MS seminar in San Francisco on Friday

September 30, 2007

meant to post this earlier but been crazy busy.

It was a bit chaotic as as well as doctors talking and showing

slides, there were people doing a 150 bike ride and they were all

registering.

Very noisy and very cold - in a huge tent on the coldest night of

the year so far!

There were some neuro`s from UCSF there (including `s doctor)

and a representative from the MS society. NOthing much new but we

did get a chance to ask a question about how the LDN trial at UCSF

went. The main doctor was not there but they are hoping to publish

the results soon. did go and have a private chat with the

MS society guy and asked him if they have or were planning to put

any money into LDN research and he said yes but was not specific in

any way. There was some talk about genetics - some talk of some new

eye testing (which has had done) which shows the back of the

eye and shows damage to the optial nerve etc. Most of it way above

my head I`m afraid. I didnt hear Tysabri mentioned once! A person

asked about diet and MS and all of the doctors were fairly dismisive

which was very sad. They said that they know lots of people follow

certain " MS " diets but there is no proof that any of them help,

according to them. Sad they they dont promote healthy eating

generally and at least say that avoiding loads of saturated animal

fats etc is bad. There was talk of people with MS having vit D

deficiency sometimes but there was no clear knowledge of how much

would be the correct amount anyway!

It`s a real shame that no trials ever seems to get done regarding

nutrition/diet and MS.

So, thats all.....the pasta dinner was OK but thats highly

irrelevant!

Sorry to all the non MS folks but I wanted to report back as much as

I knew, which wasnt a whole lot!

Bev

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