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Andy Please!

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Ronni,

Not Andy , for sure!!

but I can tell you our experience with some of the items on your

list. Our daughter responds with seizures to many oral foods, supps

included. Sometimes if no seizures come, we get a `pre-seizure'

behavior that is nasty, impulsive, aggressive, volatile, giddy, out

of touch, sometimes with ataxia/sometimes not.

Lethicin[soy] does this

GABA, Taurine, Inositol,valarian produce seizures

Eve Prim Oil she can only tolerate topically-orally will result in

seizures

Olive Leaf Extract[isn't this a high phenol?], any plant based enzyme

[?zym-prime], no-phenol all resulted in the nasty behavior.

Any choline, but esp the bitartrate form gets her to nasty behavior

and sometimes seizures

There are a couple of aspartate forms in the Twin Lab prep that

would send her to nasty heaven.

We also have tried amino formulas based on testing; same results

with nasty behavior

I'm not familiar with the Kirkm's probiotic but dairy free is

mandated here if we want to avoid seizures. You may want to begin at

ground zero again. Based on our experience I would be very careful

with combination products. B.

>

> Andy

>

>

>

> I am at my wits end....I am trying to figure out what is the

problem

> with the kids and keep running into problems...

>

>

>

> I am treating for yeast with 1 tsp NO-Fenol, 2 caps of Zyme prime

and

> also adding 2 virastop.

>

>

>

> They get all 3 Houston enzymes at all meals and snacks....we are

> GF/CF low sugar, low phenols and no preservatives or colors.

>

>

>

> These are the supplements.

>

>

>

> takes the following.... is the same without the

Risperdal

> and he takes 500 mg Carnitine. They both weigh about 80

lbs....give

> or take 5 with the day.

>

>

>

> risperdal .75 in the evenings

>

> 1/2 b-50

>

> 500 mg olive leaf twice a day

>

> 750 mg amino blend twice daily

>

> 500 mg silymarin blend...bioabsorb twice daily

>

> 800 mg chromium twice daily

>

> 198 mg potassium twice daily

>

> 800 mg magnesium twice daily

>

> 1000 mg evening primrose oil twice daily

>

> 1000 mg calcium twice daily

>

> 400 mg vit D twice daily

>

> lecithin/phos blend 1200 mg twice daily...(both boys have liver

> damage from meds before we got them)

>

> coQ-10 100 mg

>

> vit e 800 mg twice daily

>

> zinc 50 mg x 2

>

> vit C 1000 mg x2

>

> twin labs allergy multi cap 1 cap twice daily link for info of

amts

> and sups included.

>

> http://www.iherb.com/al3.html

>

> Selenium 200 mcg

>

> caprylic acid 730 mg twice daily

>

> True calm which is taken twice daily....each dose has

>

> gaba 600mg

>

> glycine 600 mg

>

> taurine 600 mg

>

> insitol 300 mg

>

> valarian 75 mg

>

> They also take a probiotic from kirkman mid day

>

>

>

>

http://www.kirkmanlabs.com/products/probiotics/pro_bio/Probio75b_C_60

_

> Spec345.html

>

>

>

> What we are seeing is lot of hysterical laughter, moodiness...some

> violence and and a lot of what I can only call stupid

action...they

> are by no means stupid...but those actions are....do you have any

> suggestions....I wanted to start chelation again....we stopped for

> December to try and get the yeast under control...but things

aren't

> getting better...we have increased and decreased the amounts of

the

> no-fenol...added candidase....tried gse....am at wits end...do you

> have any suggestions....these were all added 1 at a time and

> watched....and seem to be fine...but things are just not getting

> better....in fact worse....any insight or ideas.... am not sure

what

> to do next....sure is miserable for all of us...

>

>

>

> thanks so much

>

> Ronni

>

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  • 2 months later...

I was wondering if you could tell me what the difference is between

alpha lipoic acid and r-lipoic acid....I have been reading where it

is now stablized....but had read earlier that it was bad news....

Also is beta glucan as good as I am hearing....i hear that it

stimulates the natural killer cells...which would be great for our

virus issues...but is there a down side...

I was also wondering about hyaluric acid....if it is safe. My kids

are very dry and are taking quite a few EFA's but still are so dry...

so was thinking this might help....

The other thing we were hearing about was a new form of coQ10

supposed to be crystal free and more readily absorbed...have not

checked prices on these things...just hearing about them from

folks...and was wondering if you had heard anything...

I am sorry to bother you...but I am trying to be safe and do the best

with my family...and these sound good and if they are....I will try

to find a way to get them for us....but if they will do harm..then I

need to stay away..and so since what I am reading has no

conclusion...am hearing both sides....so I needed to ask.

Thanks for all your help.

Ronni

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  • 4 years later...
Guest guest

To get rid of chlorine, you need KDF. To get rid of copper, you want a

carbon filter.

The only 2.5 gpm filter I know of that has both KDF and carbon is the

Aquasana:

http://www.wellnessshower.com/Comparisons.aspx

When you order from Aquasana, you can even specify whether your water

supply is treated with chlorine or cloramines, and they send you the

appropriate filter.

Ch wrote:

>

>

> Can you please tell me if this shower filter would be safe to use with

> my son who is on the spectrum? He has had problems with zinc deficency

> in the past and I was told to stay away from copper with him.

> This filter uses copper, zinc and quartz. It says the quartz turns the

> cholrine to zinc chloride?? Am I understanding this right and do you

> think it will be safe to use with him? I can't seem to find a shower

> filter that doesn't use this KDF method but we just moved here and it

> seems the water is suddenly giving him bad dry scalp.

>

> Thank you for your help. Cheri

>

> http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>

>

>

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Guest guest

To get rid of chlorine, you need KDF. To get rid of copper, you want a

carbon filter.

The only 2.5 gpm filter I know of that has both KDF and carbon is the

Aquasana:

http://www.wellnessshower.com/Comparisons.aspx

When you order from Aquasana, you can even specify whether your water

supply is treated with chlorine or cloramines, and they send you the

appropriate filter.

Ch wrote:

>

>

> Can you please tell me if this shower filter would be safe to use with

> my son who is on the spectrum? He has had problems with zinc deficency

> in the past and I was told to stay away from copper with him.

> This filter uses copper, zinc and quartz. It says the quartz turns the

> cholrine to zinc chloride?? Am I understanding this right and do you

> think it will be safe to use with him? I can't seem to find a shower

> filter that doesn't use this KDF method but we just moved here and it

> seems the water is suddenly giving him bad dry scalp.

>

> Thank you for your help. Cheri

>

> http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>

>

>

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Guest guest

That works for the water you put in a fish tank.

> > >

> > >

> > > Can you please tell me if this shower filter would be safe to use with

> > > my son who is on the spectrum? He has had problems with zinc deficency

> > > in the past and I was told to stay away from copper with him.

> > > This filter uses copper, zinc and quartz. It says the quartz turns the

> > > cholrine to zinc chloride?? Am I understanding this right and do you

> > > think it will be safe to use with him? I can't seem to find a shower

> > > filter that doesn't use this KDF method but we just moved here and it

> > > seems the water is suddenly giving him bad dry scalp.

> > >

> > > Thank you for your help. Cheri

> > >

> > > http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> > > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>

> > >

> > >

> >

>

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Guest guest

That works for the water you put in a fish tank.

> > >

> > >

> > > Can you please tell me if this shower filter would be safe to use with

> > > my son who is on the spectrum? He has had problems with zinc deficency

> > > in the past and I was told to stay away from copper with him.

> > > This filter uses copper, zinc and quartz. It says the quartz turns the

> > > cholrine to zinc chloride?? Am I understanding this right and do you

> > > think it will be safe to use with him? I can't seem to find a shower

> > > filter that doesn't use this KDF method but we just moved here and it

> > > seems the water is suddenly giving him bad dry scalp.

> > >

> > > Thank you for your help. Cheri

> > >

> > > http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> > > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>

> > >

> > >

> >

>

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Guest guest

Thank you for the info. Aquasana it is! Now I just need to find out if it is

chlorine or chloramines in the water. Thanks for that tip.

Cheri

> > > >

> > > >

> > > > Can you please tell me if this shower filter would be safe to use

> > with

> > > > my son who is on the spectrum? He has had problems with zinc

> > deficency

> > > > in the past and I was told to stay away from copper with him.

> > > > This filter uses copper, zinc and quartz. It says the quartz turns

> > the

> > > > cholrine to zinc chloride?? Am I understanding this right and do you

> > > > think it will be safe to use with him? I can't seem to find a shower

> > > > filter that doesn't use this KDF method but we just moved here and it

> > > > seems the water is suddenly giving him bad dry scalp.

> > > >

> > > > Thank you for your help. Cheri

> > > >

> > > > http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>

> > > > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>>

> > > >

> > > >

> > >

> >

> >

>

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Guest guest

Thank you for the info. Aquasana it is! Now I just need to find out if it is

chlorine or chloramines in the water. Thanks for that tip.

Cheri

> > > >

> > > >

> > > > Can you please tell me if this shower filter would be safe to use

> > with

> > > > my son who is on the spectrum? He has had problems with zinc

> > deficency

> > > > in the past and I was told to stay away from copper with him.

> > > > This filter uses copper, zinc and quartz. It says the quartz turns

> > the

> > > > cholrine to zinc chloride?? Am I understanding this right and do you

> > > > think it will be safe to use with him? I can't seem to find a shower

> > > > filter that doesn't use this KDF method but we just moved here and it

> > > > seems the water is suddenly giving him bad dry scalp.

> > > >

> > > > Thank you for your help. Cheri

> > > >

> > > > http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>

> > > > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html

> > <http://www.newwaveenviro.com/premium-shower-filter-p-66.html>>

> > > >

> > > >

> > >

> >

> >

>

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