Re: NEW LURKER AND SCARED/ YOUR THOUGHTS

June 29, 2004

" Her blood serum zinc and copper are both low, and

both high in her hair. "

thats really interesting, thanks for that info.

if you are able to scan the hair test to a jpg and put in the file

section on the board you could get some comments.

mangnese is important, what suppelments r u giving?

starting with the www.houstonni.com rice bran capsule zyme then pep

then no fenol seesm to be the order most people use. enzymes are most

efficent sprinkled on food.

i would look at the theory behind the scd diet as it is an anti

diarrhea diet and addresses gluten senstivity in a more balanced way

http://www.pecanbread.com/scdscience.html

imo pfieffer are not quite on target with their approach, functional

copper is important

sounds like brain blood sugar issues, chromium gft may help, no more

vaccines because they cause loss of insulin islets in the pancreas

and some of these kids just do not have the stem cells there to

recover blood sugar function ever.

where might the lead be coming from?

multiple meds just lead a bad crash.

>

> I'm one of the new LURKERS. I have been so impressed with the

> information on this board! How do you guys fit all the puzzle pieces

> together? I'm scared because I see how much all of you have worked

at

> this as I have with my daughter in a different way for the past 3

> years. And now that I have found this board I think, " IS THIS THE

> PROBLEM? "

>

> My daughter is ADHD/SID/AUDITORY PROCESSING and soon to be 9.

> She is bright, explosive, frustrating, emotional, inqusitive, very

> impulsive and just doesn't " get it " . She has a 17 point discrepancy

> in verbal and performance IQ (performance is lower) which I believe

> puts her (based on her behavior) as a non verbal. She is in OT, has

> had vision therapy, Mood Bell tutor, etc. Her biggest problem

> is change, rigidity and transitions. She is on concerta and ritalin

> and now her doctor wants to put her on zoloft (has wanted me to do

> this for a year). I saw the anxiety before I saw the ADD(she is

> considered ADD/ADHD). She is in a specialized ADHD school and doing

> well, but still with behavior problems at home, and misses on

social

> cues even on the medication. Her mind races.

>

> We have gone to Pfeiffer and they feel her biggest problem is low

> zinc and low histamine (blood histamine is 33.6). They consider her

> overmethylated. Her blood serum zinc and copper are both low, and

> both high in her hair. They suggested a GFCF diet. I didn't feel

this

> would work for her based on her very limited diet (pizza,

spaghetti,

> hot dogs, macaroni/cheese, bagels/cream cheese) (very oppositional

to

> ANYTHING NEW< HIGH ANXIETY). I felt we had enough behavior issues

> without adding food to the equation. Recently I have got her to eat

> chicken and pork.

>

> I have begun to notice hyperactivity after certain foods - (I look

> back and it may have been there all along)especially italian

bread,

> pizza, Trix cereal(maybe other things I just haven't picked up on

> it). I then started looking on the net (ie gluten sensitivity) and

> found this board.

>

> I am amazed and overwhelmed. I then went to decipher.com and

punched

> in the lab results that were low (or high) and they all came up

with

> either celiac disease or gastrointestinal problems.

>

> But one thing I can'nt figure out: she is low serum blood zinc, low

> serum blood copper, high hair copper, high hair zinc, low sodium

(she

> puts excess salt on many things, loves soy sauce) and her

> ceruloplasmin is very low (which really scared me because I thought

> she had 's disease). Her hair lead and cadmium are over the

> 68th% and her aluminum is high also. But the thing that stood out

was

> low MANGANESE at maybe the 5th%? What's with that?

>

> Her Pfeiffer re-eval comes up shortly and I want to talk to them

> about the Houston Enzymes(in place of GFCF), though I have no idea

> which enzyme and I am also thinking about testing for gluten

> sensitivity based on her reaction to italian bread and pizza.

(Could

> the pizza problem be tomatoes because she never eats any tomato

based

> stuff other than pizza? Needs No Fenol maybe)

>

> And I remember her biggest problem as a baby not ear infections but

> diarrhea.

>

> You guys are the best, any suggestions you could give me I would

> really appreciate.

June 29, 2004

I lurked for a while also when I first discovered the GF/CF diet on

another board. We did the CF portion (and it was a big undertaking

since my son literally lived on milk - close to 3/4 gal a day) it

was the best thing we ever did - he finally started sleeping more

nights then he was up (3-4 instead of 1 maybe a week) - it was not

perfect but it was an improvment. His bowels got better - again not

perfect, but better...I have a hair analysis from before he was on

CF It sounds very similar to yor child - is diagnosed ASD, he

is moderate ranging to severe before we added in the glyconutrients.

I am fairly certain he had a real yeast problem (he had what they

term " yeast bumps " kind of like light acne on his legs - he had

thrush numerous times when he was a baby also - finaly we quit

treating it, then it went away (well at least the parts we

noticed). He is what they would call ADHD on a fairly regular

basis...he was anyway - he is much calmer on the glyconutrients. We

have not druged him (as I figure it would be worse in the long run -

his system is screwed up enough with out adding toxins in my way of

thinking) since he is not hurting anyone or himself.

Take a look at these web sites and see if this is something you

would be interested in:

www.glycoinformation.com (check out the testimonies)

www.mannapages.com/bfree2

www.glycoscience.com (great for the medically minded - lots of

research info)

There are more but these are the best. They have had great results

with ADD/ADHD depression and anxiety - all with out " drugs " all of

their products are standardized food based nutritional supliments.

The Ambrotose Complex is totaly non-toxic, a great majority of the

nutrients in it are found in mothers breast milk...I am sure that

this is part of why it is so good for cellular communication - as

that is the perfect food. You may also want to check out

www.resultsproject.net they are doing a study on ADD/ADHD and they

also have a great amount of information on ADD/ADHD from every walk.

HOpe this helps,

Dolly

>

> I'm one of the new LURKERS. I have been so impressed with the

> information on this board! How do you guys fit all the puzzle

pieces

> together? I'm scared because I see how much all of you have worked

at

> this as I have with my daughter in a different way for the past 3

> years. And now that I have found this board I think, " IS THIS THE

> PROBLEM? "

>

> My daughter is ADHD/SID/AUDITORY PROCESSING and soon to be 9.

> She is bright, explosive, frustrating, emotional, inqusitive, very

> impulsive and just doesn't " get it " . She has a 17 point

discrepancy

> in verbal and performance IQ (performance is lower) which I

believe

> puts her (based on her behavior) as a non verbal. She is in OT,

has

> had vision therapy, Mood Bell tutor, etc. Her biggest

problem

> is change, rigidity and transitions. She is on concerta and

ritalin

> and now her doctor wants to put her on zoloft (has wanted me to do

> this for a year). I saw the anxiety before I saw the ADD(she is

> considered ADD/ADHD). She is in a specialized ADHD school and

doing

> well, but still with behavior problems at home, and misses on

social

> cues even on the medication. Her mind races.

>

> We have gone to Pfeiffer and they feel her biggest problem is low

> zinc and low histamine (blood histamine is 33.6). They consider

her

> overmethylated. Her blood serum zinc and copper are both low, and

> both high in her hair. They suggested a GFCF diet. I didn't feel

this

> would work for her based on her very limited diet (pizza,

spaghetti,

> hot dogs, macaroni/cheese, bagels/cream cheese) (very oppositional

to

> ANYTHING NEW< HIGH ANXIETY). I felt we had enough behavior issues

> without adding food to the equation. Recently I have got her to

eat

> chicken and pork.

>

> I have begun to notice hyperactivity after certain foods - (I look

> back and it may have been there all along)especially italian

bread,

> pizza, Trix cereal(maybe other things I just haven't picked up on

> it). I then started looking on the net (ie gluten sensitivity) and

> found this board.

>

> I am amazed and overwhelmed. I then went to decipher.com and

punched

> in the lab results that were low (or high) and they all came up

with

> either celiac disease or gastrointestinal problems.

>

> But one thing I can'nt figure out: she is low serum blood zinc,

low

> serum blood copper, high hair copper, high hair zinc, low sodium

(she

> puts excess salt on many things, loves soy sauce) and her

> ceruloplasmin is very low (which really scared me because I

thought

> she had 's disease). Her hair lead and cadmium are over the

> 68th% and her aluminum is high also. But the thing that stood out

was

> low MANGANESE at maybe the 5th%? What's with that?

>

> Her Pfeiffer re-eval comes up shortly and I want to talk to them

> about the Houston Enzymes(in place of GFCF), though I have no idea

> which enzyme and I am also thinking about testing for gluten

> sensitivity based on her reaction to italian bread and pizza.

(Could

> the pizza problem be tomatoes because she never eats any tomato

based

> stuff other than pizza? Needs No Fenol maybe)

>

> And I remember her biggest problem as a baby not ear infections

but

> diarrhea.

>

> You guys are the best, any suggestions you could give me I would

> really appreciate.

June 29, 2004

IMO this sounds like PDD to me . There is so much you can do to help her

naturally instead of filling her full of drugs with numerous side effects.I

also think she has yeast and bacteria in the gut based on what my son ate

when he had them..Pfeiffer told me to use omegazyme for my son and it

works.Also, DMG helps with focusing and attention. There is also a new

product out called attend(www.vaxa.com) if add is actually the case.

R

June 30, 2004

>

> I'm one of the new LURKERS.

Not any more =)

> My daughter is ADHD/SID/AUDITORY PROCESSING and soon to be 9.

> She is bright, explosive, frustrating, emotional, inqusitive, very

> impulsive and just doesn't " get it " .

For one of my kids, those were related to phenol intolerance

http://www.danasview.net/phenol.htm

Which in turn, for my kids, was caused by heavy metal toxicity

http://www.danasview.net/chelate.htm

> But one thing I can'nt figure out: she is low serum blood zinc, low

> serum blood copper, high hair copper, high hair zinc, low sodium (she

> puts excess salt on many things, loves soy sauce) and her

> ceruloplasmin is very low (which really scared me because I thought

> she had 's disease).

It sounds like her gut cannot properly absorb nutrients from foods.

Enzymes can help

http://www.houstonni.com/

>> Her hair lead and cadmium are over the

> 68th% and her aluminum is high also.

Consider removing sources of current exposures

http://www.danasview.net/metals.htm

> the pizza problem be tomatoes because she never eats any tomato based

> stuff other than pizza? Needs No Fenol maybe)

My kids did not tolerate tomatoes, even with enzymes. This resolved

with chelation.

Dana

July 4, 2004

The chronic diarrhea as a baby was an issue for us, the perception vs.

ability to express is also at odds in our home. We've done many things also,

and some have helped, some have hurt and some gave no evidence of causing an

effect ( although they may very well have been doing something I simply

couldn't discern). The only thing I can say with any certainty with regards

to cause and effect of problem/ solution known is that my son's obsessive

compulsiveness, severe transitional issues were rooted in a nasty viral

issue, and were wiped away by Valtrex, an antiviral med. that was

prescribed. Unfortunately or fortunately, depends on how you look at things,

we were unable to continue the Valtrex and some of the obsessive returned.

However, it is nowhere to the degree it was, in fact it could very well be

that as I am so in-tune, looking for issues that his obsessive is well

within 5 yr. old little boy parameters. Relatives, friends, neighbors,

strangers all compliment us on our little boy and his amenable disposition,

but they don't see him when he cries and throws a fit about not being able

to bring 10 toys in the car with him. Even then, at least the fit is

fleeting and not the 3-4 hour ordeal it once was. No longer does he have to

touch every step on his bunk bed ladder with both hands and feet, or he'd

have to go the carpet and start over. Research pointed me to the realization

that he made little sense of his world, auditory, visually, sensory input

was going in, but not being processed as we would, and so his " routine " was

the only way for him to make sense in this wavy, loud, intrusive

environment. Good luck to you, every kid is different, that's why I

hesitate to list every last thing that worked for us, so I'll tell you what

I know for sure, and for sure what I listed above was a severe viral issue

for us. Enzymes, OLE, OoO, diet, monolaurin, and repairing his gut are what

we are doing now to fight the viral issue.

NEW LURKER AND SCARED/ YOUR THOUGHTS

>

> I'm one of the new LURKERS. I have been so impressed with the

> information on this board! How do you guys fit all the puzzle pieces

> together? I'm scared because I see how much all of you have worked at