Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Don, I wanted to congratulate you on taking the first step! Making the choice to be evaluated for a CI is one of the hardest decisions of all to make. In my case, it took several years before I seriously considered getting a CI. My CI application spent close to a month lying in a drawer because I kept telling myself that " my hearing couldn't be severe enough to qualify as a candidate. " However, after reading the experiences of others on this list and sharing many of the same frustrations, I knew the time was right and that I had nothing to lose. Super power HAs with an FM system no longer allowed me to hear/understand speech even in quiet one-on-one situations. I was tired of using interpreters/captionists to hear/understand people around me or being left out completely when a captionist or interpreter wasn't available. My CI evaluation revealed that I was a good candidate. I was implanted a few days ago and if I had to do it all over again, I would! Here's wishing you all the best on your journey!! Good luck!! If you have any questions along the way, please do not hesitate to ask. Implanted: 12/22/04 Activation date: 1/18/05 Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Don, I have a cousin (also named Don) who had his CI done at one of the universities in St. Louis. He's very happy with them. You may want to look into that possibility. I know I looked into both KUMC and Wichita Ear Clinic before deciding on Wichita Ear Clinic for my CI. It's just nice to have choices. =) Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Don, I have a cousin (also named Don) who had his CI done at one of the universities in St. Louis. He's very happy with them. You may want to look into that possibility. I know I looked into both KUMC and Wichita Ear Clinic before deciding on Wichita Ear Clinic for my CI. It's just nice to have choices. =) Beth Unfortunately in our age of HMO's, " choice " is not always a " choice. " I will be checking with my HMO tomorrow to see what my options are. I'm not entirely confident that they will even consider a CI, let alone allow me to have a choice. You're probably thinking of Washington U in St. Louis. One of the finest Med Schools in the country. And . . . as an old duffer who has seen " little things lead to big wars " in a lot of instances, I would suggest you steer clear of the stem cell research issue. It is bound to bring up some very visceral feelings. For some, perhaps many of us, (including me) it is grounded in a religious belief - and you KNOW what religious disagreements lead to. (If not, do a google on " jihad " and " crusades " and see what you find.) The stem cell issue could certainly fracture this group right down the middle. Don C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Don, I think it was Washington U that he said he goes to for his CI stuff. If your insurance won't cover the CI, check with vocational rehabilitation. Kansas Voc. Rehab. covered my CI because insurance wouldn't. That doesn't help with the cost of mappings after the rehab. is finished, and doesn't cover cords, batteries, etc., but it does cover the surgery, rehab., a certain number of the mappings (I think mine were covered for the first year), and two processors along with the initial batteries, cords, etc. Good luck! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Just wondering how you felt about the Wichita Ear Clinic as that's where I was selected for a CI. Randall Re: Re: Thanks for replies Don, I have a cousin (also named Don) who had his CI done at one of the universities in St. Louis. He's very happy with them. You may want to look into that possibility. I know I looked into both KUMC and Wichita Ear Clinic before deciding on Wichita Ear Clinic for my CI. It's just nice to have choices. =) Beth Unfortunately in our age of HMO's, " choice " is not always a " choice. " I will be checking with my HMO tomorrow to see what my options are. I'm not entirely confident that they will even consider a CI, let alone allow me to have a choice. You're probably thinking of Washington U in St. Louis. One of the finest Med Schools in the country. And . . . as an old duffer who has seen " little things lead to big wars " in a lot of instances, I would suggest you steer clear of the stem cell research issue. It is bound to bring up some very visceral feelings. For some, perhaps many of us, (including me) it is grounded in a religious belief - and you KNOW what religious disagreements lead to. (If not, do a google on " jihad " and " crusades " and see what you find.) The stem cell issue could certainly fracture this group right down the middle. Don C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Randall, The people at the Wichita Ear Clinic are the greatest! I had Dr. Kryzer as my surgeon, and Kim Bell does my mappings. Molly at St. Francis did my rehab, but I think Kim does that now, too. I think you'll be very happy with them. I just can't say enough good about them. Beth > > Just wondering how you felt about the Wichita Ear Clinic as that's where I > was selected for a CI. > > Randall > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 I too had Dr. Kryzer for consultation and was/is to be my surgeon, and I think it was Kim Bell who did my first hearing test during my first visit there. And Jeff did the pre op test to establish a base line for my present hearing ( or lack there of ). Just a little nervous right now playing the waiting game. Thanks for the reply. Randall Re: Thanks for replies Randall, The people at the Wichita Ear Clinic are the greatest! I had Dr. Kryzer as my surgeon, and Kim Bell does my mappings. Molly at St. Francis did my rehab, but I think Kim does that now, too. I think you'll be very happy with them. I just can't say enough good about them. Beth > > Just wondering how you felt about the Wichita Ear Clinic as that's where I > was selected for a CI. > > Randall > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Randall, I know it's easier said than done, but try not to be too nervous. You're in very good hands. Jeff is from my hometown. =) I'm going in for an appt. with Kim tomorrow afternoon. If you feel the need for moral support, I'll be back in Goddard 5 days/week starting Jan. 3rd. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 thanks jo and angie (?) for your replies. im gonna get started on researching this right now. i appreciate you both pointing me in the right directions...thanks! phil Re: [ ] new to group/anti viral Qs Hi Phil Welcome! Simply go to the autism treatment list and enter the 'files' section, and you will find a huge file on viral therapy which directs you to all the relevant websites. HTH Jo Quote Link to comment Share on other sites More sharing options...
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