's privacy and DAN doctor's opinions

[Guest guest]

I don't know if anyone thinks this is important but I just got this new account

from which I am writing from, set up to separate my asd-mercury related emails

from the other ones. I also set the account up in order to protect my privacy a

bit more. Here's why (and I am sure many of you have realized the problems of

displaying full name and so forth, but I am kind of new to this). So let me

share this with you, maybe others have something to share regarding these

issues.

I don't want to be identified by name for the following reasons:

I am not afraid to confront the DAN doctor I have been seeing with my son and

whom I have been referring to in some of my emails but I really want to avoid

conflics or burn my bridges, if possible at all. I talked to this doc yesterday

and she got pretty defensive about the information I told her I learned about

from this group... She said she does not read the postings here any more, but is

familiar with Andy Cuttler's protocol. She sounded a little bit disappointed

that I started reading/corresponding here saying " had you only asked me I would

have told you " . I responded to her that " the problem is you don't know what

kind of questions to ask antil you start reading up on things " ...it sounded that

she understood. And I really wasn't going to take up the 8hr vs 4hr DMSA

protocol with her in deapth - she still insisted that there's no difference

between the two schedules. I told her that I have had concernes about things

not going too well because of my son coming down with

colds each time I do a round - this is why we only got to round 9 in a year and

a half!!!! And I really haven't seen a breakthrough with my 4-year-old either.

Still non-verbal, autistic symptoms actually got worse (based on CARS last year)

and all this despite the 30 hour intensive ABA he is receiving per week.

Something's not right. Doc responded that she agrees and maybe my son is not

tolerating the DMSA itself, and should be tested for it (they do muscletesting

at their practice). Perhaps at our next visit we could test him, I support it,

but I told her I will try the 4 hour protocol on DMSA and see if I see the same

behaviors. She said it was fine with her.

Next, I wanted to have my son tested for cysteine plasma, and she recommended

to do Spectracell - I'll have a brochure in the mail soon about this. Is anyone

familiar with this test? I believe it is supposed to be looking at nutritional

issues on the cellular level. Does anyone know about this?

Also, I managed to talk her out of doing another challenge test for urine and

stool heavy metal analysis. I will be collecting these after we do a round of

chelation at the 4 hr schedule, the morning after. I don't know why but she said

she preferred the urine and stool test to the hair test - does anyone have an

opinion on this?

I really want to say that I like the work this particular doctor has done for

us in the past, for the most part, except the 8 hr protocol that she endorses,

and which may be the reason why my son has not been doing well with the rounds

and overall.

It's just that would be a pretty big concern to have if it turns out that it

was the 8 hr dosing that did much harm to my son.

But I want to be fair and say that the NAET based treatments have done many

good things for us, including myself (chronic migrains GONE, my son tolerating

his supplements, pooping better).

But I think the one HUGE lesson I learned from our past experiences is to

ALWAYS DO YOUR RESEARCH and ASK QUESTIONS before you let anything ingested/done

to yourself or your child. I feel awful and I can't sleep at night because I

let 2 precious years go by without suspecting that the chelation protocol and

some of the supps prescribed were not working or in fact may have been harmful

for us.

My husband's support for biomedical interventions is almost zero by now,

having the experiences that we have had, and it has been quite costly as well,

seeing the doc, doing the NAET thing... all my hubby sees is the cost of all

this and the negatives to Evan (which is very scary for me as well). But I

think he will support my research into this and slow and careful supplementation

and chelation of the 4 hr protocol this last time - I think this is my last

chance, and my son's, and just can't blow it. I know I should not be solely

responsible for whatever the outcome is going to be and my hubby should be

involved as well, but unfortunately he does not have the time to commit to this.

Anyhow, sorry this has been long but I thought this may help others.

So anyhow, back to the privacy issue, I think it will work better for me if I

will not display my or my son's or hubby's full name in my postings any more. I

may see the doc again, and I want to be fair.

So from now on, I will be aedape4, and will sign my emails as .

Best of luck to all of you!

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