Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 I'm posting this for a friend whose child has just been diagnosed with autism. She will be joining this group soon, but I'm hoping to get her a head start. Her daughter is addicted to milk. When she was a newborn, the moms milk didn't come in, so the baby had formula which she would refuse constantly. The Mom found a formula with the whey broken down and that seemed to help. As the child grew, she threw up or gagged on solids, and now at 28 months will only nibble on a few chips or m & m's, and drinks 8 bottles of homo milk per day. She throws a tantrum if she is refused the milk. At one time I would have said " she must be craving casein, so put her on gf/cf " Now, I'm not so sure that is the answer. Can anyone give any advice as to what is going on with the addiction to milk? Any suggestions for this Mom are appreciated. Many thanks, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 This sounds like a casein addiction to me. Before GFCF diet my son, age 2 would drink 8 bottles a day as well full of whole milk. Now he drinks 3 smaller bottles a day of soy milk. He also threw fits if denied milk, thankfully he didn't notice the difference between the soy and the cows milk and the change was smooth. If she's having such and issue with change could mom maybe sneak in some soy milk and slowly increase the amount each time until its all soy/rice/nut/potato milk instead? Cayce Independent Sales Consultant of Big Yellow Box by Crayola R Discover Your Imagination www.DiscoverYourImagination.com - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 When my son was an infant he wasn't growing and was projectile vomitting blood so they put him on predigested formula. He cried constantly only stopping when he was eating and drank ALOT(10 bottles daily) of formula. Doubled his weight w/in 2 weeks. The doctors said to cut back on formula that since he has digestion problems his system needed time to rest . Upon doing this his crying went down alot.(It took a couple of days to see improvement) We then added solids and it helped even more. . My son is lactose intolerant and allergic to milk. While we see no obvious physical signs from drinking milk now, we do see some benefits from enzymes(helped stuttering and temper). My son is now 12yo. Lynn Addicited to milk I'm posting this for a friend whose child has just been diagnosed with autism. She will be joining this group soon, but I'm hoping to get her a head start. Her daughter is addicted to milk. When she was a newborn, the moms milk didn't come in, so the baby had formula which she would refuse constantly. The Mom found a formula with the whey broken down and that seemed to help. As the child grew, she threw up or gagged on solids, and now at 28 months will only nibble on a few chips or m & m's, and drinks 8 bottles of homo milk per day. She throws a tantrum if she is refused the milk. At one time I would have said " she must be craving casein, so put her on gf/cf " Now, I'm not so sure that is the answer. Can anyone give any advice as to what is going on with the addiction to milk? Any suggestions for this Mom are appreciated. Many thanks, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 My son was addicted to milk....almost the only thing he would take in. Removing all dairy helped but he really didn't start eating until I put him on a combination diet of SCD(specific carbohydrate diet), luetin free & Feingold (phenol-free). Here is a list of books and a website to help you get started. " Breaking the Vicious Cycle..Intestinal Health Diet " by Elaine Gottschall " The Power of Exile, Autism A Journey to Recovery " by Max & Desorgher http://www.feingold.org/ Marilyn Edge allison_lillies <caneng@...> wrote: I'm posting this for a friend whose child has just been diagnosed with autism. She will be joining this group soon, but I'm hoping to get her a head start. Her daughter is addicted to milk. When she was a newborn, the moms milk didn't come in, so the baby had formula which she would refuse constantly. The Mom found a formula with the whey broken down and that seemed to help. As the child grew, she threw up or gagged on solids, and now at 28 months will only nibble on a few chips or m & m's, and drinks 8 bottles of homo milk per day. She throws a tantrum if she is refused the milk. At one time I would have said " she must be craving casein, so put her on gf/cf " Now, I'm not so sure that is the answer. Can anyone give any advice as to what is going on with the addiction to milk? Any suggestions for this Mom are appreciated. Many thanks, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 > Her daughter is addicted to milk. When she was a newborn, the moms > milk didn't come in, so the baby had formula which she would refuse > constantly. The Mom found a formula with the whey broken down and > that seemed to help. As the child grew, she threw up or gagged on > solids, and now at 28 months will only nibble on a few chips or > m & m's, and drinks 8 bottles of homo milk per day. She throws a > tantrum if she is refused the milk. I would choose either to remove the milk, dilute it with water or something else, or sprinkle Peptizyde into the milk before giving it to her. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 > drinks 8 bottles of homo milk per day. She throws a > tantrum if she is refused the milk. Does she take it in a cup? Is it the comfort of the bottle or the milk itself? ia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Try putting the littlest amount of water in (keeping track of the amount) and keep increasing the water. I actually got my daughter to take formula by adding a very tiny amount of formula to her water then increasing it until she was getting full strength formula (and I got a break from nursing at 7 months!) Also, have her checked by a reputable feeding clinic because she has probably not learned how to eat solids and/or has sensory issues with solids. Best Wishes! Becky > I'm posting this for a friend whose child has just been diagnosed > with autism. She will be joining this group soon, but I'm hoping to > get her a head start. > > Her daughter is addicted to milk. When she was a newborn, the moms > milk didn't come in, so the baby had formula which she would refuse > constantly. The Mom found a formula with the whey broken down and > that seemed to help. As the child grew, she threw up or gagged on > solids, and now at 28 months will only nibble on a few chips or > m & m's, and drinks 8 bottles of homo milk per day. She throws a > tantrum if she is refused the milk. > > At one time I would have said " she must be craving casein, so put her > on gf/cf " Now, I'm not so sure that is the answer. > > Can anyone give any advice as to what is going on with the addiction > to milk? Any suggestions for this Mom are appreciated. > > Many thanks, > > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 > This sounds like a casein addiction to me. Before GFCF diet my son, age 2 > would drink 8 bottles a day as well full of whole milk. Now he drinks 3 > smaller bottles a day of soy milk. He also threw fits if denied milk, > thankfully he didn't notice the difference between the soy and the cows milk > and the change was smooth. > > If she's having such and issue with change could mom maybe sneak in some soy > milk and slowly increase the amount each time until its all > soy/rice/nut/potato milk instead? > > > Cayce > Independent Sales Consultant of > Big Yellow Box by Crayola R > Discover Your Imagination > www.DiscoverYourImagination.com> - I'm new to this list and forgive me for jumping in like this, but watch out for the soy milk, too. My younger son was addicted to cow's milk too, drinking a half gallon or more per day when he was a 4 yo. We switched him to soy and he did become much more alert, so he definitely was having problems with the casein. However, now three years later, we found he has an IgG allergy to soy and have switched to rice milk. Unfortunately, we didn't know that autistic kids often have problems with soy as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 > Unfortunately, we didn't know that autistic > kids often have problems with soy as well. > > > > > Soy is bad news for everyone, particularly women and children. It can be challenging to find alternatives, but well worth the effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 I've heard this a few times now, and I was considering making nut milk for my son or trying to find something else to buy. Would anyone want to explain more in detail why I should stay away from soy? Would this also include soy yogurts and soy ice cream products? Thanks Re: Addicited to milk > Unfortunately, we didn't know that autistic kids often have problems > with soy as well. > > > > > Soy is bad news for everyone, particularly women and children. It can be challenging to find alternatives, but well worth the effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 On Sep 18, 2004, at 10:43 PM, Cayce wrote: > I've heard this a few times now, and I was considering making nut milk > for > my son or trying to find something else to buy. Would anyone want to > explain > more in detail why I should stay away from soy? Would this also > include soy > yogurts and soy ice cream products? > > Thanks > > , This includes anything at all made from soybeans. Soybeans are extremely high in phytates, which combine with calcium, magnesium, zinc iron and copper in the intestinal tract, blocking their absorption. Soybeans also contain powerful enzyme inhibitors which can lead to protein assimilation problems. Soy milk, yogurt, ice cream, etc. are loaded with phytates and cause mineral deficiencies. Phytoestrogens in soy products are endocrine disruptors and goitrogens (depress thyroids function). I would steer clear of all soy, except for small amounts of fermented soy such as miso and tempeh. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 I don't post much at all but I feel that I have to add my two cents. Soy really isn't good for you at all, you can check it out here www.westonaprice.org. This is one of the many websites which tell of the dangers of soy. My child started to potty train after I removed it from his diet at 3.4 years. Your friend would be much safer trying the rice milk and/or potato milks. She can try the gradual dilution method someone else mentioned. She should also try getting some food in the child via smoothies maybe with increasingly strong doses of enzymes. Try putting 1 small slice of banana in the blender and adding the milk. Hey presto the beginnings of a smoothie, and every day gradually add a bit more. She should try to make those milk drinks as nutrient rich as possible i.e. adding essential vitamins to it as necessary. The same food that she adds to the smoothies should be readily available at the table should the child decide to taste it one day. She would have by then gotten accustomed to the smell. Regarding the nutmilk, I suppose you could try it in small amounts but be aware that it is hard to digest. Hope this helps. > > I've heard this a few times now, and I was considering making nut milk > > for > > my son or trying to find something else to buy. Would anyone want to > > explain > > more in detail why I should stay away from soy? Would this also > > include soy > > yogurts and soy ice cream products? > > > > Thanks > > > > > > , > > This includes anything at all made from soybeans. Soybeans are > extremely high in phytates, which combine with calcium, magnesium, zinc > iron and copper in the intestinal tract, blocking their absorption. > Soybeans also contain powerful enzyme inhibitors which can lead to > protein assimilation problems. Soy milk, yogurt, ice cream, etc. are > loaded with phytates and cause mineral deficiencies. Phytoestrogens in > soy products are endocrine disruptors and goitrogens (depress thyroids > function). I would steer clear of all soy, except for small amounts of > fermented soy such as miso and tempeh. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 > I've heard this a few times now, and I was considering making nut milk for > my son or trying to find something else to buy. Would anyone want to explain > more in detail why I should stay away from soy? Would this also include soy > yogurts and soy ice cream products? In addition to the previous messages, soy is also chemically very similar to milk. So for children who have problems tolerating milk, they commonly also have problems tolerating soy. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 >Soy really isn't good for you at all My allergist agrees - he says even kids that tolerate soy in the beginning if they are overexposed (which is easy if there is no dairy) than they can become intolerant to it. Changing the milk is the easiest as there are many other acceptable things (rice, almond, potatoe). Yogurt doesn't have many more options besides soy and finding soy free non dairy butter is difficult so minimizing the soy milk intake may help prevent the need to avoid soy entirely! - near LAX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 when we switched to potatoe milk is when my daughter's bacteria problems became evident (don't know if she previously had the problem). It took months to figure it out and get it somewhat cleared out. So for us we don't do any of the milks except for the little bit she gets on her cereal. Luckily she was never addicted to milk. Becky > > > I've heard this a few times now, and I was considering making nut > milk > > > for > > > my son or trying to find something else to buy. Would anyone want > to > > > explain > > > more in detail why I should stay away from soy? Would this also > > > include soy > > > yogurts and soy ice cream products? > > > > > > Thanks > > > > > > > > > > , > > > > This includes anything at all made from soybeans. Soybeans are > > extremely high in phytates, which combine with calcium, magnesium, > zinc > > iron and copper in the intestinal tract, blocking their > absorption. > > Soybeans also contain powerful enzyme inhibitors which can lead to > > protein assimilation problems. Soy milk, yogurt, ice cream, etc. > are > > loaded with phytates and cause mineral deficiencies. > Phytoestrogens in > > soy products are endocrine disruptors and goitrogens (depress > thyroids > > function). I would steer clear of all soy, except for small > amounts of > > fermented soy such as miso and tempeh. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 At 28 months, she should be having more solid food. What does the child's doctor say about this? Even if she is not technically 'addicted' to it, she is filling up on milk instead of eating more solid foods. Some toddlers fill up on juice in the same way. Since she has always had a swallowing problem, it might not be the milk in particular as much as a sensory or motor issue. Has the mom checked with a specialist about the motor contol issue? I am not what type of person that would be. An occupational therapist can help with any sensory issues and might be able to help with the eating. Are there any other sensory issues? Is the girl particular to textures, temps? Some kids are very reactive to lumps or chunks in their food. Does she react strongly to sounds or light or smell? Another thing to ask is: will the girl eat pudding, applesauce or other liquid-y type foods? The mom might want to start giving some of these type foods along with a reduced amount of milk. She can always try a different milk or rotate the milk-sub alternatives, but if the girl doesn't eat for an entire day, I wouldn't push it because at the moment, she hasn't had any other source of nutrition. Because she has always had this problem (including needing a very special formula), she may not be able to respond appropriately to feeding processes like other kids do. . Quote Link to comment Share on other sites More sharing options...
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