frustrated need advice further info- long

[Guest guest]

actually not so much a newbie, just feeling like i need to go back to

basics. better term would be i have a tough nut. here is annies list

of meds/supplements: tddmps 8mg q 8hrs 3 on 11 off...tddmsa 50mg q 4

hrs 3 on 11 off..nystatin with no fenol every other day for 3 weeks,

diflucan the 4th week,probiotic every other day, afp peptizide with

each meal on gfcfsf and low oxolate diet, minerall 1/2 capsule 1-2 x

day on off days, selenium on off days chromium off days, was on zinc,

but didnt need it, glutathione cream with nac 1x a day. epsom salt

bath or magnesium cream daily.and the ever present seizure meds-

lamictal and clonazepam. tried pepcid as sometimes subclinical reflux

causes lack of speech- poops softer appetite better but i dont like

suppressing hcl productionso i stopped it. treated for parasites with

vermox. and i am sure a few other things i cant remember now have been

tried and stopped. so the great plains test is a ddi test! color me

confused- now i have to go check my results again. any advice

appreciated..teresa c

> >

> > i have to say that very little has improved in a year. i am very

> > frustrated and sad. we have done DAN doc- yes at 300/hr- and

> chelated

> > for 3 months tddmps and tddmsa alternate weekends. i am ready to

> start

> > over. so. starting from scratch, my dtr annie is 5 y old,

> nonverbal.

> > epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

> type

> > problems. tried ketogenic diet, failed it- would not take. lyme

> test

> > negative. multiple food sensitivities, reactive to everything.

> gfcfsf

> > for 1 1/2 years. tried afp peptizide with gluten but probably need

> to

> > give higher doses with meals- is a grazer, gave 1 chewable with

> meal-

> > did hair test at great plains and will reorder to do thru ddi so

> you

> > all can help me interpret.

>

> The Great Plains test actually IS a DDI test.

> The one you already did should be okay -- as long as it is

> a HAIR ELEMENTS test rather than a toxic elements test.

>

>

> > have seen no big wows with anything, but if

> > i start a therapy then stop it she regresses. postitves are yeast

> > killing- nystatin plus no fenol is great, melatonin- does sleep

> > better,craniosacral therapy. i do not want to do alot of lab tests

> > again. is anything jumping out at you that i should recheck or try?

> > i tried lauricidin but never really progressed and increased dose

> much.

> > i have a very super husband and terrific pediatrician as well as

> DAN-

> > who i would rather not pay any more money to.

> > i am considering stopping the tddmsa and tddmps and doing starting

> ala

> > alone- what do you think?

>

> fine as long as you use it every 3 hours (including at night).

>

>

> > i have a metals test kit my DAN sent but it

> > is a challenge test with dmsa suppository and i wont do that to

> annie

> > for possible harm per andy.

> > please talk back to me as if i am a newbie- maybe i am missing

> > something basic here?

>

> since you are a newbie, I have to wonder what dosing schedule

> you used for the chelation you have done so far. Many people

> have found the frequent dosing schedule to make a VERY BIG

> difference.

>

>

> > thanks for any advice. sometimes i feel so

> > alone in this journey, i am really grateful for all of you

> although i

> > wish you didnt have to go thru this either...teresa c

> >

>

> good wishes,

> Moria

>

[Guest guest]

There is no reason to flip back and forth between DMPS and DMSA.

More consistent antioxidant support is needed.

we'd need to see the first hair test, too, in order to discuss what is up.

Was there ANY IMPROVEMENT AT ALL inn the first 3 monhths of chelation?

Andy

> actually not so much a newbie, just feeling like i need to go back to

> basics. better term would be i have a tough nut. here is annies list

> of meds/supplements: tddmps 8mg q 8hrs 3 on 11 off...tddmsa 50mg q 4

> hrs 3 on 11 off..nystatin with no fenol every other day for 3 weeks,

> diflucan the 4th week,probiotic every other day, afp peptizide with

> each meal on gfcfsf and low oxolate diet, minerall 1/2 capsule 1-2 x

> day on off days, selenium on off days chromium off days, was on zinc,

> but didnt need it, glutathione cream with nac 1x a day. epsom salt

> bath or magnesium cream daily.and the ever present seizure meds-

> lamictal and clonazepam. tried pepcid as sometimes subclinical reflux

> causes lack of speech- poops softer appetite better but i dont like

> suppressing hcl productionso i stopped it. treated for parasites with

> vermox. and i am sure a few other things i cant remember now have been

> tried and stopped. so the great plains test is a ddi test! color me

> confused- now i have to go check my results again. any advice

> appreciated..teresa c

> > >

> > > i have to say that very little has improved in a year. i am very

> > > frustrated and sad. we have done DAN doc- yes at 300/hr- and

> > chelated

> > > for 3 months tddmps and tddmsa alternate weekends. i am ready to

> > start

> > > over. so. starting from scratch, my dtr annie is 5 y old,

> > nonverbal.

> > > epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

> > type

> > > problems. tried ketogenic diet, failed it- would not take. lyme

> > test

> > > negative. multiple food sensitivities, reactive to everything.

> > gfcfsf

> > > for 1 1/2 years. tried afp peptizide with gluten but probably need

> > to

> > > give higher doses with meals- is a grazer, gave 1 chewable with

> > meal-

> > > did hair test at great plains and will reorder to do thru ddi so

> > you

> > > all can help me interpret.

> >

> > The Great Plains test actually IS a DDI test.

> > The one you already did should be okay -- as long as it is

> > a HAIR ELEMENTS test rather than a toxic elements test.

> >

> >

> > > have seen no big wows with anything, but if

> > > i start a therapy then stop it she regresses. postitves are yeast

> > > killing- nystatin plus no fenol is great, melatonin- does sleep

> > > better,craniosacral therapy. i do not want to do alot of lab tests

> > > again. is anything jumping out at you that i should recheck or try?

> > > i tried lauricidin but never really progressed and increased dose

> > much.

> > > i have a very super husband and terrific pediatrician as well as

> > DAN-

> > > who i would rather not pay any more money to.

> > > i am considering stopping the tddmsa and tddmps and doing starting

> > ala

> > > alone- what do you think?

> >

> > fine as long as you use it every 3 hours (including at night).

> >

> >

> > > i have a metals test kit my DAN sent but it

> > > is a challenge test with dmsa suppository and i wont do that to

> > annie

> > > for possible harm per andy.

> > > please talk back to me as if i am a newbie- maybe i am missing

> > > something basic here?

> >

> > since you are a newbie, I have to wonder what dosing schedule

> > you used for the chelation you have done so far. Many people

> > have found the frequent dosing schedule to make a VERY BIG

> > difference.

> >

> >

> > > thanks for any advice. sometimes i feel so

> > > alone in this journey, i am really grateful for all of you

> > although i

> > > wish you didnt have to go thru this either...teresa c

> > >

> >

> > good wishes,

> > Moria

> >

>

[Guest guest]

honestly- no. i would like to say yes but really no improvement with

chelation. not even any nice side effects like diet or supplement

tolerance. will post hair test. thanks so much..teresa c

> > > >

> > > > i have to say that very little has improved in a year. i am very

> > > > frustrated and sad. we have done DAN doc- yes at 300/hr- and

> > > chelated

> > > > for 3 months tddmps and tddmsa alternate weekends. i am ready to

> > > start

> > > > over. so. starting from scratch, my dtr annie is 5 y old,

> > > nonverbal.

> > > > epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

> > > type

> > > > problems. tried ketogenic diet, failed it- would not take. lyme

> > > test

> > > > negative. multiple food sensitivities, reactive to everything.

> > > gfcfsf

> > > > for 1 1/2 years. tried afp peptizide with gluten but probably

need

> > > to

> > > > give higher doses with meals- is a grazer, gave 1 chewable with

> > > meal-

> > > > did hair test at great plains and will reorder to do thru ddi so

> > > you

> > > > all can help me interpret.

> > >

> > > The Great Plains test actually IS a DDI test.

> > > The one you already did should be okay -- as long as it is

> > > a HAIR ELEMENTS test rather than a toxic elements test.

> > >

> > >

> > > > have seen no big wows with anything, but if

> > > > i start a therapy then stop it she regresses. postitves are yeast

> > > > killing- nystatin plus no fenol is great, melatonin- does sleep

> > > > better,craniosacral therapy. i do not want to do alot of lab tests

> > > > again. is anything jumping out at you that i should recheck or

try?

> > > > i tried lauricidin but never really progressed and increased dose

> > > much.

> > > > i have a very super husband and terrific pediatrician as well as

> > > DAN-

> > > > who i would rather not pay any more money to.

> > > > i am considering stopping the tddmsa and tddmps and doing

starting

> > > ala

> > > > alone- what do you think?

> > >

> > > fine as long as you use it every 3 hours (including at night).

> > >

> > >

> > > > i have a metals test kit my DAN sent but it

> > > > is a challenge test with dmsa suppository and i wont do that to

> > > annie

> > > > for possible harm per andy.

> > > > please talk back to me as if i am a newbie- maybe i am missing

> > > > something basic here?

> > >

> > > since you are a newbie, I have to wonder what dosing schedule

> > > you used for the chelation you have done so far. Many people

> > > have found the frequent dosing schedule to make a VERY BIG

> > > difference.

> > >

> > >

> > > > thanks for any advice. sometimes i feel so

> > > > alone in this journey, i am really grateful for all of you

> > > although i

> > > > wish you didnt have to go thru this either...teresa c

> > > >

> > >

> > > good wishes,

> > > Moria

> > >

> >

>

[Guest guest]

,

As a further note, I notice your daughter has a lot of sensitivities.

We found for my son he does really well with the Houstini enzymes in

capsules, but we had real problemns with the chewables. I don't know why,

but they sent him hyper, stroppy and very giggly - which is what typically

happens when he has an infringement on his dietry regime. We were lucky

becuase we were able to isolate it as the only chnage in his regime, then

retry it a week later when he'd settled down.

I don't know if the same is true for your daughter, but it may be worth a

go.

>From: " andrewhallcutler " <AndyCutler@...>

>Reply-

>

>Subject: [ ] Re: frustrated need advice further info- long

>Date: Mon, 28 Nov 2005 01:26:29 -0000

>

>There is no reason to flip back and forth between DMPS and DMSA.

>

>More consistent antioxidant support is needed.

>

>we'd need to see the first hair test, too, in order to discuss what is up.

>

>Was there ANY IMPROVEMENT AT ALL inn the first 3 monhths of chelation?

>

>Andy

>

> > actually not so much a newbie, just feeling like i need to go back to

> > basics. better term would be i have a tough nut. here is annies list

> > of meds/supplements: tddmps 8mg q 8hrs 3 on 11 off...tddmsa 50mg q 4

> > hrs 3 on 11 off..nystatin with no fenol every other day for 3 weeks,

> > diflucan the 4th week,probiotic every other day, afp peptizide with

> > each meal on gfcfsf and low oxolate diet, minerall 1/2 capsule 1-2 x

> > day on off days, selenium on off days chromium off days, was on zinc,

> > but didnt need it, glutathione cream with nac 1x a day. epsom salt

> > bath or magnesium cream daily.and the ever present seizure meds-

> > lamictal and clonazepam. tried pepcid as sometimes subclinical reflux

> > causes lack of speech- poops softer appetite better but i dont like

> > suppressing hcl productionso i stopped it. treated for parasites with

> > vermox. and i am sure a few other things i cant remember now have been

> > tried and stopped. so the great plains test is a ddi test! color me

> > confused- now i have to go check my results again. any advice

> > appreciated..teresa c

> > > >

> > > > i have to say that very little has improved in a year. i am very

> > > > frustrated and sad. we have done DAN doc- yes at 300/hr- and

> > > chelated

> > > > for 3 months tddmps and tddmsa alternate weekends. i am ready to

> > > start

> > > > over. so. starting from scratch, my dtr annie is 5 y old,

> > > nonverbal.

> > > > epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

> > > type

> > > > problems. tried ketogenic diet, failed it- would not take. lyme

> > > test

> > > > negative. multiple food sensitivities, reactive to everything.

> > > gfcfsf

> > > > for 1 1/2 years. tried afp peptizide with gluten but probably need

> > > to

> > > > give higher doses with meals- is a grazer, gave 1 chewable with

> > > meal-

> > > > did hair test at great plains and will reorder to do thru ddi so

> > > you

> > > > all can help me interpret.

> > >

> > > The Great Plains test actually IS a DDI test.

> > > The one you already did should be okay -- as long as it is

> > > a HAIR ELEMENTS test rather than a toxic elements test.

> > >

> > >

> > > > have seen no big wows with anything, but if

> > > > i start a therapy then stop it she regresses. postitves are yeast

> > > > killing- nystatin plus no fenol is great, melatonin- does sleep

> > > > better,craniosacral therapy. i do not want to do alot of lab tests

> > > > again. is anything jumping out at you that i should recheck or try?

> > > > i tried lauricidin but never really progressed and increased dose

> > > much.

> > > > i have a very super husband and terrific pediatrician as well as

> > > DAN-

> > > > who i would rather not pay any more money to.

> > > > i am considering stopping the tddmsa and tddmps and doing starting

> > > ala

> > > > alone- what do you think?

> > >

> > > fine as long as you use it every 3 hours (including at night).

> > >

> > >

> > > > i have a metals test kit my DAN sent but it

> > > > is a challenge test with dmsa suppository and i wont do that to

> > > annie

> > > > for possible harm per andy.

> > > > please talk back to me as if i am a newbie- maybe i am missing

> > > > something basic here?

> > >

> > > since you are a newbie, I have to wonder what dosing schedule

> > > you used for the chelation you have done so far. Many people

> > > have found the frequent dosing schedule to make a VERY BIG

> > > difference.

> > >

> > >

> > > > thanks for any advice. sometimes i feel so

> > > > alone in this journey, i am really grateful for all of you

> > > although i

> > > > wish you didnt have to go thru this either...teresa c

> > > >

> > >

> > > good wishes,

> > > Moria

> > >

> >

>

>

>

>

_________________________________________________________________

MSN Messenger 7.5 is now out. Download it for FREE here.

http://messenger.msn.co.uk