Re: SS/ Anyone How does this protocal sound?

[Guest guest]

I second that opinion

In a message dated 1/21/2006 11:56:43 AM Eastern Standard Time,

booshkazoom@... writes:

My first thought is to advise you to switch doctors.

[Guest guest]

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every

other

> day x 3 doses than collect a stool sample to send to lab to check

for

> heavy metals.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for

lab

> results to come back.

>

> The doctor seemed to be very rushed yesterday. He did say to be on

a

> good muti-vitamin/mineral but this was not discussed further. >

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>

My first thought is to advise you to switch doctors.

[Guest guest]

I have NO experience with DMPS in any form or with TD chelators of any sort. I

have only used oral chelators.

S S

<tt>

<BR>

<BR>

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every <BR>

other <BR>

> day x 3 doses than collect a stool sample to send to lab to check <BR>

for <BR>

> heavy metals.<BR>

> <BR>

<BR>

> TD-DMPS treatment dose 24 drops every other day while waiting for <BR>

lab <BR>

> results to come back.<BR>

> <BR>

<BR>

> The doctor seemed to be very rushed yesterday. He did say to be on <BR>

a <BR>

> good muti-vitamin/mineral but this was not discussed further. > <BR>

> Any thoughts are greatly appreciated.<BR>

> Thanks so much, Melinda<BR>

><BR>

<BR>

My first thought is to advise you to switch doctors.  <BR>

<BR>

<BR>

<BR>

</tt>

=======================================================<BR>

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[Guest guest]

Not to beat a dead horse, but I agree with the other posters who

suggested that you switch doctors. You want your child to get

better, not worse.

Anne

>

> We had our first doctor's appointment yesterday to discuss mercury

> detox for our 4yr PDD-NOS daughter. This is the plan that was

given.

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every

other

> day x 3 doses than collect a stool sample to send to lab to check

for

> heavy metals.

>

> Can treat with more transdermal DMPS or Chlorella NDF Plus-

Nutritional

> chelator. research this

>

> Follow up in four weeks - ok to do phone consult

>

> I will consider a hair analysis if is positive for mercury.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for

lab

> results to come back.

>

> We have been considering going the homeopathic more flushing route

> first instead of using a chelator. Any thoughts?

>

> We are still working on increasing her vit c and hope to get it up

to

> 500mg. We are at 350mg today. Her initial reaction to the vit c

> (crossing fingers, hand flapping, weepiness, walking on toes,

fever

> blisters and some hyperactivity) has pretty much subsided. She

tends to

> get worm again and go back to those behaviors a little bit each

time we

> increase the vit c.

>

> is currently on the SCDiet, Houston's enzymes (afp and zyme

> prime chewable and no-fenol, Kirkman's probiotic, oil of oregano,

mag

> chlor, egg antigen drops (numerous allergies) and multi-

vitamin/mineral.

>

> The doctor seemed to be very rushed yesterday. He did say to be on

a

> good muti-vitamin/mineral but this was not discussed further. She

is

> currently taking Natural Creations Tiny Tots chewable. It does

have 3%

> copper. I can't believe I forgot to ask him about this specific

multi.

>

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>

[Guest guest]

Melinda,

The NDF plus will make your child worse. I know this from personal

experience and the experience that others have shared with me.

DMPS must be dosed every 8 h or more frequently in small doses.

Otherwise it will redistribute mercury and other metals and make the

person worse. Applying 48 drops every other day will make your child

much worse. Please don't do it.

If you look in the archives here you will find that several parents

have reported switching from the high dose every other day protocol,

to low dose every 8 h.

It sounds like you have made much progress with diet and supplements.

I would add cod liver oil, zinc, vitamin e, vitamin b complex, milk

thistle extract, molybdenum.

It would not be good to use the copper containing supplement without

knowing the copper status in your child. A hair test will tell you

that, along with lots of other useful information.

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

Best of luck

J

>

> We had our first doctor's appointment yesterday to discuss mercury

> detox for our 4yr PDD-NOS daughter. This is the plan that was given.

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every other

> day x 3 doses than collect a stool sample to send to lab to check for

> heavy metals.

>

> Can treat with more transdermal DMPS or Chlorella NDF Plus- Nutritional

> chelator. research this

>

> Follow up in four weeks - ok to do phone consult

>

> I will consider a hair analysis if is positive for mercury.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for lab

> results to come back.

>

> We have been considering going the homeopathic more flushing route

> first instead of using a chelator. Any thoughts?

>

> We are still working on increasing her vit c and hope to get it up to

> 500mg. We are at 350mg today. Her initial reaction to the vit c

> (crossing fingers, hand flapping, weepiness, walking on toes, fever

> blisters and some hyperactivity) has pretty much subsided. She tends to

> get worm again and go back to those behaviors a little bit each time we

> increase the vit c.

>

> is currently on the SCDiet, Houston's enzymes (afp and zyme

> prime chewable and no-fenol, Kirkman's probiotic, oil of oregano, mag

> chlor, egg antigen drops (numerous allergies) and multi-vitamin/mineral.

>

> The doctor seemed to be very rushed yesterday. He did say to be on a

> good muti-vitamin/mineral but this was not discussed further. She is

> currently taking Natural Creations Tiny Tots chewable. It does have 3%

> copper. I can't believe I forgot to ask him about this specific multi.

>

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>

[Guest guest]

Melinda,

I see you've been given some advice I happen to agree with: dump

that doctor. This is why I say that:

The dose of the chelator is huge unless your daughter happens to be

gigantic, which I doubt. The dosing schedule (every other day) is

one most people here think is unwise in that it allows for

redistribution. The multi you're using contains copper--generally a

bad idea for most ASD kids who are high copper, low zinc. Your

doctor, if he wasn't in a rush, should have addressed that with

you. The supplements you use during chelation are important. Not

supplementing well can mean very uncomfortable chelation--a multi is

rarely enough. Not sure why a hair test would be something to be

considered later on. It doesn't hurt and it can give you a ton of

useful information to make better decisions about treatments. He

was rushed. Your daughter's health can't afford a rushed doctor.

Hearing all of us say this must be disheartening, to say the least.

However, there is much you can do while looking for a better

doctor. Order your own hair test. Get supplements up to speed (see

files section under Supplements--end of file). Start chelation

every 8 hours at a very low dosage. People here can help.

Best wishes,

Anita

>

> We had our first doctor's appointment yesterday to discuss mercury

> detox for our 4yr PDD-NOS daughter. This is the plan that was

given.

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every

other

> day x 3 doses than collect a stool sample to send to lab to check

for

> heavy metals.

>

> Can treat with more transdermal DMPS or Chlorella NDF Plus-

Nutritional

> chelator. research this

>

> Follow up in four weeks - ok to do phone consult

>

> I will consider a hair analysis if is positive for mercury.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for

lab

> results to come back.

>

> We have been considering going the homeopathic more flushing route

> first instead of using a chelator. Any thoughts?

>

> We are still working on increasing her vit c and hope to get it up

to

> 500mg. We are at 350mg today. Her initial reaction to the vit c

> (crossing fingers, hand flapping, weepiness, walking on toes,

fever

> blisters and some hyperactivity) has pretty much subsided. She

tends to

> get worm again and go back to those behaviors a little bit each

time we

> increase the vit c.

>

> is currently on the SCDiet, Houston's enzymes (afp and zyme

> prime chewable and no-fenol, Kirkman's probiotic, oil of oregano,

mag

> chlor, egg antigen drops (numerous allergies) and multi-

vitamin/mineral.

>

> The doctor seemed to be very rushed yesterday. He did say to be on

a

> good muti-vitamin/mineral but this was not discussed further. She

is

> currently taking Natural Creations Tiny Tots chewable. It does

have 3%

> copper. I can't believe I forgot to ask him about this specific

multi.

>

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>

[Guest guest]

Comments interspersed.

S S

<tt>

We had our first doctor's appointment yesterday to discuss mercury <BR>

detox for our 4yr PDD-NOS daughter. This is the plan that was given. <BR>

Use transdermal (on skin) DMPS (mercury chelator) 48 drops every other <BR>

day x 3 doses than collect a stool sample to send to lab to check for <BR>

heavy metals.<BR>

*More than a few on this list have had problems (regressions) with every other

day dosing.

<BR>

Can treat with more transdermal DMPS or Chlorella NDF Plus- Nutritional <BR>

chelator. research this<BR>

*I've heard of bad experiences (regressions) with NDF products.

Follow up in four weeks - ok to do phone consult<BR>

<BR>

I will consider a hair analysis if is positive for mercury.<BR>

<BR>

*A hair analysis (Hair Elements from DDI with counting rules applied) provides

mor useful info than stool sample.

TD-DMPS treatment dose 24 drops every other day while waiting for lab <BR>

results to come back.<BR>

<BR>

*See comment above about problems with every other day dosing.

We have been considering going the homeopathic more flushing route <BR>

first instead of using a chelator. Any thoughts?<BR>

<BR>

We are still working on increasing her vit c and hope to get it up to <BR>

500mg. We are at 350mg today. Her initial reaction to the vit c <BR>

(crossing fingers, hand flapping, weepiness, walking on toes, fever <BR>

blisters and some hyperactivity) has pretty much subsided. She tends to <BR>

get worm again and go back to those behaviors a little bit each time we <BR>

increase the vit c.<BR>

<BR>

is currently on the SCDiet, Houston's enzymes (afp and zyme <BR>

prime chewable and no-fenol, Kirkman's probiotic, oil of oregano, mag <BR>

chlor, egg antigen drops (numerous allergies) and multi-vitamin/mineral.<BR>

<BR>

The doctor seemed to be very rushed yesterday. He did say to be on a <BR>

good muti-vitamin/mineral but this was not discussed further. She is <BR>

currently taking Natural Creations Tiny Tots chewable. It does have 3% <BR>

copper. I can't believe I forgot to ask him about this specific multi.<BR>

<BR>

Any thoughts are greatly appreciated.<BR>

Thanks so much, Melinda<BR>

_______________________________________________

Join Excite! - http://www.excite.com

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[Guest guest]

Wow, my son's dose (130 lbs) is 20 drops 3 times a day!

Barb

[ ] SS/ Anyone How does this protocal sound?

> We had our first doctor's appointment yesterday to discuss mercury

> detox for our 4yr PDD-NOS daughter. This is the plan that was given.

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every other

> day x 3 doses than collect a stool sample to send to lab to check for

> heavy metals.

>

> Can treat with more transdermal DMPS or Chlorella NDF Plus- Nutritional

> chelator. research this

>

> Follow up in four weeks - ok to do phone consult

>

> I will consider a hair analysis if is positive for mercury.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for lab

> results to come back.

>

> We have been considering going the homeopathic more flushing route

> first instead of using a chelator. Any thoughts?

>

> We are still working on increasing her vit c and hope to get it up to

> 500mg. We are at 350mg today. Her initial reaction to the vit c

> (crossing fingers, hand flapping, weepiness, walking on toes, fever

> blisters and some hyperactivity) has pretty much subsided. She tends to

> get worm again and go back to those behaviors a little bit each time we

> increase the vit c.

>

> is currently on the SCDiet, Houston's enzymes (afp and zyme

> prime chewable and no-fenol, Kirkman's probiotic, oil of oregano, mag

> chlor, egg antigen drops (numerous allergies) and multi-vitamin/mineral.

>

> The doctor seemed to be very rushed yesterday. He did say to be on a

> good muti-vitamin/mineral but this was not discussed further. She is

> currently taking Natural Creations Tiny Tots chewable. It does have 3%

> copper. I can't believe I forgot to ask him about this specific multi.

>

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

I just want to back up here. I know of several people, one girl in

particular, that has been bedridden for 2 years after doing NDF+.

I have been trying to get well since last June when I accidentally took NDF+

instead of NDF. NDF+ has live probiotics and when swallowed can break the

cell wall of candida in the stomach and methylate it. I have gotten

progressively worse since then, pain and buring all over, loss of

coordination, tunnel vision, seizures, loss of muscle control, etc. Only

doing the DMSA every 3-4 hours has started to turn things around, and it's

taken 4 rounds of it (a week each) to see some improvement.

In my experience you can ONLY take NDF or NDF+ when your urine ph is below

your saliva ph, and then you should only try NDF, and then only a single

drop. Usually you can tell even doing a single drop the effect in 10

minutes.

If I were dead set on trying NDF+, I would not under any circumstances

swallow it. I would just do a drop under my tongue, as that targets the

blood first.

When I started having seizures I would try NDF+, which would stop them for

an hour or so, and then they would come back worse. Also that feeling of

recirculating metals that is very common (where your heart beats hard or

erratically, and you feel waves of vibration or electricity in your body)

NDF+ would clear for 30 minutes and then it would come back twice as bad.

Cheers,

_____

From: [mailto: ]

On Behalf Of lindajaytee

Sent: Saturday, January 21, 2006 4:49 PM

Subject: [ ] Re: SS/ Anyone How does this protocal sound?

Melinda,

The NDF plus will make your child worse. I know this from personal

experience and the experience that others have shared with me.

DMPS must be dosed every 8 h or more frequently in small doses.

Otherwise it will redistribute mercury and other metals and make the

person worse. Applying 48 drops every other day will make your child

much worse. Please don't do it.

If you look in the archives here you will find that several parents

have reported switching from the high dose every other day protocol,

to low dose every 8 h.

It sounds like you have made much progress with diet and supplements.

I would add cod liver oil, zinc, vitamin e, vitamin b complex, milk

thistle extract, molybdenum.

It would not be good to use the copper containing supplement without

knowing the copper status in your child. A hair test will tell you

that, along with lots of other useful information.

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

Best of luck

J

>

> We had our first doctor's appointment yesterday to discuss mercury

> detox for our 4yr PDD-NOS daughter. This is the plan that was given.

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every other

> day x 3 doses than collect a stool sample to send to lab to check for

> heavy metals.

>

> Can treat with more transdermal DMPS or Chlorella NDF Plus- Nutritional

> chelator. research this

>

> Follow up in four weeks - ok to do phone consult

>

> I will consider a hair analysis if is positive for mercury.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for lab

> results to come back.

>

> We have been considering going the homeopathic more flushing route

> first instead of using a chelator. Any thoughts?

>

> We are still working on increasing her vit c and hope to get it up to

> 500mg. We are at 350mg today. Her initial reaction to the vit c

> (crossing fingers, hand flapping, weepiness, walking on toes, fever

> blisters and some hyperactivity) has pretty much subsided. She tends to

> get worm again and go back to those behaviors a little bit each time we

> increase the vit c.

>

> is currently on the SCDiet, Houston's enzymes (afp and zyme

> prime chewable and no-fenol, Kirkman's probiotic, oil of oregano, mag

> chlor, egg antigen drops (numerous allergies) and multi-vitamin/mineral.

>

> The doctor seemed to be very rushed yesterday. He did say to be on a

> good muti-vitamin/mineral but this was not discussed further. She is

> currently taking Natural Creations Tiny Tots chewable. It does have 3%

> copper. I can't believe I forgot to ask him about this specific multi.

>

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>

=======================================================

[Guest guest]

Melinda,

As may have already heard that dose and protocol prescribed seems

way out of range.

We are not using DMPS but we are using DMSA/ALA (Andy's low dose

protocol) for almost a year now, and we are still seeing great

progress with every round.

But would like to comment from what I believe most are doing from

what I have read. (anyone please correct me if I may be wrong)

Most people pretty much are taking that original 48 drops with the

every other day protocol and dividing it half which would be 24

drops per day dividing it by 3 doses every 8 hours .

Which would = 8 drops 3 times daily for 3 days on 4 days off. That

would be the MAXIMUM dose.

I would like to mention that that is at the upper range if im not

mistaken most start off with more like 2-3 drops per dose and work

their way up. You don't need much of a chelator to pull metals out

of the body it is the frequency of the dose that is more important

than the amount of dose. Please consider what most here are

saying .Like I said we are doing a low dose and still seeing gains

with every round.

Kenny V

>

> We had our first doctor's appointment yesterday to discuss mercury

> detox for our 4yr PDD-NOS daughter. This is the plan that was

given.

> Use transdermal (on skin) DMPS (mercury chelator) 48 drops every

other

> day x 3 doses than collect a stool sample to send to lab to check

for

> heavy metals.

>

> Can treat with more transdermal DMPS or Chlorella NDF Plus-

Nutritional

> chelator. research this

>

> Follow up in four weeks - ok to do phone consult

>

> I will consider a hair analysis if is positive for mercury.

>

> TD-DMPS treatment dose 24 drops every other day while waiting for

lab

> results to come back.

>

> We have been considering going the homeopathic more flushing route

> first instead of using a chelator. Any thoughts?

>

> We are still working on increasing her vit c and hope to get it up

to

> 500mg. We are at 350mg today. Her initial reaction to the vit c

> (crossing fingers, hand flapping, weepiness, walking on toes,

fever

> blisters and some hyperactivity) has pretty much subsided. She

tends to

> get worm again and go back to those behaviors a little bit each

time we

> increase the vit c.

>

> is currently on the SCDiet, Houston's enzymes (afp and zyme

> prime chewable and no-fenol, Kirkman's probiotic, oil of oregano,

mag

> chlor, egg antigen drops (numerous allergies) and multi-

vitamin/mineral.

>

> The doctor seemed to be very rushed yesterday. He did say to be on

a

> good muti-vitamin/mineral but this was not discussed further. She

is

> currently taking Natural Creations Tiny Tots chewable. It does

have 3%

> copper. I can't believe I forgot to ask him about this specific

multi.

>

> Any thoughts are greatly appreciated.

> Thanks so much, Melinda

>