Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hello, I posted awhile ago regarding our son's regression after 4 rounds of TD-DMSA. Although there were regressions (very hyper, very stimmy), there were also some improvements, very nice improvements actually. We modified our chelation protocol with our DAN, added more minerals which helped, added more probiotics (I think it helped)...added Candex, and switched pharmacies. So, now we did our first round with td-dmsa from lee silsby last weekend, so this weekend we are " off " . I have to say, that this has been the hardest week of this whole process. There have been almost no improvements (one nice improvement wednesday night) and all negatives. This, however, is different that what we saw the first time around, and I am somewhat afraid. Our son is definitely MORE autistic now than he has ever been....even before biomed started a year ago. VERY spacey, he is on plante pluto. Non responsive, waving toys in front of his eyes, very very withdrawn, weird! Just weird! Please tell me that some kid regress a little before they improve, and that we are NOT hurting our son or making him worse. Please tell me that this is typical, they are moving metals around. Please tell me that we should keep going... I remember reading a post from a dad whose kid recovered on dmsa/ala some time ago. He recalled that the first 4-5 rounds scared the shit out of him. He stated that his son was more autistic than ever, but that he also saw some developmental gains...so they stuck with it, and now...his son is completely recovered, making friends in 1st grade, doing great. Now, this dad did ALA with the DMSA right from the start, maybe we should be adding in the ala? I know that i cant stop chelating...if we are ever going to get close to recovery, chelation is key...but this is tough. How is it that other kids make remarkable progress after ONLY one round...and ours is a wreck? Actually, I think I am the wreck..he is on another planet talking to himself. Sorry, please let me know your thoughts....Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 --- Hi Kim, My son also went thru some nasty regressions early on in chelation (we are still pretty early on..but hopefully past this regression phase) To me serious regressions, ours was behavioural, aggression..screamy, means something needs to be changed. I have given him round breaks to ensure his minerals and yeast were under control. I have lowered the doseage to the 1/8th amount and kept it there. My son is high copper and very low zinc so this makes chelation even more difficult. The copper stays, the zinc depletes no matter how diligently it seems, that I supplement. For us these changes have helped a lot. I do have to give him atleast 11 days off, and really, really deal with yeast. (I thought I was dealing with the yeast and mineral issues, but it was not enuf.) I had to get another hair analysis done to see where his minerals were at ( this was after nine rounds) and it was clear that he needed more zinc, and a break from chelation. I give him different yeast killers and rotate them, every four days. Sometimes I really have to increase the doseages. I also give a very good probiotic, two times every day. I learned that when they said that yeast happens with chelation and that you really have to watch, supp the minerals, they weren't kidding!! Sometimes taking a little break has helped relieve the regressive behaviours and I have been able to see some of the benefits of chelation. Good luck to you and your family, Stacey In , " Kim GIll " <kim.gill@g...> wrote: > > Hello, I posted awhile ago regarding our son's regression after 4 > rounds of TD-DMSA. Although there were regressions (very hyper, > very stimmy), there were also some improvements, very nice > improvements actually. We modified our chelation protocol with our > DAN, added more minerals which helped, added more probiotics (I think > it helped)...added Candex, and switched pharmacies. > > So, now we did our first round with td-dmsa from lee silsby last > weekend, so this weekend we are " off " . I have to say, that this has > been the hardest week of this whole process. There have been almost > no improvements (one nice improvement wednesday night) and all > negatives. > > This, however, is different that what we saw the first time around, > and I am somewhat afraid. Our son is definitely MORE autistic now > than he has ever been....even before biomed started a year ago. VERY > spacey, he is on plante pluto. Non responsive, waving toys in front > of his eyes, very very withdrawn, weird! Just weird! > > Please tell me that some kid regress a little before they improve, > and that we are NOT hurting our son or making him worse. Please tell > me that this is typical, they are moving metals around. Please tell > me that we should keep going... > > I remember reading a post from a dad whose kid recovered on dmsa/ala > some time ago. He recalled that the first 4-5 rounds scared the > shit out of him. He stated that his son was more autistic than > ever, but that he also saw some developmental gains...so they stuck > with it, and now...his son is completely recovered, making friends in > 1st grade, doing great. Now, this dad did ALA with the DMSA right > from the start, maybe we should be adding in the ala? > > I know that i cant stop chelating...if we are ever going to get close > to recovery, chelation is key...but this is tough. How is it that > other kids make remarkable progress after ONLY one round...and ours > is a wreck? Actually, I think I am the wreck..he is on another > planet talking to himself. > > Sorry, please let me know your thoughts....Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2006 Report Share Posted August 10, 2006 The green bm's are due to the chelators which make the bm's a little looser. Green bm's happen when food doesn't sit in the intestine very long and not a lot of bile gets deposited, and is not a cause for worry. Some people have said that dmsa is an antiretroviral and it's interesting to me that it causes some kids to get warmer when they are using it. It's possible. [ ] chelating questions Ok, my son is on his first round of chelation. Today's bm was brown, then followed by green. He hasn't injested anything abnormally green lately so I'm guessing this is related to the chelation. Is it a sign that something is wrong or that something is right? Or does it mean anything at all. That's just not a color I'm used to seeing in him and he even called me in to look b/c he thought it was so wierd. Also, can chelating bring out viral issues? He has been sneezing and having watery eyes alot today. I know he could have just caught something or other, but was curious if chelating might have caused it too. Thank you! Wyndie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Thanks for your reply. I'm curious... what would cause the liver to flush all at once like that (since it wasn't chelating in your ds case)? Wyndie > > > > Ok, my son is on his first round of chelation. Today's bm was > brown, > > then followed by green. He hasn't injested anything abnormally > green > > lately so I'm guessing this is related to the chelation. Is it a > sign > > that something is wrong or that something is right? Or does it > mean > > anything at all. That's just not a color I'm used to seeing in > him > > and he even called me in to look b/c he thought it was so wierd. > > Also, can chelating bring out viral issues? He has been sneezing > and > > having watery eyes alot today. I know he could have just caught > > something or other, but was curious if chelating might have caused > it > > too. > > Thank you! > > Wyndie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Thank you so much. I will look into taurine supplementation. Wyndie > > Wyndie, > > Green bowel can mean not enough bile. Some people add Taurine to the mix when they see this. > > Also, yes, if you move metals it can depress the immune system which makes kids more susceptible to colds. So . . . low and slow is the way to go. > > Barb > [ ] chelating questions > > > Ok, my son is on his first round of chelation. Today's bm was brown, > then followed by green. He hasn't injested anything abnormally green > lately so I'm guessing this is related to the chelation. Is it a sign > that something is wrong or that something is right? Or does it mean > anything at all. That's just not a color I'm used to seeing in him > and he even called me in to look b/c he thought it was so wierd. > Also, can chelating bring out viral issues? He has been sneezing and > having watery eyes alot today. I know he could have just caught > something or other, but was curious if chelating might have caused it > too. > Thank you! > Wyndie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Thanks for your reply . Excuse my ignorance please, but which part of the body makes bile? Also, I thought we didnt' want the food to sit in the intestines. Or is it just that it doesn't stay there long enough? I knew I should have paid better attention in school. LOL Wyndie > > The green bm's are due to the chelators which make the bm's a little looser. Green bm's happen when food doesn't sit in the intestine very long and not a lot of bile gets deposited, and is not a cause for worry. > > Some people have said that dmsa is an antiretroviral and it's interesting to me that it causes some kids to get warmer when they are using it. It's possible. > > > > > [ ] chelating questions > > > Ok, my son is on his first round of chelation. Today's bm was brown, > then followed by green. He hasn't injested anything abnormally green > lately so I'm guessing this is related to the chelation. Is it a sign > that something is wrong or that something is right? Or does it mean > anything at all. That's just not a color I'm used to seeing in him > and he even called me in to look b/c he thought it was so wierd. > Also, can chelating bring out viral issues? He has been sneezing and > having watery eyes alot today. I know he could have just caught > something or other, but was curious if chelating might have caused it > too. > Thank you! > Wyndie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Bile is composed of a combination of substances produced in the pancreas and the liver, then stored in the gall bladder, if one is present. Jim ________________________________ From: [mailto: ] On Behalf Of Wyndie Sent: Thursday, August 17, 2006 8:48 AM Subject: [ ] Re: chelating questions Thanks for your reply . Excuse my ignorance please, but which part of the body makes bile? Also, I thought we didnt' want the food to sit in the intestines. Or is it just that it doesn't stay there long enough? I knew I should have paid better attention in school. LOL Wyndie > > The green bm's are due to the chelators which make the bm's a little looser. Green bm's happen when food doesn't sit in the intestine very long and not a lot of bile gets deposited, and is not a cause for worry. > > Some people have said that dmsa is an antiretroviral and it's interesting to me that it causes some kids to get warmer when they are using it. It's possible. > > > > > [ ] chelating questions > > > Ok, my son is on his first round of chelation. Today's bm was brown, > then followed by green. He hasn't injested anything abnormally green > lately so I'm guessing this is related to the chelation. Is it a sign > that something is wrong or that something is right? Or does it mean > anything at all. That's just not a color I'm used to seeing in him > and he even called me in to look b/c he thought it was so wierd. > Also, can chelating bring out viral issues? He has been sneezing and > having watery eyes alot today. I know he could have just caught > something or other, but was curious if chelating might have caused it > too. > Thank you! > Wyndie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 The liver produces bile. http://en.wikipedia.org/wiki/Liver > > Thanks for your reply . Excuse my ignorance please, but > which part of the body makes bile? Also, I thought we didnt' want > the food to sit in the intestines. Or is it just that it doesn't > stay there long enough? > I knew I should have paid better attention in school. LOL > Wyndie > Quote Link to comment Share on other sites More sharing options...
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