Re: Neurologist and thanks everyone/

[Guest guest]

Thank you everyone for the support. It helped me put things in

perspective and get over it. We do see a DAN! doctor who is

open-minded and respectful. He can't do too many tests though or the

hospital might clamp down on him because they don't believe in the DAN

approach. We need more tests to solve my son's mystery. We've been

doing lots but he is not responding. This includes SCD, supplements,

fighting bacteria and yeast. We have not tried Oil of Oregano but it

is something we might try. I don't know much about carnitine but I

will look into it.

We have been using Houston's Peptidase with meat for about 6 weeks now

and we started giving it to him alone before bed because I read in

your book, , that this could help fight bacteria and yeast. This

might be helping. We will be receiving Peptizyde and Zyme Prime soon

and I am eager to try them.

My son has bacteria (Clostridia and Klebsiella) and yeast. Food

sensitivity testing showed, interestingly, that he is sensitive to

almost all animal proteins though he has no obvious reactions.

His symptoms include: hyperactivity, overstimulation, lots of

stimming, going to the kitchen all the time to beg for food, eating

all the time, waking up at night screaming and inconsolable, crying a

lot during the day, appearing drugged at times, difficult to engage

though he has moments when he will try to charm people, very sensitive

to sound but he hears well, especially food words. He was extremely

verbal pre-regression and his words are somewhere just below the

surface but it's difficult for him to get them out. He is a great

boy, just going through a lot.

Before his regression he had several stool per day and that went down

to 1/day after his regression even though he started eating more.

After he went GFCF and juice-free he stopped drinking water and his

stool got pellet-like. After we started SCD and reintroduced juice

his stool got bigger and when we started Lauricidin it increased to

about 3-4 well-formed and sometimes very large stool/day.

I believe many of these things are clues to his mystery. If anyone

knows what they mean, please let me know.

Thanks again, Hope

> Dear Hope,

>

> I just couldn't help thinking how your name (Hope) best describes

> exactly what your son needs right now!

>

> I am so sorrry you had a bad day at the doctors. Doctors are all

> individual humans just like everyone else. And they end up with just

> as many human limitations as everyone else. I actually had that sort

> of experience with several doctors, including some alternative ones,

> until I ran into a great neurologist that helped us.

>

> One of the best sayings I have heard is: Take what you can use, and

> leave the rest. So when you join a group, or see a doctor, or

> research a therapy, or are in a particular work environment,

> etc....just take the parts that are useful and helpful to you, and

> leave the rest of the stuff there. Go on to the next thing or group

> or person.

>

> Autism conditions and anything similiar is so complex and different

> by the individual it is virtually impossible to have one known

> standard treatment that would help every person. Doctors can't keep

> up with every thing out there. And at least you weren't taken to the

> cleaners with doctor piling on tests and tests and more tests that

> they didn't know what to do with (as some doctors do).

>

>

> >>>I went basically so that I could have more bloodwork done for

> free - maybe more insight into what is going on in his body. I got

> what I was looking for....

>

> Great! If you have the test results you can get a second opinion or

> interpretation on them from someone else. Plus, you weren't told to

> feed your kid half the health food store and handfuls of medicines

> and supplements without knowing if they would even help your son. A

> nice benefit.

>

>

> >>>>and then saying that none of the tests hair, OAT had any validity

> > whatsoever.

>

> Well, there is great disagreement on these, how to do them and what

> they mean. Doesn't mean they are totally worthless if the results can

> be translated into meaningful health care. But they aren't

> standardized either (and apparently that is what this doc wants).

>

>

> On the eating, is your son taking enzymes yet? or are you still

> researching the issue? Enzymes tend to really regulate eating

> patterns. But their might be other things going on. Why don't you

> list some of your son's symptoms and we can see if there are any

> patterns. How is your son't sleeping? Elimination patterns? Is he

> eliminating as much as he is eating?

>

> I do hope tomorrow is better. Oh, and do you have a family ped or

> other doctor? If you want to tell the city or area you live in, maybe

> someone here has some doctor suggestions.

>

> .

[Guest guest]

>>>a doctor who is open-minded and respectful.

Excellent.

>>>He can't do too many tests though or the hospital might clamp down

on him because they don't believe in the DAN approach.

Quite understandable as the dan approach has made many kids ill too.

And many aspects are very controversial and unproven. Since liability

would likely fall to them, they probably don't feel they have the

luxury or inclination to play around with so many unknowns. This is

the same with many of the vague neurological or autoimmune conditions

(lupus, MS, chronic fatigue, cancer, IBD/IBS, etc).

>>>>We will be receiving Peptizyde and Zyme Prime soon and I am eager

to try them.

Also consider the No-Fenol down the road. That can be simply awesome

on yeast combined with oil of oregano or some other yeast killer.

>>>> My son has bacteria (Clostridia and Klebsiella) and yeast.

Ouch! This is tough, and might be the root of many of the other

causes. Does your son have pronounced body odor, bad breath, or bms

that stink to high heaven? Try to notice if stools give off either an

ammonia smell or a hideously foul rotten-egg smell. These indicate

different things. For my son, Culturelle and Houston enzymes

(particularly No-Fenol) helped a great deal. However, we eventually

need to do a 10-day round of antibiotics to really knock it out. I

used colloidal silver for this, but you might want to also ask about

an antibiotic if you are working with an agreeable doctor.

>>>>that he is sensitive to almost all animal proteins though he has

no obvious reactions.

Consistent with bad bacteria as are MANY of the other symptoms

listed. If you haven't done this already, consider the epsom salt

baths as well. This can help with eliminating toxins. And you can do

it right away on your own at very little cost.

www.enzymestuff.com/epsomsalts.htm

.

[Guest guest]

On your son's stool test, did it show what items the bacteria was sensitive too?

For my daughter's bacteria (different one than clostridia), caprylic acid was

one of the two natural products it was sensitive too. I had worked on healing

her messed up gut with diet and probiotics for the first 6 weeks, but with a

break in school decided to hit it hard with the caprylic acid. It's been 5 days

now, and just started seeing gritty poops which I was told is a sign of bacteria

die-off.

As for your doctor's experience, I had a similar one too. I went to a

traditional gasteroentoligist (sp?) mostly because insurance pays for that, and

also because yes you want to believe they can help with your child's issues.

Because my daughter's problems are not on the spectrum and she is apparently

very healthy looking, she barely gave me the time of day. And did all she

could from not rolling her eyes when I mentioned Great Plains or even worse

" yeast " . Of course insurance paid for the $1200 of tests she ran, which were

all negative. Looking for more standard problems such as thyroid; diabetes;

etc. I had to go back for the second appointment this week to get closure, and

the tests. I did refrain from engaging too much as it was clear her position on

things. As for my daughter's shaky feelings she described, she suggested I go

see a neurologist! (Which these feelings have gone away with the elimination of

sugar and carbs.) But the kicker was that she actually wrote down and told me

personally there were no stomach issues and her problems are " behaviorally "

rooted. It really did sting. Because truth is we do want validation here and

have been brainwashed into thinking they should know this stuff!

The good news is tomorrow I am seeing a DAN/MD. doctor that specializes in the

area called ortheomolecular medicine. Cool part is he's 71! AND totally into

all of this. Apparently he himself is a pioneer in the area and years ago

started seeing amazing things that supplementing can do. His specialty is in

mega doses of vitamin C for surgery recoveries. He was pretty much black listed

from traditional doctors for his way of thinking. Now years later he is sought

after as this theory is really gaining some momentum. Point being I like what

said, take what you can from each avenue and move on. Trying to not be

too optimistic for tomorrow, but at least it is refreshing to know we are

definitely on the same page to begin with.

Take care,

Kari

Re: Neurologist and thanks everyone/

My son has bacteria (Clostridia and Klebsiella) and yeast. Food

sensitivity testing showed, interestingly, that he is sensitive to

almost all animal proteins though he has no obvious reactions.

[Guest guest]

Kari,

My son's stool test also showed he was sensitive to Caprylic Acid but

that was for Klebsiella. Only his OAT showed Clostridia. I am afraid

to use Caprylic Acid on him because I had a really bad experience with

it myself. It made my stool weird and stringy and burning and gave me

intense pain in my esophagus.

Good Luck with your new DAN doctor tomorrow!

Hope

> On your son's stool test, did it show what items the bacteria was

sensitive too? For my daughter's bacteria (different one than

clostridia), caprylic acid was one of the two natural products it was

sensitive too. I had worked on healing her messed up gut with diet

and probiotics for the first 6 weeks, but with a break in school

decided to hit it hard with the caprylic acid. It's been 5 days now,

and just started seeing gritty poops which I was told is a sign of

bacteria die-off.

>

> As for your doctor's experience, I had a similar one too. I went to

a traditional gasteroentoligist (sp?) mostly because insurance pays

for that, and also because yes you want to believe they can help with

your child's issues. Because my daughter's problems are not on the

spectrum and she is apparently very healthy looking, she barely gave

me the time of day. And did all she could from not rolling her eyes

when I mentioned Great Plains or even worse " yeast " . Of course

insurance paid for the $1200 of tests she ran, which were all

negative. Looking for more standard problems such as thyroid;

diabetes; etc. I had to go back for the second appointment this week

to get closure, and the tests. I did refrain from engaging too much

as it was clear her position on things. As for my daughter's shaky

feelings she described, she suggested I go see a neurologist! (Which

these feelings have gone away with the elimination of sugar and

carbs.) But the kicker was that she actually wrote down and told me

personally there were no stomach issues and her problems are

" behaviorally " rooted. It really did sting. Because truth is we do

want validation here and have been brainwashed into thinking they

should know this stuff!

> The good news is tomorrow I am seeing a DAN/MD. doctor that

specializes in the area called ortheomolecular medicine. Cool part is

he's 71! AND totally into all of this. Apparently he himself is a

pioneer in the area and years ago started seeing amazing things that

supplementing can do. His specialty is in mega doses of vitamin C for

surgery recoveries. He was pretty much black listed from traditional

doctors for his way of thinking. Now years later he is sought after

as this theory is really gaining some momentum. Point being I like

what said, take what you can from each avenue and move on.

Trying to not be too optimistic for tomorrow, but at least it is

refreshing to know we are definitely on the same page to begin with.

> Take care,

> Kari

>

> Re: Neurologist and thanks everyone/

>

>

> My son has bacteria (Clostridia and Klebsiella) and yeast. Food

> sensitivity testing showed, interestingly, that he is sensitive to

> almost all animal proteins though he has no obvious reactions.

>

>

>

>

[Guest guest]

Did you test virus titers?

What was the hair test results?

> Thank you everyone for the support. It helped me put things in

> perspective and get over it. We do see a DAN! doctor who is

> open-minded and respectful. He can't do too many tests though or

the

> hospital might clamp down on him because they don't believe in the

DAN

> approach. We need more tests to solve my son's mystery. We've been

> doing lots but he is not responding. This includes SCD,

supplements,

> fighting bacteria and yeast. We have not tried Oil of Oregano but

it

> is something we might try. I don't know much about carnitine but I

> will look into it.

>

> We have been using Houston's Peptidase with meat for about 6 weeks

now

> and we started giving it to him alone before bed because I read in

> your book, , that this could help fight bacteria and yeast.

This

> might be helping. We will be receiving Peptizyde and Zyme Prime

soon

> and I am eager to try them.

>

> My son has bacteria (Clostridia and Klebsiella) and yeast. Food

> sensitivity testing showed, interestingly, that he is sensitive to

> almost all animal proteins though he has no obvious reactions.

>

> His symptoms include: hyperactivity, overstimulation, lots of

> stimming, going to the kitchen all the time to beg for food, eating

> all the time, waking up at night screaming and inconsolable, crying

a

> lot during the day, appearing drugged at times, difficult to engage

> though he has moments when he will try to charm people, very

sensitive

> to sound but he hears well, especially food words. He was extremely

> verbal pre-regression and his words are somewhere just below the

> surface but it's difficult for him to get them out. He is a great

> boy, just going through a lot.

>

> Before his regression he had several stool per day and that went

down

> to 1/day after his regression even though he started eating more.

> After he went GFCF and juice-free he stopped drinking water and his

> stool got pellet-like. After we started SCD and reintroduced juice

> his stool got bigger and when we started Lauricidin it increased to

> about 3-4 well-formed and sometimes very large stool/day.

>

> I believe many of these things are clues to his mystery. If anyone

> knows what they mean, please let me know.

>

> Thanks again, Hope

[Guest guest]

Hi Hope,

what you describe really sounds like yeast symptoms.

From my experience, grapefruit seed extract (2-3 drops, better start

from 1 drop) works for yeast, and Biocidin and oregano oil works for

bacteria. If I give only things against yeast, bacteria grows, with

treatment for bacteria yeast grows. Giving things against both

simultaneously and probiotics couple of hours later seems to work.

Another source of stims could be metal toxicity. Hair test (which is

very unexpensive) can show if he is metal toxic which seems likely to

me as otherwise yeast and bacteria would not be so resistant. Another

useful test (but more expensive) is blood erithrocites test for heavy

metal content from Great Smokies, but I would advise to do the hair

test first.

Margaret

> > Dear Hope,

> >

> > I just couldn't help thinking how your name (Hope) best describes

> > exactly what your son needs right now!

> >

> > I am so sorrry you had a bad day at the doctors. Doctors are all

> > individual humans just like everyone else. And they end up with

just

> > as many human limitations as everyone else. I actually had that

sort

> > of experience with several doctors, including some alternative

ones,

> > until I ran into a great neurologist that helped us.

> >

> > One of the best sayings I have heard is: Take what you can use,

and

> > leave the rest. So when you join a group, or see a doctor, or

> > research a therapy, or are in a particular work environment,

> > etc....just take the parts that are useful and helpful to you,

and

> > leave the rest of the stuff there. Go on to the next thing or

group

> > or person.

> >

> > Autism conditions and anything similiar is so complex and

different

> > by the individual it is virtually impossible to have one known

> > standard treatment that would help every person. Doctors can't

keep

> > up with every thing out there. And at least you weren't taken to

the

> > cleaners with doctor piling on tests and tests and more tests

that

> > they didn't know what to do with (as some doctors do).

> >

> >

> > >>>I went basically so that I could have more bloodwork done for

> > free - maybe more insight into what is going on in his body. I

got

> > what I was looking for....

> >

> > Great! If you have the test results you can get a second opinion

or

> > interpretation on them from someone else. Plus, you weren't told

to

> > feed your kid half the health food store and handfuls of

medicines

> > and supplements without knowing if they would even help your son.

A

> > nice benefit.

> >

> >

> > >>>>and then saying that none of the tests hair, OAT had any

validity

> > > whatsoever.

> >

> > Well, there is great disagreement on these, how to do them and

what

> > they mean. Doesn't mean they are totally worthless if the results

can

> > be translated into meaningful health care. But they aren't

> > standardized either (and apparently that is what this doc wants).

> >

> >

> > On the eating, is your son taking enzymes yet? or are you still

> > researching the issue? Enzymes tend to really regulate eating

> > patterns. But their might be other things going on. Why don't you

> > list some of your son's symptoms and we can see if there are any

> > patterns. How is your son't sleeping? Elimination patterns? Is he

> > eliminating as much as he is eating?

> >

> > I do hope tomorrow is better. Oh, and do you have a family ped or

> > other doctor? If you want to tell the city or area you live in,

maybe

> > someone here has some doctor suggestions.

> >

> > .

[Guest guest]

No distinct odors but for some reason I had suspected ammonia based on

test results or something. Might he still have ammonia? I hope we

can get rid of those horrible bacteria soon. We are doing probiotics

in high doses, SCD, enzymes, lauricidin. We will probably try other

stuff like OoO and Biocidin in the future. He will eat meat in huge

quantities if we give it to him (like way more than a toddler needs

per day) Should we limit it to normal amounts so we do not feed the

bacteria too much and strengthen them? Right now we have him

vegetarian for two out of every four days.

Hope

> I wanted to comment on this part:

>

> >>>My son has bacteria (Clostridia and Klebsiella) and yeast. Food

> > sensitivity testing showed, interestingly, that he is sensitive to

> > almost all animal proteins though he has no obvious reactions.

>

> It might be the animal protein sensitivity is tied to the bacteria

> problem...and that getting rid of the bacteria will also eliminate

> the protein sensitivity. If your son is not properly digesting meats

> (which is common because often people don't chew their meats well

> enough), the undigested meat protein could pass on to the bacteria

> who chew it up really well and feed on it.

>

> Check and see if your son has distinct odors to his stools or body

> odor in general. You can look for a distinct ammonia smell, or

> hydrogen sulfide smell (the really rotten egg smell). My son with the

> bacteria problem not only had the rotten egg stench but also body

> odor and bad breath. After the bacteria was gone, all this went away.

>

> .

[Guest guest]

We have not tested titres yet. Hair test showed green for mercury and

yellow for lead, cadmium, aluminum and arsenic. Why?

Hope

> > Thank you everyone for the support. It helped me put things in

> > perspective and get over it. We do see a DAN! doctor who is

> > open-minded and respectful. He can't do too many tests though or

> the

> > hospital might clamp down on him because they don't believe in the

> DAN

> > approach. We need more tests to solve my son's mystery. We've been

> > doing lots but he is not responding. This includes SCD,

> supplements,

> > fighting bacteria and yeast. We have not tried Oil of Oregano but

> it

> > is something we might try. I don't know much about carnitine but I

> > will look into it.

> >

> > We have been using Houston's Peptidase with meat for about 6 weeks

> now

> > and we started giving it to him alone before bed because I read in

> > your book, , that this could help fight bacteria and yeast.

> This

> > might be helping. We will be receiving Peptizyde and Zyme Prime

> soon

> > and I am eager to try them.

> >

> > My son has bacteria (Clostridia and Klebsiella) and yeast. Food

> > sensitivity testing showed, interestingly, that he is sensitive to

> > almost all animal proteins though he has no obvious reactions.

> >

> > His symptoms include: hyperactivity, overstimulation, lots of

> > stimming, going to the kitchen all the time to beg for food, eating

> > all the time, waking up at night screaming and inconsolable, crying

> a

> > lot during the day, appearing drugged at times, difficult to engage

> > though he has moments when he will try to charm people, very

> sensitive

> > to sound but he hears well, especially food words. He was extremely

> > verbal pre-regression and his words are somewhere just below the

> > surface but it's difficult for him to get them out. He is a great

> > boy, just going through a lot.

> >

> > Before his regression he had several stool per day and that went

> down

> > to 1/day after his regression even though he started eating more.

> > After he went GFCF and juice-free he stopped drinking water and his

> > stool got pellet-like. After we started SCD and reintroduced juice

> > his stool got bigger and when we started Lauricidin it increased to

> > about 3-4 well-formed and sometimes very large stool/day.

> >

> > I believe many of these things are clues to his mystery. If anyone

> > knows what they mean, please let me know.

> >

> > Thanks again, Hope

[Guest guest]

> We have not tested titres yet. Hair test showed green for mercury

and

> yellow for lead, cadmium, aluminum and arsenic. Why?

Check sources of current exposure here

http://www.danasview.net/metals.htm

Dana