,and cried when she started reading .She has also been

asking to be squeezed frequently.

I've stopped the B.C minerals,haven't started up on the Vits

again.Could it be the Zinc in the minerals that are causing her a

problem as I've read it can be an excitotoxin to some children?

Could these be seizures she was having?She's never had an EEG,should

I push for a neurologists opinion.

I also reduced her enzymes to 1/2 doses of the Z.P,NoFenol and A.F.P

as she seemed to have tummy ache,she is unable to tell me how she

feels.

Over the weekend she does seem a little improved ,she's not had

anymore of the spasms ,just is a little jumpy,sound

sensitive ,needing squeezes,slow to respond and a bit giggly.

I've read so much over the weekend and feel I'm overloaded with

info,I'm also very frightened,hence this long post.I,m sure she has

heavy metal issues and will try and get our Dr to request for the

Hair analysis at Dr's Data,although he has not been helpful

before.How can I get a Cysteine and Sulphate test done and also what

is the test to find out her Copper and Zinc Ratio.

Can, anyone can offer me any help in what I can give her to help her

or what further investigative routes I should take .

I have started giving her small doses of Milk Thistle,Vit C and

Selenium Methione,Please post if you think this is wrong thing to

do ,as I'm not thinking very clearly at present .

Thankyou for any advice.

Sharon.

[Guest guest]

Sharon,

This does not sound like anything parents have told me that they see when

starting our supplements. Please write me off line and let's see if we can

figure anything out.

Terri from Brainchild

terri @ mykland.com

At 04:24 PM 10/24/2004, you wrote:

> Katy has gone dramatically downhill....

[Guest guest]

> > >>she is also drawing

> > > circles in the air with her fingers occassionally.

> >

> >

> > Glutathione can help with this.

> >

> >Dana.

> >

> > Thankyou for your advice.

> Katy has gone dramatically downhill.On Friday she she seemed to be

> having spasms,lots of involuntary movements of her mouth ,jerking

her

> arms out and at times having to run stamping her toes and balls of

> her feet down,she was conscious throughout and tried to stop when I

> asked her to ,she also was biting herself at times .She also had a

> hugely distended tummy ,and had diarrhoea later in the evening,and

> also I think had eye pain,because she was rubbing her eyes a

lot,was

> light senstive ,and cried when she started reading .She has also

been

> asking to be squeezed frequently.

> I've stopped the B.C minerals,haven't started up on the Vits

> again.Could it be the Zinc in the minerals that are causing her a

> problem as I've read it can be an excitotoxin to some children?

> Could these be seizures she was having?She's never had an

EEG,should

> I push for a neurologists opinion.

> I also reduced her enzymes to 1/2 doses of the Z.P,NoFenol and

A.F.P

> as she seemed to have tummy ache,she is unable to tell me how she

> feels.

> Over the weekend she does seem a little improved ,she's not had

> anymore of the spasms ,just is a little jumpy,sound

> sensitive ,needing squeezes,slow to respond and a bit giggly.

> I've read so much over the weekend and feel I'm overloaded with

> info,I'm also very frightened,hence this long post.I,m sure she has

> heavy metal issues and will try and get our Dr to request for the

> Hair analysis at Dr's Data,although he has not been helpful

> before.How can I get a Cysteine and Sulphate test done and also

what

> is the test to find out her Copper and Zinc Ratio.

> Can, anyone can offer me any help in what I can give her to help

her

> or what further investigative routes I should take .

> I have started giving her small doses of Milk Thistle,Vit C and

> Selenium Methione,Please post if you think this is wrong thing to

> do ,as I'm not thinking very clearly at present .

>

> Thankyou for any advice.

> Sharon.

Please could this post be removed .

Thankyou Sharon

[Guest guest]

> Katy has gone dramatically downhill.On Friday she she seemed to be

> having spasms,lots of involuntary movements of her mouth

Is she on any medications? This sounds like possibly a side effect of

Risperdal and other similar medications.

,jerking her

> arms out and at times having to run stamping her toes and balls of

> her feet down,she was conscious throughout and tried to stop when I

> asked her to ,she also was biting herself at times

This can be vitamin B toxicity symptoms [peripheral neuropathy]. Stop

the B vitamins and if you want to try them again, start at very low doses.

>>She also had a

> hugely distended tummy ,and had diarrhoea later in the evening,and

> also I think had eye pain,because she was rubbing her eyes a lot,was

> light senstive ,and cried when she started reading .She has also been

> asking to be squeezed frequently.

This sounds like she did not tolerate whatever vitamins you gave her.

>>Could it be the Zinc in the minerals that are causing her a

> problem as I've read it can be an excitotoxin to some children?

It can, do you know if she is very high copper?

> Over the weekend she does seem a little improved ,she's not had

> anymore of the spasms ,just is a little jumpy,sound

> sensitive ,needing squeezes,slow to respond and a bit giggly.

Good.

Some of those symptoms were yeast for my son.

> I have started giving her small doses of Milk Thistle,Vit C and

> Selenium Methione,Please post if you think this is wrong thing to

> do ,as I'm not thinking very clearly at present .

Those are good to start. Did you notice any changes when you started

them?

Dana

[Guest guest]

> > Katy has gone dramatically downhill.On Friday she she seemed to

be

> > having spasms,lots of involuntary movements of her mouth

>

>

> Is she on any medications? This sounds like possibly a side effect

of

> Risperdal and other similar medications.

>

>

> ,jerking her

> > arms out and at times having to run stamping her toes and balls

of

> > her feet down,she was conscious throughout and tried to stop when

I

> > asked her to ,she also was biting herself at times

>

>

> This can be vitamin B toxicity symptoms [peripheral neuropathy].

Stop

> the B vitamins and if you want to try them again, start at very low

doses.

>

>

> >>She also had a

> > hugely distended tummy ,and had diarrhoea later in the

evening,and

> > also I think had eye pain,because she was rubbing her eyes a

lot,was

> > light senstive ,and cried when she started reading .She has also

been

> > asking to be squeezed frequently.

>

>

> This sounds like she did not tolerate whatever vitamins you gave

her.

>

>

> >>Could it be the Zinc in the minerals that are causing her a

> > problem as I've read it can be an excitotoxin to some children?

>

>

> It can, do you know if she is very high copper?

>

>

> > Over the weekend she does seem a little improved ,she's not had

> > anymore of the spasms ,just is a little jumpy,sound

> > sensitive ,needing squeezes,slow to respond and a bit giggly.

>

>

> Good.

>

> Some of those symptoms were yeast for my son.

>

>

> > I have started giving her small doses of Milk Thistle,Vit C and

> > Selenium Methione,Please post if you think this is wrong thing to

> > do ,as I'm not thinking very clearly at present .

>

>

> Those are good to start. Did you notice any changes when you

started

> them?

>

> Dana

Thankyou for responding to me,I haven't replied earlier because I

have felt so sick to the stomach and anxious about Katy.Today she

does seem a lot improved,not yet back to where she was but seems to

improve daily.

She's been riding her bike,done well in ABA and her appetite is

improved.

She has not been taking any medication,and her OAT showed her to be

low in B vits.

I don't know if she is high in Copper,and need to find out where I

can get this tested.

I thought I'd leave all supplements for 2 weeks or so .

I don't know what to do then, should I treat the Yeast first ,or

should I start with vit/mineral supplementation very slowly.

Thanks in advance for any thoughts.

Sharon.

[Guest guest]

> She has not been taking any medication,and her OAT showed her to be

> low in B vits.

Most autistic kids are.

You might want to try going to a local health food store and

purchasing individual Bs. Give very low doses of each one

individually, see how that goes. Find a brand that contains very few

additives and fillers. This is what I did.

> I don't know if she is high in Copper,and need to find out where I

> can get this tested.

Hair test can work

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

> I thought I'd leave all supplements for 2 weeks or so .

Sounds good.

> I don't know what to do then, should I treat the Yeast first ,or

> should I start with vit/mineral supplementation very slowly.

Whichever one you think might help most.

Dana

[Guest guest]

> > > Katy has gone dramatically downhill.On Friday she she seemed

to

> be

> > > having spasms,lots of involuntary movements of her mouth

> >

> >

> > Is she on any medications? This sounds like possibly a side

effect

> of

> > Risperdal and other similar medications.

> >

> >

> > ,jerking her

> > > arms out and at times having to run stamping her toes and balls

> of

> > > her feet down,she was conscious throughout and tried to stop

when

> I

> > > asked her to ,she also was biting herself at times

> >

> >

> Stop

> > the B vitamins and if you want to try them again, start at very

low

> doses.

> >

> >

> > >>She also had a

> > > hugely distended tummy ,and had diarrhoea later in the

> evening,and

> > > also I think had eye pain,because she was rubbing her eyes a

> lot,was

> > > light senstive ,and cried when she started reading .She has

also

> been

> > > asking to be squeezed frequently.

> >

> >

> > This sounds like she did not tolerate whatever vitamins you gave

> her.

> >

> >

> > >>Could it be the Zinc in the minerals that are causing her a

> > > problem as I've read it can be an excitotoxin to some children?

> >

> >

> > It can, do you know if she is very high copper?

> >

> >

> > > Over the weekend she does seem a little improved ,she's not had

> > > anymore of the spasms ,just is a little jumpy,sound

> > > sensitive ,needing squeezes,slow to respond and a bit giggly.

> >

> >

> > Good.

> >

> > Some of those symptoms were yeast for my son.

> >

> >

> >

.

> >

> > Dana

>

>

>

> Thankyou for responding to me,I haven't replied earlier because I

> have felt so sick to the stomach and anxious about Katy.Today she

> does seem a lot improved,not yet back to where she was but seems to

> improve daily.

> She's been riding her bike,done well in ABA and her appetite is

> improved.

> She has not been taking any medication,and her OAT showed her to be

> low in B vits.

> I don't know if she is high in Copper,and need to find out where I

> can get this tested.

> I thought I'd leave all supplements for 2 weeks or so .

> I don't know what to do then, should I treat the Yeast first ,or

> should I start with vit/mineral supplementation very slowly.

>

>

> Thanks in advance for any thoughts.

> Sharon.

,please would it be possible for me to e-mail you off site.Katy

my daughter has had a marked regression since her severe symptoms

4weeks ago.I stopped the Enzymes 3weeks ago as she seemed to be much

worse after having these.I have also stopped the Brainchilds Mineral

and M B12 injections,she is still having Epsom salts baths and very

week amounts of Acidophylis.

Her symptoms are lots of visual problems,pointing out to the side and

putting her fingers up between her eyes,she is also now starting to

nod her head whilst going spacey.She is still stamping her feet and

having to run quite frequently.Her stools were normal for a few days

when her supplements were stopped but now for the past few days has

watery diarrhoea.She is also sound sensitive and cannot tolerate to

wear her coat over her shoulders.Over her chest in the light it looks

like she has a rash under her skin.

We had worked up slowly on the enzymes and until her severe symptoms

and were on a full ZP,2/3/No Fenol and 1/2 AFP .

I don't know if she's had Die off of gut bugs or is this something

else.Please could you offer me any advise on what I can do to help

her.

[Guest guest]

>>> ,please would it be possible for me to e-mail you off site.

Sure.

.