Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Jackie you are a sensible lady 6 months is a great idea for your child and for you and DH. I had Sams first hair test back in July 2000 (met the rules, high Lead, high antimony, high Arsenic), Dr Holmes was chelating Mikey, several were trying in light of the Bernard et al paper which came out in the April of that year and Andys advice. I got too hooked up in trying this and trying that, gut bugs, anything and everything Kirkman sells etc etc. DAN had thier think tank and came up with the different protocol, all hell ensued on A-M, the list split and the foreruner to Ck2 group was formed for Dr Holmes patients, so I lost that info and got seriously confused and scared We ended up not starting chelation until March 2002 - my biggest regret is I wasn;t as smart as you and didn't get started earlier when perhaps it may have worked quicker for Sam. All is not lost, he is making real gains and thanks to HNI strating in 2001, his gut was in great shape when we started! God luck Mandi in UK Now, I have two choices IMO, chelate or wait. Since is such a picky eater I know he is not receiving the proper nutrients that he should. Is he thriving? Absolutely! He just had his 6 yo well child visit yesterday and from last year he grew 3 1/4 inches and gained 5 lbs. Yet, he is a tall skinny boy with malabsorbtion problems and has malnutrition. 3 weeks ago I started him on AFP Peptazide and a good all around multi-vitamin/mineral, GABA and Coromega. I removed the supplements 6 months ago because I didn't 'see' any difference using them, thus my suspect ion that he wasn't absorbing them properly. I am going to see how this protocol works for him.... and retest in 6 months to see if it is making a difference. If it is still the same.... then I definitely know there are problems with mineral transport and he is truly toxic.....then I will start chelation. I need to educate DH with this whole process as it has been difficult bringing him on board with enzyme therapy and supplements. He is such a skeptic that people target parents with kids on the spectrum....so I say, let's give it a try and see what happens.... and he is okay with this. So far so good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 , I just received my son's results for the first hair sample from DDI. What I did first was got a copy of my son's vaccine administration records and the weight he was at the time of each administration. I created a spreadsheet to determine if and how much thimerosal he received from birth to 5. There is a vaccine calculator that will indicate how many times over the EPA allowable amount my son received. Well, at 3 days old when he received the Hep B, he received 33.85 times over the EPA allowable amount of thimerosal. 1 month later, 27.28 times the allowable amount (HepB).....1 month later 45.40 times the EPA allowable amount (Hib) and on and on and on. These were with the HepB, Hib and DTaP (my son was born in 1999). Here is the link for the calculator: http://www.nvic.org/calc.htm After calculating my son's vaccines and looking at information related to mercury poisoning and autism, I made the decision to see if he is toxic. http://www.healing-arts.org/children/autism-overview.htm Based on the results and using the counting rules, is considered to be mercury toxic. I posted my results on the autism treatment group and asked Andy Cutler and others opinions about the results. I also conferred with the DAN doctor that ordered the test for me.... who also has a son on the spectrum. Andy indicated to me that he meet the " all low " counting rule (in each area), shows no mercury(on the test) and is in the red low area for manganese and cobalt, which is considered to be a very 'textbook' example of a mercury induced mineral transport derangement. Now, I have two choices IMO, chelate or wait. Since is such a picky eater I know he is not receiving the proper nutrients that he should. Is he thriving? Absolutely! He just had his 6 yo well child visit yesterday and from last year he grew 3 1/4 inches and gained 5 lbs. Yet, he is a tall skinny boy with malabsorbtion problems and has malnutrition. 3 weeks ago I started him on AFP Peptazide and a good all around multi-vitamin/mineral, GABA and Coromega. I removed the supplements 6 months ago because I didn't 'see' any difference using them, thus my suspect ion that he wasn't absorbing them properly. I am going to see how this protocol works for him.... and retest in 6 months to see if it is making a difference. If it is still the same.... then I definitely know there are problems with mineral transport and he is truly toxic.....then I will start chelation. I need to educate DH with this whole process as it has been difficult bringing him on board with enzyme therapy and supplements. He is such a skeptic that people target parents with kids on the spectrum....so I say, let's give it a try and see what happens.... and he is okay with this. So far so good. You do have to trust your own instincts and research before you make a decision to chelate or not. I may become antsy and chelate over the summer a few rounds and check to see if we are pulling mercury. He doesn't have any other heavy metals, so I believe that I can use ALA only to chelate. We all want our child to free from the symptoms of autism. I just want what is best for my son who is mild PDD-NOS and very high functioning. He is an affectionate, loving, happy child who loves people and children....yet still has problems interacting appropriately. He will only been talking 3 year this summer and I am determined to help him fit in with his peers as much as possible, live a life of happiness and fulfillment and anxiety free if possible! Read and research more. " Children with Starving Brains " by Jaqueline McCandless, MD was a great resource for me too in researching other methods beside PT, OT and ST. HTH some, Jackie H. <stephanie.scott@...> So basically, what I get from all this is that you may not be able to tell definitively if your child is heavy metal toxic from any of these tests. You get the tests, interpret them as best you can, bearing in mind their limitations, then decide if you want to try chelation, and only if you chelate and see improvement do you know for certain that metals were a problem. ----- Original Message ----- Mercury did not show up in our hair sample. >>>it won;t if you are toxic, thats the whole point of the Counting rules, you look for the PROBLEMS is cause not the Mercury, which will be tighly bound to places like the brain. If you read the link you will understand _http://home.earthlink.net/~moriam/HOW_TO_hair_test.html_ (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html) FWIW, challenge anybody and everybody with a high dose of chelator and you will pull Mercury, we all have some from the environment, doesn;t tell you squat about if your child has chronic toxcity................... MAndi in UK __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Mandi, It is so hard to 'know' exactly what to do, who to trust, what protocol to use and when and how to implement! I want him better NOW, but I have to get him healthy before I start to chelate. I was scared after reading information and I thought my head was going to spin off! LOL But I am more comfortable with chelation now after reading, reading, reading and learning things from different sources. Thank you for sharing your experiences. I just wish I knew more about this when he was first diagnosed.... but I guess God knew when to open up this door for me. We are going to see the DAN doctor that Andy recommended to me next Friday. I have spoken with him several times about my son and he ordered the hair test for me. He also has a child my son's age with moderate autism. Seems like a good physician and I hope he is a good listener because I want someone to listen to my reasonings. Otherwise... I'm out of there! LOL Thanks again for sharing! Jackie Lititz, PA Mandi wrote: Jackie you are a sensible lady 6 months is a great idea for your child and for you and DH. I had Sams first hair test back in July 2000 (met the rules, high Lead, high antimony, high Arsenic), Dr Holmes was chelating Mikey, several were trying in light of the Bernard et al paper which came out in the April of that year and Andys advice. I got too hooked up in trying this and trying that, gut bugs, anything and everything Kirkman sells etc etc. DAN had thier think tank and came up with the different protocol, all hell ensued on A-M, the list split and the foreruner to Ck2 group was formed for Dr Holmes patients, so I lost that info and got seriously confused and scared We ended up not starting chelation until March 2002 - my biggest regret is I wasn;t as smart as you and didn't get started earlier when perhaps it may have worked quicker for Sam. All is not lost, he is making real gains and thanks to HNI starting in 2001, his gut was in great shape when we started! God luck Mandi in UK Now, I have two choices IMO, chelate or wait. Since is such a picky eater I know he is not receiving the proper nutrients that he should. Is he thriving? Absolutely! He just had his 6 yo well child visit yesterday and from last year he grew 3 1/4 inches and gained 5 lbs. Yet, he is a tall skinny boy with malabsorbtion problems and has malnutrition. 3 weeks ago I started him on AFP Peptazide and a good all around multi-vitamin/mineral, GABA and Coromega. I removed the supplements 6 months ago because I didn't 'see' any difference using them, thus my suspect ion that he wasn't absorbing them properly. I am going to see how this protocol works for him.... and retest in 6 months to see if it is making a difference. If it is still the same.... then I definitely know there are problems with mineral transport and he is truly toxic.....then I will start chelation. I need to educate DH with this whole process as it has been difficult bringing him on board with enzyme therapy and supplements. He is such a skeptic that people target parents with kids on the spectrum....so I say, let's give it a try and see what happens.... and he is okay with this. So far so good. --------------------------------- Mobile Take with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Just wanted to add that though the calculator is a GREAT tool for many, it doesn't help so much if your child is younger and was vaccinated during the " transitional " years when the shot " may or may not " have contained thimerosal. I havent yet found a way to get the info on my own daughter (born in 2002 - received only DTaP, HIB and Polio but HIB and DTaP could have contained it) __________________________ Here is the link for the calculator: http://www.nvic.org/calc.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Please note that I only know this because I went to culinary school where I was older than 90% of the rest of the students by about 10 years. They all called me Mom and I learned a lot about that age group, more than I wanted to. I have never taken any illegal drug. What I did learn when I went back to school is that testing hair can give you an inaccurate view of what is going on. I actually had a guy in my class that shaved his head to be able to pass a drug test. Evidently that isn't uncommon. In Las Vegas a lot of places test hair since there are ways to pass a scheduled urine test. Anyway, The problem is that what you ingest shows up in the hair like a time line. When that section gets cut off a test may look a lot better than the situation is. I agree that a provoked test is much better. We haven't done chelation yet but I know his hair would likely not show much because the last big exposure to mercury were at his last shots, 3+ years ago. The hair that would show this exposure is gone by now. Jackie H <jbjhines@...> wrote: , I just received my son's results for the first hair sample from DDI. What I did first was got a copy of my son's vaccine administration records and the weight he was at the time of each administration. I created a spreadsheet to determine if and how much thimerosal he received from birth to 5. There is a vaccine calculator that will indicate how many times over the EPA allowable amount my son received. Well, at 3 days old when he received the Hep B, he received 33.85 times over the EPA allowable amount of thimerosal. 1 month later, 27.28 times the allowable amount (HepB).....1 month later 45.40 times the EPA allowable amount (Hib) and on and on and on. These were with the HepB, Hib and DTaP (my son was born in 1999). Here is the link for the calculator: http://www.nvic.org/calc.htm After calculating my son's vaccines and looking at information related to mercury poisoning and autism, I made the decision to see if he is toxic. http://www.healing-arts.org/children/autism-overview.htm Based on the results and using the counting rules, is considered to be mercury toxic. I posted my results on the autism treatment group and asked Andy Cutler and others opinions about the results. I also conferred with the DAN doctor that ordered the test for me.... who also has a son on the spectrum. Andy indicated to me that he meet the " all low " counting rule (in each area), shows no mercury(on the test) and is in the red low area for manganese and cobalt, which is considered to be a very 'textbook' example of a mercury induced mineral transport derangement. Now, I have two choices IMO, chelate or wait. Since is such a picky eater I know he is not receiving the proper nutrients that he should. Is he thriving? Absolutely! He just had his 6 yo well child visit yesterday and from last year he grew 3 1/4 inches and gained 5 lbs. Yet, he is a tall skinny boy with malabsorbtion problems and has malnutrition. 3 weeks ago I started him on AFP Peptazide and a good all around multi-vitamin/mineral, GABA and Coromega. I removed the supplements 6 months ago because I didn't 'see' any difference using them, thus my suspect ion that he wasn't absorbing them properly. I am going to see how this protocol works for him.... and retest in 6 months to see if it is making a difference. If it is still the same.... then I definitely know there are problems with mineral transport and he is truly toxic.....then I will start chelation. I need to educate DH with this whole process as it has been difficult bringing him on board with enzyme therapy and supplements. He is such a skeptic that people target parents with kids on the spectrum....so I say, let's give it a try and see what happens.... and he is okay with this. So far so good. You do have to trust your own instincts and research before you make a decision to chelate or not. I may become antsy and chelate over the summer a few rounds and check to see if we are pulling mercury. He doesn't have any other heavy metals, so I believe that I can use ALA only to chelate. We all want our child to free from the symptoms of autism. I just want what is best for my son who is mild PDD-NOS and very high functioning. He is an affectionate, loving, happy child who loves people and children....yet still has problems interacting appropriately. He will only been talking 3 year this summer and I am determined to help him fit in with his peers as much as possible, live a life of happiness and fulfillment and anxiety free if possible! Read and research more. " Children with Starving Brains " by Jaqueline McCandless, MD was a great resource for me too in researching other methods beside PT, OT and ST. HTH some, Jackie H. <stephanie.scott@...> So basically, what I get from all this is that you may not be able to tell definitively if your child is heavy metal toxic from any of these tests. You get the tests, interpret them as best you can, bearing in mind their limitations, then decide if you want to try chelation, and only if you chelate and see improvement do you know for certain that metals were a problem. ----- Original Message ----- Mercury did not show up in our hair sample. >>>it won;t if you are toxic, thats the whole point of the Counting rules, you look for the PROBLEMS is cause not the Mercury, which will be tighly bound to places like the brain. If you read the link you will understand _http://home.earthlink.net/~moriam/HOW_TO_hair_test.html_ (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html) FWIW, challenge anybody and everybody with a high dose of chelator and you will pull Mercury, we all have some from the environment, doesn;t tell you squat about if your child has chronic toxcity................... MAndi in UK __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Please note that I only know this because I went to culinary school where I was older than 90% of the rest of the students by about 10 years. They all called me Mom and I learned a lot about that age group, more than I wanted to. I have never taken any illegal drug. What I did learn when I went back to school is that testing hair can give you an inaccurate view of what is going on. I actually had a guy in my class that shaved his head to be able to pass a drug test. Evidently that isn't uncommon. In Las Vegas a lot of places test hair since there are ways to pass a scheduled urine test. Anyway, The problem is that what you ingest shows up in the hair like a time line. When that section gets cut off a test may look a lot better than the situation is. I agree that a provoked test is much better. We haven't done chelation yet but I know his hair would likely not show much because the last big exposure to mercury were at his last shots, 3+ years ago. The hair that would show this exposure is gone by now. Jackie H <jbjhines@...> wrote: , I just received my son's results for the first hair sample from DDI. What I did first was got a copy of my son's vaccine administration records and the weight he was at the time of each administration. I created a spreadsheet to determine if and how much thimerosal he received from birth to 5. There is a vaccine calculator that will indicate how many times over the EPA allowable amount my son received. Well, at 3 days old when he received the Hep B, he received 33.85 times over the EPA allowable amount of thimerosal. 1 month later, 27.28 times the allowable amount (HepB).....1 month later 45.40 times the EPA allowable amount (Hib) and on and on and on. These were with the HepB, Hib and DTaP (my son was born in 1999). Here is the link for the calculator: http://www.nvic.org/calc.htm After calculating my son's vaccines and looking at information related to mercury poisoning and autism, I made the decision to see if he is toxic. http://www.healing-arts.org/children/autism-overview.htm Based on the results and using the counting rules, is considered to be mercury toxic. I posted my results on the autism treatment group and asked Andy Cutler and others opinions about the results. I also conferred with the DAN doctor that ordered the test for me.... who also has a son on the spectrum. Andy indicated to me that he meet the " all low " counting rule (in each area), shows no mercury(on the test) and is in the red low area for manganese and cobalt, which is considered to be a very 'textbook' example of a mercury induced mineral transport derangement. Now, I have two choices IMO, chelate or wait. Since is such a picky eater I know he is not receiving the proper nutrients that he should. Is he thriving? Absolutely! He just had his 6 yo well child visit yesterday and from last year he grew 3 1/4 inches and gained 5 lbs. Yet, he is a tall skinny boy with malabsorbtion problems and has malnutrition. 3 weeks ago I started him on AFP Peptazide and a good all around multi-vitamin/mineral, GABA and Coromega. I removed the supplements 6 months ago because I didn't 'see' any difference using them, thus my suspect ion that he wasn't absorbing them properly. I am going to see how this protocol works for him.... and retest in 6 months to see if it is making a difference. If it is still the same.... then I definitely know there are problems with mineral transport and he is truly toxic.....then I will start chelation. I need to educate DH with this whole process as it has been difficult bringing him on board with enzyme therapy and supplements. He is such a skeptic that people target parents with kids on the spectrum....so I say, let's give it a try and see what happens.... and he is okay with this. So far so good. You do have to trust your own instincts and research before you make a decision to chelate or not. I may become antsy and chelate over the summer a few rounds and check to see if we are pulling mercury. He doesn't have any other heavy metals, so I believe that I can use ALA only to chelate. We all want our child to free from the symptoms of autism. I just want what is best for my son who is mild PDD-NOS and very high functioning. He is an affectionate, loving, happy child who loves people and children....yet still has problems interacting appropriately. He will only been talking 3 year this summer and I am determined to help him fit in with his peers as much as possible, live a life of happiness and fulfillment and anxiety free if possible! Read and research more. " Children with Starving Brains " by Jaqueline McCandless, MD was a great resource for me too in researching other methods beside PT, OT and ST. HTH some, Jackie H. <stephanie.scott@...> So basically, what I get from all this is that you may not be able to tell definitively if your child is heavy metal toxic from any of these tests. You get the tests, interpret them as best you can, bearing in mind their limitations, then decide if you want to try chelation, and only if you chelate and see improvement do you know for certain that metals were a problem. ----- Original Message ----- Mercury did not show up in our hair sample. >>>it won;t if you are toxic, thats the whole point of the Counting rules, you look for the PROBLEMS is cause not the Mercury, which will be tighly bound to places like the brain. If you read the link you will understand _http://home.earthlink.net/~moriam/HOW_TO_hair_test.html_ (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html) FWIW, challenge anybody and everybody with a high dose of chelator and you will pull Mercury, we all have some from the environment, doesn;t tell you squat about if your child has chronic toxcity................... MAndi in UK __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 This is true IF you don;t have DISOREDERED MINERAL TRANSPORT. If you do have this, what shows up in your hair is not what goings on in your body anyway. MERCURY causes DISORDERD MINERAL TRANSPORT. What you do with a hair test is LOOK FOR THE PROBLEM THAT MERCURY CAUSES. you have to read the link to understand this. I _http://home.earthlink.net/~moriam/HOW_TO_hair_test.html_ (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html) Scroll down to THE COUNTING RULES and read that bit f you have a spare $35 an an interest then buy this NEW book which it explains it all in perfect detail, with test to look at, sveral case histories to prove the point, before and after treament etc etc _http://www.noamalgam.com/hairtestbook.html_ (http://www.noamalgam.com/hairtestbook.html) It was written solely for the purpose of of explainign WHY hair tests AREN't useless Mandi in UK What I did learn when I went back to school is that testing hair can give you an inaccurate view of what is going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 No need to apologise, I shoudl if I sounded brusque, but I was gettingmighty furstrated that nobody seems to be reading the link which would have explained it all LOL If you know what you are looking for they tell you just what you need Just dont; look for Mercury! good luck with the testing Mandi in UK My sincere apologies. I didn't mean that they were not useful. It was just my understanding that there are reasons not to get the expected result. I know we have done some testing with that didn't show what we expected. We then read that sometimes you have to test in other ways or repeat tests to get an accurate representation of what is going on. I plan on doing more testing very soon in hopes of getting a big picture of 's health so we can reassess what we are doing with him. I will definitely be checking our your links. Thanks and sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 I have been a very good girl and not only read your links but saved the info too! You all are great people and so very helpful and patient to all. Thanks, Jackie D. Mum231ASD@... wrote:No need to apologise, I shoudl if I sounded brusque, but I was gettingmighty furstrated that nobody seems to be reading the link which would have explained it all LOL If you know what you are looking for they tell you just what you need Just dont; look for Mercury! good luck with the testing Mandi in UK My sincere apologies. I didn't mean that they were not useful. It was just my understanding that there are reasons not to get the expected result. I know we have done some testing with that didn't show what we expected. We then read that sometimes you have to test in other ways or repeat tests to get an accurate representation of what is going on. I plan on doing more testing very soon in hopes of getting a big picture of 's health so we can reassess what we are doing with him. I will definitely be checking our your links. Thanks and sorry. Quote Link to comment Share on other sites More sharing options...
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